The DOI matches its Crossref record; 49 of the 49 references it cites were found in a registry or an index.
Fascination and Isolation: A Grounded Theory Exploration of Unusual Sensory Experiences in Adults with Asperger Syndrome
Abstract
Unusual sensory experiences are commonly seen in people with Asperger syndrome (AS). They correlate with functional impairments and cause distress. The current study investigates how these experiences have affected nine adults with AS's lives, as well as the coping strategies utilised. Semi-structured interviews were conducted using Instant Messaging software. Data were analysed using Grounded Theory. A number of inter-related categories and focused codes were identified. The categories included heightened senses, sensory stress, the stress avalanche, moderating factors, coping strategies, other people, self-acceptance, fascination, and isolation. A model was constructed as to how these categories and codes interact. How these findings link with previous research into autism spectrum disorders is discussed. Implications for services and future research are also made.
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In the citing paper
“Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as R. S. Smith and Sharp (2013)
In the citing paper
“In adults, self-report studies with cognitively able autistic participants (Elwin et al., 2013; Jones et al., 2003; Smith & Sharp, 2012) indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
In the citing paper
“In self-report studies of sensory experiences in children with autism, coping strategies of avoiding or controlling an unpleasant stimulus are present even in the youngest participants (e.g., Kirby et al., 2014), though these can sometimes result in unhelpful outcomes for the individual (Ashburner et al., 2013; Smith & Sharp, 2012).”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
In the citing paper
“Previous self-reports of unhelpful sensory coping strategies (Ashburner et al., 2013; Smith & Sharp, 2012), suggest outcomes might not always be considered in autism”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
Citations
Cites
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Diagnostic and Statistical Manual of Mental Disorders
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Diagnostic and Statistical Manual of Mental Disorders
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Evolving guidelines for publication of qualitative research studies in psychology and related fields
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A meta-analysis of sensory modulation symptoms in individuals with autism spectrum disorders
Ben-Sasson, A., Hen, L., Fluss, R., Cermak, S. A., Engel-Yeger, B., & Gal, E. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-008-0593-3 · Cited by 1,047
Baranek, G. T., David, F. J., Poe, M. D., Stone, W. L., & Watson, L. R. (2006) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2005.01546.x · Cited by 975
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Epidemiology of Autism Spectrum Disorders in Adults in the Community in England
Brugha, T. S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., Bebbington, P., Jenkins, R., & Meltzer, H. (2011) · Archives of General Psychiatry · doi:10.1001/archgenpsychiatry.2011.38 · Cited by 903
Wing, L., Leekam, S. R., Libby, S. J., Gould, J., & Larcombe, M. (2002) · Journal of Child Psychology and Psychiatry · doi:10.1111/1469-7610.00023 · Cited by 694
Research works printed but not linked: 2
- Charmaz, K. (2006). Constructing grounded theory: A practical gudie through qualitative analysis. London: SAGE.
- Singer, J. (1999). ‘Why can’t you be normal for once in your life?’ From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability discourse (pp. 59–67). Buckingham: Open University Press.
Cited by
Sorted by citations
Embodiment and sense-making in autism
Jaegher, H. D. (2013) · Frontiers in Integrative Neuroscience · doi:10.3389/fnint.2013.00015 · Cited by 437
The Sensory Experiences of Adults with Autism Spectrum Disorder: A Qualitative Analysis
Robertson, A., & Simmons, D. R. (2015) · Perception · doi:10.1068/p7833 · Cited by 334
Diagnosis of autism in adulthood: A scoping review
Huang, Y., Arnold, S. R., Foley, K.-R., & Trollor, J. N. (2020) · Autism · doi:10.1177/1362361320903128 · Cited by 289
“Adults also reported sensory sensitivities that may increase stress in certain situations (R. S. Smith & Sharp, 2013).”
BackgroundLoneliness in autistic adults: A systematic review
Umagami, K., Remington, A., Lloyd‐Evans, B., Davies, J., & Crane, L. (2022) · Autism · doi:10.1177/13623613221077721 · Cited by 218
Williams, Z. J., He, J. L., Cascio, C. J., & Woynaroski, T. G. (2021) · Neuroscience & Biobehavioral Reviews · doi:10.1016/j.neubiorev.2020.11.030 · Cited by 175
Metadata
- Authors
- Smith, R. S., & Sharp, J.
- Affiliations
- Sheffield Health and Social Care NHS Foundation Trust (GB)
- St Mary's Hospital (GB)
- Corresponding author
- Smith, Richard S.
- ORCID
- Smith, Richard S.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2012-08-25
- Volume
- 43
- Issue
- 4
- Pages
- 891-910
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2067975863
- Cited by
- 120
- References
- 49
- Citations by year
- 2026: 8 · 2025: 12 · 2024: 13 · 2023: 11 · 2022: 16 · 2021: 20 · 2020: 9 · 2019: 7 · 2018: 4 · 2017: 4 · 2016: 7 · 2015: 4 · 2014: 3 · 2013: 2
- FWCI
- 1.47
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- Asperger syndrome, coping strategies, fascination, social isolation, self-acceptance, autism spectrum disorder, autistic adults
- MeSH terms
- Adaptation, Psychological, Adult, Female, Humans, Interview, Psychological, Male, Middle Aged, Perceptual Disorders, Psychiatric Status Rating Scales, Psychological Theory, Sensation Disorders, Social Isolation, Stress, Psychological, Internet, Asperger Syndrome, Qualitative Research
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