Advances in Patient Reported Outcomes: The NIH PROMIS Measures
Open accessAbstract
Patient reported outcomes (PROs) are questionnaire measures of patients’ symptoms, functioning, and health-related quality of life. They are designed to provide important clinical information that generally cannot be captured with objective medical testing. Recent legislative developments in the United States support greater efforts to include patients’ reports of health experience to evaluate treatment outcomes, engage in shared decision-making, and prioritize the focus of treatment. PROs have garnered increased attention by the Food and Drug Administration (FDA) for evaluating drugs and medical devices. Recent calls for comparative effectiveness research favor inclusion of PROs. In 2004, the National Institutes of Health launched a research initiative to improve the clinical research enterprise by developing state-of-the-art PROs. The NIH Patient Reported Outcomes Measurement System (PROMIS) and Assessment Center are the products of that initiative. Adult, pediatric, and parent-proxy item banks have been developed using contemporary psychometric methods, yielding rapid, accurate measurement. PROMIS currently provides tools for assessing physical, mental, and social health using short-form and computer adaptive testing methods. The PROMIS tools are being adopted for use in clinical trials and translational research. They are also being introduced in clinical medicine to assess a broad range of disease outcomes. There is potential for use of PROs to improve quality of care and disease outcomes, to provide patient-centered assessment for comparative effectiveness research, and to enable a common metric for tracking outcomes across providers and medical systems.
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“related quality of life, among other indicators of well-being not generally identified with traditional medical testing.(11,20,21) When clinicians systematically collect PROs, it can aid in detection and management of conditions,(13,14) improve satisfaction with care,(15) and more closely align providers’ and patients…”
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“The majority of questions were taken from: (1) the National Health Interview Survey (NHIS) [29]; (2) the National Health and Nutrition Examination Survey (NHANES) [26]; (3) the Behavioral Risk Factor Surveillance System (BRFSS) [30]; (4) Behavioral Risk Factor Surveillance System (BRFSS ACE module) [31]; (5) Patient H…”
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Padidela, R., Whyte, M. P., Glorieux, F. H., Munns, C. F., Ward, L. M., Nilsson, O., Portale, A. A., Simmons, J. H., Namba, N., Cheong, H. I., et al. (2021) · Calcified Tissue International · doi:10.1007/s00223-020-00797-x · Cited by 48 · see citing works
Atreya, C. E., Kubo, A., Borno, H. T., Rosenthal, B., Campanella, M., Rettger, J. P., Joseph, G., Allen, I. E., Venook, A. P., Altschuler, A., et al. (2018) · PLoS ONE · doi:10.1371/journal.pone.0199423 · Cited by 47 · see citing works
Facioscapulohumeral muscular dystrophy functional composite outcome measure
Eichinger, K. J., Heatwole, C. R., Iyadurai, S. J. P., King, W. M., Baker, L., Heininger, S., Bartlett, A., Dilek, N., Martens, W. B., McDermott, M., et al. (2018) · Muscle & Nerve · doi:10.1002/mus.26088 · Cited by 45 · see citing works
Mills, P. J., Peterson, C. T., Wilson, K. L., Pung, M. A., Patel, S., Weiss, L., Kshirsagar, S. G., Tanzi, R. E., & Chopra, D. (2018) · Journal of Ayurveda and Integrative Medicine · doi:10.1016/j.jaim.2018.02.001 · Cited by 43 · see citing works
“An 8-item scale that is part of the National Institute of Health research initiative, the Patient-Reported Outcomes Measurement System (PROMIS) and Assessment Center, assessing the full range of anxiety symptoms [14].”
BackgroundClinical Utility of Patient-Reported Outcome Measurement Information System Domain Scales
Lapin, B. R., Thompson, N. R., Schuster, A. T., & Katzan, I. L. (2018) · Circulation Cardiovascular Quality and Outcomes · doi:10.1161/circoutcomes.118.004753 · Cited by 43 · see citing works
“To ensure the PGIC question was an adequate anchor for PROMIS scales, we confirmed 3 criteria for useable anchor-based estimates: (1) PGIC effect size between 0.”
BackgroundMethodClinimetric Dilemmas in Outcome Scales for Mental Disorders
Bech, P. (2016) · Psychotherapy and Psychosomatics · doi:10.1159/000448810 · Cited by 42 · see citing works
Gilam, G., Cramer, E. M., Weber, K., II, Ziadni, M. S., Kao, M. J., & Mackey, S. (2021) · Science Advances · doi:10.1126/sciadv.abj0320 · Cited by 40 · see citing works
Bertisch, H. C., Rivara, F. P., Kisala, P. A., Wang, J., Yeates, K. O., Durbin, D. R., Zonfrillo, M. R., Bell, M. J., Temkin, N. R., & Tulsky, D. S. (2017) · Quality of Life Research · doi:10.1007/s11136-017-1524-6 · Cited by 41 · see citing works
McMullen, K. A., Bamer, A. M., Ryan, C. M., Schneider, J. C., Gibran, N. S., Stewart, B. T., Mroz, T. M., Wolf, S., & Amtmann, D. (2021) · The Journal of Trauma: Injury, Infection, and Critical Care · doi:10.1097/ta.0000000000003365 · Cited by 40 · see citing works
Altered Cervical Spinal Cord Resting‐State Activity in Fibromyalgia
Martucci, K. T., Weber, K. A., II, & Mackey, S. (2018) · Arthritis & Rheumatology · doi:10.1002/art.40746 · Cited by 39 · see citing works
“Information System (PROMIS) fatigue measure (21), and the Short”
BackgroundSubnis, U. B., Farb, N. A., Piedalue, K.-A. L., Speca, M., Lupichuk, S., Tang, P. A., Faris, P., Thoburn, M., Saab, B. J., & Carlson, L. E. (2020) · JMIR Research Protocols · doi:10.2196/15178 · Cited by 37 · see citing works
“The advantage of using PROMIS measures is that they are psychometrically sound and have been created to be relevant across all conditions for the assessment of symptoms and functions [45].”
MethodJohnston, K. L., Lawrence, S. M., Dodds, N. E., Yu, L., Daley, D. C., & Pilkonis, P. A. (2015) · Quality of Life Research · doi:10.1007/s11136-015-1131-3 · Cited by 37 · see citing works
Valosek, L., Wendt, S. J., Link, J., Abrams, A. I., Hipps, J., Grant, J., Nidich, R., Loiselle, M., & Nidich, S. I. (2021) · Frontiers in Education · doi:10.3389/feduc.2021.627923 · Cited by 36 · see citing works
“The National Institutes of Health Patient-Reported Outcomes Measurement Information System (NIH PROMIS) fatigue (10- item) and depression (8-item) scales were used as additional secondary outcomes for physical health and mental health, respectively (Broderick et al., 2013).”
MethodSocial Deprivation and Congenital Upper Extremity Differences—An Assessment Using PROMIS
Wall, L. B., Wright, M. A., Samora, J. B., Bae, D. S., Steinman, S. E., & Goldfarb, C. A. (2020) · The Journal Of Hand Surgery · doi:10.1016/j.jhsa.2020.08.017 · Cited by 35 · see citing works
Revisions to the IASP definition of pain—What does this mean for children?
Stevens, B. (2021) · Paediatric and Neonatal Pain · doi:10.1002/pne2.12047 · Cited by 35 · see citing works
Speech Perceptions and Health-Related Quality of Life Among Children With Cleft Lip and Palate
Bickham, R. S., Ranganathan, K., Wombacher, N. R., Shapiro, D. N., Carlozzi, N. E., Baker, M. K., Vercler, C. J., Warschausky, S. A., Buchman, S. R., & Waljee, J. F. (2017) · Journal of Craniofacial Surgery · doi:10.1097/scs.0000000000003718 · Cited by 35 · see citing works
Patient and healthcare provider views on a patient-reported outcomes portal
Cronin, R. M., Conway, D., Condon, D. M., Jerome, R. N., Byrne, D. W., & Harris, P. A. (2018) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocy111 · Cited by 35 · see citing works
Assessment of Heart Failure Patients’ Interest in Mobile Health Apps for Self-Care: Survey Study
Sohn, A., Speier, W. F., Lan, E. H., Aoki, K., Fonarow, G. C., Ong, M. K., & Arnold, C. W. (2019) · JMIR Cardio · doi:10.2196/14332 · Cited by 35 · see citing works
Joeris, A., Knoll, C., Kalampoki, V., Blumenthal, A. L., & GASKELL, G. D. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-020629 · Cited by 34 · see citing works
“By using sophisticated algorithms, item selection is automatically matched to the health level of respondents, and the number of questions is reduced to a minimum.(1) 5–7 35 36 Available PROMIS instruments are useful for patients in the field of orthopaedics and traumatology (eg, the physical function CAT and pain int…”
BackgroundMethodInfluentialMajor adverse renal events (MARE): a proposal to unify renal endpoints
Prischl, F. C., Rossing, P. R., Bakris, G. L., Mayer, G. J., & Wanner, C. (2019) · Nephrology Dialysis Transplantation · doi:10.1093/ndt/gfz212 · Cited by 34 · see citing works
NIH HEAL Common Data Elements (CDE) implementation: NIH HEAL Initiative IDEA-CC
Adams, M. C. B., Hurley, R. W., Siddons, A., Topaloĝlu, Ü., Wandner, L. D., ICDEWG, Adams, M. C. B., Arnsten, J. H., Bao, Y., Barry, D. T., et al. (2023) · Pain Medicine · doi:10.1093/pm/pnad018 · Cited by 33 · see citing works
Performance of Pediatric PROMIS CATs in Children With Upper Extremity Fractures
Gerull, W. D., Okoroafor, U. C., Guattery, J. M., Goldfarb, C. A., Wall, L. B., & Calfee, R. P. (2018) · Hand · doi:10.1177/1558944718793195 · Cited by 33 · see citing works
“The pediatric PROMIS Physical Function assessment is comprised of individual mobility and upper extremity (UE) assessments that produce separate component scores.(4,9,14,20) In the pediatric population, a selfreport version can be completed by the child (8-17 years old) or a parent-proxy version can be completed by a…”
BackgroundMethodPatient Reported Outcomes as Indicators of Pediatric Health Care Quality
Bevans, K. B., Moon, J., Carle, A. C., Mara, C. A., Lai, J., DiMarco, L., Müller, N., & Woods, D. M. (2014) · Academic Pediatrics · doi:10.1016/j.acap.2014.06.002 · Cited by 32 · see citing works
Sleep Quality and Emotion Regulation Interact to Predict Anxiety in Veterans with PTSD
Mantua, J., Helms, S. M., Weymann, K. B., Capaldi, V. F., & Lim, M. M. (2018) · Behavioural Neurology · doi:10.1155/2018/7940832 · Cited by 31 · see citing works
“The main analyses were conducted using several self-reported questionnaires: (1) Emotion Regulation Questionnaire (ERQ) [12], (2) National Institutes of Health Patient-Reported Outcomes Measurement Information System (NIH PROMIS) anxiety items [13], and (3) Insomnia Severity Index (ISI) [14].”
MethodBossche, D. V., Lagaert, S., Willems, S. J. T., & Decat, P. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18063097 · Cited by 31 · see citing works
“Sample sizes were based on detecting a between-arm difference in mean change from baseline in PROMIS emotional support, social isolation, ability to participate in social roles and activities and anxiety T-scores at 8 weeks of 5 points, the meaningful change for this instrument [46,47].”
MethodImplementing PROMs in routine clinical care: a qualitative exploration of GP perspectives
Litchfield, I. J., Greenfield, S., Turner, G., Finnikin, S., & Calvert, M. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101135 · Cited by 30 · see citing works
Psychosocial Effects of a Holistic Ayurvedic Approach to Well-being in Health and Wellness Courses
Patel, S., Klagholz, S., Peterson, C. T., Weiss, L., Chopra, D., & Mills, P. J. (2019) · Global Advances In Health and Medicine · doi:10.1177/2164956119843814 · Cited by 29 · see citing works
“Institutes of Health research initiative, the PROMIS, and Assessment Center, assessing a range of anxiety symptoms.(28) Additionally, data on age, gender, and number of months practicing meditation and/or number of months practicing yoga were obtained (Table 1).”
MethodIntegrating remote monitoring into heart failure patients’ care regimen: A pilot study
Sohn, A., Speier, W. F., Lan, E. H., Aoki, K., Fonarow, G. C., Ong, M. K., & Arnold, C. W. (2020) · PLoS ONE · doi:10.1371/journal.pone.0242210 · Cited by 27 · see citing works
Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
Marchi, F. D., Berry, J. D., Chan, J. G. M., Caldwell, S., Ellrodt, A. S., Scalia, J., Burke, K. M., Fang, T., Sisodia, R. C., Schwamm, L. H., et al. (2020) · Journal of Neurology · doi:10.1007/s00415-020-09774-8 · Cited by 28 · see citing works
“Two PROM questionnaires were administered: the PROMIS-10 and the Quality of Life in Neurological Disorders-fatigue subscale (NeuroQoL-fatigue) [18].”
MethodHarris‐Hayes, M., Steger-May, K., Bove, A. M., Foster, S. N., Mueller, M. J., Clohisy, J. C. F., & Fitzgerald, G. K. (2020) · BMJ Open Sport & Exercise Medicine · doi:10.1136/bmjsem-2019-000707 · Cited by 28 · see citing works
Wong, L. H., & Meeker, J. E. (2022) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-021-00407-w · Cited by 28 · see citing works
“…Institute of Health (NIH) Patient Reported Outcomes Measurement Information System (PROMIS) was developed to deliver standardized, precise, quantitative values for individual domains of health and well-being [4], and has great potential to improve understandings of PROs in orthopaedic cases.”
MethodFinding ikigai: How robots can support meaning in later life
Randall, N., Joshi, S., Kamino, W., Hsu, L.-J., Agnihotri, A., Li, G., Williamson, D. S., Tsui, K., & Šabanović, S. (2022) · Frontiers in Robotics and AI · doi:10.3389/frobt.2022.1011327 · Cited by 27 · see citing works
Santiago, J., Akeman, E., Kirlić, N., Clausen, A. N., Cosgrove, K. T., McDermott, T. J., Mathis, B. K., Paulus, M. P., Craske, M. G., Abelson, J. L., et al. (2020) · Trials · doi:10.1186/s13063-019-3802-9 · Cited by 26 · see citing works
“NIH PROMIS® [64] and Toolbox® [65] measures Table 2 Diagnostic, demographic, self-report, behavioral, and neuroimaging assessments (Continued)”
MethodWesley, D. B., Blumenthal, J., Shah, S., Littlejohn, R., Pruitt, Z. M., Dixit, R. A., Hsiao, C., Dymek, C., & Ratwani, R. M. (2021) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocab110 · Cited by 26 · see citing works
Patient-centred outcomes of imaging tests: recommendations for patients, clinicians and researchers
Thompson, M. J., Suchsland, M. Z., Hardy, V., Lavallee, D. C., Lord, S. J., Devine, E. B., Jarvik, J. G., Findlay, S. D., Trikalinos, T. A., Walter, F. M., et al. (2021) · BMJ Quality & Safety · doi:10.1136/bmjqs-2021-013311 · Cited by 26 · see citing works
Self-Reported Health Outcomes of Children and Youth with 10 Chronic Diseases
Forrest, C. B., Schuchard, J., Bruno, C., Amaral, S. G., COX, E. D., Flynn, K. E., Hinds, P. S., Huang, I., Kappelman, M. D., Krishnan, J. A., et al. (2022) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2022.02.052 · Cited by 26 · see citing works
Self-citationEllison, J. S., Lorenzo, M., Beck, H., Beck, R., Chu, D. I., Forrest, C. B., Huang, J. Y., Kratchman, A. L., Kurth, A., Kurth, L., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-056789 · Cited by 26 · see citing works
Self-citationTsangaris, E., Edelen, M. O., Means, J., Gregorowitsch, M. L., O’Gorman, J., Pattanaik, R., Dominici, L. S., Hassett, M. J., Witkowski, M. L., Schrieber, K., et al. (2022) · BMJ Surgery Interventions & Health Technologies · doi:10.1136/bmjsit-2021-000119 · Cited by 27 · see citing works
“32 33 Seamless integration with the EHR, including the ability for providers to easily make direct referrals (eg, to physical therapy or social work) based on PRO scores, is generally lacking.”
BackgroundGavigan, K., Nowell, W. B., Serna, M. S., Stark, J. L., Yassine, M., & Curtis, J. R. (2020) · Arthritis Research & Therapy · doi:10.1186/s13075-019-2076-7 · Cited by 24 · see citing works
“Participants completed four patientreported outcome (PRO) measures included in the Patient-Reported Outcomes Measurement Information System – Computerized Adaptive Tests (PROMIS-CATs): Pain Interference, Fatigue, Sleep Disturbance, and Physical Function [10].”
MethodLapin, B. R., Honomichl, R. D., Thompson, N. R., Rose, S. L., Sugano, D., Udeh, B. L., & Katzan, I. L. (2019) · Value in Health · doi:10.1016/j.jval.2019.02.007 · Cited by 25 · see citing works
Idio Scale Judgment: evaluation of a new method for estimating responder thresholds
Cook, K. F., Kallen, M. A., Coon, C. D., Victorson, D. E., & Miller, D. M. (2017) · Quality of Life Research · doi:10.1007/s11136-017-1625-2 · Cited by 23 · see citing works
Miyamoto, S., Dharmar, M., Fazio, S., Tang-Feldman, Y. J., & Young, H. M. (2018) · JMIR Research Protocols · doi:10.2196/resprot.9168 · Cited by 23 · see citing works
Mawla, I., Huang, Z., Kaplan, C. M., Ichesco, E., Waller, N., Larkin, T. E., Zöllner, H. J., Edden, R. A. E., Harte, S. E., Clauw, D. J., et al. (2023) · Pain · doi:10.1097/j.pain.0000000000002973 · Cited by 26 · see citing works
Randall, N., Kamino, W., Joshi, S., Chen, W.-C., Hsu, L.-J., Tsui, K. M., & Šabanović, S. (2023) · JMIR Aging · doi:10.2196/45442 · Cited by 24 · see citing works
An Overview of the Traumatic Brain Injury–Quality of Life (TBI-QOL) Measurement System
Tulsky, D. S., & Kisala, P. A. (2019) · Journal of Head Trauma Rehabilitation · doi:10.1097/htr.0000000000000531 · Cited by 23 · see citing works
A Systematic Review of the Outcomes Used to Assess Upper Body Lymphedema
Sierla, R., Dylke, E. S., & Kilbreath, S. L. (2018) · Cancer Investigation · doi:10.1080/07357907.2018.1517362 · Cited by 22 · see citing works
“Patientreported outcomes are gaining recognition for their importance in health-related research (70), particularly for chronic disease management (71).”
BackgroundDragomanovich, H. M., Dhruva, A., Ekman, E., Schoenbeck, K. L., Kubo, A., Van Blarigan, E. L., Borno, H. T., Esquivel, M., Chee, B., Campanella, M., et al. (2021) · Global Advances in Health and Medicine · doi:10.1177/21649561211044693 · Cited by 20 · see citing works
“0) Time to death, months (median, range) 6 (1-13) Distance from home to UCSF, miles (median, range) 25 (1-2340) Lives outside San Francisco (N, %) 36 (78.”
BackgroundMethodHirten, R. P., Danieletto, M., Landell, K., Zweig, M., Golden, E., Pyzik, R., Kaur, S., Chang, H. L., Helmus, D. S., Sands, B. E., et al. (2024) · JMIR Mental Health · doi:10.2196/55552 · Cited by 20 · see citing works
“Higher scores reflect higher degrees of positive affect and well-being [63].”
BackgroundMoallef, S., Homayra, F., Milloy, M., Bird, L., Nosyk, B., & Hayashi, K. (2020) · Substance Abuse · doi:10.1080/08897077.2020.1846667 · Cited by 19 · see citing works
Fishbein, A. B., Lor, J., Penedo, F. J., Forrest, C. B., Griffith, J. W., & Paller, A. S. (2020) · Journal of the American Academy of Dermatology · doi:10.1016/j.jaad.2020.05.138 · Cited by 19 · see citing works
Self-citationEijsink, J. F. H., Fabian, A., Vervoort, J. P. M., Khayat, M. N. M. T. A., Boersma, C., & Postma, M. J. (2022) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1080/14737167.2023.2136168 · Cited by 18 · see citing works
Determining the Effectiveness of Using Patient-Reported Outcomes in Pediatric Clinical Practices
Cheng, L., Kang, Q., Wang, Y., & Hinds, P. S. (2020) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2020.07.005 · Cited by 18 · see citing works
The use of the Core Outcome Measures Index (COMI) in patients undergoing total knee replacement
Impellizzeri, F. M., Leunig, M., Preiß, S., Guggi, T., & Mannion, A. F. (2016) · The Knee · doi:10.1016/j.knee.2016.11.016 · Cited by 17 · see citing works
Erez, D. L., Meyers, M. R., Raman, S., Thomas, M. J., Furth, S. L., Forrest, C. B., & Denburg, M. (2022) · Frontiers in Pediatrics · doi:10.3389/fped.2022.864134 · Cited by 17 · see citing works
Self-citationHarle, C. A., Lipori, G. P., & Hurley, R. W. (2016) · eGEMs (Generating Evidence & Methods to improve patient outcomes) · doi:10.13063/2327-9214.1240 · Cited by 17 · see citing works
Ahmad, F. A., Payne, P., Lackey, I. T., Komeshak, R., Kenney, K., Magnusen, B., Metts, C. L., & Bailey, T. C. (2019) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocz182 · Cited by 17 · see citing works
Kimberly, L. L., Alfonso, A. R., Ramly, E. P., Kantar, R. S., Caplan, A. L., & Rodriguez, E. D. (2019) · The AMA Journal of Ethic · doi:10.1001/amajethics.2019.980 · Cited by 17 · see citing works
Kelley, T. M., Hollows, J., Lambert, E. G., Savard, D. M., & Pransky, J. B. (2017) · International Journal of Offender Therapy and Comparative Criminology · doi:10.1177/0306624x17735253 · Cited by 16 · see citing works
Concept and Measurement of Pediatric Value
Forrest, C. B., & Silber, J. H. (2014) · Academic Pediatrics · doi:10.1016/j.acap.2014.03.013 · Cited by 16 · see citing works
Self-citationThe effect of EHR-integrated patient-reported outcomes on satisfaction with chronic pain care.
Harle, C. A., Marlow, N. M., Schmidt, S. O., Shuster, J. J., Listhaus, A., Fillingim, R. B., & Hurley, R. W. (2016) · PubMed · Cited by 16 · see citing works
Detecting Non-cognitive Features of Prodromal Neurodegenerative Diseases
Seifan, A., Ganzer, C. A., Ryon, K. A., Lin, M. K., Mahmudur, R., Henriquez, A. M., Shih, C., Jacobs, A. R., Greenwald, M., & Isaacson, R. (2019) · Current Aging Science · doi:10.2174/1874609812666190204094233 · Cited by 16 · see citing works
“The standardized assessment included National Institutes of Health Patient Reported Outcomes Measurement & Information System (NIH PROMIS) scales assessing depression, anxiety, alcohol use, and sleep [19], as well as other validated scales measuring sleep and perceived stress [20, 21].”
MethodInterpreting Patient-Reported Outcome Scores: Pediatric Inflammatory Bowel Disease as a Use Case
Schuchard, J., Carle, A. C., Kappelman, M. D., Tucker, C. A., & Forrest, C. B. (2022) · Academic Pediatrics · doi:10.1016/j.acap.2021.12.029 · Cited by 16 · see citing works
Self-citationWilliams, Z. J., Cascio, C. J., & Woynaroski, T. G. (2022) · Autism · doi:10.1177/13623613221085364 · Cited by 18 · see citing works
“The PROMIS Global–10 (short form version 1.2; Hays et al., 2009) is a 10-item measure of general QoL developed as a part of the National Institutes of Health PROMIS initiative (Broderick et al., 2013; Cella et al., 2010).”
MethodInfluentialSavitz, J. B., Ford, B. N., Yeh, H., Akeman, E., Cosgrove, K. T., Clausen, A. N., Martell, C. R., Kirlić, N., Santiago, J., Teague, T. K., et al. (2020) · Psychological Medicine · doi:10.1017/s0033291720004389 · Cited by 15 · see citing works
- Authors
- Broderick, J., DeWit, E. M., Rothrock, N., Crane, P., & Forrest, C. B.
- Affiliations
- Stony Brook University (US)
- Northwestern University (US)
- University of Washington (US)
- University of Pennsylvania (US)
- Venue
- eGEMs (Generating Evidence & Methods to improve patient outcomes)
- Publisher
- Ubiquity Press, Ltd.
- Published
- 2013-02-08
- Volume
- 1
- Issue
- 1
- Pages
- 12
- ISSN
- 2327-9214 (ISSN-L)
- PMC
- PMC4371419
- OpenAlex
- W1908118904
- Cited by
- 244
- References
- 54
- Citations by year
- 2026: 6 · 2025: 13 · 2024: 25 · 2023: 23 · 2022: 34 · 2021: 31 · 2020: 26 · 2019: 21 · 2018: 25 · 2017: 14 · 2016: 10 · 2015: 5 · 2014: 10
- FWCI
- 11.40
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Licence
- cc-by-nc-nd
- Locations
- eGEMs (Generating Evidence & Methods to improve patient outcomes) (publishedVersion, cc-by-nc-nd)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Children's Hospital of Philadelphia (U01AR057956)
- Northwestern University (U54AR057951, U54AR057943, U01AR052177)
- University of Washington (U01AR052171, U01AR057954)
- University of Pittsburgh (U01AR052155)
- Georgetown University (U01AR057971)
- Australian Government
- National Institutes of Health (5u01ar057940-04, U01AR057940)
- University of California, Los Angeles (U01AR057936)
- University of North Carolina at Chapel Hill (U01AR052181)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (U01AR052171, U01AR057956, U01AR057967, U01AR052186, U01-AR-057940, U01AR057936, U54AR057943, U01AR057929, U01AR052170, U01AR052158, U01AR052155, U01AR052177, U01AR052181, U01AR057971, U01AR057954, U01AR057948, U54AR057926, U54AR057951)
- Common Fund
- Topics
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Social Sciences › Education › Health Education and Validation
- Keywords
- patient-reported outcomes, PROMIS, item bank, computerized adaptive testing, health-related quality of life, physical function, mental health, social health, shared decision-making, comparative effectiveness research, patient-centered outcomes, outcome measurement
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