The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders
Abstract
BACKGROUND: The purpose of this study was to examine the correlates of caregiver stress in a large sample of young people with autism spectrum disorders (ASDs). Two main objectives were to: (1) disentangle the effects of behaviour problems and level of functioning on caregiver stress; and (2) measure the stability of behaviour problems and caregiver stress. METHODS: Parents or teachers of 293 young people with ASDs completed measures of stress, behaviour problems and social competence. Parents also completed an adaptive behaviour scale. Eighty-one young people were rated twice at a 1-year interval. RESULTS: Parents and teachers did not perfectly agree on the nature and severity of behaviour problems. However, both sets of ratings indicated that behaviour problems were strongly associated with stress. Conduct problems in particular were significant predictors of stress. Adaptive skills were not significantly associated with caregiver stress. Parental reports of behaviour problems and stress were quite stable over the 1-year interval, much more so than teacher reports. Parent ratings suggested that behaviour problems and stress exacerbated each other over time. This transactional model did not fit the teacher data. CONCLUSION: Results of this study suggested that it is a specific group of externalized behaviours that are the most strongly associated with both parent and teacher stress. Results were discussed from methodological and conceptual perspectives.
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There is evidence to indicate that child behavior problems function as a risk factor for parental negative outcomes.
“Given the longitudinal design of some studies (e.g. Herring et al., 2006; Lecavalier et al., 2006), there is evidence to indicate that child behavior problems function as a risk factor for parental negative outcomes.”
From Child behavior problems and parental well-being in families of children with autism: The mediating role of mindfulness and acceptance (2014) · cites this paper as Lecavalier et al., 2006
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“…social, communication, behavioral, adaptive, and cognitive impairments are considered major predictors of elevated parenting stress (Bebko et al., 1987; Davis & Carter, 2008; Hall & Graff, 2011; Herring et al., 2006; Lecavalier et al., 2006; McStay et al., 2014; Valicenti-McDermott et al., 2015).”
- Authors
- Lecavalier, L., Leone, S., & Wiltz, J.
- Affiliations
- The Ohio State University (US)
- Corresponding author
- Lecavalier, L.
- ORCID
- Lecavalier, L.
- Venue
- Journal of Intellectual Disability Research
- Publisher
- Wiley
- Published
- 2005-09-21
- Volume
- 50
- Issue
- 3
- Pages
- 172-183
- ISSN
- 0964-2633 (ISSN-L)
- 1365-2788
- OpenAlex
- W2143198635
- Cited by
- 1,163
- References
- 36
- Citations by year
- 2026: 30 · 2025: 36 · 2024: 56 · 2023: 69 · 2022: 60 · 2021: 70 · 2020: 70 · 2019: 82 · 2018: 77 · 2017: 83 · 2016: 72 · 2015: 79 · 2014: 89 · 2013: 76 · 2012: 57
- FWCI
- 19.67
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Intellectual Disability Research (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Ohio Department of Education
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, caregiver stress, behavioral problems, conduct problems, externalizing problems, parent-teacher agreement, adaptive behavior, social competence, transactional model, longitudinal stability, autistic youth
- MeSH terms
- Activities of Daily Living, Adolescent, Autistic Disorder, Behavior Therapy, Mental Disorders, Child, Child, Preschool, Female, Humans, Internal-External Control, Male, Personality Assessment, Psychometrics, Statistics as Topic, Stress, Psychological, Observer Variation, Caregivers, Cost of Illness
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