The DOI matches its Crossref record; 23 of the 23 references it cites were found in a registry or an index.
The Disproportionate Impact Of Dementia On Family And Unpaid Caregiving To Older Adults
Open accessAbstract
The number of US adults ages sixty-five and older who are living with dementia is substantial and expected to grow, raising concerns about the demands that will be placed on family members and other unpaid caregivers. We used data from the 2011 National Health and Aging Trends Study and its companion study, the National Study of Caregiving, to investigate the role of dementia in caregiving. We found that among family and unpaid caregivers to older noninstitutionalized adults, one-third of caregivers, and 41 percent of the hours of help they provide, help people with dementia, who account for about 10 percent of older noninstitutionalized adults. Among older adults who receive help, the vast majority in both community and residential care settings other than nursing homes rely on family or unpaid caregivers (more than 90 percent and more than 80 percent, respectively), regardless of their dementia status. Caregiving is most intense, however, to older adults with dementia in community settings and from caregivers who are spouses or daughters or who live with the care recipient.
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“Most caregivers (66%) live with the person with dementia in the community.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Of these individuals, nearly half live alone, perhaps making it more difficult to ask for and receive informal care.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Over one-third of dementia caregivers are daughters caring for a parent.394,402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“30% of older adults with dementia rely on three or more unpaid caregivers, whereas 23% of older adults without dementia do so.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Only a small percentage of older adults with dementia do not receive help from family members or other informal care providers (8%).”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
Experimental — accuracy not yet measured
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Only a small percentage (8%) of older adults with dementia do not receive help from family members or other informal care providers.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Individuals with dementia living in the community are more likely than older adults without dementia to rely on multiple unpaid caregivers (often family members); 30% of older adults with dementia rely on three or more unpaid caregivers, whereas 23% of older adults without dementia do so.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Over one‐third of dementia caregivers in the United States are daughters caring for a parent.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
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“According to another study, well over half (57%) of family caregivers of people with Alzheimer's or other dementias living in the community had provided care for four or more years.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“On average, female caregivers spend more time caregiving than male caregivers.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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In the citing paper
“On average, female caregivers spend more time caregiving than male caregivers.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
Experimental — accuracy not yet measured
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Citations
Cites
Hearing loss and cognitive decline in older adults
Lin, F. R., Yaffe, K., Xia, J., Xue, Q.-L., Harris, T. B., Purchase-Helzner, E., Satterfield, S., Ayonayon, H. N., Ferrucci, L., Simonsick, E. M., et al. (2013) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.1868 · Cited by 4,017
Alzheimer disease in the United States (2010–2050) estimated using the 2010 census
Hebert, L. E., Weuve, J., Scherr, P. A., & Evans, D. A. (2013) · Neurology · doi:10.1212/wnl.0b013e31828726f5 · Cited by 2,642
Prevalence of Dementia in the United States: The Aging, Demographics, and Memory Study
Plassman, B. L., Langa, K. M., Fisher, G. G., Heeringa, S. G., Weir, D. R., Ofstedal, M. B., Burke, J. R., Hurd, M. D., Potter, G. G., Rodgers, W. L., et al. (2007) · Neuroepidemiology · doi:10.1159/000109998 · Cited by 1,932
Monetary Costs of Dementia in the United States
Hurd, M. D., Martorell, P., Delavande, A., Mullen, K. J., & Langa, K. M. (2013) · New England Journal of Medicine · doi:10.1056/nejmsa1204629 · Cited by 1,484
Family Caregiving of Persons With Dementia: Prevalence, Health Effects, and Support Strategies
Schulz, R., & Martire, L. M. (2004) · The American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200405000-00002 · Cited by 1,189
Dementia incidence continues to increase with age in the oldest old: The 90+ study
Corrada, M. M., Brookmeyer, R., Paganini‐Hill, A., Berlau, D., & Kawas, C. H. (2010) · Annals of Neurology · doi:10.1002/ana.21915 · Cited by 523
Validity and reliability of the AD8 informant interview in dementia
Galvin, J. E., Roe, C. M., Xiong, C., & Morris, J. C. (2006) · Neurology · doi:10.1212/01.wnl.0000247042.15547.eb · Cited by 507
Lin, J. S., O’Connor, E., Rossom, R. C., Perdue, L. A., & Eckstrom, E. (2013) · Annals of Internal Medicine · doi:10.7326/0003-4819-159-9-201311050-00730 · Cited by 433
Caregivers of Frail Elders: Updating a National Profile
Wolff, J. L., & Kasper, J. D. (2006) · The Gerontologist · doi:10.1093/geront/46.3.344 · Cited by 391
Self-citationImplementing a screening and diagnosis program for dementia in primary care
Boustani, M., Callahan, C. M., Unverzagt, F. W., Austrom, M. G., Perkins, A. J., Fultz, B. A., Hui, S. L., & Hendrie, H. C. (2005) · Journal of General Internal Medicine · doi:10.1007/s11606-005-0103-7 · Cited by 374
Cited by
Sorted by citations
2016 Alzheimer's disease facts and figures
Alzheimer's Association (2016) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2016.03.001 · Cited by 5,069
2023 Alzheimer's disease facts and figures
(2023) · Alzheimer's & Dementia · doi:10.1002/alz.13016 · Cited by 3,212
2024 Alzheimer's disease facts and figures
(2024) · Alzheimer's & Dementia · doi:10.1002/alz.13809 · Cited by 2,536
2019 Alzheimer’s disease facts and figures.
Alzheimer's Association (2019) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2019.01.010 · Cited by 2,461
2020 Alzheimer's disease facts and figures
(2020) · Alzheimer's & Dementia · doi:10.1002/alz.12068 · Cited by 2,353
Metadata
- Authors
- Kasper, J. D., Freedman, V. A., Spillman, B. C., & Wolff, J. L.
- Affiliations
- Johns Hopkins University (US)
- University of Michigan (US)
- Urban Institute (US)
- Venue
- Health Affairs
- Publisher
- Health Affairs Publishing, LLC
- Published
- 2015-10
- Volume
- 34
- Issue
- 10
- Pages
- 1642-1649
- ISSN
- 0278-2715 (ISSN-L)
- 1544-5208
- PMC
- PMC4635557
- OpenAlex
- W2298583712
- Cited by
- 354
- References
- 22
- Citations by year
- 2026: 26 · 2025: 60 · 2024: 52 · 2023: 40 · 2022: 55 · 2021: 39 · 2020: 25 · 2019: 24 · 2018: 16 · 2017: 11 · 2016: 6
- FWCI
- 8.92
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Health Affairs (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (U01AG032947)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Keywords
- dementia, unpaid caregiving, family caregivers, older adults, caregiver burden, community-based care, residential care, spousal caregiving, daughters as caregivers, caregiving hours
- MeSH terms
- Aged, Aged, 80 and over, Dementia, Family, Female, Home Care Services, Humans, Male, Caregivers
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