Patients’ attitudes to the summary care record and HealthSpace: qualitative study
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OBJECTIVE: To document the views of patients and the public towards the summary care record (SCR, a centrally stored medical record drawn from the general practice record) and HealthSpace (a personal health organiser accessible through the internet from which people can view their SCR), with a particular focus on those with low health literacy, potentially stigmatising conditions, or difficulties accessing health care. DESIGN: 103 semistructured individual interviews and seven focus groups. SETTING: Three early adopter primary care trusts in England where the SCR and HealthSpace are being piloted. All were in areas of relative socioeconomic deprivation. PARTICIPANTS: Individual participants were recruited from general practice surgeries, walk-in centres, out of hours centres, and accident and emergency departments. Participants in focus groups were recruited through voluntary sector organisations; they comprised advocates of vulnerable groups and advocates of people who speak limited English; people with HIV; users of mental health services; young adults; elderly people; and participants of a drug rehabilitation programme. METHODS: Participants were asked if they had received information about the SCR and HealthSpace and about their views on shared electronic records in different circumstances. RESULTS: Most people were not aware of the SCR or HealthSpace and did not recall receiving information about it. They saw both benefits and drawbacks to having an SCR and described a process of weighing the former against the latter when making their personal choice. Key factors influencing this choice included the nature of any illness (especially whether it was likely to lead to emergency care needs); past and present experience of healthcare and government surveillance; the person's level of engagement and health literacy; and their trust and confidence in the primary healthcare team and the wider NHS. Overall, people with stigmatising illness were more positive about the SCR than people who claimed to speak for "vulnerable groups." Misconceptions about the SCR were common, especially confusion about what data it contained and who would have access to it. Most people were not interested in recording their medical data or accessing their SCR via HealthSpace, but some saw the potential for this new technology to support self management and lay care for those with chronic illness. CONCLUSION: Despite an extensive information programme in early adopter sites, the public remains unclear about current policy on shared electronic records, though most people view these as a positive development. The "implied consent" model for creating and accessing a person's SCR should be revisited, perhaps in favour of "consent to view" at the point of access.
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There was strong opposition by a minority of citizens and health professionals to the idea of centrally held medical records.
“Other findings included strong opposition by a minority of citizens and health professionals to the idea of centrally held medical records, 90”
Most patients, especially those with chronic conditions that could present as acute emergencies, saw the balance between protecting privacy and sharing data to lie in favour of having a SCR.
“Most patients, especially those with chronic conditions (such as epilepsy or diabetes) that could present as acute emergencies, saw the balance between protecting privacy and sharing data to lie in favour of having a SCR.”
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Cites
Content Analysis: An Introduction to its Methodology.
Shelley, M., & Krippendorff, K. (1984) · Journal of the American Statistical Association · doi:10.2307/2288384 · Cited by 24,305 · see citing works
Qualitative research in health care: Analysing qualitative data
Pope, C. (2000) · BMJ · doi:10.1136/bmj.320.7227.114 · Cited by 8,131 · see citing works
Qualitative data analysis for applied policy research
(2002) · Analyzing Qualitative Data · doi:10.4324/9780203413081-14 · Cited by 4,964 · see citing works
Qualitative data analysis for applied policy research
Ritchie, J., & Spencer, L. (2010) · Analyzing qualitative data · doi:10.4324/9780203413081_chapter_9 · Cited by 4,800 · see citing works
Hillestad, R., Bigelow, J., Bower, A., Girosi, F., Meili, R., Scoville, R., & Taylor, R. (2005) · Health Affairs · doi:10.1377/hlthaff.24.5.1103 · Cited by 1,675 · see citing works
The Effects of Promoting Patient Access to Medical Records: A Review
Ross, S. E., & Lin, C. (2003) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1147 · Cited by 333 · see citing works
Patients' experiences when accessing their on-line electronic patient records in primary care.
Pyper, C., Amery, J. M., Watson, M., & Crook, C. (2004) · Europe PMC (PubMed Central) · Cited by 170 · see citing works
Consumer Competencies and the Use of Comparative Quality Information
Hibbard, J. H., Peters, E. M., Dixon, A., & Tusler, M. (2007) · Medical Care Research and Review · doi:10.1177/1077558707301630 · Cited by 166 · see citing works
(2007) · Edward Elgar Publishing eBooks · doi:10.4337/9781847207005 · Cited by 107 · see citing works
The National Programme for IT in the NHS.
Hassey, A. (2005) · PubMed · Cited by 63 · see citing works
Gadd, C. S., & Penrod, L. E. (2001) · PubMed · Cited by 59 · see citing works
The glass consumerLife in a surveillance society
Lace, S. (2005) · Policy Press eBooks · doi:10.1332/policypress/9781861347350.001.0001 · Cited by 49 · see citing works
Adams, T., Budden, M., Hoare, C., & Sanderson, H. F. (2004) · BMJ · doi:10.1136/bmj.328.7444.871 · Cited by 34 · see citing works
Summary care record early adopter programme: an independent evaluation by University College London.
Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Russell, J., Mohammad, Y., Wood, G. W., & Hinder, S. (2008) · UCL Discovery (University College London) · Cited by 32 · see citing works
Confidentiality and Connecting for Health
Anderson, R. (2008) · British Journal of General Practice · doi:10.3399/bjgp08x263992 · Cited by 22 · see citing works
The NHS programme for information technology
Keen, J. (2006) · BMJ · doi:10.1136/bmj.38889.569201.de · Cited by 12 · see citing works
Davies, M., Eccles, S., Braunold, G., Winfield, M., & Thick, M. (2008) · British Journal of General Practice · doi:10.3399/bjgp08x277230 · Cited by 12 · see citing works
National programme for IT: the pound sterling 30 billion question.
Williams, J. R. (2005) · PubMed · Cited by 4 · see citing works
Personal information in the National Health Service: the demise or rise of patient interests?
Montgomery, J. (2005) · doi:10.46692/9781847421272.008 · Cited by 1 · see citing works
Flagged first, then by citations
Research works printed but not linked: 1
- BrennanS.The NHS IT project. Oxford: Radcliffe, 2005.
Cited by
Sorted by citations
Belch, J., MacCuish, A., Campbell, I., Cobbe, S., Taylor, R., Prescott, R., Lee, R., Bancroft, J., MacEwan, S., Shepherd, J., et al. (2008) · BMJ · doi:10.1136/bmj.a1840 · Cited by 977 · see citing works
O’Connor, S., Hanlon, P., O’Donnell, C. A., Garcia, S., Glanville, J., & Mair, F. S. (2016) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-016-0359-3 · Cited by 636 · see citing works
Patient Portals and Patient Engagement: A State of the Science Review
Irizarry, T., DeVito Dabbs, A., & Curran, C. R. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4255 · Cited by 732 · see citing works
McGinn, C. A., Grenier, S., Duplantie, J., Shaw, N., Sicotte, C., Mathieu, L., Leduc, Y., Légaré, F., & Gagnon, M.-P. (2011) · BMC Medicine · doi:10.1186/1741-7015-9-46 · Cited by 393 · see citing works
Greenhalgh, T., Hinder, S., Stramer, K., Bratan, T., & Russell, J. (2010) · BMJ · doi:10.1136/bmj.c5814 · Cited by 343 · see citing works
Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Russell, J., & Potts, H. W. W. (2010) · BMJ · doi:10.1136/bmj.c3111 · Cited by 275 · see citing works
Self-citationWoods, S. S., Schwartz, E. C., Tuepker, A., Press, N. A., Nazi, K. M., Turvey, C., & Nichol, W. P. (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.2356 · Cited by 267 · see citing works
Patient engagement in the inpatient setting: a systematic review
Prey, J. E., Woollen, J., Wilcox, L. G., Sackeim, A., Hripcsak, G. M., Henry, S. B., Restaino, S. W., Feiner, S., & Vawdrey, D. K. (2013) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2013-002141 · Cited by 265 · see citing works
Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Mohammad, Y., & Russell, J. (2008) · BMJ · doi:10.1136/bmj.a1786 · Cited by 257 · see citing works
Open Notes: Doctors and Patients Signing On
Delbanco, T., Walker, J., Darer, J. D., Elmore, J. G., Feldman, H. J., Leveille, S. G., Ralston, J. D., Ross, S. E., Vodicka, E., & Weber, V. D. (2010) · Annals of Internal Medicine · doi:10.7326/0003-4819-153-2-201007200-00008 · Cited by 254 · see citing works
Interventions to increase patient portal use in vulnerable populations: a systematic review
Grossman, L. V., Masterson Creber, R. M., Benda, N. C., Wright, D., Vawdrey, D. K., & Ancker, J. S. (2019) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocz023 · Cited by 251 · see citing works
Interventions to Improve Care for Patients with Limited Health Literacy.
Sudore, R. L., & Schillinger, D. (2009) · PubMed · Cited by 249 · see citing works
Inviting Patients to Read Their Doctors' Notes: Patients and Doctors Look Ahead
Walker, J., Leveille, S. G., Ngo, L. H., Vodicka, E. L., Darer, J. D., Dhanireddy, S., Elmore, J. G., Feldman, H. J., Lichtenfeld, M. J., Oster, N. V., et al. (2011) · Annals of Internal Medicine · doi:10.7326/0003-4819-155-12-201112200-00003 · Cited by 208 · see citing works
Factors that influence public engagement with eHealth: A literature review
Hardiker, N. R., & Grant, M. J. (2010) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2010.10.017 · Cited by 207 · see citing works
Patient reported barriers to enrolling in a patient portal
Goel, M. S., Brown, T. L., Williams, A., Cooper, A. J., Hasnain‐Wynia, R., & Baker, D. W. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000473 · Cited by 202 · see citing works
Promise of and potential for patient-facing technologies to enable meaningful use
Ahern, D. K., Woods, S. S., Lightowler, M. C., Finley, S. W., & Houston, T. K. (2011) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2011.01.005 · Cited by 189 · see citing works
Shaw, S. E., Wherton, J. P., Vijayaraghavan, S., Morris, J. H., Bhattacharya, S., Hanson, P., Campbell-Richards, D., Ramoutar, S., Collard, A., Hodkinson, I., et al. (2018) · Health Services and Delivery Research · doi:10.3310/hsdr06210 · Cited by 142 · see citing works
Papoutsi, C., Reed, J. E., Marston, C., Lewis, R., Majeed, A., & Bell, D. (2015) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-015-0202-2 · Cited by 137 · see citing works
A personally controlled electronic health record for Australia
Pearce, C. M., & Bainbridge, M. (2014) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2013-002068 · Cited by 106 · see citing works
Clinical dashboard: use in older adult mental health wards
Daley, K., Richardson, J., James, I. A., Chambers, A., & Corbett, D. M. (2013) · The Psychiatrist · doi:10.1192/pb.bp.111.035899 · Cited by 97 · see citing works
Is research on patient portals attuned to health equity? A scoping review
Antonio, M. G., Petrovskaya, O., & Lau, F. (2019) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocz054 · Cited by 90 · see citing works
Leveille, S. G., Walker, J., Ralston, J. D., Ross, S. E., Elmore, J. G., & Delbanco, T. (2012) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-12-32 · Cited by 89 · see citing works
Expectations and experiences of eHealth in primary care: A qualitative practice-based investigation
Flynn, D. J., Gregory, P., Makki, H., & Gabbay, M. (2009) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2009.03.008 · Cited by 86 · see citing works
Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Russell, J., Hinder, S., & POTTS, H. W. W. (2010) · Cited by 84 · see citing works
Morrison, Z., Robertson, A., Cresswell, K., Crowe, S., & Sheikh, A. (2011) · Journal of Healthcare Engineering · doi:10.1260/2040-2295.2.1.25 · Cited by 81 · see citing works
Greenhalgh, T., Morris, L., Wyatt, J. C., Thomas, G., & Gunning, K. (2013) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2013.01.002 · Cited by 79 · see citing works
Talal, A. H., Sofikitou, E. M., Jaanimägi, U., Zeremski, M., Tobin, J. N., & Markatou, M. (2020) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2020.103622 · Cited by 81 · see citing works
Health literacy and patient web portals
Coughlin, S. S., Stewart, J. L., Young, L., Heboyan, V., & Leo, G. D. (2018) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2018.02.009 · Cited by 78 · see citing works
Luchenski, S. A., Reed, J. E., Marston, C., Papoutsi, C., Majeed, A., & Bell, D. (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.2701 · Cited by 73 · see citing works
Newman, L., Biedrzycki, K., & Baum, F. E. (2012) · Australian Health Review · doi:10.1071/ah11042 · Cited by 72 · see citing works
Greenhalgh, T., Swinglehurst, D., & Stones, R. (2014) · Health Services and Delivery Research · doi:10.3310/hsdr02390 · Cited by 71 · see citing works
Ethical issues related to eHealth: An integrative review
Jokinen, A., Stolt, M., & Suhonen, R. (2020) · Nursing Ethics · doi:10.1177/0969733020945765 · Cited by 72 · see citing works
Cresswell, K., & Sheikh, A. (2009) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v17i3.730 · Cited by 69 · see citing works
Barriers to the use of personal health records by patients: a structured review
Showell, C. (2017) · PeerJ · doi:10.7717/peerj.3268 · Cited by 67 · see citing works
Factors influencing intention to use personal health records
Whetstone, M., & Goldsmith, R. E. (2009) · International Journal of Pharmaceutical and Healthcare Marketing · doi:10.1108/17506120910948485 · Cited by 62 · see citing works
Accessing personal medical records online: A means to what ends?
Shah, S. G. S., Fitton, R., Hannan, A., Fisher, B., Young, T. P., & Barnett, J. C. (2014) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2014.10.005 · Cited by 55 · see citing works
Hemsley, B., Rollo, M. E., Georgiou, A., Balandin, S., & Hill, S. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2017.07.010 · Cited by 53 · see citing works
Paton, C., Hansen, M. M., Fernández-Luque, L., & Lau, A. Y. S. (2012) · PubMed · Cited by 48 · see citing works
Levasseur, M., & Carrier, A. (2010) · Clinical Rehabilitation · doi:10.1177/0269215509360752 · Cited by 48 · see citing works
Ethical questions must be considered for electronic health records
Spriggs, M. P., Arnold, M., Pearce, C. M., & FRY, C. L. (2012) · Journal of Medical Ethics · doi:10.1136/medethics-2011-100413 · Cited by 48 · see citing works
Sharing health-related data: a privacy test?
Dyke, S. O. M., Dove, E. S., & Knoppers, B. M. (2016) · npj Genomic Medicine · doi:10.1038/npjgenmed.2016.24 · Cited by 47 · see citing works
Research: increasing value, reducing waste
Harron, K. L., & Gilbert, R. E. (2014) · The Lancet · doi:10.1016/s0140-6736(14)60558-4 · Cited by 47 · see citing works
Baillie, L., Chadwick, S., Mann, R., & Brooke-Read, M. (2012) · Nurse Education in Practice · doi:10.1016/j.nepr.2012.10.003 · Cited by 45 · see citing works
Ali, S., Romero, J., Morrison, K., Hafeez, B., & Ancker, J. S. (2018) · Applied Clinical Informatics · doi:10.1055/s-0038-1632396 · Cited by 44 · see citing works
Jones, L. A., Nelder, J. R., Fryer, J. M., Alsop, P. H., Geary, M. R., Prince, M. E., & Cardinal, R. N. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-057579 · Cited by 42 · see citing works
Experiences with online consultation systems in primary care: case study of one early adopter site
Casey, M., Shaw, S., & Swinglehurst, D. (2017) · British Journal of General Practice · doi:10.3399/bjgp17x693137 · Cited by 41 · see citing works
The policy‐practice nexus of electronic health records adoption in the UK NHS
Currie, W. L., & Finnegan, D. J. (2011) · Journal of Enterprise Information Management · doi:10.1108/17410391111106284 · Cited by 39 · see citing works
Patient access to complex chronic disease records on the Internet
Bartlett, C., Simpson, K., & Turner, A. N. (2012) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-12-87 · Cited by 35 · see citing works
Patel, R. N., & Antonarakis, G. S. (2012) · Community Dentistry And Oral Epidemiology · doi:10.1111/cdoe.12029 · Cited by 38 · see citing works
Use of electronic patient records for research: views of patients and staff in general practice
Stevenson, F. A., Lloyd, N., Harrington, L., & Wallace, P. (2012) · Family Practice · doi:10.1093/fampra/cms069 · Cited by 38 · see citing works
TEMPEST: An integrative model for health technology assessment
Currie, W. (2012) · Health Policy and Technology · doi:10.1016/j.hlpt.2012.01.004 · Cited by 30 · see citing works
Integrating health literacy into occupational therapy: Findings from a scoping review
Levasseur, M., & Carrier, A. (2011) · Scandinavian Journal of Occupational Therapy · doi:10.3109/11038128.2011.588724 · Cited by 35 · see citing works
Self-Tracking, Social Media and Personal Health Records for Patient Empowered Self-Care
Hansen, M., Fernández-Luque, L., Lau, A. Y. S., & Paton, C. (2012) · Yearbook of Medical Informatics · doi:10.1055/s-0038-1639425 · Cited by 35 · see citing works
Kuerbis, A., Mulliken, A., Muench, F. J., Moore, A. A., & Gardner, D. K. (2017) · doi:10.31235/osf.io/3qudt · Cited by 35 · see citing works
Luchenski, S. A., Balasanthiran, A., Marston, C., Sasaki, K., Majeed, A., Bell, D., & Reed, J. E. (2012) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-12-40 · Cited by 34 · see citing works
‘Never heard of it’– understanding the public’s lack of awareness of a new electronic patient record
Bratan, T., Stramer, K., & Greenhalgh, T. (2010) · Health Expectations · doi:10.1111/j.1369-7625.2010.00608.x · Cited by 34 · see citing works
Cabitza, F., Simone, C., & Michelis, G. D. (2014) · Computers in Biology and Medicine · doi:10.1016/j.compbiomed.2014.03.009 · Cited by 31 · see citing works
Researching the Reliability of Accreditation Survey Teams: Lessons Learnt When Things Went Awry
Greenfield, D., Pawsey, M., Naylor, J., & Braithwaite, J. (2013) · Health Information Management Journal · doi:10.1177/183335831304200101 · Cited by 30 · see citing works
Lupton, D. A. (2019) · Digital Health · doi:10.1177/2055207619847017 · Cited by 30 · see citing works
Bowden, T., & Coiera, E. W. (2017) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-017-0523-4 · Cited by 29 · see citing works
Patient Portal Implementation and Uptake: Qualitative Comparative Case Study
Avdagovska, M., Ballermann, M. A., Olson, K. L., Graham, T. A. D., Menon, D., & Stafinski, T. (2020) · Journal of Medical Internet Research · doi:10.2196/18973 · Cited by 27 · see citing works
Lehnbom, E. C., Brien, J. E., & McLachlan, A. J. (2014) · Internal Medicine Journal · doi:10.1111/imj.12384 · Cited by 28 · see citing works
de Lusignan, S., Ross, P., Shifrin, M. A., Hercigonja-Szekeres, M., & Brigitte Séroussi, A. (2013) · Studies in health technology and informatics · doi:10.3233/978-1-61499-289-9-397 · Cited by 27 · see citing works
Historia Clínica Compartida en Cataluña
Marimon-Suñol, S., Rovira-Barberà, M., Anta, M. A., Nozal-Baldajos, M. A., & Guanyabens, J. (2010) · Medicina Clínica · doi:10.1016/s0025-7753(10)70009-9 · Cited by 27 · see citing works
Laxmisan, A., McCoy, A. B., Wright, A. T., & Sittig, D. F. (2012) · Applied Clinical Informatics · doi:10.4338/aci-2011-11-ra-0066 · Cited by 26 · see citing works
Critical Theory as an Approach to the Ethics of Information Security
Stahl, B. C., Doherty, N. F., Shaw, M. C., & Janicke, H. (2013) · Science and Engineering Ethics · doi:10.1007/s11948-013-9496-6 · Cited by 21 · see citing works
Wyatt, D., Cook, J. A., & McKevitt, C. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-019378 · Cited by 21 · see citing works
Students' experiences of electronic health records in practice
Baillie, L., Chadwick, S., Mann, R., & Brooke-Read, M. (2012) · British Journal of Nursing · doi:10.12968/bjon.2012.21.21.1262 · Cited by 20 · see citing works
Mold, F., Raleigh, M., Alharbi, N., & de Lusignan, S. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7858 · Cited by 20 · see citing works
Mantzourani, E., Nazar, H., Phibben, C., Pang, J., John, G., Evans, A., Thomas, H., Way, C., & Hodson, K. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-033551 · Cited by 19 · see citing works
Evaluating a Web-Based Test Results System at an Urban STI Clinic
Ling, S. B., Richardson, D. B., Mettenbrink, C. J., Westergaard, B. C., Sapp-Jones, T., Crane, L. A., Nyquist, A., McFarlane, M., Kachur, R. E., & RIETMEIJER, C. A. M. (2010) · Sexually Transmitted Diseases · doi:10.1097/olq.0b013e3181d3d037 · Cited by 18 · see citing works
Personal Health Records are Designed for People Like Us
Chris, S., & Paul, T. (2013) · Studies in health technology and informatics · doi:10.3233/978-1-61499-289-9-1037 · Cited by 17 · see citing works
de Lusignan, S., & Krause, P. (2010) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v18i2.756 · Cited by 16 · see citing works
Jones, R. B., & Ashurst, E. J. (2013) · Health Informatics Journal · doi:10.1177/1460458212474908 · Cited by 15 · see citing works
Current Trends in Patients' Adoption of Advanced E-Health Services
Wilson, E. V., Balkan, S., & Lankton, N. K. (2010) · Hawaii International Conference on System Sciences (HICSS) · doi:10.1109/hicss.2010.126 · Cited by 15 · see citing works
Kostova, Z., Zufferey, M. C., & Schulz, P. J. (2015) · Pain Research and Management · doi:10.1155/2015/497512 · Cited by 15 · see citing works
Laranjo, L., Rodolfo, I., Pereira, A. M., & Sá, A. B. D. (2017) · JMIR Medical Informatics · doi:10.2196/medinform.7887 · Cited by 14 · see citing works
Role and challenges of internet of things and informatics in Healthcare research
Jha, A., Athanerey, A., & Kumar, A. (2022) · Health technology · doi:10.1007/s12553-022-00661-y · Cited by 9 · see citing works
Lehnbom, E. C., Douglas, H., & Makeham, M. (2016) · Internal Medicine Journal · doi:10.1111/imj.12956 · Cited by 14 · see citing works
Ose, D. J., Baudendistel, I., Pohlmann, S., Winkler, E. C., Kunz, A., & Szécsényi, J. (2017) · Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen · doi:10.1016/j.zefq.2017.04.006 · Cited by 13 · see citing works
Robotham, D., Riches, S., Perdue, I., Callard, F. J., Craig, T., Rose, D. S., & Wykes, T. (2015) · BMC Health Services Research · doi:10.1186/s12913-015-0858-4 · Cited by 12 · see citing works
Electronic Health Record Goes Personal World-wide
Lee, P., Jian, W., Kuo, C. H., & Li, Y. (2009) · Yearbook of Medical Informatics · doi:10.1055/s-0038-1638636 · Cited by 12 · see citing works
Griesser, A., & Bidmon, S. (2022) · Journal of Medical Systems · doi:10.1007/s10916-022-01886-0 · Cited by 11 · see citing works
Personal health communities: a phenomenological study of a new health‐care concept
Aarts, J. W. M., Vennik, F. D., Nelen, W. L. D. M., van der Eijk, M., Bloem, B. R., Faber, M. J., & Kremer, J. A. M. (2014) · Health Expectations · doi:10.1111/hex.12177 · Cited by 11 · see citing works
Lehnbom, E. C., & Brien, J.-A. E. (2010) · Pharmacy World & Science · doi:10.1007/s11096-010-9414-9 · Cited by 11 · see citing works
The Ethics of Sharing: How Do Social Workers Decide What to Record in Shared Health Records?
Cairns, I., Jonas, M., & Wallis, K. A. (2017) · Ethics and Social Welfare · doi:10.1080/17496535.2017.1384849 · Cited by 10 · see citing works
Abbott-Garner, P., Richardson, J., & Jones, R. B. (2018) · Journal of Medical Internet Research · doi:10.2196/11386 · Cited by 9 · see citing works
Development of a Mobile Application for Patient's Medical Record and History
Mahmud, M. T., Soroni, F., & Khan, M. M. (2021) · IEEE World AI IoT Congress (AIIoT) · doi:10.1109/aiiot52608.2021.9454227 · Cited by 10 · see citing works
Rauer, U. (2012) · Policy & Internet · doi:10.1515/1944-2866.1177 · Cited by 10 · see citing works
What do patients with glaucoma think about personal health records?
Somner, J., Sii, F., Bourne, R., Cross, V., & Shah, P. (2013) · Ophthalmic and Physiological Optics · doi:10.1111/opo.12084 · Cited by 9 · see citing works
Abd-Alrazaq, A. A., Safi, Z., Bewick, B. M., Househ, M. S., & Gardner, P. H. (2021) · Journal of Medical Internet Research · doi:10.2196/17500 · Cited by 9 · see citing works
My Health Bank 2.0—making a patron saint for people's health
Huang, S., Pan, Y.-T., & Chen, M. S. (2016) · Journal of the Formosan Medical Association · doi:10.1016/j.jfma.2016.05.008 · Cited by 9 · see citing works
"Personalising" NHS information technology in England
Greenhalgh, T., & Keen, J. (2014) · BMJ · doi:10.1136/bmj.g7341 · Cited by 9 · see citing works
de Lusignan, S., & Aarts, J. (2008) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v16i2.678 · Cited by 9 · see citing works
Secure Trust Delegation for Sharing Patient Medical Records in a Mobile Environment
Weerasinghe, D., & Muttukrishnan, R. (2011) · International Conference on Wireless Communications, Networking and Mobile Computing · doi:10.1109/wicom.2011.6040529 · Cited by 8 · see citing works
Personal electronic health records: from biomedical research to people's health
Roberts, J. (2009) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v17i4.745 · Cited by 8 · see citing works
Information in general medical practices: the information processing model
Crowe, S., Tully, M. P., & Cantrill, J. A. (2009) · Family Practice · doi:10.1093/fampra/cmp102 · Cited by 8 · see citing works
Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Hinder, S., & POTTS, H. W. W. (2010) · Cited by 8 · see citing works
Medical Records in Community Pharmacies: The Cases of UK and Australia
Pires, C. M. B. F. (2022) · Foundations · doi:10.3390/foundations2020027 · Cited by 7 · see citing works
Griesser, A., & Bidmon, S. (2023) · Health Information Management Journal · doi:10.1177/18333583231178611 · Cited by 7 · see citing works
- Authors
- Greenhalgh, T., Wood, G. W., Bratan, T., Stramer, K., & Hinder, S.
- Affiliations
- University College London (GB)
- Corresponding author
- Greenhalgh, Trisha
- Venue
- BMJ
- Publisher
- BMJ
- Published
- 2008-05-29
- Volume
- 336
- Issue
- 7656
- Pages
- 1290-1295
- ISSN
- 1756-1833 (ISSN-L)
- 0959-8138
- PMC
- PMC2413413
- OpenAlex
- W1977883461
- Cited by
- 141
- References
- 19
- Citations by year
- 2026: 2 · 2025: 1 · 2024: 3 · 2023: 2 · 2022: 4 · 2021: 3 · 2020: 5 · 2019: 4 · 2018: 5 · 2017: 16 · 2016: 4 · 2015: 6 · 2014: 10 · 2013: 13 · 2012: 18
- FWCI
- 32.98
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- BMJ (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- UCL Discovery (University College London) (submittedVersion)
- HighWire Press Open Archive (submittedVersion)
- Funders
- National Institute for Health and Care Research
- University of Birmingham
- Topics
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Keywords
- Summary Care Record, patient attitudes, shared electronic health records, health literacy, implied consent, patient information, self-management, chronic disease, vulnerable populations, limited English speakers, HIV, mental health services, drug rehabilitation, socioeconomic deprivation
- MeSH terms
- Attitude to Computers, Attitude to Health, England, Family Practice, Humans, Patient Education as Topic, Public Opinion, Medical Records Systems, Computerized, Internet
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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