The DOI matches its Crossref record; 49 of the 49 references it cites were found in a registry or an index.
Fascination and Isolation: A Grounded Theory Exploration of Unusual Sensory Experiences in Adults with Asperger Syndrome
Abstract
Unusual sensory experiences are commonly seen in people with Asperger syndrome (AS). They correlate with functional impairments and cause distress. The current study investigates how these experiences have affected nine adults with AS's lives, as well as the coping strategies utilised. Semi-structured interviews were conducted using Instant Messaging software. Data were analysed using Grounded Theory. A number of inter-related categories and focused codes were identified. The categories included heightened senses, sensory stress, the stress avalanche, moderating factors, coping strategies, other people, self-acceptance, fascination, and isolation. A model was constructed as to how these categories and codes interact. How these findings link with previous research into autism spectrum disorders is discussed. Implications for services and future research are also made.
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In the citing paper
“Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as R. S. Smith and Sharp (2013)
In the citing paper
“In adults, self-report studies with cognitively able autistic participants (Elwin et al., 2013; Jones et al., 2003; Smith & Sharp, 2012) indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
In the citing paper
“In self-report studies of sensory experiences in children with autism, coping strategies of avoiding or controlling an unpleasant stimulus are present even in the youngest participants (e.g., Kirby et al., 2014), though these can sometimes result in unhelpful outcomes for the individual (Ashburner et al., 2013; Smith & Sharp, 2012).”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
In the citing paper
“Previous self-reports of unhelpful sensory coping strategies (Ashburner et al., 2013; Smith & Sharp, 2012), suggest outcomes might not always be considered in autism”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
Citations
Cites
Diagnostic and Statistical Manual of Mental Disorders
Williams, J. B. W., & First, M. B. (2013) · Oxford University Press eBooks · doi:10.1093/acrefore/9780199975839.013.104 · Cited by 109,845
Diagnostic and Statistical Manual of Mental Disorders
Siegel, L. J., & Fletcher‐Janzen, E. (2008) · Wiley eBooks · doi:10.1002/9780470373699.speced0655 · Cited by 8,467
Diagnostic and Statistical Manual of Mental Disorders
Raber, G., & Spokas, M. (2024) · doi:10.4135/9781071886229.n145 · Cited by 2,806
Evolving guidelines for publication of qualitative research studies in psychology and related fields
Elliott, R., Fischer, C. T., & Rennie, D. L. (1999) · British Journal of Clinical Psychology · doi:10.1348/014466599162782 · Cited by 2,491
Tomchek, S. D., & Dunn, W. (2007) · American Journal of Occupational Therapy · doi:10.5014/ajot.61.2.190 · Cited by 1,534
A meta-analysis of sensory modulation symptoms in individuals with autism spectrum disorders
Ben-Sasson, A., Hen, L., Fluss, R., Cermak, S. A., Engel-Yeger, B., & Gal, E. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-008-0593-3 · Cited by 1,047
Baranek, G. T., David, F. J., Poe, M. D., Stone, W. L., & Watson, L. R. (2006) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2005.01546.x · Cited by 975
CATTELL, J. M. (1923) · The Annals of the American Academy of Political and Social Science · doi:10.1177/000271622311000117 · Cited by 911
Epidemiology of Autism Spectrum Disorders in Adults in the Community in England
Brugha, T. S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., Bebbington, P., Jenkins, R., & Meltzer, H. (2011) · Archives of General Psychiatry · doi:10.1001/archgenpsychiatry.2011.38 · Cited by 903
Wing, L., Leekam, S. R., Libby, S. J., Gould, J., & Larcombe, M. (2002) · Journal of Child Psychology and Psychiatry · doi:10.1111/1469-7610.00023 · Cited by 694
Talent in autism: hyper-systemizing, hyper-attention to detail and sensory hypersensitivity
Baron-Cohen, S., Ashwin, E., Ashwin, C., Tavassoli, T., & Chakrabarti, B. (2009) · Philosophical Transactions of the Royal Society B: Biological Sciences · doi:10.1098/rstb.2008.0337 · Cited by 669
Efficacy of sensory and motor interventions for children with autism
Baranek, G. T. (2002) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1020541906063 · Cited by 601
Humphrey, N., & Lewis, S. (2008) · Autism · doi:10.1177/1362361307085267 · Cited by 587
Locke, J. J., Ishijima, E., Kasari, C. L., & London, N. (2010) · Journal of Research in Special Educational Needs · doi:10.1111/j.1471-3802.2010.01148.x · Cited by 556
Sensory Processing Subtypes in Autism: Association with Adaptive Behavior
Lane, A. E., Young, R. L., Baker, A. E. Z., & Angley, M. T. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0840-2 · Cited by 543
The pattern of sensory processing abnormalities in autism
Kern, J. K., Trivedi, M. H., Garver, C. R., Grannemann, B. D., Andrews, A. A., Savla, J. S., Johnson, D. G., Mehta, J. A., & Schroeder, J. L. (2006) · Autism · doi:10.1177/1362361306066564 · Cited by 515
Müller, E., Schuler, A. L., & Yates, G. B. (2008) · Autism · doi:10.1177/1362361307086664 · Cited by 500
McDougle, C. J., Scahill, L. D., Aman, M. G., McCracken, J. T., Tierney, E., Davies, M., Arnold, L. E., Posey, D. J., Martin, A., GHUMAN, J. K., et al. (2005) · American Journal of Psychiatry · doi:10.1176/appi.ajp.162.6.1142 · Cited by 477
Sensory and attention abnormalities in autistic spectrum disorders
Liss, M., Saulnier, C., Fein, D., & Kinsbourne, M. (2006) · Autism · doi:10.1177/1362361306062021 · Cited by 450
Social Anxiety in High-functioning Children and Adolescents with Autism and Asperger Syndrome
Kuusikko, S., Pollock, R. A., Jussila, K. K., Carter, A. S., Mattila, M., Ebeling, H. E., Pauls, D. L., & Moilanen, I. K. (2008) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-008-0555-9 · Cited by 423
Anxiety, social deficits, and loneliness in youth with autism spectrum disorders
White, S. W., & Roberson-Nay, R. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0713-8 · Cited by 399
Baker, A. E. Z., Lane, A., Angley, M. T., & Young, R. L. (2008) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-007-0459-0 · Cited by 366
Loneliness, social relationships, and a broader autism phenotype in college students
Jobe, L. E., & White, S. W. (2006) · Personality and Individual Differences · doi:10.1016/j.paid.2006.10.021 · Cited by 343
Green, S. A., & Ben-Sasson, A. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1007-x · Cited by 327
Affect regulation and temperament in children with autism spectrum disorder
Konstantareas, M. M., & Stewart, K. (2006) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-005-0051-4 · Cited by 307
Baranek, G. T., Boyd, B. A., Poe, M. D., David, F. J., & Watson, L. R. (2007) · American Journal on Mental Retardation · doi:10.1352/0895-8017(2007)112[233:hspiyc]2.0.co;2 · Cited by 240
QUALITATIVE INTERVIEWING IN INTERNET STUDIES: Playing with the media, playing with the method
Kazmer, M. M., & Xie, B. (2008) · Information Communication & Society · doi:10.1080/13691180801946333 · Cited by 235
Foss-Feig, J. H., Heacock, J. L., & Cascio, C. J. (2012) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2011.06.007 · Cited by 229
A new look at language and communication in autism
Uta Frith, A. (1989) · International Journal of Language & Communication Disorders · doi:10.3109/13682828909011952 · Cited by 212
Adapt or adopt: developing and transgressing the methodological boundaries of grounded theory
Cutcliffe, J. R. (2005) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2005.03514.x · Cited by 212
Autistic culture online: virtual communication and cultural expression on the spectrum
Davidson, J. (2008) · Social & Cultural Geography · doi:10.1080/14649360802382586 · Cited by 209
First-hand accounts of sensory perceptual experiences in autism: a qualitative analysis
Jones, R. S. P., Quigney, C., & Huws, J. C. (2003) · Journal of Intellectual & Developmental Disability · doi:10.1080/1366825031000147058 · Cited by 205
The Adult Asperger Assessment (AAA): A Diagnostic Method
Baron‐Cohen, S., Wheelwright, S. J., Robinson, J., & Woodbury‐Smith, M. (2005) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-005-0026-5 · Cited by 202
Carrington, S. B., & Graham, L. E. (2001) · Autism · doi:10.1177/1362361301005001004 · Cited by 186
Chen, Y.-H., Rodgers, J., & McConachie, H. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-008-0663-6 · Cited by 169
The `not guilty verdict': Psychological reactions to a diagnosis of Asperger syndrome in adulthood
Punshon, C., Skirrow, P., & Murphy, G. (2009) · Autism · doi:10.1177/1362361309103795 · Cited by 165
Exploring the experience of autism through firsthand accounts
Cesaroni, L., & Garber, M. (1991) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02207327 · Cited by 165
Gabriels, R. L., Agnew, J., Miller, L. J., Gralla, J., Pan, Z., Goldson, E., Ledbetter, J. C., Dinkins, J. P., & Hooks, E. N. (2008) · Research in Autism · doi:10.1016/j.rasd.2008.02.002 · Cited by 162
Brief Report: Improvements in the Behavior of Children with Autism Following Massage Therapy
Escalona, A., Field, T. M., Singer-Strunck, R., Cullen, C., & Hartshorn, K. (2001) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1012273110194 · Cited by 160
What Can We Learn about Autism from Autistic Persons?
Chamak, B., Bonniau, B., Jaunay, E., & Cohen, D. (2008) · Psychotherapy and Psychosomatics · doi:10.1159/000140086 · Cited by 153
Risperidone versus haloperidol in children and adolescents with AD
Miral, S., Gencer, Ö., İnal-Emiroglu, F. N., Baykara, B., Baykara, A., & Dırık, E. (2007) · European Child & Adolescent Psychiatry · doi:10.1007/s00787-007-0620-5 · Cited by 140
Relationship Between Context and Sensory Processing in Children With Autism
Brown, N. B., & Dunn, W. (2010) · American Journal of Occupational Therapy · doi:10.5014/ajot.2010.09077 · Cited by 130
Silva, L. M. T., Schalock, M. D., Ayres, R., Bunse, C., & Budden, S. S. (2009) · American Journal of Occupational Therapy · doi:10.5014/ajot.63.4.423 · Cited by 88
Using Instant Messaging for Internet-Based Interviews
Stieger, S., & Göritz, A. S. (2006) · CyberPsychology & Behavior · doi:10.1089/cpb.2006.9.552 · Cited by 84
Aggression in Low Functioning Children and Adolescents with Autistic Disorder
Bronsard, G., Botbol, M., & Tordjman, S. (2010) · PLoS ONE · doi:10.1371/journal.pone.0014358 · Cited by 71
Effects of Thai Traditional Massage on Autistic Children's Behavior
Piravej, K., Tangtrongchitr, P., Chandarasiri, P., Paothong, L., & Sukprasong, S. (2009) · The Journal of Alternative and Complementary Medicine · doi:10.1089/acm.2009.0258 · Cited by 67
Social Relationships and Asperger's Syndrome
Jones, R. S. P., & Meldal, T. O. (2001) · Journal of Learning Disabilities · doi:10.1177/146900470100500104 · Cited by 67
Autism - the search for coherence
Richer, J. M., & Coates, S. (2001) · Cited by 34
Support Groups for Adults With Asperger Syndrome
Jantz, K. M. (2011) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357611406903 · Cited by 31
Research works printed but not linked: 2
- Charmaz, K. (2006). Constructing grounded theory: A practical gudie through qualitative analysis. London: SAGE.
- Singer, J. (1999). ‘Why can’t you be normal for once in your life?’ From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability discourse (pp. 59–67). Buckingham: Open University Press.
Cited by
Sorted by citations
Embodiment and sense-making in autism
Jaegher, H. D. (2013) · Frontiers in Integrative Neuroscience · doi:10.3389/fnint.2013.00015 · Cited by 437
The Sensory Experiences of Adults with Autism Spectrum Disorder: A Qualitative Analysis
Robertson, A., & Simmons, D. R. (2015) · Perception · doi:10.1068/p7833 · Cited by 334
Diagnosis of autism in adulthood: A scoping review
Huang, Y., Arnold, S. R., Foley, K.-R., & Trollor, J. N. (2020) · Autism · doi:10.1177/1362361320903128 · Cited by 289
“Adults also reported sensory sensitivities that may increase stress in certain situations (R. S. Smith & Sharp, 2013).”
BackgroundLoneliness in autistic adults: A systematic review
Umagami, K., Remington, A., Lloyd‐Evans, B., Davies, J., & Crane, L. (2022) · Autism · doi:10.1177/13623613221077721 · Cited by 218
Williams, Z. J., He, J. L., Cascio, C. J., & Woynaroski, T. G. (2021) · Neuroscience & Biobehavioral Reviews · doi:10.1016/j.neubiorev.2020.11.030 · Cited by 175
Metadata
- Authors
- Smith, R. S., & Sharp, J.
- Affiliations
- Sheffield Health and Social Care NHS Foundation Trust (GB)
- St Mary's Hospital (GB)
- Corresponding author
- Smith, Richard S.
- ORCID
- Smith, Richard S.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2012-08-25
- Volume
- 43
- Issue
- 4
- Pages
- 891-910
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2067975863
- Cited by
- 120
- References
- 49
- Citations by year
- 2026: 8 · 2025: 12 · 2024: 13 · 2023: 11 · 2022: 16 · 2021: 20 · 2020: 9 · 2019: 7 · 2018: 4 · 2017: 4 · 2016: 7 · 2015: 4 · 2014: 3 · 2013: 2
- FWCI
- 1.47
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- Asperger syndrome, coping strategies, fascination, social isolation, self-acceptance, autism spectrum disorder, autistic adults
- MeSH terms
- Adaptation, Psychological, Adult, Female, Humans, Interview, Psychological, Male, Middle Aged, Perceptual Disorders, Psychiatric Status Rating Scales, Psychological Theory, Sensation Disorders, Social Isolation, Stress, Psychological, Internet, Asperger Syndrome, Qualitative Research
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