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Long-term outcome of children with autism who received different forms of early intervention during their preschool years: a pilot study of 15 young adults

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Jónsdóttir, Sigrídur Lóa, Brynjarsdóttir, Birta, Saemundsen, Evald, Sigurdsson, Jón Fridrik·2018·Scandinavian Journal of Child and Adolescent Psychiatry and Psychology
DOI 10.21307/sjcapp-2018-006PMC PMC7750700
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Abstract

Background: Studies on early intervention have reported significant gains for many children with autism. Knowledge on how these children fare in adulthood is limited. Objective: To examine long-term outcome of children with autism who received different forms of early intervention. Method: Participants were 15 young people who had all been diagnosed with ICD-10 childhood autism during the preschool years. Five received intervention based on the UCLA model for early intensive behavioral intervention, and 10 received eclectic treatment. Participants were followed from their first autism diagnosis during the preschool years (time 1) to the age of six years (time 2). The participants are now in their twenties (time 3), and at this point in time, information on autism symptoms, co-occurring disorders, quality of life, functioning, participation, adaptive behavior, and overall outcome was gathered from parents. Six of the participants answered questionnaires on quality of life, functioning, and participation. Results: The groups were comparable on all measures at time 1. Reassessment at time 2 showed that the early intensive behavioral intervention group had made significant gains in IQ, and that autism symptoms had decreased significantly, whereas such changes were not found for the eclectic treatment group. At time 3, most participants had considerable autism symptoms. Approximately half of them had received diagnosis of a co-occurring condition. Their quality of life and adaptive behavior was less favorable than that of the general population, but only a third had “poor” overall outcome. However, at time 3, hardly any differences were found between the groups. Conclusions: To maintain gains made during the preschool years, appropriate intervention and services may need to be extended into adulthood. These services should take into account the perceived needs of the individual, as expressed by himself/herself and his/her family.

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Metadata

Authors
Jónsdóttir, S. L., Brynjarsdóttir, B., Saemundsen, E., & Sigurdsson, J. F.
Affiliations
  • The State Diagnostic and Counselling Centre , Kópavogur , Iceland
  • Reykjavík University (IS)
  • Faculty of Medicine, University of Iceland , Reykjavík , Iceland
Venue
Scandinavian Journal of Child and Adolescent Psychiatry and Psychology
Publisher
Walter de Gruyter GmbH
Published
2018-01-01
Volume
6
Issue
1
Pages
28-39
ISSN
2245-8875 (ISSN-L)
DOI
10.21307/sjcapp-2018-006
PMC
PMC7750700
OpenAlex
W2842884364
Cited by
10
References
7
Citations by year
2026: 2 · 2024: 2 · 2023: 2 · 2021: 2 · 2020: 1 · 2019: 1
FWCI
0.60
Type
journal article
Language
en
Open access
Licence
Locations
  • Scandinavian Journal of Child and Adolescent Psychiatry and Psychology (publishedVersion, cc-by-nc-nd)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by-nc-nd)
  • PubMed Central (publishedVersion, cc-by-nc-nd)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • Opin vísindi (Opin vísindi) (submittedVersion, cc-by-nc-nd)
  • Hirsla (Landspítali University Hospital) (submittedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords
autism spectrum disorder, early intervention, early intensive behavioral intervention, long-term outcomes, young adults, preschool children, quality of life, adaptive behavior, co-occurring disorders, autism symptoms, IQ gains, coming of age

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