Swedish quality registry for pain rehabilitation: purpose, design, implementation and characteristics of referred patients
Open accessAbstract
OBJECTIVE: In order to facilitate comparisons of pain rehabilitation programmes in Sweden and to enable audit spirals for single programmes as well as outcome studies, the Swedish Association for Rehabilitation Medicine initiated a national quality registry in 1995. PATIENTS: Referred for rehabilitation due to pain-related disability. METHODS: The registry collects standardized self-reports before assessment, after rehabilitation and one year later, covering demographic, educational and psychometric data, pain intensity, physical disability and life satisfaction. Sick leave data are collected from the National Insurance Board before and up to two years after rehabilitation. At each programme unit self-reports are processed into individual assessment profiles relevant to plan rehabilitation. Data are sent annually to the central registry for analysis and compared with "return to work" data. Each unit can compare its results with national means. RESULTS AND CONCLUSION: The organization of the registry is described. Data indicating that contextual factors, but not pain characteristics, depression or activity limitations vary between patients referred to different centres, makes comparisons difficult. As of 2007, data from the multidisciplinary assessment of 19,833 patients have been collected. A total of 7289 patients attended a rehabilitation programme, generating two more self-reports. A limitation of the study is a lack of follow-up data from some units.
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The total group of patients included in this study was representative of a European epidemiological study in terms of age and sex (middle-aged women) and pain duration (>7 years), and of the pain population attending specialty pain care clinics in Sweden.
“However, the total group of patients included in this study was representative when compared with a European epidemiological study [1] in terms of age and sex (middle-aged women), and pain duration (> 7 years) and with the pain population attending specialty pain care clinics in Sweden [66].”
From Chronic pain and sex-differences; women accept and move, while men feel blue (2017) · cites this paper as [66]
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Chronic pain and sex-differences; women accept and move, while men feel blue
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- Authors
- Sjölund, B., Nyberg, V, & Sanne, H.
- Affiliations
- Umeå University (SE)
- Venue
- Journal of Rehabilitation Medicine
- Published
- 2011
- Volume
- 43
- Issue
- 1
- Pages
- 50-57
- ISSN
- 1650-1977 (ISSN-L)
- OpenAlex
- W2109285654
- Cited by
- 54
- References
- 34
- Citations by year
- 2026: 2 · 2024: 6 · 2023: 2 · 2022: 3 · 2021: 4 · 2020: 4 · 2019: 3 · 2017: 5 · 2016: 6 · 2015: 2 · 2014: 9 · 2013: 4 · 2012: 3
- FWCI
- 3.68
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Journal of Rehabilitation Medicine (publishedVersion)
- PubMed (publishedVersion)
- DiVA at Umeå University (Umeå University) (submittedVersion, other-oa)
- University of Southern Denmark Research Portal (University of Southern Denmark) (submittedVersion)
- Funders
- Umeå Universitet
- Topics
- Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
- Health Sciences › Medicine › Anesthesiology and Pain Medicine › Pain Management and Treatment
- Keywords
- pain rehabilitation, quality register, rehabilitation programs, referred patients, pain-related disability, sick leave, return to work, self-reported outcomes, multidisciplinary assessment, patient characteristics, contextual factors
- MeSH terms
- Activities of Daily Living, Adult, Chronic Disease, Female, Follow-Up Studies, Humans, Male, Pain, Pain Measurement, Psychometrics, Quality Assurance, Health Care, Registries, Rehabilitation, Vocational, Socioeconomic Factors, Sweden, Work Capacity Evaluation, Program Evaluation, Outcome Assessment, Health Care, Sick Leave, Self Report
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