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Cited by 25Autism Spectrum Disorder ResearchFamily and Disability Support ResearchChild Nutrition and Feeding Issues

Family characteristics and children’s receipt of autism services in low-resourced families

Karp, Elizabeth A., Dudovitz, Rebecca, Nelson, Bergen B., Shih, Wendy, Gulsrud, Amanda, Orlich, Felice, Colombi, Costanza, Kuo, Alice A.·2018·Pediatrics
DOI 10.1542/peds.2016-4300d
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Abstract

OBJECTIVES: Parents of children with autism spectrum disorder (ASD) face competing demands when caring for their child and fulfilling family commitments. It remains unknown whether family obligations and parental stress might decrease the use of intervention services for young children with ASD. METHODS: The current study is a secondary analysis of baseline date from a published randomized control trial with 147 low-resourced caregiver-child dyads. Demographic information, data on service use, maternal employment, parent’s perception of their child’s development, and parental stress were collected for primary caregivers of 2- to 5-year-old children with ASD from 5 sites. Multiple logistic regressions of accessing any intervention services or more than 1 services on familial characteristics were performed, controlling for demographic and contextual variables. RESULTS: Twenty-five percent of children were receiving no intervention service; 26% were receiving 1 service; and 49% were receiving 2 or more services. Perceived developmental delay and not having a sibling in the home were associated with higher odds of receiving intervention services. Children were more likely to receive more than 1 service if their parents had at least a college education and low levels of stress. CONCLUSIONS: Factors including perceived developmental level, parental stress, and caring for siblings may play a role in accessing services for children with ASD. Results reveal that competing family needs may be barriers to service use. Mothers of children with ASD with multiple children in the home, low levels of education, and high levels of stress may need additional supports or alternative service delivery models.

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  • After a positive autism screen, families-especially those from low-income or rural communities-often experience significant delays in accessing follow-up assessments and services.

    “For example, research has shown that after a positive autism screen, families—especially those from low-income or rural communities—often experience significant delays in accessing follow-up assessments and services (Karp et al., 2018; Zuckerman et al., 2015).”

    From Navigating the Challenges: A Commentary on Barriers to Autism Screening in Childcare Centers (2026) · cites this paper as Karp et al., 2018

  • In autism and other developmental conditions, children who screen positive may face long wait times, geographic inaccessibility, and shortages of specialists trained in early childhood diagnostics.

    “This issue is well-documented in the context of autism and other developmental conditions, where children who screen positive may face long wait times, geographic inaccessibility, and shortages of specialists trained in early childhood diagnostics.”

    From Navigating the Challenges: A Commentary on Barriers to Autism Screening in Childcare Centers (2026) · cites this paper as Karp et al., 2018

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Authors
Karp, E. A., Dudovitz, R., Nelson, B. B., Shih, W., Gulsrud, A., Orlich, F., Colombi, C., & Kuo, A. A.
Affiliations
  • University of Washington (US)
  • University of California, Los Angeles (US)
  • Virginia Commonwealth University (US)
  • Center for Autism Research and Treatment, and
  • Seattle Children's Hospital (US)
  • University of Michigan (US)
Corresponding author
Karp, Elizabeth A.
ORCID
Venue
Pediatrics
Publisher
American Academy of Pediatrics (AAP)
Published
2018-04-01
Volume
141
Issue
Supplement_4
Pages
S280-S286
ISSN
  • 0031-4005 (ISSN-L)
  • 1098-4275
DOI
10.1542/peds.2016-4300d
OpenAlex
W2796070734
Cited by
25
References
36
Citations by year
2026: 2 · 2025: 2 · 2024: 6 · 2023: 6 · 2022: 1 · 2021: 2 · 2020: 3 · 2019: 1 · 2018: 2
FWCI
1.19
Type
journal article
Language
en
Open access
closed
Locations
  • PEDIATRICS (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords
autism spectrum disorder, service utilization, parental stress, maternal employment, siblings, family responsibilities, intervention services, service delivery models, young children, caregiver education
MeSH terms
Autism Spectrum Disorder, Adult, Child Health Services, Child, Preschool, Family Characteristics, Female, Health Resources, Health Services Accessibility, Humans, Male, Middle Aged, Poverty, Self Report, Early Medical Intervention

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