Remission as perceived by people with schizophrenia, family members and psychiatrists
Abstract
INTRODUCTION: Studies indicate that patient-rated outcomes and symptomatic remission as defined by the remission in schizophrenia working group rely on different assumptions. The aim of this observational study was to assess symptomatic remission by patients with schizophrenia, family members and psychiatrists and to compare their assessments with standardized criteria and clinical measures. METHODS: One hundred and thirty-one patients with schizophrenia (DSM-IV), family members and psychiatrists assessed remission within the European Group on Functional Outcomes and Remission in Schizophrenia (EGOFORS) project. Symptoms (Positive and Negative Syndrome Scale [PANSS]), functional outcome (Functional Recovery Scale in Schizophrenia [FROGS]), subjective well-being (SWN-K) and demographic characteristics were investigated. RESULTS: Remission assessed by psychiatrists showed the best accordance with standardized remission (80%), followed by remission assessed by family members (52%) and patients (43%). Only in 18%, patients, relatives and psychiatrists agreed in their assessments. Good subjective well-being was most important for remission estimated by patients, good subjective well-being and symptom reduction by family members, and finally better symptom scores, well-being and functioning by psychiatrists. DISCUSSION: Self- and expert-rated clinical outcomes differ markedly, with a preference on the patients' side for subjective outcome. Symptomatic remission as assessed by the standardized criteria plays a secondary role for patients and relatives in daily clinical practice. A more thorough consideration of patients' and caregivers' perspectives should supplement the experts' assessment.
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Many people diagnosed with psychosis report that the diagnosis, especially from institutions that appear to embrace stigma, is experienced as invalidating their potential identity and as an effort to control them paternalistically.
“Beyond stigma, many people diagnosed with psychosis report that the diagnosis itself, especially when provided by institutions which appear to embrace stigma, is experienced as invalidating their potential identity and as an effort to control them in a paternalistic manner [150][151][152] .”
From Insight in schizophrenia spectrum disorders: relationship with behavior, mood and perceived quality of life, underlying causes and emerging treatments (2018) · cites this paper as [151]
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- Authors
- Karow, A., Naber, D., Lambert, M., & Moritz, S.
- Affiliations
- University Medical Center Hamburg-Eppendorf (DE)
- Corresponding author
- Karow, A.
- Venue
- European Psychiatry
- Publisher
- Cambridge University Press (CUP)
- Published
- 2012-08
- Volume
- 27
- Issue
- 6
- Pages
- 426-431
- ISSN
- 0924-9338 (ISSN-L)
- OpenAlex
- W2124093426
- Cited by
- 51
- References
- 39
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 4 · 2023: 1 · 2021: 2 · 2020: 1 · 2019: 1 · 2018: 5 · 2017: 5 · 2016: 6 · 2015: 3 · 2014: 6 · 2013: 5 · 2012: 5
- FWCI
- 3.71
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- European Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Social Sciences › Arts and Humanities › Philosophy › Mental Health and Psychiatry
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Keywords
- schizophrenia, remission, patient-reported outcomes, subjective well-being, functional outcome, functional recovery, symptom relief, patient perspectives
- MeSH terms
- Adult, Family, Female, Humans, Male, Middle Aged, Perception, Personal Satisfaction, Pilot Projects, Psychiatric Status Rating Scales, Psychiatry, Quality of Life, Schizophrenia, Schizophrenic Psychology, Severity of Illness Index, Antipsychotic Agents, Treatment Outcome
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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