Peer support for mood disorder: Characteristics and benefits from attending the Depression and Bipolar Support Alliance mutual-help organization
Open accessAbstract
Background Mood disorders (MDs) are pervasive and debilitating psychiatric conditions. Many helpful psychological and psychopharmacological treatments exist, but MD's prevalence and chronicity often means relying purely on professional care can create financial strain on individuals and healthcare systems. Also, many individuals respond only partially to professionally-delivered medical/pharmacological interventions or are unable to tolerate or adhere to them. Peer-led mutual-help organizations (MHOs) have emerged and grown in the U.S. to extend and potentiate professional efforts or otherwise address needs unmet by professional care. The Depression and Bipolar Support Alliance (DBSA) is the largest of these, but beyond observational evidence, little is known about participation or benefits. Greater knowledge could inform the field regarding clinical and public health utility of peer-driven efforts.Method Community-based cross-sectional comparative investigation of MD individuals attending (N = 202) or not attending (N = 105) DBSA. Measures included demographics, clinical characteristics and clinical service use, and indices of symptomatology, functioning, quality of life (QOL), and psychological well-being.Results Compared to non-DBSA participants, DBSA participants were more likely to be male and white and trended toward greater religious affiliation (p = 0.05). DBSA participants attended meetings about twice per month with two-thirds attending for more than one year. The DBSA cohort had a much higher proportion with bipolar I disorder and reported more lifetime and past 90-day use of acute, intensive, medical services and medications. There were no between-group differences on indices of QOL or psychological well-being, but within the DBSA group, greater DBSA attendance and involvement was associated with greater QOL and well-being, and less functional impairment.Limitations Cross-sectional design and regional sampling frame with unknown generalizability to national DBSA membership.Conclusion Given the grave impact of MDs and that DBSA is freely available it may fill an important clinical and public health need by attracting and engaging MD individuals with greater functional instability and impairment. The positive association found between greater active DBSA participation and improvements in functioning and well-being, while promising, requires longitudinal investigation to formally establish the causal direction of effects.
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Behler et al. (2017) and Kelly et al. (2019) observed that mutual aid groups appeared to provide participants with bipolar disorder with support and healing that psychotherapy and psychiatry did not offer.
“Behler et al. (2017) and Kelly et al. (2019) observed that MAG appeared to provide participants with BD with the support and healing that psychotherapy and psychiatry did not offer.”
From Analysis of the Efficacy of Mindfulness Meditation in a Mutual Aid Group for Bipolar Disorder (2024) · cites this paper as Kelly et al. (2019)
The Introduction describes mutual-help groups as providing support and potentially addressing needs unmet by professional care. The Results report associations between greater DBSA participation and better well-being in a mixed mood-disorder sample that included people with bipolar disorder. The Discussion’s Conclusion says further research is needed to establish whether participation provides benefits; the study does not show that groups provided healing unavailable from psychotherapy or psychiatry. (LLM, conf=0.84)
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- Authors
- Kelly, J. F., Hoffman, L., Vilsaint, C., Weiss, R., Nierenberg, A., & Hoeppner, B.
- Affiliations
- Harvard University (US)
- Corresponding author
- Kelly, John F.
- Venue
- Journal of Affective Disorders
- Publisher
- Elsevier BV
- Published
- 2019-08
- Volume
- 255
- Pages
- 127-135
- ISSN
- 0165-0327 (ISSN-L)
- PMC
- PMC6591033
- OpenAlex
- W2946505004
- Cited by
- 30
- References
- 51
- Citations by year
- 2026: 2 · 2025: 6 · 2024: 10 · 2023: 6 · 2021: 2 · 2020: 3 · 2019: 1
- FWCI
- 2.04
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Affective Disorders (acceptedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Mental Health (R21MH101271)
- Massachusetts General Hospital
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Health Sciences › Medicine › Psychiatry and Mental health › Bipolar Disorder and Treatment
- Keywords
- peer support, mood disorders, bipolar I disorder, depression, quality of life, psychological well-being, functional disability, service utilization, patient participation
- MeSH terms
- Adult, Bipolar Disorder, Counseling, Cross-Sectional Studies, Depression, Female, Humans, Male, Quality of Life, Self-Help Groups, Mood Disorders
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