Promoting Mental Health and Well-Being among Adolescent Young Carers in Europe: A Randomized Controlled Trial Protocol
Open accessAbstract
It is estimated that 4-8% of youth in Europe carry out substantial care for a family member or significant other. To prevent adverse psychosocial outcomes in young carers (YCs), primary prevention resilience building interventions have been recommended. We describe the study protocol of an international randomized controlled trial (RCT) of an innovative group intervention designed to promote the mental health and well-being of adolescent YCs (AYCs) aged 15-17. The RCT will be conducted in six European countries in the context of the Horizon 2020 European funded research and innovation project "Psychosocial support for promoting mental health and well-being among adolescent young caregivers in Europe" ("ME-WE"). The ME-WE intervention is based on Hayes and Ciarrochi's psychoeducational model for adolescents and will consist of seven 2-h sessions in a group format, aimed to help AYCs build psychological flexibility and live according to their values. The control group will be a waitlist. Primary and secondary outcomes and control variables will be measured at baseline (T0), post-intervention (T1) and 3 months follow-up (T2). The COVID-19 pandemic has made amendments necessary to the original study protocol methodology, which we describe in detail. This study will contribute to building an evidence-based manualized program that educators and health and social care professionals can use to support AYCs in their transition to adulthood. From a research perspective, the outcomes of this study will contribute to evidence-based practices in primary prevention of psychosocial difficulties in AYCs and will gather novel knowledge on the effectiveness of Hayes and Ciarrochi's model for use with middle adolescents with caring responsibilities. The trial has been preregistered (registration number: NCT04114864).
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Evidence supporting the effectiveness of the DNA-V model has almost exclusively been generated from resource-rich contexts and not with adolescents with HIV.
“However, since evidence supporting the effectiveness of the DNA-v model has almost exclusively been generated from resource-rich contexts and not with AWH [28,34,35], producing context-specific evidence in a low-resource setting is vital in influencing policy and encouraging the intervention’s uptake in a new setting [19].”
From Effectiveness of a mindfulness and acceptance-based intervention for improving the mental health of adolescents with HIV in Uganda: An open-label trial (2024) · cites this paper as [35]
The Introduction (page unavailable) reports promising DNA-V pilot results in clinical and non-clinical adolescents, while noting that effectiveness had not yet been rigorously tested in an RCT. It does not establish that the evidence came almost exclusively from resource-rich settings or assess whether adolescents with HIV were included; the European study described here concerns adolescent young carers. (LLM, conf=0.82)
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Conducting research during the COVID-19 pandemic
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Flagged first, then by citations
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Cited by
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The first cross-national study of adolescent young carers aged 15–17 in six European countries
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Self-citationPrevalence and characteristics of adolescent young carers in France: The challenge of identification
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Adolescent Young Carers Who Provide Care to Siblings
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Adolescent Young Carers Who Provide Help and Support to Friends
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Love of life and flourishing in Turkish youth: mediating effects of optimism and hope
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The Association Between Social Outsiderhood and School Absence is Mediated by Internalizing Symptoms
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Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers
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Navigating Stress: Self-Care and Mental Well-Being among Filipino Teachers in the U.S.
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- Authors
- Casu, G., Hlebec, V., Boccaletti, L., Bolko, I., Manattini, A., & Hanson, E.
- Affiliations
- University of Bologna (IT)
- University of Ljubljana (SI)
- Anziani e Non Solo Società Cooperativa Sociale, 41012 Carpi, Italy
- Linnaeus University (SE)
- Corresponding author
- Casu, Giulia
- Hlebec, Valentina
- ORCID
- Venue
- International Journal of Environmental Research and Public Health
- Publisher
- MDPI AG
- Published
- 2021-02-19
- Volume
- 18
- Issue
- 4
- Pages
- 2045
- ISSN
- 1660-4601 (ISSN-L)
- PMC
- PMC7922705
- OpenAlex
- W3130274699
- Cited by
- 24
- References
- 130
- Citations by year
- 2025: 4 · 2024: 6 · 2023: 7 · 2022: 7
- FWCI
- 6.93
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- International Journal of Environmental Research and Public Health (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Repository of the University of Ljubljana (University of Ljubljana) (publishedVersion, cc-by)
- DiVA (Linnaeus University) (submittedVersion, other-oa)
- RePEc: Research Papers in Economics (submittedVersion)
- Archivio istituzionale della ricerca (Alma Mater Studiorum Università di Bologna) (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- European Commission (754702)
- Topics
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- mental health, well-being, group intervention, psychological flexibility, values-based living, primary prevention, psychosocial problems, coming of age, COVID-19 pandemic, family caregiving
- MeSH terms
- COVID-19, Adolescent, Europe, Health Promotion, Humans, Mental Health, Randomized Controlled Trials as Topic, Caregivers, Pandemics
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
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