Comparison of community-level and patient-level social risk data in a network of community health centers
Open accessAbstract
Importance: Responding to the substantial research on the relationship between social risk factors and health, enthusiasm has grown around social risk screening in health care settings, and numerous US health systems are experimenting with social risk screening initiatives. In the absence of standard social risk screening recommendations, some health systems are exploring using publicly available community-level data to identify patients who live in the most vulnerable communities as a way to characterize patient social and economic contexts, identify patients with potential social risks, and/or to target social risk screening efforts. Objective: To explore the utility of community-level data for accurately identifying patients with social risks by comparing the social deprivation index score for the census tract where a patient lives with patient-level social risk screening data. Design, Setting, and Participants: Cross-sectional study using patient-level social risk screening data from the electronic health records of a national network of community health centers between June 24, 2016, and November 15, 2018, linked to geocoded community-level data from publicly available sources. Eligible patients were those with a recorded response to social risk screening questions about food, housing, and/or financial resource strain, and a valid address of sufficient quality for geocoding. Exposures: Social risk screening documented in the electronic health record. Main Outcomes and Measures: Community-level social risk was assessed using census tract-level social deprivation index score stratified by quartile. Patient-level social risks were identified using food insecurity, housing insecurity, and financial resource strain screening responses. Results: The final study sample included 36 578 patients from 13 US states; 22 113 (60.5%) received public insurance, 21 181 (57.9%) were female, 17 578 (48.1%) were White, and 10 918 (29.8%) were Black. Although 6516 (60.0%) of those with at least 1 social risk factor were in the most deprived quartile of census tracts, patients with social risk factors lived in all census tracts. Overall, the accuracy of the community-level data for identifying patients with and without social risks was 48.0%. Conclusions and Relevance: Although there is overlap, patient-level and community-level approaches for assessing patient social risks are not equivalent. Using community-level data to guide patient-level activities may mean that some patients who could benefit from targeted interventions or care adjustments would not be identified.
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The accuracy of community-level data for identifying patients with and without social risks was 48.0%.
“They found that “the accuracy of the community-level data for identifying patients with and without social risks was 48.0%.””
From The quality of social determinants data in the electronic health record: a systematic review (2021) · cites this paper as [52]
Use of community-level data for patient risk stratification may heighten the risk of ecologic fallacy, wherein incorrect assumptions are made about an individual based on aggregate-level information about a group.
“The authors noted that the use of these data for patient risk stratification “may heighten the risk of ecologic fallacy, wherein incorrect assumptions are made about an individual based on aggregate-level information about a group.”52”
From The quality of social determinants data in the electronic health record: a systematic review (2021) · cites this paper as [52]
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“However, community data do not necessarily predict individual needs [37].”
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“35,36 The head-to-head validation of CVC against commonly used neighborhood indexes provides direct evidence of CVC’s validity and usefulness as a neighborhood SDOH monitoring tool.”
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“Given that previous work 34 has illuminated the incongruence of these measures – and their different conceptual underpinnings – we sought to examine them separately.”
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“17 Thisstudylaysthegroundworkforfuturestudiestodeterminehowthe presenceofsocialneedsimpactswaitlistoutcomes.”
BackgroundA Novel Approach to Developing Disease and Outcome−Specific Social Risk Indices
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“Counties can be heterogeneous, and therefore county-level SVI variables can mask considerable disparities within counties.(47) In these cases, the resulting principal component weights will be diluted through the county-level aggregation.”
Repeatable enhancement of healthcare data with social determinants of health
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“This may give rise to the problem of “ecologic fallacy” where incorrect assumptions can be made about a patient based on aggregate-level information from community-level data (Garg et al., 2016; Cottrell et al., 2020).”
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“More detailed description of these variables and their relationship with health-related behaviours might be expected to result in a more nuanced analysis of their impact on outcomes [29].”
BackgroundThe ADVANCE Clinical Research Network Past, Present, and Future
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“…based on area-level SDoH, which, for instance, can fail to capture about 42% of people living in deprived conditions within otherwise privileged areas [45], our individual-levelanalysis has the potential to capture a greater proportion of those with SDoH needs independent of their area-level data.”
BackgroundLinfield, G. H., Patel, S., Ko, H., Lacar, B., Gottlieb, L. M., Adler-Milstein, J., Singh, N. V., Pantell, M. S., & Marchis, E. D. D. (2023) · Health Informatics Journal · doi:10.1177/14604582231200300 · Cited by 4 · see citing works
“32 Articles had to be available in English and published in the peer-reviewed literature from 1/1/2009 to 7/20/2020.”
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“The social deprivation index (SDI) is a composite measure of area-level deprivation based on seven demographic characteristics collected in the American Community Survey and used to quantify the socio-economic variation in health outcomes [27].”
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“Previous studies have shown that social needs data from patients is a better predictor of health than neighborhood data (Cottrell et al., 2020).”
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“Community-level data has not improved prediction models and may not identify all individuals who could benefit from social support (Cottrell et al., 2020).”
BackgroundDevelopment and Validation of Computable Social Phenotypes for Health‐Related Social Needs
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“68 A growing body of research is exploring the potential of ML algorithms to classify patients’ HRSNs.”
Characteristics of patients dismissed from a retina practice
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“For example, patients living where the census tracts have an SDI in the highest national quartile ( ≥ 75) have been reported to have worse health outcomes[20].”
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“Healthcare systems are increasingly screening patients for social risks (Cottrell et al., 2020).”
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“Not everyone experiencing social risk desires help, but a significant proportion endorse social needs for which they would like health system support [4, 5].”
Health Care Utilization in an Academic Integrative Medicine Center, 2011–2022
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“28 Relying solely on community-level data to understand the social risks of an individual risks ecological fallacy.”
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“11,14 It is possible that as data collection on individual social risks expands, we will see both a higher level of social risks in our patient population and different associations with utilization.”
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“Overall, our findings align with Cottrell et al., who reported on the lack of concordance between patient-and area-level social-risk data, highlighting the potential for ecological fallacy when using area-level data to identify patient-level needs (44) .”
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“While this is useful to design quality care for large groups, it risks incorrectly identifying patients who could benefit from an intervention (Cottrell et al., 2020).”
BackgroundAdjusting for Patient Economic/Access Issues in a Hypertension Quality Measure
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“Third, though burdensome, individuallevel social and behavior risks, rather than neighborhood-level risks, can improve the ability to predict which patients may benefit from supplementary clinic-community linked interventions [38,52,53].”
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“Meanwhile, healthcare systems can integrate community resources to address the social needs of individuals across CKM stages 0–4 [38].”
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“In such settings, brief social-need screening (e.g., PRAPARE), paired with navigation or community health worker support, may offer a pragmatic approach, 25 though its effectiveness in childhood cancer survivorship warrants prospective evaluation.”
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“Patients from deprived neighborhoods are more likely to be on public insurance (63), and therefore face more barriers accessing primary and specialty care, including lower provider acceptance rates and longer wait times for appointments (64, 65), and the potential for insurance-based discrimination…”
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Socioeconomic and Psychosocial Needs in Pediatric Infectious Diseases Outpatient Settings
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“26,27 In our study, however, it appears that SDI screening prior to clinic visits might help providers be more aware of the places where families reside and the potential risks and assets of those places.”
- Authors
- Cottrell, E. K., Hendricks, M., Dambrun, K., Cowburn, S., Pantell, M., Gold, R., & Gottlieb, L. M.
- Affiliations
- Oregon Health & Science University (US)
- Ochin (US)
- University of California, San Francisco (US)
- Kaiser Permanente (US)
- Corresponding author
- Cottrell, Erika K.
- Venue
- JAMA Network Open
- Publisher
- American Medical Association (AMA)
- Published
- 2020-10-29
- Volume
- 3
- Issue
- 10
- Pages
- e2016852
- ISSN
- 2574-3805 (ISSN-L)
- PMC
- PMC7596576
- OpenAlex
- W3095119350
- Cited by
- 126
- References
- 35
- Citations by year
- 2026: 20 · 2025: 21 · 2024: 24 · 2023: 29 · 2022: 21 · 2021: 11
- FWCI
- 8.44
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- JAMA Network Open (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Funders
- Patient-Centered Outcomes Research Institute
- Topics
- Social Sciences › Health › Health disparities and outcomes
- Health Sciences › Health Professions › General Health Professions › Food Security and Health in Diverse Populations
- Social Sciences › Health › Public Health and Social Inequalities
- Keywords
- social risk screening, food insecurity, housing insecurity, financial stress, community health centers, social determinants of health, screening accuracy
- MeSH terms
- Adolescent, Adult, Age Factors, Aged, Aged, 80 and over, Child, Child, Preschool, Community Health Centers, Cross-Sectional Studies, Female, Humans, Infant, Infant, Newborn, Male, Middle Aged, Residence Characteristics, Risk Factors, Sex Factors, Socioeconomic Factors, United States, Risk Assessment, Young Adult, Social Determinants of Health
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