Going From Zero to 100 in Remote Dementia Research: A Practical Guide.
Open accessPublished version of a preprint
Abstract
Remote approaches for dementia research are required in the era of COVID-19, but moving a research program from in person to remote involves additional considerations. We recommend using outcome measures that have psychometric properties for remote delivery, and we recommend against adapting in-person scales for remote delivery without evidence for psychometric equivalency. We suggest remote research designs that maximize benefit for participants, which could have implications for control groups. Researchers should plan for flexibility in their methods for remote research and must not assume all participants will be able to videoconference; telephone-only research is possible. We recommend performing an assessment of information communication technology infrastructure and prior exposure to this technology with each participant before making a final choice on remote methods for research. In general, researchers should adapt their methods for remote research to each participant rather than requesting participants to adapt to the researchers. Screening for sensory loss should be conducted, and the impact of this on the use of technology for remote research should be considered. In this viewpoint, we detail how individualized training is required prior to engaging in remote research, how training plans interact with cognitive impairments and, finally, the steps involved in facilitating technology-based remote data collection.
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Much of the success of initiatives involving videoconferencing requires a high quality connection of 1024 kbps bandwidth.
“However, much of the success of initiatives involving videoconferencing requires a high quality connection of 1024 kbps bandwidth [17].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [17]
In “Remote Participant Contact: Can You Do It?”, the paper recommends 1024 kbps bandwidth for videoconferencing. In “Before You Engage in Remote Research, Assess the ICT Readiness of Each Participant,” it says 1024 kbps on the researcher’s side ensures acceptable quality for up to three connections. It does not say that 1024 kbps is a strict requirement for the success of videoconferencing initiatives generally. (LLM, conf=0.84)
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- Authors
- O'Connell, M. E., Vellani, S., Robertson, S., O'Rourke, H. M., & McGilton, K. S.
- Affiliations
- University Health Network (CA)
- Venue
- Journal of Medical Internet Research
- Publisher
- JMIR Publications Inc.
- Published
- 2021-01-27
- Volume
- 23
- Issue
- 1
- Pages
- e24098
- ISSN
- 1438-8871 (ISSN-L)
- PMC
- PMC7842855
- OpenAlex
- W3124866299
- Cited by
- 12
- References
- 18
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 2 · 2023: 3 · 2022: 3 · 2021: 2
- FWCI
- 2.17
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- Journal of Medical Internet Research (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- Consortium canadien en neurodégénérescence associée au vieillissement
- Saskatchewan Health Research Foundation
- Alzheimer Society
- Canadian Institutes of Health Research
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Demography › Technology Use by Older Adults
- Keywords
- dementia research, remote research, COVID-19 pandemic, videoconferencing, psychometric equivalence, outcome measures, information and communication technologies, individualized training, cognitive impairment, remote data acquisition, control groups
- MeSH terms
- COVID-19, Dementia, Humans, Telemedicine, Biomedical Research, Videoconferencing, Cognitive Dysfunction
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