Recommendations for the Use of Common Outcome Measures in Traumatic Brain Injury Research
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This article summarizes the selection of outcome measures by the interagency Traumatic Brain Injury (TBI) Outcomes Workgroup to address primary clinical research objectives, including documentation of the natural course of recovery from TBI, prediction of later outcome, measurement of treatment effects, and comparison of outcomes across studies. Consistent with other Common Data Elements Workgroups, the TBI Outcomes Workgroup adopted the standard 3-tier system in its selection of measures. In the first tier, core measures included valid, robust, and widely applicable outcome measures with proven utility in TBI from each identified domain, including global level of function, neuropsychological impairment, psychological status, TBI-related symptoms, executive functions, cognitive and physical activity limitations, social role participation, and perceived health-related quality of life. In the second tier, supplemental measures were recommended for consideration in TBI research focusing on specific topics or populations. In the third tier, emerging measures included important instruments currently under development, in the process of validation, or nearing the point of published findings that have significant potential to be superior to some older ("legacy") measures in the core and supplemental lists and may eventually replace them as evidence for their utility emerges.
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The NIH Interagency Common Data Elements Project included the NIHTB as a recommended CDE for TBI studies.
“the NIH Interagency Common Data Elements Project included it as a recommended CDE for TBI studies (E.A. Wilde et al., 2010).”
From Using the NIH Toolbox Cognition Battery (NIHTB-CB) in individuals with traumatic brain injury. (2017) · cites this paper as E.A. Wilde et al., 2010
The NIH Toolbox Cognition Battery (NIHTB-CB) is a common data element (CDE) for use in individuals with traumatic brain injury (TBI).
“The NIH Toolbox for the Assessment of Neurological Behavior and Function Cognition Battery (NIHTB-CB) is a common data element (CDE) for use in individuals with traumatic brain injury (TBI).”
From Using the NIH Toolbox Cognition Battery (NIHTB-CB) in individuals with traumatic brain injury. (2017) · cites this paper as E.A. Wilde et al., 2010
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Cognitive Sequelae of Traumatic Brain Injury
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Genetics and outcomes after traumatic brain injury (TBI): What do we know about pediatric TBI?
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Self-citation
- Authors
- Wilde, E. A., Whiteneck, G. G., Bogner, J., Bushnik, T., Cifu, D. X., Dikmen, S., French, L., Giacino, J. T., Hart, T., Malec, J. F., Millis, S. R., Novack, T. A., Sherer, M., Tulsky, D. S., Vanderploeg, R. D., & von Steinbuechel, N.
- Affiliations
- Michael E. DeBakey VA Medical Center (US)
- Craig Hospital (US)
- The Ohio State University (US)
- Rusk Rehabilitation (US)
- Virginia Commonwealth University (US)
- University of Washington (US)
- Walter Reed National Military Medical Center (US)
- Harvard University (US)
- Moss Rehabilitation Hospital (US)
- Rehabilitation Hospital of Indiana (US)
- Wayne State University (US)
- University of Alabama at Birmingham (US)
- Memorial Hermann Institute for Rehabilitation and Research Foundation (US)
- University of Michigan (US)
- University of South Florida (US)
- Corresponding author
- Wilde, Elisabeth A.
- ORCID
- Venue
- Archives of Physical Medicine and Rehabilitation
- Publisher
- Elsevier BV
- Published
- 2010-11
- Volume
- 91
- Issue
- 11
- Pages
- 1650-1660.e17
- ISSN
- 0003-9993 (ISSN-L)
- OpenAlex
- W2080875271
- Cited by
- 461
- References
- 210
- Citations by year
- 2026: 13 · 2025: 25 · 2024: 29 · 2023: 18 · 2022: 23 · 2021: 43 · 2020: 37 · 2019: 39 · 2018: 44 · 2017: 40 · 2016: 26 · 2015: 34 · 2014: 24 · 2013: 32 · 2012: 17
- FWCI
- 2.40
- Type
- journal article
- Language
- en
- Open access
- Licence
- Locations
- Archives of Physical Medicine and Rehabilitation (publishedVersion)
- PubMed (publishedVersion)
- GRO (submittedVersion, cc-by)
- Topics
- Health Sciences › Medicine › Epidemiology › Traumatic Brain Injury Research
- Health Sciences › Medicine › Neurology › Traumatic Brain Injury and Neurovascular Disturbances
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
- Keywords
- traumatic brain injury, outcome measures, common data elements, outcome prediction, treatment effect measurement, neuropsychological deficits, executive function, health-related quality of life, social role participation, psychological state, inter-agency cooperation
- MeSH terms
- Brain Injuries, Disability Evaluation, Humans, Quality of Life, Research Design, Outcome Assessment, Health Care, Practice Guidelines as Topic
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