Self-management education for cystic fibrosis
Open accessAbstract
of Systematic Reviews should be consulted for the most recent version of the Review.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the Cottrell 1996 trial, the mean (SD) baseline weight was 89.15 (29.29) lb in the intervention group and 101.4 (32.17) lb in the control group, indicating a clinically important baseline imbalance for CF.
“As highlighted in a previous Cochrane Review (Savage 2014), in one trial, the mean (SD) baseline weight measurement for participants in the intervention group was 89.15 (29.29) lb and for participants in the control group was 101.4 (32.17) lb, which, for CF, indicates a clinically important baseline imbalance (Cottrell 1996).”
From Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis (2023) · cites this paper as Savage 2014
The Characteristics of included studies section reports the Cottrell 1996 baseline weights and calls their difference a clinically important imbalance for CF. However, it gives the intervention-group mean as 89.5 lb, not the claimed 89.15 lb; the SD and control-group figures match. (LLM, conf=0.90)
Experimental — accuracy not yet measuredPrevious Cochrane Reviews on adherence and CF-specific reviews have not used a coding framework, so this review has improved on existing methodologies.
“Previous Cochrane Reviews on adherence (Nieuwlaat 2014) and CF-specific reviews (Goldbeck 2014; Savage 2014) have not used a coding framework, so this review has improved on existing methodologies.”
From Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis (2023) · cites this paper as Savage 2014
In contrast to Savage 2014, the review judged two studies to have a high risk of bias from incomplete outcome data (attrition bias), whereas Savage 2014 judged them to have an unclear risk of bias for this domain.
“In contrast to the Savage 2014 review, we judged these two studies to have a high risk of bias from incomplete outcome data (attrition bias), whereas Savage 2014 judged them to have an unclear risk of bias for this domain.”
From Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis (2023) · cites this paper as Savage 2014
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
5 retracted
Group based training for self-management strategies in people with type 2 diabetes mellitus
Deakin, T. A., McShane, C. E., Cade, J. E., & Williams, R. (2005) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd003417.pub2 · Cited by 862 · see citing works
RetractedSelf-management education for adults with epilepsy
Shaw, E. J., Stokes, T., Camosso‐Stefinovic, J., Baker, R., Baker, G. A., & Jacoby, A. (2007) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd004723.pub2 · Cited by 38 · see citing works
RetractedSelf-management education for children with epilepsy
Stokes, T., Shaw, E. J., Camosso‐Stefinovic, J., Baker, R., Baker, G. A., & Jacoby, A. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd004724.pub3 · Cited by 21 · see citing works
RetractedSelf-management education for children with epilepsy
Stokes, T., Shaw, E. J., Camosso‐Stefinovic, J., Baker, R., Baker, G. A., & Jacoby, A. (2007) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd004724.pub2 · Cited by 15 · see citing works
RetractedSelf-management education for adults with epilepsy
Shaw, E. J., Stokes, T., Camosso‐Stefinovic, J., Baker, R., Baker, G. A., & Jacoby, A. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd004723.pub3 · Cited by 6 · see citing works
RetractedSelf-management education: History, definition, outcomes, and mechanisms
Lorig, K. R., & Holman, H. R. (2003) · Annals of Behavioral Medicine · doi:10.1207/s15324796abm2601_01 · Cited by 4,094 · see citing works
Update on Key Emerging Challenges in Cystic Fibrosis
Jennings, M. T., Riekert, K. A., & Boyle, M. (2014) · Medical Principles and Practice · doi:10.1159/000357646 · Cited by 3,667 · see citing works
Self-management education and regular practitioner review for adults with asthma
Gibson, P. G., Powell, H. A., Wilson, A., Abramson, M. J., Haywood, P., Bauman, A. E., Hensley, M., Walters, E. H., & Roberts, J. J. (2002) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd001117 · Cited by 1,373 · see citing works
Self-management interventions for chronic illness
Newman, S. P., Steed, L., & Mulligan, K. (2004) · The Lancet · doi:10.1016/s0140-6736(04)17277-2 · Cited by 993 · see citing works
Cystic fibrosis mortality and survival in the UK: 1947–2003
DODGE, J. A., Lewis, P. A., Stanton, M., & Wilsher, J. (2006) · European Respiratory Journal · doi:10.1183/09031936.00099506 · Cited by 627 · see citing works
Self-management education for patients with chronic obstructive pulmonary disease
Effing, T., Monninkhof, E. E., van der Valk, P. P. D. L. P. M., Zielhuis, G. G., Walters, E. H., van der Palen, J. J., & Zwerink, M. (2007) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd002990.pub2 · Cited by 536 · see citing works
Effects of Anaerobic Training in Children With Cystic Fibrosis
Klijn, P. H. C., Oudshoorn, A., van der Ent, C. K., van der Net, J. J., Kimpen, J. L. L., & Helders, P. J. M. (2004) · CHEST Journal · doi:10.1378/chest.125.4.1299 · Cited by 186 · see citing works
Partnerships between expert patients and physicians
Lorig, K. R. (2002) · The Lancet · doi:10.1016/s0140-6736(02)07959-x · Cited by 167 · see citing works
Care delivery and self management strategies for adults with epilepsy
Bradley, P. M., LINDSAY, B. D., & Fleeman, N. (2016) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006244.pub3 · Cited by 160 · see citing works
Moorcroft, A. J. (2004) · Thorax · doi:10.1136/thx.2003.015313 · Cited by 147 · see citing works
Chernoff, R. G., Ireys, H. T., DeVet, K. A., & Kim, Y. J. (2002) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.156.6.533 · Cited by 126 · see citing works
Schreurs, K. M. G., Colland, V. T., Kuijer, R. G., de Ridder, D. T. D., & van Elderen, T. (2003) · Patient Education and Counseling · doi:10.1016/s0738-3991(02)00197-0 · Cited by 109 · see citing works
Strength vs Aerobic Training in Children With Cystic Fibrosis
Orenstein, D. M., Hovell, M. F., Mulvihill, M. M., et al. (2004) · CHEST Journal · doi:10.1378/chest.126.4.1204 · Cited by 107 · see citing works
Stark, L. J., Mulvihill, M. M., Powers, S. W., Jelalian, E., Keating, K., Creveling, S., Byrnes‐Collins, B., Harwood, I. R., Passero, M. A., Light, M. J., et al. (1996) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/00005176-199604000-00005 · Cited by 94 · see citing works
Effect of a Home Exercise Training Program in Patients With Cystic Fibrosis
de Jong, W., Grevink, R. G., Roorda, R. J., et al. (1994) · CHEST Journal · doi:10.1378/chest.105.2.463 · Cited by 88 · see citing works
Marciel, K. K., Saiman, L. M., Quittell, L. M., Dawkins, K., & Quittner, A. L. (2010) · Pediatric Pulmonology · doi:10.1002/ppul.21164 · Cited by 86 · see citing works
Williams, B., Mukhopadhyay, S., Dowell, J. S., & Coyle, J. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2007.07.020 · Cited by 78 · see citing works
A Behavioral Approach to Increasing Calorie Consuption in Children With Cystic Fibrosis
Stark, L. J., Bowen, A. M., Tyc, V. L., et al. (1990) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/15.3.309 · Cited by 78 · see citing works
Stark, L. J., Powers, S. W., Jelalian, E., Rape, R. N., & Miller, D. L. (1994) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/19.6.751 · Cited by 73 · see citing works
Davis, M. A. (2004) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsh026 · Cited by 72 · see citing works
INCREASING CALORIE CONSUMPTION IN CHILDREN WITH CYSTIC FIBROSIS: REPLICATION WITH 2‐YEAR FOLLOW‐UP
Stark, L. J., Knapp, L. G., Bowen, A. M., Powers, S. W., Jelalian, E., Evans, S., Passero, M. A., Mulvihill, M. M., & Hovell, M. (1993) · Journal of Applied Behavior Analysis · doi:10.1901/jaba.1993.26-435 · Cited by 71 · see citing works
Bartholomew, L. K., Czyzewski, D. I., Parcel, G. S., Swank, P. R., Sockrider, M. M., Mariotto, M. J., Schidlow, D. V., Fink, R. J., & Seilheimer, D. K. (1997) · Health Education & Behavior · doi:10.1177/109019819702400511 · Cited by 65 · see citing works
Clinic consultations with children and parents on the dietary management of cystic fibrosis
Savage, E., & Callery, P. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.09.003 · Cited by 64 · see citing works
Self-citationSelf-management education for cystic fibrosis
Savage, E., Beirne, P. V., Chróinín, M. N., Duff, A. J. A., Fitzgerald, T., & Farrell, D. (2011) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007641.pub2 · Cited by 60 · see citing works
Self-citationPowers, S. W., Jones, J. S., Ferguson, K. S., Piazza‐Waggoner, C., Daines, C. L., & Acton, J. D. (2005) · PEDIATRICS · doi:10.1542/peds.2004-2823 · Cited by 60 · see citing works
Usefulness of a program of hospital‐supervised physical training in patients with cystic fibrosis
Turchetta, A., Salerno, T., Lucidi, V., et al. (2004) · Pediatric Pulmonology · doi:10.1002/ppul.20073 · Cited by 59 · see citing works
Development of a Health Education Program to Promote the Self-Management of Cystic Fibrosis
Bartholomew, L. K., Parcel, G. S., Seilheimer, D. K., Czyzewski, D. I., Spinelli, S. H., & Congdon, B. (1991) · Health Education Quarterly · doi:10.1177/109019819101800403 · Cited by 59 · see citing works
Stark, L. J., Quittner, A. L., Powers, S. W., Opipari‐Arrigan, L., Bean, J. A., Duggan, C., & Stallings, V. A. (2009) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpediatrics.2009.165 · Cited by 58 · see citing works
Building Life Skills for Children With Cystic Fibrosis
Christian, B. J., & D’Auria, J. P. (2006) · Nursing Research · doi:10.1097/00006199-200609000-00002 · Cited by 53 · see citing works
Adults with cystic fibrosis report important and unmet needs for disease information
Sawicki, G. S., Sellers, D. E., McGuffie, K., & Robinson, W. M. (2007) · Journal of Cystic Fibrosis · doi:10.1016/j.jcf.2007.03.004 · Cited by 50 · see citing works
Self-management of cystic fibrosis: A structural model for educational and behavioral variables
Parcel, G. S., Swank, P. R., Mariotto, M. J., Bartholomew, L. K., Czyzewski, D. I., Sockrider, M. M., & Seilheimer, D. K. (1994) · Social Science & Medicine · doi:10.1016/0277-9536(94)90194-5 · Cited by 50 · see citing works
Stark, L. J., Opipari, L. C., Spieth, L. E., Jelalian, E., Quittner, A. L., Higgins, L., Mackner, L. M., Byars, K. C., Lapey, A., Stallings, V. A., et al. (2003) · Behavior Therapy · doi:10.1016/s0005-7894(03)80015-1 · Cited by 48 · see citing works
Downs, J. A., Roberts, C. M., Blackmorel, A. M., Le Souëf, P. N., & Jenkins, S. C. (2006) · Chronic Respiratory Disease · doi:10.1191/1479972306cd100oa · Cited by 47 · see citing works
Stark, L. J., Opipari‐Arrigan, L., Quittner, A. L., Bean, J. A., & Powers, S. W. (2010) · Pediatric Pulmonology · doi:10.1002/ppul.21322 · Cited by 46 · see citing works
Development and evaluation of a multi-family psychoeducational program for cystic fibrosis
Goldbeck, L., & Babka, C. (2001) · Patient Education and Counseling · doi:10.1016/s0738-3991(00)00184-1 · Cited by 45 · see citing works
Care delivery and self-management strategies for adults with epilepsy
Bradley, P. M., & Lindsay, B. D. (2008) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006244.pub2 · Cited by 43 · see citing works
Behavioral Assessment and Management of Food Refusal in Children with Cystic Fibrosis
Singer, L. T., NOFER, J. A., Szekely, L. J., & Brooks, L. J. (1991) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/00004703-199104000-00008 · Cited by 40 · see citing works
Powers, S. W., Byars, K. C., Mitchell, M. J., Patton, S. R., Schindler, T., & Zeller, M. H. (2003) · Children s Health Care · doi:10.1207/s15326888chc3204_5 · Cited by 30 · see citing works
Mealtime problems predict outcome in clinical trial to improve nutrition in children with CF
Opipari‐Arrigan, L., Powers, S. W., Quittner, A. L., & Stark, L. J. (2009) · Pediatric Pulmonology · doi:10.1002/ppul.21147 · Cited by 23 · see citing works
Watson, H., Bilton, D., & Truby, H. (2008) · Journal of the American Dietetic Association · doi:10.1016/j.jada.2008.02.017 · Cited by 22 · see citing works
What Do Children With Cystic Fibrosis and Their Parents Know About Nutrition and Pancreatic Enzymes?
STAPLETON, D. R., Gurrin, L. C., Zubrick, S. R., Silburn, S., Sherriff, J. L., & Sly, P. D. (2000) · Journal of the American Dietetic Association · doi:10.1016/s0002-8223(00)00417-x · Cited by 21 · see citing works
Increasing Physical Activity of Children with Cystic Fibrosis: A Home-Based Family Intervention
Tuzin, B. J., Mulvihill, M. M., Kilbourn, K. M., Bertran, D. A., Buono, M. J., Hovell, M. F., Harwood, I. R., & Light, M. J. (1998) · Pediatric Exercise Science · doi:10.1123/pes.10.1.57 · Cited by 20 · see citing works
Powers, S. W., Piazza‐Waggoner, C., Jones, J. S., Ferguson, K. S., Daines, C. L., & Acton, J. D. (2005) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsj049 · Cited by 20 · see citing works
Performance objectives for the self-management of cystic fibrosis
Bartholomew, L. K., Sockrider, M. M., Seilheimer, D. K., Czyzewski, D. I., Parcel, G. S., & Spinelli, S. H. (1993) · Patient Education and Counseling · doi:10.1016/0738-3991(93)90085-b · Cited by 17 · see citing works
STAPLETON, D. R., Gurrin, L. C., Silburn, S., Sherriff, J. L., Sly, P. D., & Zubrick, S. R. (2001) · Cited by 16 · see citing works
Quittner, A. L., Kimberg, C., Marciel, K. K., Zhang, J., & Riekert, K. A. (2011) · CHEST Journal · doi:10.1378/chest.1117411 · Cited by 15 · see citing works
Janicke, D. M., Mitchell, M. J., Quittner, A. L., Piazza‐Waggoner, C., & Stark, L. J. (2008) · Children s Health Care · doi:10.1080/02739610701766891 · Cited by 15 · see citing works
Self-administration of drugs for cystic fibrosis.
Trapp, M., Barton, S. D., Morgan, H., & Lockyer, L. (1998) · PubMed · Cited by 10 · see citing works
The development and evaluation of a self-management program for cystic fibrosis
COTTRELL, C. K., YOUNG, G. A., CREER, T. L., HOLROYD, K. A., & KOTSES, H. (1996) · Pediatric Asthma, Allergy & Immunology · doi:10.1089/pai.1996.10.109 · Cited by 10 · see citing works
Proteinase-free myeloperoxidase increases airway epithelial permeability in a whole trachea model
Regelmann, W. E., Schneider, L. A., Fahrenkrug, S. C., Gray, B. H., Johnson, S. J., Herron, J. M., Clawson, C. C., Clawson, D. J., & Wangensteen, O. D. (1997) · Pediatric Pulmonology · doi:10.1002/(sici)1099-0496(199707)24:1 · Cited by 10 · see citing works
Bartholomew, L. K., Czyzewski, D. I., Swank, P. R., et al. (2000) · Family & Community Health · doi:10.1097/00003727-200001000-00005 · Cited by 9 · see citing works
Stark, L. J., Mackner, L. M., Kessler, J. H., Opipari, L. C., & Quittner, A. L. (2002) · Children s Health Care · doi:10.1207/s15326888chc3102_2 · Cited by 8 · see citing works
Quittner, A. L., Romero, S., Blackwell, L. S., Marciel, K. K., Romero, C. V., Dawkins, K., Franco, M. E. P., & Quizon, A. (2012) · Journal of Cystic Fibrosis · doi:10.1016/s1569-1993(12)60481-0 · Cited by 7 · see citing works
Improving self efficacy in adolescents and young adults with cystic fibrosis (CF)
Wainwright, C. E., Saddington, H., Busch, J., Blizzard, L., Cameron-Tucker, H., Cheney, J. L., Jessup, M., Cummings, E., Joseph, L., Turner, P. A., et al. (2009) · Journal of Cystic Fibrosis · doi:10.1016/s1569-1993(09)60360-x · Cited by 7 · see citing works
Pathways Home Project: a pilot study of chronic disease self management in cystic fibrosis (CF)
Jessup, M., Busch, J., Turner, P. A., et al. (2008) · Journal of Cystic Fibrosis · doi:10.1016/s1569-1993(08)60393-8 · Cited by 7 · see citing works
Cox, J. E. J. (1994) · Elementary school guidance and counseling · Cited by 6 · see citing works
Éducation thérapeutique et mucoviscidose de l’enfant : compétences, objectifs et conducteurs
David, V., Iguenane, J., RAVILLY, S., et al. (2008) · Archives de Pédiatrie · doi:10.1016/s0929-693x(08)71898-0 · Cited by 6 · see citing works
Hourigan, S. E., Helms, S. W., Christon, L., & Southam‐Gerow, M. A. (2013) · Clinical Practice in Pediatric Psychology · doi:10.1037/cpp0000034 · Cited by 5 · see citing works
Watson, H., & Haworth, C. S. (2008) · Journal of Cystic Fibrosis · doi:10.1016/s1569-1993(08)60366-5 · Cited by 2 · see citing works
355 Playing the board game “Airway” with children increases knowledge about CF lung disease
van der Giessen, L., Sogtoen, S. O., Hop, W. C. J., et al. (2006) · Journal of Cystic Fibrosis · doi:10.1016/s1569-1993(06)80302-4 · Cited by 2 · see citing works
Flagged first, then by citations
Research works printed but not linked: 3
- treatment to increase calorie intake in toddlers with cystic fibrosis. Children's Health Care 2003;32(4):297-311.
- Quittner AL, Romero SL, Blackwell LS, Romero CV, Marciel KK, Dawkins K, et al.Preliminary results on the efficacy of an online social network for adolescents with CF: age and disease severity group comparisons. Pediatric Pulmonology 2012;47(Suppl 35):388. References to studies awaiting assessment Bergman 2007 {published data only} Bergmann D, Farmer G, Moss R. CF.DOC -A Web-based Interactive Model of Care. Cystic Fibrosis Worldwide 2007; 9:22-5.
- Search Strategy: Embase (Elsevier) Date of Search 03 February 2014 Years Covered January 1990 to January 2014 Complete Strategy 1. cystic fibrosis. ti,ab,de. 2. mucoviscidosis. ti,ab,de. 3. 1 or 2 4. 'clinical trial'. ti,ab,de.
Cited by
Sorted by citations
Psychological interventions for parents of children and adolescents with chronic illness
Eccleston, C., Fisher, E., Law, E., Bartlett, J., & Palermo, T. M. (2015) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009660.pub3 · Cited by 216 · see citing works
Calthorpe, R. J., Smith, S., Gathercole, K., & Smyth, A. R. (2020) · Thorax · doi:10.1136/thoraxjnl-2019-213233 · Cited by 61 · see citing works
Wildman, M. J., O’Cathain, A., Maguire, C., Arden, M. A., Hutchings, M., Bradley, J., Walters, S. J., Whelan, P., Ainsworth, J., Buchan, I., et al. (2022) · Thorax · doi:10.1136/thoraxjnl-2021-217594 · Cited by 54 · see citing works
Warner, G., Packer, T. L., Kervin, E., Sibbald, K., & Audulv, Å. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.07.002 · Cited by 38 · see citing works
Dawson, S., Girling, C.-J., Cowap, L., & Clark-Carter, D. (2023) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd013766.pub2 · Cited by 14 · see citing works
- Authors
- Savage, E., Beirne, P. V., Ni Chroinin, M., Duff, A., Fitzgerald, T., & Farrell, D.
- Affiliations
- University College Cork (IE)
- Cork University Hospital; Division of Children's Services; Cork Ireland
- Leeds Teaching Hospitals NHS Trust (GB)
- Venue
- Cochrane Database of Systematic Reviews
- Publisher
- Wiley
- Published
- 2014-09-08
- Volume
- 2017
- Issue
- 6
- ISSN
- 1361-6137 (ISSN-L)
- 1465-1858
- OpenAlex
- W4211049266
- Cited by
- 38
- References
- 65
- Citations by year
- 2024: 4 · 2023: 2 · 2022: 1 · 2021: 4 · 2020: 6 · 2019: 7 · 2018: 6 · 2017: 2 · 2016: 3 · 2015: 3
- FWCI
- 0.45
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Cochrane Database of Systematic Reviews (publishedVersion)
- Cork Open Research Archive (University College Cork, Ireland) (acceptedVersion)
- Cork Open Research Archive (University College Cork, Ireland) (submittedVersion)
- Funders
- Health Research Board
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Chronic Obstructive Pulmonary Disease (COPD) Research
- Keywords
- cystic fibrosis, self-management education, patient education, self-care, disease management
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
