The DOI matches its Crossref record; 6 of the 6 references it cites were found in a registry or an index.
End-of-Life Care Preferences and Needs: Perceptions of Patients with Chronic Kidney Disease
Open accessAbstract
BACKGROUND AND OBJECTIVES: Despite high mortality rates, surprisingly little research has been done to study chronic kidney disease (CKD) patients' preferences for end-of-life care. The objective of this study was to evaluate end-of-life care preferences of CKD patients to help identify gaps between current end-of-life care practice and patients' preferences and to help prioritize and guide future innovation in end-of-life care policy. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: A total of 584 stage 4 and stage 5 CKD patients were surveyed as they presented to dialysis, transplantation, or predialysis clinics in a Canadian, university-based renal program between January and April 2008. RESULTS: Participants reported relying on the nephrology staff for extensive end-of- life care needs not currently systematically integrated into their renal care, such as pain and symptom management, advance care planning, and psychosocial and spiritual support. Participants also had poor self-reported knowledge of palliative care options and of their illness trajectory. A total of 61% of patients regretted their decision to start dialysis. More patients wanted to die at home (36.1%) or in an inpatient hospice (28.8%) compared with in a hospital (27.4%). Less than 10% of patients reported having had a discussion about end-of-life care issues with their nephrologist in the past 12 months. CONCLUSIONS: Current end-of-life clinical practices do not meet the needs of patients with advanced CKD.
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Cites
Quality End-of-Life Care: Patients' Perspectives
Singer, P. A., Martin, D. K., & Kelner, M. (1999) · JAMA · doi:10.1001/jama.281.2.163 · Cited by 1,287
Predicting Six-Month Mortality for Patients Who Are on Maintenance Hemodialysis
Cohen, L. M., Ruthazer, R., Moss, A. H., & Germain, M. J. (2010) · Clinical Journal of the American Society of Nephrology · doi:10.2215/cjn.03860609 · Cited by 391
Dying Trajectory in the Last Year of Life: Does Cancer Trajectory Fit Other Diseases?
Teno, J. M., Weitzen, S., Fennell, M. L., & Mor, V. (2001) · Journal of Palliative Medicine · doi:10.1089/109662101753381593 · Cited by 290
Use of Hospice in the United States Dialysis Population
Murray, A. M., Arko, C., Chen, S.-C., Gilbertson, D. T., & Moss, A. H. (2006) · Clinical Journal of the American Society of Nephrology · doi:10.2215/cjn.00970306 · Cited by 156 · cited 1×
“Unfortunately, the vast majority of dialysis patients die in acute care facilities, without accessing palliative care services (7).”
BackgroundNephrologists’ Reported Preparedness for End-of-Life Decision-Making
Davison, S. N., Jhangri, G. S., Holley, J. L., & Moss, A. H. (2006) · Clinical Journal of the American Society of Nephrology · doi:10.2215/cjn.02040606 · Cited by 154 · cited 1×
“The majority of nephrologists do not feel well prepared to make end-of-life decisions for their patients (19).”
BackgroundSelf-citationFine, A., Fontaine, B., Kraushar, M. M., & Rich, B. R. (2005) · Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis · doi:10.1177/089686080502500310 · Cited by 84 · cited 1×
“This is consistent with a Canadian study where 97% of 100 general nephrology patients during their first visit to a nephrologist wanted detailed information about survival before obtaining informed consent for chronic dialysis and felt that the physician should provide this information without being prompted (15).”
Result
Cited by
Communication About Serious Illness Care Goals: A Review and Synthesis of Best Practices
Bernacki, R. E., & Block, S. D. (2014) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2014.5271 · Cited by 1,422
Weathers, E., O’Caoimh, R., Cornally, N., Fitzgerald, C., Kearns, T., Coffey, A., Daly, E., O’Sullivan, R., McGlade, C., & Molloy, D. W. (2016) · Maturitas · doi:10.1016/j.maturitas.2016.06.016 · Cited by 212
Detering, K., Silvester, W., Corke, C., Milnes, S., Fullam, R., Lewis, V., & Renton, J. (2014) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2013-000450 · Cited by 92
Advance care planning with patients who have end-stage kidney disease: a systematic realist review
O'Halloran, P., Noble, H., Norwood, K., Maxwell, P., Shields, J., Fogarty, D., Murtagh, F., Morton, R., & Brazil, K. (2018) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2018.07.008 · Cited by 71
Should there be an expanded role for palliative care in end-stage renal disease?
Kurella Tamura, M., & Cohen, L. M. (2010) · Current Opinion in Nephrology and Hypertension · doi:10.1097/mnh.0b013e32833d67bc · Cited by 56
Metadata
- Authors
- Davison, S. N.
- Venue
- Clinical Journal of the American Society of Nephrology
- Published
- 2010-02
- Volume
- 5
- Issue
- 2
- Pages
- 195-204
- ISSN
- 1555-9041 (ISSN-L)
- OpenAlex
- W2150059819
- Cited by
- 629
- References
- 6
- FWCI
- 31.61
- Type
- journal article
- Language
- en
- Open access
- green
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
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