a qualitative study of autism policy in canada: Seeking consensus on children’s services
Open accessAbstract
Canadian autism policy has been unusually contentious, with parents resorting to litigation to secure services for their children in several provinces. To ascertain whether consensus was possible on improving services, we conducted an in-depth qualitative interview study with 39 parents, policymakers and researchers across the country. Parents vividly described the stresses of caring for their children, with considerable sympathy from researchers. Policymakers in turn struggled to balance the needs of all children. Yet participants agreed on the need for more comprehensive services across the spectrum and throughout the lifespan, and on the need to "do more for all" children. Our findings suggest that there is an emerging consensus on improving autism services in Canada-which should greatly benefit children.
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In a recent qualitative study of ASD policy in Canada, parents described shifting quickly to a feeling of panic about securing interventions for their child after receiving the diagnosis.
“In a recent qualitative study of ASD policy in Canada, parents described that after they received the diagnosis, they quickly shifted to a feeling of 'panic' about securing interventions for their child (19).”
From Environmental scan of Canadian and UK policies for autism spectrum disorder diagnostic assessment (2019) · cites this paper as [19]
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- Authors
- Shepherd, C. A., & Waddell, C.
- Affiliations
- Simon Fraser University (CA)
- Corresponding author
- Waddell, Charlotte
- ORCID
- Waddell, Charlotte
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2015-06-24
- Volume
- 45
- Issue
- 11
- Pages
- 3550-3564
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC4608990
- OpenAlex
- W821075641
- Cited by
- 67
- References
- 38
- Citations by year
- 2026: 3 · 2025: 3 · 2024: 3 · 2023: 4 · 2022: 15 · 2021: 3 · 2020: 10 · 2019: 12 · 2018: 3 · 2017: 6 · 2016: 4
- FWCI
- 2.60
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Summit (Simon Fraser University) (submittedVersion)
- Funders
- Canada Research Chairs
- Canadian Institutes of Health Research
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism policy, autism services, parental stress, consensus building, policy makers, parents of autistic children, comprehensive services, Canada
- MeSH terms
- Adult, Autistic Disorder, Canada, Child, Child Advocacy, Child Health Services, Female, Health Policy, Humans, Male, Parents, Cost of Illness, Consensus, Qualitative Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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