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The Disproportionate Impact Of Dementia On Family And Unpaid Caregiving To Older Adults
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The number of US adults ages sixty-five and older who are living with dementia is substantial and expected to grow, raising concerns about the demands that will be placed on family members and other unpaid caregivers. We used data from the 2011 National Health and Aging Trends Study and its companion study, the National Study of Caregiving, to investigate the role of dementia in caregiving. We found that among family and unpaid caregivers to older noninstitutionalized adults, one-third of caregivers, and 41 percent of the hours of help they provide, help people with dementia, who account for about 10 percent of older noninstitutionalized adults. Among older adults who receive help, the vast majority in both community and residential care settings other than nursing homes rely on family or unpaid caregivers (more than 90 percent and more than 80 percent, respectively), regardless of their dementia status. Caregiving is most intense, however, to older adults with dementia in community settings and from caregivers who are spouses or daughters or who live with the care recipient.
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“Most caregivers (66%) live with the person with dementia in the community.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Of these individuals, nearly half live alone, perhaps making it more difficult to ask for and receive informal care.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Over one-third of dementia caregivers are daughters caring for a parent.394,402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“30% of older adults with dementia rely on three or more unpaid caregivers, whereas 23% of older adults without dementia do so.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Only a small percentage of older adults with dementia do not receive help from family members or other informal care providers (8%).”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Only a small percentage (8%) of older adults with dementia do not receive help from family members or other informal care providers.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“Individuals with dementia living in the community are more likely than older adults without dementia to rely on multiple unpaid caregivers (often family members); 30% of older adults with dementia rely on three or more unpaid caregivers, whereas 23% of older adults without dementia do so.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“Over one‐third of dementia caregivers in the United States are daughters caring for a parent.”
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“According to another study, well over half (57%) of family caregivers of people with Alzheimer's or other dementias living in the community had provided care for four or more years.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“On average, female caregivers spend more time caregiving than male caregivers.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“On average, female caregivers spend more time caregiving than male caregivers.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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Cites
Hearing loss and cognitive decline in older adults
Lin, F. R., Yaffe, K., Xia, J., Xue, Q.-L., Harris, T. B., Purchase-Helzner, E., Satterfield, S., Ayonayon, H. N., Ferrucci, L., Simonsick, E. M., et al. (2013) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.1868 · Cited by 4,017
Alzheimer disease in the United States (2010–2050) estimated using the 2010 census
Hebert, L. E., Weuve, J., Scherr, P. A., & Evans, D. A. (2013) · Neurology · doi:10.1212/wnl.0b013e31828726f5 · Cited by 2,642
Prevalence of Dementia in the United States: The Aging, Demographics, and Memory Study
Plassman, B. L., Langa, K. M., Fisher, G. G., Heeringa, S. G., Weir, D. R., Ofstedal, M. B., Burke, J. R., Hurd, M. D., Potter, G. G., Rodgers, W. L., et al. (2007) · Neuroepidemiology · doi:10.1159/000109998 · Cited by 1,932
Monetary Costs of Dementia in the United States
Hurd, M. D., Martorell, P., Delavande, A., Mullen, K. J., & Langa, K. M. (2013) · New England Journal of Medicine · doi:10.1056/nejmsa1204629 · Cited by 1,484
Family Caregiving of Persons With Dementia: Prevalence, Health Effects, and Support Strategies
Schulz, R., & Martire, L. M. (2004) · The American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200405000-00002 · Cited by 1,189
Dementia incidence continues to increase with age in the oldest old: The 90+ study
Corrada, M. M., Brookmeyer, R., Paganini‐Hill, A., Berlau, D., & Kawas, C. H. (2010) · Annals of Neurology · doi:10.1002/ana.21915 · Cited by 523
Validity and reliability of the AD8 informant interview in dementia
Galvin, J. E., Roe, C. M., Xiong, C., & Morris, J. C. (2006) · Neurology · doi:10.1212/01.wnl.0000247042.15547.eb · Cited by 507
Lin, J. S., O’Connor, E., Rossom, R. C., Perdue, L. A., & Eckstrom, E. (2013) · Annals of Internal Medicine · doi:10.7326/0003-4819-159-9-201311050-00730 · Cited by 433
Caregivers of Frail Elders: Updating a National Profile
Wolff, J. L., & Kasper, J. D. (2006) · The Gerontologist · doi:10.1093/geront/46.3.344 · Cited by 391
Self-citationImplementing a screening and diagnosis program for dementia in primary care
Boustani, M., Callahan, C. M., Unverzagt, F. W., Austrom, M. G., Perkins, A. J., Fultz, B. A., Hui, S. L., & Hendrie, H. C. (2005) · Journal of General Internal Medicine · doi:10.1007/s11606-005-0103-7 · Cited by 374
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2016 Alzheimer's disease facts and figures
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2023 Alzheimer's disease facts and figures
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2019 Alzheimer’s disease facts and figures.
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2018 Alzheimer's disease facts and figures
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2017 Alzheimer's disease facts and figures
(, T. D. B. T. A.-R. C. C. A. S. O. A. C. B. S., different, ). J. A. I. A., destroyed, S. A. T. A. S. T. M. E. T. M. C. I. S. I. A. G. W. A. T. R. N. I. T. O. B. T. F. N. T. B. D. A. D. A. U. I. B. R. I. I. F. N. M. A. N. I. O. P. O. T. B. A. D. A., difficulties, I. E. O., agitation, I. N. S. S. A., & delusions., S. A. (2017) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2017.02.001 · Cited by 1,366
Wolff, J. L., Spillman, B. C., Freedman, V. A., & Kasper, J. D. (2016) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2015.7664 · Cited by 585
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Self-citationWolff, J. L., Mulcahy, J., Huang, J., Roth, D. L., Covinsky, K., & Kasper, J. D. (2018) · The Gerontologist · doi:10.1093/geront/gnx093 · Cited by 267
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Riffin, C., Van Ness, P. H., Wolff, J. L., & Fried, T. (2019) · Journal of the American Geriatrics Society · doi:10.1111/jgs.15664 · Cited by 238
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Riffin, C., Van Ness, P. H., Wolff, J. L., & Fried, T. (2017) · Journal of the American Geriatrics Society · doi:10.1111/jgs.14910 · Cited by 221
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Self-citationMoskowitz, J. T., Cheung, E. O., Snowberg, K. E., Verstaen, A., Merrilees, J. J., Salsman, J. M., & Dowling, G. A. (2019) · Health Psychology · doi:10.1037/hea0000680 · Cited by 167
Cohen, S. A., Sabik, N. J., Cook, S. K., Azzoli, A. B., & Mendez‐Luck, C. A. (2019) · Journal of Cross-Cultural Gerontology · doi:10.1007/s10823-019-09381-9 · Cited by 166
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Taylor, C. A., Greenlund, S. F., McGuire, L. C., Lu, H., & Croft, J. B. (2017) · MMWR. Morbidity and Mortality Weekly Report · doi:10.15585/mmwr.mm6620a1 · Cited by 144
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Gan, D. R. Y., Chaudhury, H., Mann, J., & Wister, A. (2021) · The Gerontologist · doi:10.1093/geront/gnab019 · Cited by 87
Volgman, A. S., Merz, C. N. B., Aggarwal, N. T., Bittner, V., Bunch, T. J., Gorelick, P. B., Maki, P. M., Patel, H. N., Poppas, A., Ruskin, J. N., et al. (2019) · Journal of the American Heart Association · doi:10.1161/jaha.119.013154 · Cited by 82
Bayly, M. K., Morgan, D., Chow, A. F., Kosteniuk, J. G., & Elliot, V. (2020) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s0714980819000564 · Cited by 79
Abreu, W., Tolson, D., Jackson, G., & Costa, N. (2020) · Dementia · doi:10.1177/1471301218773842 · Cited by 64
Wolff, J. L., Freedman, V. A., Mulcahy, J., & Kasper, J. D. (2020) · JAMA Network Open · doi:10.1001/jamanetworkopen.2019.19866 · Cited by 77
Self-citationFreedman, V. A., Agree, E. M., Seltzer, J. A., Birditt, K. S., Fingerman, K. L., Friedman, E. M., Lin, I., Margolis, R., Park, S. S., Patterson, S., et al. (2023) · The Gerontologist · doi:10.1093/geront/gnad036 · Cited by 74
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Wolff, J. L., Cornman, J. C., & Freedman, V. A. (2025) · Health Affairs · doi:10.1377/hlthaff.2024.00978 · Cited by 62
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Musich, S. A., Wang, S. S., Kraemer, S., Hawkins, K., & Wicker, E. R. (2016) · Geriatric Nursing · doi:10.1016/j.gerinurse.2016.06.017 · Cited by 62
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Forsyth, A., Molinsky, J., & Kan, H. Y. (2019) · URBAN DESIGN International · doi:10.1057/s41289-019-00081-x · Cited by 58
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Green, A. R., Lee, P. J., Reeve, E., Wolff, J. L., Chen, C. C. G., Kruzan, R. M., & Boyd, C. M. (2019) · The Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2019.03.180335 · Cited by 54
Self-citationWhite, C. L., Overbaugh, K. J., Pickering, C. E. Z., Piernik-Yoder, B., James, D., Patel, D. I., Puga, F., Ford, L. A., & Cleveland, J. A. (2018) · Research Involvement and Engagement · doi:10.1186/s40900-018-0084-4 · Cited by 53
Xiang, X., Lai, P. H. L., Bao, L., Sun, Y., Chen, J., Dunkle, R. E., & Maust, D. T. (2020) · Journal of Aging and Health · doi:10.1177/0898264320953693 · Cited by 53
Moholt, J.-M., Friborg, O., Blix, B. H., & Henriksen, N. O. (2018) · Dementia · doi:10.1177/1471301218804981 · Cited by 49
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Self-citationCheung, D. S. K., Tang, S. K., Ho, K. H. M., Jones, C., Tse, M. Y. M., Kwan, R. Y. C., Chan, K. Y., & Chiang, C. L. V. (2021) · Geriatric Nursing · doi:10.1016/j.gerinurse.2021.02.002 · Cited by 46
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Armstrong, N. M., Gitlin, L. N., Parisi, J. M., Roth, D. L., & Gross, A. L. (2018) · Aging & Mental Health · doi:10.1080/13607863.2018.1441263 · Cited by 29
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Slaboda, J. C., Nelson, S. H., Agha, Z., & Norman, G. J. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06086-z · Cited by 30
Mzezewa, S. C., Omoruyi, S. I., Zondagh, L. S., Malan, S. F., Ekpo, O. E., & Joubert, J. (2021) · Journal of Enzyme Inhibition and Medicinal Chemistry · doi:10.1080/14756366.2021.1913137 · Cited by 26
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Self-citation
Metadata
- Authors
- Kasper, J. D., Freedman, V. A., Spillman, B. C., & Wolff, J. L.
- Affiliations
- Johns Hopkins University (US)
- University of Michigan (US)
- Urban Institute (US)
- Venue
- Health Affairs
- Publisher
- Health Affairs Publishing, LLC
- Published
- 2015-10
- Volume
- 34
- Issue
- 10
- Pages
- 1642-1649
- ISSN
- 0278-2715 (ISSN-L)
- 1544-5208
- PMC
- PMC4635557
- OpenAlex
- W2298583712
- Cited by
- 354
- References
- 22
- Citations by year
- 2026: 26 · 2025: 60 · 2024: 52 · 2023: 40 · 2022: 55 · 2021: 39 · 2020: 25 · 2019: 24 · 2018: 16 · 2017: 11 · 2016: 6
- FWCI
- 8.92
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Health Affairs (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (U01AG032947)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Keywords
- dementia, unpaid caregiving, family caregivers, older adults, caregiver burden, community-based care, residential care, spousal caregiving, daughters as caregivers, caregiving hours
- MeSH terms
- Aged, Aged, 80 and over, Dementia, Family, Female, Home Care Services, Humans, Male, Caregivers
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