The DOI matches its Crossref record; 48 of the 52 references it cites were found in a registry or an index.
Risk Factors for Developing Prolonged Grief During Bereavement in Family Carers of Cancer Patients in Palliative Care: A Longitudinal Study
Open accessAbstract
Context Family carers of palliative care patients report high levels of psychological distress throughout the caregiving phase and during bereavement. Palliative care providers are required to provide psychosocial support to family carers; however, determining which carers are more likely to develop prolonged grief (PG) is currently unclear.Objectives To ascertain whether family carers reporting high levels of PG symptoms and those who develop PG disorder (PGD) by six and 13 months postdeath can be predicted from predeath information.Methods A longitudinal study of 301 carers of patients receiving palliative care was conducted across three palliative care services. Data were collected on entry to palliative care (T1) on a variety of sociodemographic variables, carer-related factors, and psychological distress measures. The measures of psychological distress were then readministered at six (T2; n=167) and 13 months postdeath (T3; n=143).Results The PG symptoms at T1 were a strong predictor of both PG symptoms and PGD at T2 and T3. Greater bereavement dependency, a spousal relationship to the patient, greater impact of caring on schedule, poor family functioning, and low levels of optimism also were risk factors for PG symptoms.Conclusion Screening family carers on entry to palliative care seems to be the most effective way of identifying who has a higher risk of developing PG. We recommend screening carers six months after the death of their relative to identify most carers with PG.
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Citations
Cites
The Hospital Anxiety and Depression Scale
Zigmond, A. S., & Snaith, R. P. (1983) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.1983.tb09716.x · Cited by 47,139
The Multidimensional Scale of Perceived Social Support
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988) · Journal of Personality Assessment · doi:10.1207/s15327752jpa5201_2 · Cited by 13,339
Scheier, M. F., Carver, C. S., & Bridges, M. W. (1994) · Journal of Personality and Social Psychology · doi:10.1037//0022-3514.67.6.1063 · Cited by 7,456
Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810
Psychometric properties of the PTSD checklist (PCL)
Blanchard, E. B., Jones-Alexander, J., Buckley, T. C., & Forneris, C. A. (1996) · Behaviour Research and Therapy · doi:10.1016/0005-7967(96)00033-2 · Cited by 3,997
Prolonged grief disorder: psychometric validation of criteria proposed for DSM-V and ICD-11
Prigerson, H. G., Horowitz, M. J., Jacobs, S. C., Parkes, C. M., Aslan, M., Goodkin, K., Raphael, B., Marwit, S. J., Wortman, C., Neimeyer, R. A., et al. (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000121 · Cited by 1,863
Health outcomes of bereavement.
Stroebe, M., Schut, H., & Stroebe, W. (2007) · The Lancet · doi:10.1016/s0140-6736(07)61816-9 · Cited by 1,746
National Cancer Control Programmes, Policies and Managerial Guidelines
Ezzat, A. A. (1996) · Annals of Saudi Medicine · doi:10.5144/0256-4947.1996.358b · Cited by 1,271
Mutuality and preparedness as predictors of caregiver role strain
Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. A. (1990) · Research in Nursing & Health · doi:10.1002/nur.4770130605 · Cited by 916
Given, C. W., Given, B. A., Stommel, M., Collins, C. E., King, S., & Franklin, S. (1992) · Research in Nursing & Health · doi:10.1002/nur.4770150406 · Cited by 893
Resilience to loss and chronic grief: A prospective study from preloss to 18-months postloss
Bonanno, G. A., Wortman, C. B., Lehman, D. R., Tweed, R. G., Haring, M., Sonnega, J., Carr, D., & Nesse, R. M. (2002) · Journal of Personality and Social Psychology · doi:10.1037/0022-3514.83.5.1150 · Cited by 836
Demoralization Syndrome — a Relevant Psychiatric Diagnosis for Palliative Care
Kissane, D. W., Clarke, D. M., & Street, A. F. (2001) · Journal of Palliative Care · doi:10.1177/082585970101700103 · Cited by 624
Self-citationPredictors of complicated grief: a systematic review of empirical studies
Lobb, E. A., Kristjanson, L. J., Aoun, S. M., Monterosso, L., Halkett, G. K. B., & Davies, A. (2010) · Death Studies · doi:10.1080/07481187.2010.496686 · Cited by 611 · cited 1×
“Prolonged grief (PG) disorder (PGD), previously called complicated grief, is the most recent term used to describe grief that continues in intensity beyond a time frame in which some form of adjustment is expected and to an extent that is significantly disruptive to a person’s life.(15,16) It has been shown that peopl…”
BackgroundEnd-of-Life Care and the Effects of Bereavement on Family Caregivers of Persons with Dementia
Schulz, R., Mendelsohn, A. B., Haley, W. E., Mahoney, D., Allen, R. S., Zhang, S., Thompson, L., & Belle, S. H. (2003) · New England Journal of Medicine · doi:10.1056/nejmsa035373 · Cited by 543
Burden and Depression Among Caregivers of Patients With Cancer at the End of Life
Given, B. A., Wyatt, G. K., Given, C. W., Sherwood, P. R., Gift, A. G., DeVoss, D. N., & Rahbar, M. H. (2004) · Oncology nursing forum · doi:10.1188/04.onf.1105-1117 · Cited by 487
Barry, L. C., Kasl, S. V., & Prigerson, H. G. (2002) · American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200207000-00011 · Cited by 360
Handbook of bereavement research and practice: Advances in theory and intervention.
(2008) · American Psychological Association eBooks · doi:10.1037/14498-000 · Cited by 355
Prigerson, H. G., Bierhals, A. J., Kasl, S. V., Reynolds, C. F., Shear, M. K., Newsom, J. T., & Jacobs, S. (1996) · American Journal of Psychiatry · doi:10.1176/ajp.153.11.1484 · Cited by 350
Depression through the first year after the death of a spouse
Zisook, S., & Shuchter, S. R. (1991) · American Journal of Psychiatry · doi:10.1176/ajp.148.10.1346 · Cited by 307
Thomas, C., Morris, S., & Harman, J. (2002) · Social Science & Medicine · doi:10.1016/s0277-9536(01)00048-x · Cited by 301
A case for inclusion of prolonged grief disorder in DSM-V.
Prigerson, H. G., Vanderwerker, L. C., & Maciejewski, P. K. (2008) · Handbook of bereavement research and practice: Advances in theory and intervention. · doi:10.1037/14498-008 · Cited by 287
Psychiatric Disorders and Mental Health Service Use Among Caregivers of Advanced Cancer Patients
Vanderwerker, L. C., Laff, R. E., Kadan-Lottick, N. S., McColl, S., & Prigerson, H. G. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.01.370 · Cited by 270 · cited 1×
“Despite demonstrated psychological burden among family carers, limited information exists on the prevalence of mental health problems.(10) A study of 153 family carers of patients with advanced cancer showed that more than 50% of the carers had depression scores at or near the cutoff for clinical depression.”
BackgroundFamily Focused Grief Therapy: A Randomized, Controlled Trial in Palliative Care and Bereavement
Kissane, D. W., McKenzie, M., Bloch, S., Moskowitz, C., McKenzie, D. P., & O’Neill, I. (2006) · American Journal of Psychiatry · doi:10.1176/appi.ajp.163.7.1208 · Cited by 270
Hebert, R. S., Dang, Q., & Schulz, R. (2006) · Journal of Palliative Medicine · doi:10.1089/jpm.2006.9.683 · Cited by 263
Identifying the concerns of informal carers in palliative care
Payne, S. A., Smith, P. W. F., & Dean, S. (1999) · Palliative Medicine · doi:10.1191/026921699673763725 · Cited by 250
When Caregiving Ends: The Course of Depressive Symptoms After Bereavement
Aneshensel, C. S., Botticello, A., & Yamamoto‐Mitani, N. (2004) · Journal of Health and Social Behavior · doi:10.1177/002214650404500405 · Cited by 215
REPORT ON BEREAVEMENT AND GRIEF RESEARCH
Genevro, J., Marshall, T., & Miller, T. (2004) · Death Studies · doi:10.1080/07481180490461188 · Cited by 189
Psychological and Social Profile of Family Caregivers on Commencement of Palliative Care
Hudson, P., Thomas, K., Trauer, T., Remedios, C., & Clarke, D. M. (2010) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2010.05.006 · Cited by 167
Self-citationHandbook of bereavement research and practice: advances in theory and intervention
(2008) · Choice Reviews Online · doi:10.5860/choice.46-2374 · Cited by 164
Advanced cancer at home: caregiving and bereavement
Ferrario, S. R., Cardillo, V., Vicario, F., Balzarini, E., & Zotti, A. M. (2004) · Palliative Medicine · doi:10.1191/0269216304pm870oa · Cited by 152
A Review of the Measurement of Caregiver and Family Burden in Palliative Care
Kinsella, G., Cooper, B. K., Picton, C., & Murtagh, D. (1998) · Journal of Palliative Care · doi:10.1177/082585979801400206 · Cited by 127
Kissane, D. W., McKenzie, M., McKenzie, D. P., Forbes, A. B., O'Neill, I., & Bloch, S. (2003) · Palliative Medicine · doi:10.1191/0269216303pm808oa · Cited by 124
Kissane, D. W. (2003) · Bereavement Care · doi:10.1080/02682620308657563 · Cited by 123
Gough, K., & Hudson, P. (2008) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2008.04.012 · Cited by 113
Self-citationPalliative Care Nursing: Principles and Evidence for Practice
Bisset, M. (2005) · British Journal of Cancer · doi:10.1038/sj.bjc.6602371 · Cited by 100
Hudson, P., & Hayman-white, K. (2006) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2005.07.010 · Cited by 99
Self-citationA Description of a Psychoeducational Intervention for Family Caregivers of Cancer Patients
Barg, F. K., Pasacreta, J. V., Nuamah, I. F., Robinson, K. D., Angeletti, K. A., Yasko, J. M., & McCorkle, R. C. (1998) · Journal of Family Nursing · doi:10.1177/107484079800400406 · Cited by 95
Grande, G., Farquhar, M. C., Barclay, S. I. G., & Todd, C. J. (2004) · Journal of Palliative Care · doi:10.1177/082585970402000202 · Cited by 92
Bonanno, G. A., Boerner, K., & Wortman, C. B. (2008) · American Psychological Association eBooks · doi:10.1037/14498-014 · Cited by 81
Li, L. (2005) · The Journals of Gerontology Series B · doi:10.1093/geronb/60.4.p190 · Cited by 80
Bereavement of spouse caregivers of cancer patients.
Gilbar, O., & Ben‐Zur, H. (2002) · American Journal of Orthopsychiatry · doi:10.1037/0002-9432.72.3.422 · Cited by 72
Grief Among Family Members of Nursing Home Residents With Advanced Dementia
Givens, J. L., Prigerson, H. G., Kiely, D. K., Shaffer, M. L., & Mitchell, S. L. (2011) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e31820dcbe0 · Cited by 62
A literature review on bereavement and bereavement care
Wimpenny, P., Unwin, R., Dempster, P., Grundy, M., Work, F., Brown, A. H., & Wilcock, S. E. (2007) · Bereavement Care · doi:10.1080/02682620708657678 · Cited by 50
Examining the role of trauma, personality, and meaning in young prolonged grievers
Tomarken, A., Roth, A. J. L., Holland, J. C., Ganz, O., Schachter, S. R., Kose, G., RAMIREZ, P. M., Allen, R., & Nelson, C. J. (2011) · Psycho-Oncology · doi:10.1002/pon.1983 · Cited by 44
Family carers in palliative care : a guide for health and social care professionals
Hudson, P., & Payne, S. A. (2009) · Lancaster EPrints (Lancaster University) · Cited by 35
Self-citationDevelopment and Validation of an Instrument for the Assessment of Dependency Among Bereaved Persons
Johnson, J. G., Vanderwerker, L. C., Bornstein, R. F., Zhang, B., & Prigerson, H. G. (2006) · Journal of Psychopathology and Behavioral Assessment · doi:10.1007/s10862-005-9016-3 · Cited by 35
Exploring current service provision for Prolonged Grief Disorder and suggestions for future advances
Smith, L., Kalus, C., Russell, P., & Skinner, T. C. (2009) · Mortality · doi:10.1080/13576270802591251 · Cited by 15
Research works printed but not linked: 1
- Weathers F, Litz B, Herman D, Huska J, Keane T. The PTSD Checklist (PCL): Reliability, validity, and diagnostic utility. Paper presented at the 9th Annual Conference of the ISTSS, San Antonio, TX, 1993.
Cited by
Sorted by citations
Bereavement Support on the Frontline of COVID-19: Recommendations for Hospital Clinicians
Selman, L. E., Chao, D., Sowden, R., Marshall, S., Chamberlain, C., & Koffman, J. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.04.024 · Cited by 261
Palliative care for family caregivers
Alam, S., Hannon, B., & Zimmermann, C. (2020) · Journal of Clinical Oncology · doi:10.1200/jco.19.00018 · Cited by 292
Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Bro, F., & Guldin, M. (2016) · Clinical Psychology Review · doi:10.1016/j.cpr.2016.01.002 · Cited by 248
Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Vedsted, P., Bro, F., & Guldin, M. (2016) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2016.09.013 · Cited by 225
Tang, S., & Xiang, Z. (2021) · Globalization and Health · doi:10.1186/s12992-021-00669-5 · Cited by 156
Metadata
- Authors
- Thomas, K., Hudson, P., Trauer, T., Remedios, C., & Clarke, D.
- Affiliations
- The University of Melbourne (AU)
- Queen's University Belfast (GB)
- Monash University (AU)
- Venue
- Journal of Pain and Symptom Management
- Publisher
- Elsevier BV
- Published
- 2014-03
- Volume
- 47
- Issue
- 3
- Pages
- 531-541
- ISSN
- 0885-3924 (ISSN-L)
- OpenAlex
- W2086868640
- Semantic Scholar
- 24cbf4cef040c213a5cd92796ef59866cc82dd53
- Cited by
- 147
- References
- 52
- Citations by year
- 2026: 7 · 2025: 13 · 2024: 5 · 2023: 8 · 2022: 14 · 2021: 18 · 2020: 15 · 2019: 13 · 2018: 12 · 2017: 19 · 2016: 11 · 2015: 7 · 2014: 4
- FWCI
- 8.52
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Pain and Symptom Management (publishedVersion)
- PubMed (publishedVersion)
- Research Portal (Queen's University Belfast) (submittedVersion)
- Funders
- Beyondblue: The Depression Initiative
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- prolonged grief disorder, bereavement, family caregivers, palliative care, cancer patients, risk factors, psychological distress, marital relationships, family functioning, optimism, screening, psychosocial support
- MeSH terms
- Bereavement, Family, Female, Grief, Humans, Longitudinal Studies, Male, Neoplasms, Palliative Care, Personality, Psychiatric Status Rating Scales, Risk Factors, Socioeconomic Factors, Time Factors, Caregivers, Spouses
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