Adolescent quality of life, Part II: initial validation of a new instrument
Abstract
The psychometric properties of the Youth Quality of Life Instrument-Research Version (YQOL-R) perceptual module are presented. Self-reports were obtained from 236 youth aged 12-18 years with mobility disability, attention-deficit hyperactivity disorder, or without self-reported chronic conditions. Item and factor analyses confirmed the hypothesized conceptual model derived from previous qualitative research. The scales of the YQOL-R showed acceptable internal consistency (Cronbach's alpha=0.77-0.96), reproducibility (ICCs=0.74-0.85), expected associations with other constructs, and ability to distinguish between known groups. The YQOL-R showed sufficient validity to encourage further use.
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Participants with self-perceived poor QOL at baseline exhibited marked impairment compared with the study populations described in the initial validation study.
“In the current post-hoc analysis, participants with self-perceived poor QOL at baseline (i.e., individuals with transformed YQOL-R perceptual total scores ≥1 SD below the overall mean) exhibited marked impairment compared with the study populations described in the initial validation study (Patrick et al. 2002), as evidenced by mean (SD) transformed YQOL-R perceptual total scores of 57.6 (9.84) at”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
The YQOL-R has been validated for adolescents with ADHD.
“Although not specifically designed for assessing QOL in adolescents diagnosed with ADHD (Edwards et al. 2002), the YQOL-R has been validated for this population (Patrick et al. 2002).”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
Validation of the YQOL-R focused on the perceptual domains.
“Validation of the instrument also focused on the perceptual domains (Patrick et al. 2002).”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
The QOL assessment instrument used in this study, the YQOL-R, is not ADHD-specific, although it has been validated in adolescents with ADHD.
“Moreover, the QOL assessment instrument used currently, the YQOL-R, is not ADHD-specific, although it has been validated in adolescents with ADHD (Patrick et al. 2002).”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
At week 52/ET, the overall population mean YQOL-R score was somewhat higher than, but generally comparable with, the estimated marginal mean score in individuals without a self-reported chronic condition in the validation study.
“At week 52/ET of the current study, the mean (SD) transformed YQOL-R perceptual total score of 83.9 (11.00) for the overall population (Findling et al. 2013) was somewhat higher than, but generally comparable with, the estimated marginal mean score in individuals without a self-reported chronic condition in the validation study (Patrick et al. 2002).”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
The YQOL-R is designed to assess general QOL in adolescents and was validated in both normal probands in the community and in adolescents with a range of chronic disabilities, including ADHD.
“The YQOL-R is designed to assess general QOL in adolescents and was validated in both normal probands in the community as well as in adolescents with a range of chronic disabilities, including ADHD.”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
The overall population in the current study exhibited slightly impaired QOL at baseline.
“This suggests that the overall population in the current study exhibited slightly impaired QOL at baseline.”
From Participant-Perceived Quality of Life in a Long-Term, Open-Label Trial of Lisdexamfetamine Dimesylate in Adolescents with Attention-Deficit/Hyperactivity Disorder (2014) · cites this paper as Patrick et al. 2002
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- Authors
- PATRICK, D. L., EDWARDS, T. C., & TOPOLSKI, T. D.
- Affiliations
- University of Washington (US)
- Venue
- Journal of Adolescence
- Publisher
- Elsevier BV
- Published
- 2002-06
- Volume
- 25
- Issue
- 3
- Pages
- 287-300
- ISSN
- 0140-1971 (ISSN-L)
- OpenAlex
- W1966782848
- Cited by
- 260
- References
- 0
- Citations by year
- 2026: 7 · 2025: 15 · 2024: 15 · 2023: 11 · 2022: 13 · 2021: 16 · 2020: 8 · 2019: 13 · 2018: 8 · 2017: 7 · 2016: 8 · 2015: 17 · 2014: 17 · 2013: 10 · 2012: 10
- FWCI
- 3.64
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Adolescence (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Eli Lilly and Company
- Centers for Disease Control and Prevention
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Education › Health Education and Validation
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- psychometric validation, self-report measures, mobility impairment, attention deficit hyperactivity disorder, chronic disease, internal consistency, reproducibility, factor structure
- MeSH terms
- Adolescent, Psychology, Adolescent, Mental Disorders, Child, Factor Analysis, Statistical, Female, Humans, Male, Quality of Life, Surveys and Questionnaires, Washington, Reproducibility of Results
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