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Fascination and Isolation: A Grounded Theory Exploration of Unusual Sensory Experiences in Adults with Asperger Syndrome
Abstract
Unusual sensory experiences are commonly seen in people with Asperger syndrome (AS). They correlate with functional impairments and cause distress. The current study investigates how these experiences have affected nine adults with AS's lives, as well as the coping strategies utilised. Semi-structured interviews were conducted using Instant Messaging software. Data were analysed using Grounded Theory. A number of inter-related categories and focused codes were identified. The categories included heightened senses, sensory stress, the stress avalanche, moderating factors, coping strategies, other people, self-acceptance, fascination, and isolation. A model was constructed as to how these categories and codes interact. How these findings link with previous research into autism spectrum disorders is discussed. Implications for services and future research are also made.
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In the citing paper
“Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as R. S. Smith and Sharp (2013)
In the citing paper
“In adults, self-report studies with cognitively able autistic participants (Elwin et al., 2013; Jones et al., 2003; Smith & Sharp, 2012) indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
In the citing paper
“In self-report studies of sensory experiences in children with autism, coping strategies of avoiding or controlling an unpleasant stimulus are present even in the youngest participants (e.g., Kirby et al., 2014), though these can sometimes result in unhelpful outcomes for the individual (Ashburner et al., 2013; Smith & Sharp, 2012).”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
In the citing paper
“Previous self-reports of unhelpful sensory coping strategies (Ashburner et al., 2013; Smith & Sharp, 2012), suggest outcomes might not always be considered in autism”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
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Metadata
- Authors
- Smith, R. S., & Sharp, J.
- Affiliations
- Sheffield Health and Social Care NHS Foundation Trust (GB)
- St Mary's Hospital (GB)
- Corresponding author
- Smith, Richard S.
- ORCID
- Smith, Richard S.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2012-08-25
- Volume
- 43
- Issue
- 4
- Pages
- 891-910
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2067975863
- Cited by
- 120
- References
- 49
- Citations by year
- 2026: 8 · 2025: 12 · 2024: 13 · 2023: 11 · 2022: 16 · 2021: 20 · 2020: 9 · 2019: 7 · 2018: 4 · 2017: 4 · 2016: 7 · 2015: 4 · 2014: 3 · 2013: 2
- FWCI
- 1.47
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- Asperger syndrome, coping strategies, fascination, social isolation, self-acceptance, autism spectrum disorder, autistic adults
- MeSH terms
- Adaptation, Psychological, Adult, Female, Humans, Interview, Psychological, Male, Middle Aged, Perceptual Disorders, Psychiatric Status Rating Scales, Psychological Theory, Sensation Disorders, Social Isolation, Stress, Psychological, Internet, Asperger Syndrome, Qualitative Research
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