Information and Communication Technology–Enabled Person-Centered Care for the “Big Five” Chronic Conditions: Scoping Review
Open accessAbstract
BACKGROUND: Person-centered information and communication technology (ICT) could encourage patients to take an active part in their health care and decision-making process, and make it possible for patients to interact directly with health care providers and services about their personal health concerns. Yet, little is known about which ICT interventions dedicated to person-centered care (PCC) and connected-care interactions have been studied, especially for shared care management of chronic diseases. The aim of this research is to investigate the extent, range, and nature of these research activities and identify research gaps in the evidence base of health studies regarding the "big 5" chronic diseases: diabetes mellitus, cardiovascular disease, chronic respiratory disease, cancer, and stroke. OBJECTIVE: The objective of this paper was to review the literature and to scope the field with respect to 2 questions: (1) which ICT interventions have been used to support patients and health care professionals in PCC management of the big 5 chronic diseases? and (2) what is the impact of these interventions, such as on health-related quality of life and cost efficiency? METHODS: This research adopted a scoping review method. Three electronic medical databases were accessed: PubMed, EMBASE, and Cochrane Library. The research reviewed studies published between January 1989 and December 2013. In 5 stages of systematic scanning and reviewing, relevant studies were identified, selected, and charted. Then we collated, summarized, and reported the results. RESULTS: From the initial 9380 search results, we identified 350 studies that qualified for inclusion: diabetes mellitus (n=103), cardiovascular disease (n=89), chronic respiratory disease (n=73), cancer (n=67), and stroke (n=18). Persons with one of these chronic conditions used ICT primarily for self-measurement of the body, when interacting with health care providers, with the highest rates of use seen in chronic respiratory (63%, 46/73) and cardiovascular (53%, 47/89) diseases. We found 60 relevant studies (17.1%, 60/350) on person-centered shared management ICT, primarily using telemedicine systems as personalized ICT. The highest impact measured related to the increase in empowerment (15.4%, 54/350). Health-related quality of life accounted for 8%. The highest impact connected to health professionals was an increase in clinical outcome (11.7%, 41/350). The impacts on organization outcomes were decrease in hospitalization (12.3%, 43/350) and increase of cost efficiency (10.9%, 38/350). CONCLUSIONS: This scoping review outlined ICT-enabled PCC in chronic disease management. Persons with a chronic disease could benefit from an ICT-enabled PCC approach, but ICT-PCC also yields organizational paybacks. It could lead to an increase in health care usage, as reported in some studies. Few interventions could be regarded as "fully" addressing PCC. This review will be especially helpful to those deciding on areas where further development of research or implementation of ICT-enabled PCC may be warranted.
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From Lessons Learned From a Living Lab on the Broad Adoption of eHealth in Primary Health Care (2018) · cites this paper as [4]
Numerous factors are related to the success of eHealth implementation, including characteristics of the end users, the function and usability of the intervention, the technical infrastructure, change management of health care organizations, the health care system, and financial business models.
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From Lessons Learned From a Living Lab on the Broad Adoption of eHealth in Primary Health Care (2018) · cites this paper as [4]
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“In this direction, future trials should evaluate the impact of the time of intervention, as well as the resources used for the procedure, since it seems that longer interventions using face-to-face telerehabilitation systems accompanied by social support may be more effective in this population [25].”
Background
- Authors
- Wildevuur, S. E., & Simonse, L. W.
- Affiliations
- Waag Futurelab (NL)
- Delft University of Technology (NL)
- Corresponding author
- Wildevuur, Sabine E
- Venue
- Journal of Medical Internet Research
- Publisher
- JMIR Publications Inc.
- Published
- 2015-03-27
- Volume
- 17
- Issue
- 3
- Pages
- e77
- ISSN
- 1438-8871 (ISSN-L)
- PMC
- PMC4393506
- OpenAlex
- W2031570205
- Cited by
- 203
- References
- 31
- Citations by year
- 2026: 4 · 2025: 7 · 2024: 15 · 2023: 14 · 2022: 26 · 2021: 23 · 2020: 26 · 2019: 18 · 2018: 25 · 2017: 19 · 2016: 19 · 2015: 5 · 2014: 1
- FWCI
- 4.11
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- Journal of Medical Internet Research (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- Radboud Universiteit
- Vrije Universiteit Amsterdam
- Nederlandse Organisatie voor Wetenschappelijk Onderzoek
- Topics
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
- Keywords
- person-centred care, information and communication technologies, chronic disease, telemedicine, diabetes mellitus, cardiovascular disease, chronic respiratory disease, cancer, stroke, patient empowerment, health-related quality of life, cost efficiency, patient-provider interaction, self-monitoring, research gaps, health information systems, patient outcomes, organizational outcomes
- MeSH terms
- Chronic Disease, Communication, Decision Making, Humans, Quality of Life, Self Care, Telemedicine, Internet, Biomedical Technology
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