Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016
Abstract
Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
A significant proportion of children with autism experience co-occurring medical concerns requiring access to healthcare services unrelated to their diagnosis.
“However, a significant proportion of children with autism also experience co- occurring medical concerns requiring access to healthcare services unrelated to their diagnosis (Chiri & Warfield, 2012; Karpur et al., 2019; Kohane et al., 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Karpur et al., 2019
Cites
Revisiting the Behavioral Model and Access to Medical Care: Does it Matter?
Andersen, R. M. (1995) · Journal of Health and Social Behavior · doi:10.2307/2137284 · Cited by 9,831 · see citing works
Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson, C., Rosenberg, et al. (2018) · MMWR. Surveillance Summaries · doi:10.15585/mmwr.ss6706a1 · Cited by 6,078 · see citing works
Morbidity and mortality weekly report
Gay, N., Gay, N., & Day, A. (1997) · The American Journal of Medicine · doi:10.1016/s0002-9343(97)89440-5 · Cited by 4,684 · see citing works
(1947) · The American Statistician · doi:10.1080/00031305.1947.10501534 · Cited by 3,745 · see citing works
Surveillance for Foodborne Disease Outbreaks—United States, 2006
Gould, L. H., Walsh, K. A., Vieira, A. R., Herman, K., Williams, I. T., Hall, A. J., & Cole, D. J. (2009) · Annals of Emergency Medicine · doi:10.1016/j.annemergmed.2009.11.004 · Cited by 2,372 · see citing works
“Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions
Hull, L., Petrides, K. V., Allison, C., Smith, P., Baron-Cohen, S., Lai, M.-C., & Mandy, W. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3166-5 · Cited by 1,365 · see citing works
Premature mortality in autism spectrum disorder
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016) · British Journal of Psychiatry · doi:10.1192/bjp.bp.114.160192 · Cited by 1,011 · see citing works
Kvålseth, T. O. (1985) · The American Statistician · doi:10.1080/00031305.1985.10479448 · Cited by 992 · see citing works
A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs
(2016) · American Academy of Pediatrics eBooks · doi:10.1542/9781610020190-part05-a_consensus · Cited by 924 · see citing works
Tjur, T. (2009) · The American Statistician · doi:10.1198/tast.2009.08210 · Cited by 916 · see citing works
A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs
American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine (2002) · PEDIATRICS · doi:10.1542/peds.110.s3.1304 · Cited by 888 · see citing works
(2002) · PEDIATRICS · doi:10.1542/peds.110.1.184 · Cited by 792 · see citing works
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008) · PEDIATRICS · doi:10.1542/peds.2008-1057 · Cited by 625 · see citing works
This Issue: The Family-centered Medical Home in Pediatrics
Antonelli, R. C., & Turchi, R. M. (2009) · Pediatric Annals · doi:10.3928/00904481-20090820-02 · Cited by 524 · see citing works
Allin, S. M., Grignon, M., & Grand, J. L. (2009) · Social Science & Medicine · doi:10.1016/j.socscimed.2009.10.027 · Cited by 417 · see citing works
A Scoping Review of Health Disparities in Autism Spectrum Disorder
Bishop-Fitzpatrick, L., & Kind, A. J. H. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3251-9 · Cited by 351 · see citing works
Chiri, G., & Warfield, M. E. (2012) · Maternal and Child Health Journal · doi:10.1007/s10995-011-0833-6 · Cited by 283 · see citing works
Magaña, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012) · Intellectual and Developmental Disabilities · doi:10.1352/1934-9556-50.4.287 · Cited by 255 · see citing works
Hull, L., Mandy, W., & Petrides, K. (2017) · Autism · doi:10.1177/1362361316669087 · Cited by 254 · see citing works
The foundations of lifelong health are built in early childhood
Yoshikawa, H. (2010) · Cited by 232 · see citing works
Bethell, C. D., Kogan, M. D., Strickland, B. B., Schor, E. L., Robertson, J., & Newacheck, P. W. (2011) · Academic Pediatrics · doi:10.1016/j.acap.2010.08.011 · Cited by 191 · see citing works
Stein, J. A., Andersen, R., & Gelberg, L. (2007) · Journal of Health Psychology · doi:10.1177/1359105307080612 · Cited by 174 · see citing works
Service Needs Across the Lifespan for Individuals with Autism
Turcotte, P., Mathew, M., Shea, L. L., Brusilovskiy, E., & Nonnemacher, S. L. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2787-4 · Cited by 167 · see citing works
Disparities in adversity among children with autism spectrum disorder: a population‐based study
Berg, K. L., Shiu, C. A., Acharya, K., Stolbach, B. C., & Msall, M. E. (2016) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.13161 · Cited by 159 · see citing works
Mistry, K. B., Minkovitz, C. S., Riley, A. W., Johnson, S. B., Grason, H. A., Dubay, L. C., & Guyer, B. (2012) · American Journal of Public Health · doi:10.2105/ajph.2012.300687 · Cited by 134 · see citing works
Elder, J. H., Brasher, S., & Alexander, B. (2016) · Issues in Mental Health Nursing · doi:10.3109/01612840.2016.1153174 · Cited by 117 · see citing works
Service and Treatment Use Among Children Diagnosed With Autism Spectrum Disorders
Zablotsky, B., Pringle, B. A., Colpe, L. J., Kogan, M. D., Rice, C. E., & Blumberg, S. J. (2015) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000127 · Cited by 115 · see citing works
Frazier, T. W., Shattuck, P. T., Narendorf, S. C., Cooper, B. P., Wagner, M., & Spitznagel, E. L. (2011) · Journal of Child and Adolescent Psychopharmacology · doi:10.1089/cap.2011.0057 · Cited by 113 · see citing works
Self-citationUnmet Health Care Need in US Adolescents and Adult Health Outcomes
Hargreaves, D. S., Elliott, M. N., Viner, R. M., Richmond, T. K., & Schuster, M. A. (2015) · Pediatrics · doi:10.1542/peds.2015-0237 · Cited by 111 · see citing works
Magaña, S., Parish, S. L., & Son, E. (2015) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-120.6.504 · Cited by 99 · see citing works
Kerns, C. M., Newschaffer, C. J., Berkowitz, S., & Lee, B. K. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3111-7 · Cited by 99 · see citing works
Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders
Frazier, T. W., Dawson, G., Murray, D., Shih, A., Sachs, J. S., & Geiger, A. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-3642-6 · Cited by 97 · see citing works
Self-citationThe Relationship Between Adverse Childhood Events, Resiliency and Health Among Children with Autism
Rigles, B. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2905-3 · Cited by 94 · see citing works
Neumeyer, A. M., Anixt, J. S., Chan, J. G. M., Perrin, J. M., Murray, D. S., Coury, D. L., Bennett, A. E., Farmer, J. G., & Parker, R. A. (2018) · Academic Pediatrics · doi:10.1016/j.acap.2018.06.014 · Cited by 90 · see citing works
Farmer, J. E., Clark, M. J., Mayfield, W. A., Cheak‐Zamora, N., Marvin, A. R., Law, J. K., & Law, P. A. (2013) · Maternal and Child Health Journal · doi:10.1007/s10995-013-1292-z · Cited by 89 · see citing works
Arias, V. B., Gómez, L. E., Morán, L., Alcedo, M. Á., Monsalve, A., & Gómez, Y. F. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3289-8 · Cited by 80 · see citing works
Benevides, T. W., Carretta, H. J., & Lane, S. J. (2015) · Maternal and Child Health Journal · doi:10.1007/s10995-015-1876-x · Cited by 78 · see citing works
Autism and Families' Financial Burden: The Association With Health Insurance Coverage
Parish, S. L., Thomas, K. C., Williams, C. S., & Crossman, M. K. (2015) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-120.2.166 · Cited by 70 · see citing works
Deavenport‐Saman, A., Lu, Y. Z., Smith, K., & Yin, L. (2015) · Maternal and Child Health Journal · doi:10.1007/s10995-015-1830-y · Cited by 69 · see citing works
The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders
Cheak-Zamora, N. C., & Farmer, J. E. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2218-3 · Cited by 68 · see citing works
Casagrande, K. A., & Ingersoll, B. R. (2017) · Journal of Child and Family Studies · doi:10.1007/s10826-017-0759-8 · Cited by 59 · see citing works
Markowitz, L. A., Reyes, C., Embacher, R. A., Speer, L. L., Roizen, N., & Frazier, T. W. (2016) · Autism · doi:10.1177/1362361315611382 · Cited by 58 · see citing works
Self-citationMedicaid Home and Community-Based Services: How Consumer Access Is Restricted by State Policies
Ng, T., Stone, J., & Harrington, C. A. (2014) · Journal of Aging & Social Policy · doi:10.1080/08959420.2015.969078 · Cited by 57 · see citing works
Velott, D. L., Agbese, E., Mandell, D. S., Stein, B. D., Dick, A. W., Yu, H., & LESLIE, D. L. (2015) · Autism · doi:10.1177/1362361315590806 · Cited by 54 · see citing works
Parent Perceptions About Autism Spectrum Disorder Influence Treatment Choices
Mire, S. S., Gealy, W., Kubiszyn, T. W., Burridge, A. B., & Goin‐Kochel, R. P. (2015) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357615610547 · Cited by 53 · see citing works
Effects Of State Insurance Mandates On Health Care Use And Spending For Autism Spectrum Disorder
Barry, C. L., Epstein, A. J., Marcus, S. C., Kennedy-Hendricks, A., Candon, M. K., Xie, M., & Mandell, D. S. (2017) · Health Affairs · doi:10.1377/hlthaff.2017.0515 · Cited by 50 · see citing works
Tint, A., Weiss, J. A., & Lunsky, Y. (2017) · Autism Research · doi:10.1002/aur.1806 · Cited by 48 · see citing works
LESLIE, D. L., Iskandarani, K., Dick, A. W., Mandell, D. S., Yu, H., Velott, D. L., Agbese, E., & Stein, B. D. (2016) · Medical Care · doi:10.1097/mlr.0000000000000621 · Cited by 44 · see citing works
Shea, L. L., Xie, M., Turcotte, P., Marcus, S., Field, R., Newschaffer, C., & Mandell, D. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-3563-4 · Cited by 40 · see citing works
Eskow, K. G., Chasson, G. S., & Summers, J. A. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2217-4 · Cited by 34 · see citing works
Benevides, T. W., Carretta, H. J., & Mandell, D. S. (2016) · PEDIATRICS · doi:10.1542/peds.2015-2851p · Cited by 32 · see citing works
Greenlee, J. L., Winter, M. A., & Diehl, J. J. (2018) · Research in Autism · doi:10.1016/j.rasd.2018.06.002 · Cited by 32 · see citing works
LESLIE, D. L., Iskandarani, K., Velott, D. L., Stein, B. D., Mandell, D. S., Agbese, E., & Dick, A. W. (2017) · Health Affairs · doi:10.1377/hlthaff.2016.1136 · Cited by 30 · see citing works
Wilson, M., Hamilton, D., Whelan, T. A., & Pilkington, P. D. (2018) · Research in Autism · doi:10.1016/j.rasd.2018.01.004 · Cited by 27 · see citing works
Family characteristics and children’s receipt of autism services in low-resourced families
Karp, E. A., Dudovitz, R., Nelson, B. B., Shih, W., Gulsrud, A., Orlich, F., Colombi, C., & Kuo, A. A. (2018) · Pediatrics · doi:10.1542/peds.2016-4300d · Cited by 25 · see citing works
Factors influencing treatment decisions by parents for their children with autism spectrum disorder
Call, N. A., Delfs, C. H., Reavis, A. R., & Mevers, J. L. (2015) · Research in Autism · doi:10.1016/j.rasd.2015.04.001 · Cited by 18 · see citing works
Sobotka, S. A., Francis, A., & Booth, K. V. P. (2015) · Child Care Health and Development · doi:10.1111/cch.12290 · Cited by 15 · see citing works
Enayati, H., & Karpur, A. (2018) · Journal of Disability Policy Studies · doi:10.1177/1044207318789419 · Cited by 12 · see citing works
Self-citationKerns, C. M., & Lee, B. L. (2015) · European Psychiatry · doi:10.1016/s0924-9338(15)30585-x · Cited by 9 · see citing works
Health Care Quality for Children: The Position of Autism Spectrum Disorder
Bethell, C. D., Lindly, O. J., Kogan, M. D., & Zuckerman, K. E. (2013) · Springer eBooks · doi:10.1007/978-1-4614-4788-7_3 · Cited by 5 · see citing works
Unmet Health Care and Health Care UtilizationPreprint
Barham, V., Bataineh, H., & Devlin, R. A. (2017) · RePEc: Research Papers in Economics · doi:10.20381/ruor-24571 · Cited by 1 · see citing works
Flagged first, then by citations
1 of the 62 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309 · see citing works
Self-citationUddin, J., Alharbi, N., Uddin, H., Hossain, M. B., Hatipoğlu, S. S., Long, D. L., & Carson, A. P. (2020) · Journal of Affective Disorders · doi:10.1016/j.jad.2020.03.132 · Cited by 100 · see citing works
Michelini, G., Carlisi, C. O., Eaton, N. R., Elison, J. T., Haltigan, J. D., Kotov, R., Krueger, R. F., Latzman, R. D., Li, J. J., Levin-Aspenson, H. F., et al. (2024) · World Psychiatry · doi:10.1002/wps.21225 · Cited by 99 · see citing works
Children With Special Health Care Needs and Forgone Family Employment
Foster, C. C., Chorniy, A., Kwon, S., Kan, K., Heard‐Garris, N., & Davis, M. M. (2021) · PEDIATRICS · doi:10.1542/peds.2020-035378 · Cited by 77 · see citing works
Primary Care Providers' Perceived Barriers and Needs for Support in Caring for Children with Autism
Mazurek, M. O., Harkins, C. M., Menezes, M., Chan, J. G. M., Parker, R. A., Kuhlthau, K. A., & Sohl, K. (2020) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2020.01.014 · Cited by 71 · see citing works
Clarke, L., & Fung, L. K. (2022) · Autism · doi:10.1177/13623613221102016 · Cited by 71 · see citing works
Karpur, A., Vasudevan, V., Shih, A. J., & Frazier, T. W. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05100-x · Cited by 69 · see citing works
Self-citationPhysical health of autistic girls and women: a scoping review
Kassee, C., Babinski, S., Tint, A., Lunsky, Y., Brown, H. K., Ameis, S. H., Szatmari, P., Lai, M.-C., & Einstein, G. (2020) · Molecular Autism · doi:10.1186/s13229-020-00380-z · Cited by 60 · see citing works
Wainer, A., Arnold, Z. E., Leonczyk, C., & Soorya, L. V. (2021) · Molecular Autism · doi:10.1186/s13229-021-00443-9 · Cited by 57 · see citing works
Families’ Access to Early Intervention and Supports for Children With Developmental Disabilities
Sapiets, S. J., Hastings, R. P., Stanford, C. E., & Totsika, V. (2022) · Journal of Early Intervention · doi:10.1177/10538151221083984 · Cited by 54 · see citing works
Listening to parents to understand their priorities for autism research
Clark, M., & Adams, D. (2020) · PLoS ONE · doi:10.1371/journal.pone.0237376 · Cited by 41 · see citing works
Sone, B. J., Lee, J. J., & Roberts, M. Y. (2021) · Journal of Early Intervention · doi:10.1177/1053815121989807 · Cited by 36 · see citing works
Srinivasan, S. M., Ekbladh, A., Freedman, B. H., & Bhat, A. N. (2021) · Autism Research · doi:10.1002/aur.2514 · Cited by 49 · see citing works
Boshoff, K., Bowen‐Salter, H., Gibbs, D., Phillips, R. L., Porter, L., & Wiles, L. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13369 · Cited by 35 · see citing works
Karpur, A., Vasudevan, V., Lello, A., Frazier, T. W., & Shih, A. J. (2021) · Autism · doi:10.1177/13623613211019159 · Cited by 35 · see citing works
Self-citationLindsay, S., Li, Y., Joneja, S., & Hsu, S. (2024) · Disability and Rehabilitation · doi:10.1080/09638288.2024.2364823 · Cited by 33 · see citing works
Zuckerman, K. E., Chavez, A. E., Wilson, L., Unger, K., Reuland, C. H. P., Ramsey, K., King, M., Scholz, J., & Fombonne, E. J. (2020) · Autism · doi:10.1177/1362361320957461 · Cited by 31 · see citing works
Webb, N. J., Miller, T. L., & Stockbridge, E. L. (2022) · BMC Public Health · doi:10.1186/s12889-022-14524-8 · Cited by 27 · see citing works
Psychometric evaluation of the revised child and family quality of life questionnaire (CFQL-2)
Frazier, T. W., Hyland, A. C., Markowitz, L. A., Speer, L. L., & Diekroger, E. A. (2019) · Research in Autism · doi:10.1016/j.rasd.2019.101474 · Cited by 24 · see citing works
Self-citationSapiets, S. J., Hastings, R. P., & Totsika, V. (2023) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-023-05996-7 · Cited by 24 · see citing works
Autism spectrum disorder and complex healthcare needs: The role of healthcare experiences
Parker, M. L., & Killian, M. (2020) · Research in Autism · doi:10.1016/j.rasd.2020.101535 · Cited by 23 · see citing works
Haller, K., Stolfi, A., & Duby, J. C. (2022) · Journal of Intellectual Disability Research · doi:10.1111/jir.12932 · Cited by 23 · see citing works
Ingersoll, B. R., Frost, K. M., Straiton, D., Ramos, A. P., & Howard, M. (2023) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-023-06092-6 · Cited by 22 · see citing works
Kouo, J., & Kouo, T. S. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04716-9 · Cited by 22 · see citing works
Kouo, J., Kouo, T. S., & Gallogly, J. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05272-6 · Cited by 22 · see citing works
Stogiannos, N., Harvey-Lloyd, J. M., Brammer, A., Cleaver, K., McNulty, J. P., dos Reis, C. S., Nugent, B., Simcock, C. M., O’Regan, T., Bowler, D., et al. (2023) · Autism in Adulthood · doi:10.1089/aut.2022.0051 · Cited by 22 · see citing works
Arakelyan, M., Freyleue, S. D., Schaefer, A., Austin, A. M., Moen, E. L., O’Malley, A. J., Goodman, D. C., & Leyenaar, J. K. (2024) · The Journal of Rural Health · doi:10.1111/jrh.12827 · Cited by 22 · see citing works
Lieneck, C., Connelly, E., Ireland, D., Jefferson, A., Jones, J., & Breidel, N. (2023) · Healthcare · doi:10.3390/healthcare11162248 · Cited by 20 · see citing works
Patient-Centered Outcomes in an Interdisciplinary Clinic for Complex Children with Autism
Suen, C. G., Campbell, K. M., Stoddard, G. J., & Carbone, P. S. (2020) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000877 · Cited by 18 · see citing works
Budavari, A. C., Pas, E. T., Azad, G. F., & Volk, H. E. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05216-0 · Cited by 18 · see citing works
de Jonge, M. V., Boutjdir, M., El‐Korchi, T., Torres, H., Karpur, A., Shih, A. J., & Idrissi, A. E. (2023) · Autism · doi:10.1177/13623613221150086 · Cited by 18 · see citing works
Self-citationExamining Physical Activity for Individuals With Disabilities Through a Social Justice Lens
Block, M. E., & Fines, A. (2021) · Kinesiology Review · doi:10.1123/kr.2021-0052 · Cited by 16 · see citing works
Joseph, S. S., & Machalicek, W. (2021) · Behavioral Interventions · doi:10.1002/bin.1851 · Cited by 14 · see citing works
Disparities in Vision Screening in Primary Care for Young Children With Autism Spectrum Disorder
Hoover, K., Guglielmo, M. D. D., & Perry, B. (2023) · PEDIATRICS · doi:10.1542/peds.2022-059998 · Cited by 14 · see citing works
Burke, M. M., Johnston, A. N., Cheung, W. C., Li, C., Monárrez, E., & Aleman‐Tovar, J. (2023) · Journal of Developmental and Physical Disabilities · doi:10.1007/s10882-023-09906-8 · Cited by 14 · see citing works
Lerman, D. C. (2023) · Journal of Applied Behavior Analysis · doi:10.1002/jaba.1036 · Cited by 13 · see citing works
Arbour‐Nicitopoulos, K. P., James, M. E., Moore, S. A., Sharma, R., & Ginis, K. A. M. (2022) · Paediatrics & Child Health · doi:10.1093/pch/pxac007 · Cited by 13 · see citing works
Brasher, S. N., Middour‐Oxler, B., Chambers, R., & Calamaro, C. (2021) · Journal of Emergency Nursing · doi:10.1016/j.jen.2020.12.013 · Cited by 12 · see citing works
Graaf, G., & Palmer, A. N. (2022) · Academic Pediatrics · doi:10.1016/j.acap.2022.10.020 · Cited by 12 · see citing works
Conrad, C., Cerda, N., & Harstad, E. (2022) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000001062 · Cited by 12 · see citing works
Carey, M. E., Tao, S., Miller, K. H. K., Marcus, S. C., Mandell, D. S., Epstein, A. J., & Shea, L. (2023) · JAMA Network Open · doi:10.1001/jamanetworkopen.2023.2768 · Cited by 11 · see citing works
Vuattoux, D., Colomer‐Lahiguera, S., Fernandez, P.-A., Gygax, M. J., Choucair, M., Popovic, M. B., Diezi, M., Manificat, S., Latifyan, S., Ramelet, A., et al. (2021) · Frontiers in Oncology · doi:10.3389/fonc.2020.595734 · Cited by 11 · see citing works
A Multisystem Approach to Improving Autism Care
Habayeb, S., Inge, A. P., Myrick, Y., Hastings, A., Long, M., Hoffman, S. B., Parker, S., Theodorou, P., Soutullo, O. R., BEERS, L. S., et al. (2023) · PEDIATRICS · doi:10.1542/peds.2022-060584 · Cited by 10 · see citing works
Brown, T. R., Lee, W.-L., Ventimiglia, J. C., Thurm, A., Levy, T., Yuan, V., Martínez-Agosto, J. A., & Shea, L. (2025) · Genetics in Medicine · doi:10.1016/j.gim.2025.101451 · Cited by 9 · see citing works
Portillo, N. L., Thammathorn, L. P., Buitrago, L. M. M., Carter, A. S., Sheldrick, R., & Eisenhower, A. (2024) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06613-x · Cited by 8 · see citing works
Keehn, R. M., Enneking, B. A., Ramaker, M., Goings, M. J., Yang, Z., Carroll, A. E., & Ciccarelli, M. R. (2020) · Frontiers in Pediatrics · doi:10.3389/fped.2020.538633 · Cited by 8 · see citing works
Badgett, N. M., Sadikova, E., Menezes, M., & Mazurek, M. O. (2022) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-022-05503-4 · Cited by 8 · see citing works
Marquis, S., O’Leary, R., Bandara, N. A., & Baumbusch, J. (2023) · Clinical Ethics · doi:10.1177/14777509231196704 · Cited by 8 · see citing works
Ault, S., Helsabeck, N. P., Breitenstein, S. M., Tucker, S., Havercamp, S. M., & Ford, J. L. (2024) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2024.01.005 · Cited by 7 · see citing works
Parenting Stress, Community Support, and Unmet Health Care Needs of Children in the US
Campisi, C., Pham, D., Rapoport, E., & ADESMAN, A. R. (2024) · Maternal and Child Health Journal · doi:10.1007/s10995-024-03912-8 · Cited by 7 · see citing works
Mazurek, M. O., Nevill, R. E. A., Orlando, K. G., Page, K. D., Howard, M., & Davis, B. E. (2024) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06445-9 · Cited by 8 · see citing works
Wenzell, M., Ievers-Landis, C., Kim, S., DeSimio, S., Neudecker, M., Aaron, S. P., Wierenga, K., Miao, M., & Williamson, A. A. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-06807-x · Cited by 5 · see citing works
Randomized Study of Survey Recruitment Strategies for Parents of Autistic Children
Bhakta, B. B., Coleman, K. J., & Choi, K. R. (2022) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2022.05.008 · Cited by 6 · see citing works
Davis, A., & Gourdine, R. M. (2022) · Child and Adolescent Social Work Journal · doi:10.1007/s10560-022-00892-y · Cited by 6 · see citing works
Berg, K. A., Ishler, K. J., Lytle, S., Kaplan, R. S., Wang, F. “., Olgac, T., Miner, S., Edguer, M. N., & Biegel, D. E. (2023) · Autism Research and Treatment · doi:10.1155/2023/6597554 · Cited by 6 · see citing works
Erwin, J., Paisi, M., Witton, R., Neill, S., Burns, L., Vassallo, I., Nelder, A., Facenfield, J., Devalia, U., & Vassallo, T. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182312346 · Cited by 6 · see citing works
Robinson, L. A., Gaugh, L., Yapo, S., Al-Sumairi, R., Lorenzo, A., & Weiss, M. D. (2022) · Healthcare · doi:10.1016/j.hjdsi.2021.100597 · Cited by 5 · see citing works
Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs
Morgan, P. L., Hu, E. H., Woods, A. D., Gloski, C. A., & Wang, Y. (2022) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2022.09.024 · Cited by 5 · see citing works
Semovski, V., King, C. B., Lapshina, N., & Stewart, S. L. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.1027373 · Cited by 5 · see citing works
Hong, J. S., Choi, M. J., Kim, I., Algood, C. L., Espelage, D. L., & Rose, C. A. (2021) · Research in Nursing & Health · doi:10.1002/nur.22142 · Cited by 5 · see citing works
Ratings of Physician Communication by Caregivers of Hospitalized Children With and Without Autism
Campbell, K. M., Cunningham, S. D., Neeley, A., Young, P. C., Stoddard, G. J., Stone, B. L., & Carbone, P. S. (2021) · Hospital Pediatrics · doi:10.1542/hpeds.2020-005787 · Cited by 5 · see citing works
Summative content analysis of the recommendations from Project ECHO Ontario Autism
Jane, A., Kanigsberg, L., Patel, A., Eldon, S., Anagnostou, E. A., Brian, J. A., & Penner, M. (2023) · Frontiers in Rehabilitation Sciences · doi:10.3389/fresc.2023.1096314 · Cited by 4 · see citing works
Rossetti, L. P., Weigelt, L. D., Chielle, M. P., & Somavilla, V. E. D. C. (2023) · Revista Educação Especial · doi:10.5902/1984686x71018 · Cited by 4 · see citing works
Health Care for Autistic Children
Ames, J., Davignon, M. N., Hayes, E. A., & Croen, L. (2024) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2024.01.002 · Cited by 4 · see citing works
Rizk, S., Ngui, E. M., Salgado, Z., Bosak, D. L., & Khetani, M. A. (2024) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-024-06235-3 · Cited by 4 · see citing works
Health Care Utilization for Privately and Publicly Insured Children During Autism Insurance Reform
Zhang, W., Thompson, K. L., Watson, L. R., & LaForett, D. R. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05370-5 · Cited by 4 · see citing works
AVAILABILITY OF SERVICES FOR FAMILIES RAISING CHILDREN WITH AUTISM AS A PURPOSE OF SOCIAL WORK
СТОЛЯРИК, О. (2020) · Social work and education · doi:10.25128/2520-6230.20.3.4 · Cited by 4 · see citing works
Ruthes, V. B. T. N. M., Mazza, V. D. A., Ribeiro, M. B., Weissheimer, G., & Freitas, C. A. S. L. (2021) · Revista Família Ciclos de Vida e Saúde no Contexto Social · doi:10.18554/refacs.v9i0.5053 · Cited by 3 · see citing works
Calixte, R., Helzner, E., Islam, S., Camacho‐Rivera, M., & Pati, S. (2022) · Children · doi:10.3390/children9121798 · Cited by 3 · see citing works
Tsai, J.-M., & Bhat, A. N. (2024) · Frontiers in Health Services · doi:10.3389/frhs.2024.1343636 · Cited by 3 · see citing works
Engagement and Satisfaction With Care Navigation Support Following Telehealth Autism Evaluation
Klein, B., Ramaker, M., Fitterling, C., James, C., Rouse, M. L., Fauntleroy-Love, K. D., Keehn, R. M., & Enneking, B. A. (2024) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000001277 · Cited by 3 · see citing works
Ketcheson, L. R., Loetzner, F., Wentz, C. F., Miller, S., & Pitchford, E. A. (2024) · Autism Research · doi:10.1002/aur.3231 · Cited by 3 · see citing works
Gamified Mobile Health Strategies for Promoting Physical Activity in Autistic Adults
Lee, D., Frey, G. C., & Shih, P. C. (2024) · Exercise and Sport Sciences Reviews · doi:10.1249/jes.0000000000000353 · Cited by 3 · see citing works
Autism spectrum condition: an update for dental practitioners - Part 1
Lee, R. S. C., & Clough, S. (2024) · BDJ · doi:10.1038/s41415-024-8065-5 · Cited by 3 · see citing works
Mazurek, M. O., Harkins, C. M., Menezes, M., & Sohl, K. (2020) · Springer eBooks · doi:10.1007/978-3-030-46295-6_20 · Cited by 3 · see citing works
ECHO Autism Washington: Autism Diagnostic Evaluations in Primary Care
Gerdts, J. A., Casagrande, K. A., Bateman, K. J., Hudac, C. M., Bravo, A., Mancini, J., Mannheim, J., Ogata, B., Orville, K., & Stobbe, G. A. (2024) · Clinical Pediatrics · doi:10.1177/00099228241255866 · Cited by 2 · see citing works
Children with neurodevelopmental disabilities have worse appendicitis outcomes
Lee, S. Y., Byrd, E. A., & Kohler, J. E. (2025) · Journal of Pediatric Surgery Open · doi:10.1016/j.yjpso.2025.100210 · Cited by 2 · see citing works
Griffith, M. M., Stanek, J. R., Lemanek, K. L., Walden, J., Nahata, L., & Creary, S. E. (2025) · Pediatric Blood & Cancer · doi:10.1002/pbc.31725 · Cited by 2 · see citing works
When to Raise Our White Flag—A Discussion of Scope of Practice in a Resource Scarce World
Barnhardt, E. W., Baum, R., Winerman, M., Vandana, P., Tabern, K. B., & Augustyn, M. C. (2020) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000775 · Cited by 2 · see citing works
Wiener, R. C. (2023) · PLOS Global Public Health · doi:10.1371/journal.pgph.0001540 · Cited by 2 · see citing works
Relationship between caregiver adverse childhood events and age of autism spectrum diagnosis
Kilmer, M., Hong, M., & Shah, E. N. (2023) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2023.09.020 · Cited by 2 · see citing works
Constipation in Children with Autism: A Comprehensive Review
Chogle, A. S., Wong, G., & Megerian, J. T. (2024) · Current Treatment Options in Pediatrics · doi:10.1007/s40746-024-00304-6 · Cited by 2 · see citing works
Fein, R. H., Venta, A. C., Meinert, A. C., Mire, S. S., & Bergez, K. C. (2021) · Wiley eBooks · doi:10.1002/9781118686089.ch6 · Cited by 2 · see citing works
Hartwell, M. L., Elenwo, C., Batioja, K., Keener, A., Mazur, A., & Chesher, T. L. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-06932-7 · Cited by 1 · see citing works
AdapHBNA: Adaptive hierarchical spatio-temporal brain network analysis for brain disease detection
Wang, J., Wang, G., Meng, D., Li, Y., Xi, X., Qiao, L., Xu, L., & Zhang, L. (2026) · Neural Networks · doi:10.1016/j.neunet.2026.109305 · Cited by 1 · see citing works
Estimating Network Adequacy of Autism Service Providers in Affordable Care Act Markets
Yingling, M. E., Hamilton, J., Nastally, B. L., & Dubuque, E. M. (2025) · Behavior Analysis in Practice · doi:10.1007/s40617-025-01103-7 · Cited by 1 · see citing works
Wicker, A. L., Sutherland, V., Paez, E., Carrasco, V. I. U., Zuckerman, K. E., & Lindly, O. (2026) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-026-07457-3 · Cited by 1 · see citing works
Lundholm, M., & Stålberg, A. (2025) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2025.06.022 · Cited by 1 · see citing works
Policy Issues Affecting the Health of Older Individuals in the United States
Ozobokeme, O.-E., Okobi, O. E., Udo, U. A., Boms, M. G., Adeosun, A. A., Koko, J., Agu, C., Izundu, I. C., Egberuare, E. O., & Ogunlami, O. A. (2022) · International Journal Of Scientific Advances · doi:10.51542/ijscia.v3i6.15 · Cited by 1 · see citing works
Frazier, T. W. (2019) · Springer eBooks · doi:10.1007/978-1-4614-6435-8_102338-1 · Cited by 1 · see citing works
Self-citationCaregivers’ perspectives on health-care transition in autism
Schwartz, J. K., Agrawal, M. M., Treminio, I., Espinosa, S., Rodriguez, M., & Richard, L. F. (2020) · Advances in Autism · doi:10.1108/aia-07-2019-0022
Likelihood of being Physically Inactive from a Nationally Representative sample of Autistic ChildrenPreprint
Vasudevan, V. (2021) · medRxiv · doi:10.1101/2021.11.05.21265973
Frazier, T. W. (2021) · Springer eBooks · doi:10.1007/978-3-319-91280-6_102338
Self-citationArbour‐Nicitopoulos, K. P., James, M. E., Moore, S. A., Sharma, R., & Ginis, K. A. M. (2022) · Paediatrics & Child Health · doi:10.1093/pch/pxac023
The INSPIRED Hospital Care of Children with Developmental Disability
Temple, S. N., & McPherson, P. (2022) · Autism and child psychopathology series · doi:10.1007/978-3-031-06120-2_11
Ault, S., Helsabeck, N. P., Breitenstein, S. M., Tucker, S., Havercamp, S. M., & Ford, J. L. (2023) · SSRN Electronic Journal · doi:10.2139/ssrn.4462741
Long COVID and autism spectrum disorders – a narrative review
Zalewska, A. (2023) · Kwartalnik Naukowy Fides et Ratio · doi:10.34766/fetr.v56i4.1242
Rock, J. L., & Becker, H. (2024) · Health Care Transitions · doi:10.1016/j.hctj.2024.100046
- Authors
- Karpur, A., Lello, A., Frazier, T., Dixon, P. J., & Shih, A. J.
- Affiliations
- Autism Speaks (US)
- Corresponding author
- Karpur, Arun
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2018-12-14
- Volume
- 49
- Issue
- 4
- Pages
- 1652-1664
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2904829968
- Cited by
- 121
- References
- 62
- Citations by year
- 2026: 8 · 2025: 15 · 2024: 20 · 2023: 19 · 2022: 18 · 2021: 25 · 2020: 14 · 2019: 2
- FWCI
- 6.11
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, health disparities, unmet health needs, children with disabilities, Andersen Behavioral Model, health insurance access, family-centered care, adverse childhood experiences, parental employment, family stress, health care utilization
- MeSH terms
- Child Health, Autism Spectrum Disorder, Adverse Childhood Experiences, Adolescent, Child, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Surveys and Questionnaires, Socioeconomic Factors, United States, Healthcare Disparities
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review