CoChat
Sign Up
Cited by 68Family and Disability Support ResearchMental Health and Patient InvolvementDisability Rights and Representation

Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities

Leiter, Valerie·2004·Social Science & Medicine
DOI 10.1016/s0277-9536(03)00258-2
Open this paper in CoChat — free account

Abstract

This paper explores some of the dilemmas that result when mothers and professionals collaborate in providing care to young children with disabilities within a US public program called Early Intervention. Successful collaboration between professionals and activist parents resulted in the program having a "family centered" approach, but the implementation of that approach is problematic. Professionals transmit therapeutic knowledge and skills to mothers of young children with special needs, urging them to perform therapeutic care work with their children. Through these efforts, professionals create a "therapeutic imperative" for mothers, expecting them to do therapeutic work that usually exceeds the amount of work that professionals do with their children. This paper explores the dilemmas mothers and professionals face when implementing family centered care and the ways in which mothers and professionals negotiate contested understandings of the optimal mixture of public (professional) and private (maternal) provision of therapeutic care to young children with disabilities.

Integrity signals

Registry

Crossref · 10.1016/s0277-9536(03)00258-2

Cites

80 of 80 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

We couldn’t retrieve this paper’s full text, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

  • Some providers consider FCC as delegating more responsibility to families for care and decision making than families desire.

    “Some providers consider FCC as delegating more responsibility to families for care and decision making than families desire [9, 10].”

    From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [10]

  • Families of children with chronic or complex conditions report multiple unmet needs on information and physician collaboration, specifically on community services, condition understanding, and networking.

    “Families of children with chronic or complex conditions report multiple unmet needs on information and physician collaboration [9, 10], specifically on community services, condition understanding, and networking [63, 64].”

    From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [10]

  • Parents consistently rate high levels of satisfaction with a sense of partnership in a variety of child health care settings, even as subjective descriptions of care are far less satisfactory.

    “Parents consistently rate high levels of satisfaction with a sense of partnership in a variety of child health care settings [76–78], even as subjective descriptions of care are far less satisfactory [9, 10].”

    From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [10]

Cites

Flagged first, then by citations

1 of the 81 references couldn’t be matched to a known paper.

Cited by

Sorted by citations

Related

Authors
Leiter, V.
Affiliations
Brandeis University (US)
Corresponding author
Leiter, Valerie
ORCID
Leiter, Valerie
Venue
Social Science & Medicine
Publisher
Elsevier BV
Published
2004-02
Volume
58
Issue
4
Pages
837-849
ISSN
0277-9536 (ISSN-L)
DOI
10.1016/s0277-9536(03)00258-2
OpenAlex
W1986212514
Cited by
68
References
81
Citations by year
2025: 1 · 2024: 1 · 2023: 2 · 2022: 1 · 2021: 2 · 2020: 1 · 2019: 5 · 2018: 3 · 2017: 2 · 2016: 3 · 2015: 5 · 2014: 5 · 2013: 6 · 2012: 3
FWCI
2.32
Type
journal article
Language
en
Open access
closed
Licence
www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations
  • Social Science & Medicine (publishedVersion)
  • PubMed (publishedVersion)
  • RePEc: Research Papers in Economics (submittedVersion)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
  • Social Sciences › Safety Research › Disability Rights and Representation
Keywords
family-centered care, early intervention, children with disabilities
MeSH terms
Attitude of Health Personnel, Child, Preschool, Cooperative Behavior, Home Nursing, Humans, Infant, Interviews as Topic, Massachusetts, Mothers, Professional-Family Relations, Professional-Patient Relations, Caregivers, Early Intervention, Educational, Children with Disabilities, Family Nursing

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review