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Cited by 177Dementia and Cognitive Impairment ResearchNursing care and researchIntergenerational Family Dynamics and Caregiving

The DOI matches its Crossref record; 41 of the 43 references it cites were found in a registry or an index.

“I just don’t focus on my needs.” The unmet health needs of partner and offspring caregivers of people with dementia: A qualitative study

Tatangelo, Gemma, McCabe, Marita, Macleod, Ashley, You, Emily·2018·International Journal of Nursing Studies
DOI 10.1016/j.ijnurstu.2017.09.011
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Abstract

Background Family caregivers of people with dementia have significant unmet health needs. There is a lack of research that differentiates between the needs that are specifically relevant to partner and offspring caregivers. Objective The aim of this study was to examine the health needs of partner and offspring caregivers of older people with dementia, including the barriers they experience in meeting their needs. Method Semi-structured interviews were conducted with 24 family caregivers of community-dwelling people with dementia. Of these, 12 were partner caregivers (4 men, 8 women) and 12 were offspring caregivers (2 men, 10 women). The interviews were transcribed and analysed using thematic analysis. Results Five themes were identified within the data. The first theme represents caregivers' overall assessment and perception of their health needs. The remaining four themes represent the most important aspects of caregivers' health needs; mental health, emotional support and social relationships, healthy diet and exercise, and personal time. While these themes were similar for offspring and partner caregivers, the specific needs and barriers within these areas were different. A prominent barrier for partner caregivers was that they had difficulty in acknowledging their needs. Despite this, partner caregivers demonstrated unmet emotional support needs, as they no longer had emotional support from their partner with dementia. They also had an unmet need for time away from the…

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  1. Losada, 2006, Explanation of caregivers distress from the cognitive model: the role of dysfunctional thoughts, Psicol. Conduct., 14, 115

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Metadata

Authors
Tatangelo, G., McCabe, M., Macleod, A., & You, E.
Affiliations
  • Australian Catholic University (AU)
  • The University of Melbourne (AU)
Corresponding author
Tatangelo, Gemma
ORCID
Venue
International Journal of Nursing Studies
Publisher
Elsevier BV
Published
2018-01
Volume
77
Pages
8-14
ISSN
0020-7489 (ISSN-L)
DOI
10.1016/j.ijnurstu.2017.09.011
OpenAlex
W2754770958
Cited by
177
References
43
Citations by year
2026: 20 · 2025: 26 · 2024: 26 · 2023: 20 · 2022: 27 · 2021: 25 · 2020: 18 · 2019: 13 · 2018: 2
FWCI
7.41
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • International Journal of Nursing Studies (publishedVersion)
  • PubMed (publishedVersion)
  • Research Bank (Australian Catholic University) (submittedVersion)
  • Swinburne figshare (Swinburne University of Technology) (submittedVersion)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Keywords
dementia, family caregivers, unmet health needs, partner caregivers, caregiver mental health, emotional support, social isolation, interpersonal relationships, personal time, community-dwelling older adults
MeSH terms
Adult, Aged, Aged, 80 and over, Dementia, Diet, Emotions, Family, Female, Health Services Needs and Demand, Humans, Interpersonal Relations, Male, Mental Health, Middle Aged, Social Support, Exercise, Caregivers, Spouses, Adult Children, Qualitative Research

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