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Cited by 176Family and Disability Support ResearchAutism Spectrum Disorder ResearchFamily Caregiving in Mental Illness

Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes

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Cappe, Emilie, Wolff, Marion, Bobet, René, Adrien, Jean-Louis·2011·Quality of Life Research
DOI 10.1007/s11136-011-9861-3
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Abstract

Purpose Our primary objective was to identify cognitive and behavioural profiles that affect adjustment, in order to make relevant recommendations about support and assistance for parents of autistic children.Method One hundred and sixty French parents completed a battery of questionnaires and self-report measures developed or adapted to assess (1) the child and family situations; (2) perceived stress; (3) perceived social support; (4) perceived control; (5) coping strategies; and (6) quality of life.Results The psychometric properties of the instruments we used proved to be adequate. Our results support the pre-existing data and our findings may prove to be of interest to clinicians. Our primary finding was that emotion-focused coping strategies seem to be less effective. Parents who employed emotion-focused strategies were more stressed and more disturbed in most parts of their life. They also experienced more guilt and reported more false beliefs about PDD.Conclusions Our data underscore the need for psychoeducation programmes for parents, focused on handling stress and emotions, modifying false beliefs and solving the daily problems that arise from PDD. We propose a 5-axis intervention model for parents of children with PDD, based on cognitive-behavioural therapies and on a stress management programme.

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  • Problem-focused coping strategy has positive relations with quality of life of parents of children with ASD, while emotion-oriented coping strategy has negative correlations.

    “As reported by Cappe et al. (2011), problem-focused coping strategy exhibited positive relations with quality of life of parents of children with ASD, while emotion-oriented coping strategy demonstrated negative correlations.”

    From Self-compassion, ego-resiliency, coping with stress and the quality of life of parents of children with autism spectrum disorder (2021) · cites this paper as Cappe et al. (2011)

    The Correlations and PCA discussion (pp. 19–20) says emotion-focused coping predicted lower well-being and problem-focused coping predicted better parent–child relations. Both are quality-of-life dimensions, but the passages do not establish the claimed correlations with overall quality of life; the paper also notes that emotion-focused coping can be adaptive under some conditions. (LLM, conf=0.85)

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3 of the 102 references couldn’t be matched to a known paper.

Research works printed but not linked: 3

  1. [22]Hastings, R. P., & Taunt, H. (2002). Positive perceptions in families of children with 650 developmental disabilities. American Journal on Mental Retardation , 107 , 116-127. 651
  2. [61]Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: parents of 757 children with developmental disabilities and behaviour problems. Journal on Developmental 758
  3. [69]Nunnaly, J. C. (1978). Psychometric theory . New York : McGraw Hill Book Company. 778

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Authors
Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L.
Affiliations
  • Laboratoire Adaptations Travail-Individu (FR)
  • Université Paris Descartes (FR)
ORCID
Venue
Quality of Life Research
Publisher
Springer Science and Business Media LLC
Published
2011-02-12
Volume
20
Issue
8
Pages
1279-1294
ISSN
  • 0962-9343 (ISSN-L)
  • 1573-2649
DOI
10.1007/s11136-011-9861-3
OpenAlex
W2034287427
Cited by
176
References
102
Citations by year
2026: 9 · 2025: 9 · 2024: 13 · 2023: 16 · 2022: 10 · 2021: 14 · 2020: 15 · 2019: 23 · 2018: 8 · 2017: 12 · 2016: 7 · 2015: 11 · 2014: 14 · 2013: 7 · 2012: 8
FWCI
9.99
Type
journal article
Language
en
Open access
Licence
Locations
  • Quality of Life Research (publishedVersion)
  • PubMed (publishedVersion)
  • HAL (submittedVersion, cc-by-nc)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
autism spectrum disorder, parents of autistic children, parental adjustment, quality of life, perceived stress, perceived social support, perceived control, coping strategies, emotion-focused coping, guilt, stress management, cognitive behavioral therapy, intervention model
MeSH terms
Adaptation, Psychological, Adolescent, Adult, Aged, Child, Child Development Disorders, Pervasive, Child, Preschool, Cognition, Female, France, Guilt, Humans, Internal-External Control, Male, Middle Aged, Parent-Child Relations, Parents, Quality of Life, Surveys and Questionnaires, Regression Analysis, Social Support, Stress, Psychological, Young Adult

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