Psychosocial support provided to parents of infants in neonatal intensive care units: an international survey
Open accessAbstract
Objective To describe current psychosocial support practices and programs for parents with infants in level II nurseries and level III neonatal intensive care units (NICUs) across Australia and New Zealand.Study design A staff member from each level II and level III hospital completed an online survey about the psychosocial support services available for parents in Australia and New Zealand. Mixed methods (descriptive and statistical analysis; descriptive content analysis) were used to describe current services and practices.Results Of 66 eligible units, 44 participated in the survey (67%). Hospital-based pediatricians (32%) and clinical directors (32%) were the most common respondents. Level III NICUs reported providing significantly more services for parents than level II nurseries (median [IQR]: level III, 7 [5.25-8.75]; level II, 4.5 [3.25-5]; P < .001), with variability in the type and number of services available (range, 4-13). Less than half of units (43%) reported using standardized screening tools to assess parents for mental health distress, and just 4 units (9%) provided staff-led parent mental health support programs. In qualitative feedback, respondents frequently reported a lack of resources (staffing, funding, and training) to support parents.Conclusions Despite the well-documented distress that parents with infants in neonatal units experience and the evidence-based practices known to reduce this distress, this study identifies significant gaps in parent support services in level II and level III NICUs across Australia and New Zealand.
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Clinically feasible psychosocial interventions for NICU parents and caregivers in Aotearoa New Zealand are lacking.
“Yet clinically feasible psychosocial interventions for NICU parents and caregivers in Aotearoa New Zealand are lacking [11].”
From A digital Acceptance and Commitment Therapy and education intervention targeting stress of parents and caregivers with preterm babies in the neonatal intensive care unit: A randomised controlled cluster trial protocol (2024) · cites this paper as [11]
The Discussion reports limited formal screening and few staff-led mental-health support programs in neonatal units across Australia and New Zealand. This supports a gap in psychosocial support, but the paper does not establish that clinically feasible interventions are lacking specifically in Aotearoa New Zealand; it surveys services rather than intervention feasibility. (LLM, conf=0.85)
Experimental — accuracy not yet measuredA 2023 survey found that NICUs in Aotearoa New Zealand and Australia have limited resources and few psychosocial support programmes available to parents.
“A 2023 survey of psychosocial support services for NICU parents across Aotearoa New Zealand and Australia found that NICUs have limited resources (including staff and funding) and few psychosocial support programmes available to parents [11].”
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Cites
Three Approaches to Qualitative Content Analysis
Hsieh, H.-F., & Shannon, S. E. (2005) · Qualitative Health Research · doi:10.1177/1049732305276687 · Cited by 44,601 · see citing works
Methodological challenges in qualitative content analysis: A discussion paper
Graneheim, U. H., Lindgren, B., & Lundman, B. M. (2017) · Nurse Education Today · doi:10.1016/j.nedt.2017.06.002 · Cited by 3,212 · see citing works
O'Brien, K., Robson, K., Bracht, M., Cruz, M., Lui, K., Alvaro, R., da Silva, O., Monterrosa, L., Narvey, M., Ng, E., et al. (2018) · The Lancet Child & Adolescent Health · doi:10.1016/s2352-4642(18)30039-7 · Cited by 593 · see citing works
Lefkowitz, D. S., Baxt, C., & Evans, J. R. (2010) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-010-9202-7 · Cited by 468 · see citing works
The Parental Experience of Having an Infant in the Newborn Intensive Care Unit
Obeidat, H. M., Bond, E. A., & Callister, L. C. (2009) · Journal of Perinatal Education · doi:10.1624/105812409x461199 · Cited by 427 · see citing works
Measuring neonatal intensive care unit‐related parental stress
Franck, L. S., Cox, S., Allen, A., & Winter, I. (2005) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03336.x · Cited by 288 · see citing works
Incorporating Recognition and Management of Perinatal Depression Into Pediatric Practice
Rafferty, J. R., Mattson, G. L., Earls, M. F., Yogman, M. W., Gambon, T. B., Lavin, A., & Wissow, L. S. (2018) · PEDIATRICS · doi:10.1542/peds.2018-3260 · Cited by 269 · see citing works
Report of the Australian and New Zealand Neonatal Network 2001
Donoghue, D. A. (2021) · UNSWorks (University of New South Wales, Sydney, Australia) · doi:10.26190/unsworks/13 · Cited by 267 · see citing works
Beck, A. F., Edwards, E. M., Horbar, J. D., Howell, E. A., McCormick, M. C., & Pursley, D. M. (2020) · Pediatric Research · doi:10.1038/s41390-019-0513-6 · Cited by 224 · see citing works
Racial Disparities in Preterm Birth
Culhane, J. F., & Goldenberg, R. L. (2011) · Seminars in Perinatology · doi:10.1053/j.semperi.2011.02.020 · Cited by 196 · see citing works
Recommendations for peer-to-peer support for NICU parents
Hall, S. L., Ryan, D. J., Beatty, J., & Grubbs, L. M. (2015) · Journal of Perinatology · doi:10.1038/jp.2015.143 · Cited by 175 · see citing works
Screening parents of high-risk infants for emotional distress: rationale and recommendations
Hynan, M. T., Mounts, K. O., & Vanderbilt, D. L. (2013) · Journal of Perinatology · doi:10.1038/jp.2013.72 · Cited by 167 · see citing works
Recommendations for mental health professionals in the NICU
Hynan, M. T., Steinberg, Z., Baker, L. A., Cicco, R., Geller, P. A., Lassen, S. R., Milford, C. A., Mounts, K. O., Patterson, C. A., Saxton, S. N., et al. (2015) · Journal of Perinatology · doi:10.1038/jp.2015.144 · Cited by 166 · see citing works
Treatment of post-partum depression: a review of clinical, psychological and pharmacological options
Leight, K. L., Fitelson, E. M., Kim, S. Y., & Baker, A. S. (2010) · International Journal of Women s Health · doi:10.2147/ijwh.s6938 · Cited by 166 · see citing works
NICU Hospitalization: Long-Term Implications on Parenting and Child Behaviors
Lean, R. E., Rogers, C. E., Paul, R. A., & Gerstein, E. D. (2018) · Current Treatment Options in Pediatrics · doi:10.1007/s40746-018-0112-5 · Cited by 155 · see citing works
Smythe, K. L., Petersen, I., & Schartau, P. (2022) · JAMA Network Open · doi:10.1001/jamanetworkopen.2022.18969 · Cited by 147 · see citing works
Melnyk, B. M., Crean, H. F., Feinstein, N. F., & Fairbanks, E. (2008) · Nursing Research · doi:10.1097/nnr.0b013e3181906f59 · Cited by 138 · see citing works
HALL, S. L., Cross, J., Selix, N. W., Patterson, C. A., Segre, L. S., Chuffo-Siewert, R., Geller, P. A., & Martin, M. (2015) · Journal of Perinatology · doi:10.1038/jp.2015.147 · Cited by 136 · see citing works
Parental Psychological Well-Being and Behavioral Outcome of Very Low Birth Weight Infants at 3 Years
Huhtala, M., Korja, R., Lehtonen, L., Haataja, L., Lapinleimu, H., Rautava, P., & on behalf of the PIPARI Study Group (2012) · Pediatrics · doi:10.1542/peds.2011-2411 · Cited by 133 · see citing works
Sabnis, A., Fojo, S., Nayak, S. S., Lopez, E., Tarn, D. M., & Zeltzer, L. (2019) · Journal of Perinatology · doi:10.1038/s41372-018-0310-9 · Cited by 133 · see citing works
NICU-based Interventions To Reduce Maternal Depressive and Anxiety Symptoms: A Meta-analysis
Mendelson, T., Cluxton-Keller, F., Vullo, G. C., Tandon, S. D., & Noazin, S. (2017) · Pediatrics · doi:10.1542/peds.2016-1870 · Cited by 130 · see citing works
Kildea, S. V., Gao, Y., Hickey, S. D., Kruske, S., Nelson, C., Blackman, R., Tracy, S., Hurst, C. P., Williamson, D. S., & Roe, Y. L. (2019) · EClinicalMedicine · doi:10.1016/j.eclinm.2019.06.001 · Cited by 115 · see citing works
Disparity in posttraumatic stress disorder diagnosis among African American pregnant women
Seng, J. S., Kohn‐Wood, L. P., McPherson, M. D., & Sperlich, M. I. (2011) · Archives of Women s Mental Health · doi:10.1007/s00737-011-0218-2 · Cited by 112 · see citing works
Prevention of Traumatic Stress in Mothers of Preterms: 6-Month Outcomes
Shaw, R. J., John, N. S., Lilo, E. A., Jo, B., Benitz, W. E., Stevenson, D. K., & Horwitz, S. M. (2014) · PEDIATRICS · doi:10.1542/peds.2014-0529 · Cited by 108 · see citing works
Psychosocial program standards for NICU parents
Hynan, M. T., & Hall, S. L. (2015) · Journal of Perinatology · doi:10.1038/jp.2015.141 · Cited by 105 · see citing works
The Contribution of Preterm Birth to the Black–White Infant Mortality Gap, 1990 and 2000
Schempf, A. H., Branum, A. M., Lukacs, S. L., & Schoendorf, K. C. (2007) · American Journal of Public Health · doi:10.2105/ajph.2006.093708 · Cited by 93 · see citing works
Family Reactions During Infants' Hospitalization in the Neonatal Intensive Care Unit
Spear, M. L., Leef, K. H., Epps, S., & Locke, R. G. (2002) · American Journal of Perinatology · doi:10.1055/s-2002-28484 · Cited by 88 · see citing works
Melnyk, B. M., & Feinstein, N. F. (2009) · Nursing Administration Quarterly · doi:10.1097/01.naq.0000343346.47795.13 · Cited by 79 · see citing works
Landsem, I. P., Handegård, B. H., Tunby, J., Ulvund, S. E., & Rønning, J. A. (2014) · Trials · doi:10.1186/1745-6215-15-387 · Cited by 67 · see citing works
Serlachius, A. S., Hames, J., Juth, V., Garton, D., Rowley, S., & Petrie, K. J. (2018) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.14063 · Cited by 65 · see citing works
Cherry, A. S., Blucker, R. T., Thornberry, T. S., Hetherington, C., McCaffree, M. A., & Gillaspy, S. R. (2016) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s91559 · Cited by 62 · see citing works
Bécares, L., & Carr, P. A. (2016) · International Journal for Equity in Health · doi:10.1186/s12939-016-0443-4 · Cited by 61 · see citing works
The Perinatal Mental Health of Indigenous Women: A Systematic Review and Meta-Analysis
Owais, S., Faltyn, M., Johnson, A., Gabel, C., Downey, B., Kates, N., & Lieshout, R. J. V. (2019) · The Canadian Journal of Psychiatry · doi:10.1177/0706743719877029 · Cited by 57 · see citing works
Signal, T. L., Paine, S., Sweeney, B., Muller, D., Priston, M., Lee, K. A., Gander, P. H., & Huthwaite, M. (2016) · Australian & New Zealand Journal of Psychiatry · doi:10.1177/0004867415622406 · Cited by 56 · see citing works
Transforming NICU care to provide comprehensive family support
Hall, S. L., Phillips, R., & Hynan, M. T. (2016) · Newborn and Infant Nursing Reviews · doi:10.1053/j.nainr.2016.03.008 · Cited by 53 · see citing works
El‐Den, S., Pham, L., Anderson, I., Yang, S., Moles, R. J., O’Reilly, C. L., Boyce, P. M., Raine, K. H., & Raynes‐Greenow, C. H. (2022) · Archives of Women s Mental Health · doi:10.1007/s00737-022-01249-1 · Cited by 50 · see citing works
Jones, B., Heslop, D. J., & Harrison, R. (2020) · International Journal for Equity in Health · doi:10.1186/s12939-020-01334-w · Cited by 47 · see citing works
Burnout and Turnover among NICU Nurses
Thomas, A. O., Bakas, T., Miller, E., Johnson, K., & Tubbs‐Cooley, H. L. (2021) · MCN The American Journal of Maternal/Child Nursing · doi:10.1097/nmc.0000000000000780 · Cited by 33 · see citing works
Fisher, J., Chatham, E., Haseler, S., McGaw, B., & Thompson, J. (2012) · Australian and New Zealand Journal of Obstetrics and Gynaecology · doi:10.1111/ajo.12000 · Cited by 30 · see citing works
Bränn, E., Fransson, E., Wikman, A., Kollia, N., Nguyen, D. T., Lilliecreutz, C., & Skalkidou, A. (2021) · Journal of Affective Disorders · doi:10.1016/j.jad.2021.03.013 · Cited by 30 · see citing works
Weetra, D., Glover, K., Buckskin, M., Kit, J. A., Leane, C., Mitchell, A., Stuart‐Butler, D., Turner, M., Yelland, J. S., Gartland, D., et al. (2016) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-016-0867-2 · Cited by 29 · see citing works
Adcock, A., Cram, F., Edmonds, L., & Lawton, B. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18189835 · Cited by 27 · see citing works
Bloyd, C., Murthy, S., Song, C., Franck, L. S., & Mangurian, C. (2022) · Children · doi:10.3390/children9060793 · Cited by 26 · see citing works
Dickinson, C., Whittingham, K., Sheffield, J., Wotherspoon, J., & Boyd, R. N. (2020) · Infant Mental Health Journal · doi:10.1002/imhj.21871 · Cited by 22 · see citing works
Brooks, S., Rowley, S., Broadbent, E., & Petrie, K. J. (2012) · Health Psychology · doi:10.1037/a0027591 · Cited by 21 · see citing works
Filoche, S. K., Cram, F., Beard, A., Sim, D. A., GELLER, S. E., Edmonds, L. K., Robson, B., & LAWTON, B. A. (2018) · BMC Health Services Research · doi:10.1186/s12913-018-3179-6 · Cited by 10 · see citing works
The power of early interventions in families with preterm born children
Landsem, I. P. (2016) · Nursing Children and Young People · doi:10.7748/ncyp.28.4.52.s28 · Cited by 2 · see citing works
G425(P) Mental well-being support for nicu parents – a uk survey
Storey, C., Shetty, P., Leppard, L., & Gupta, N. (2019) · doi:10.1136/archdischild-2019-rcpch.410 · Cited by 1 · see citing works
Flagged first, then by citations
Research works printed but not linked: 1
- Smythe KL, Petersen I, Schartau P. Prevalence of Perinatal Depression and Anxiety in Both Parents. JAMA Netw Open 2022; 5: e2218969.
Cited by
Sorted by citations
Psychological distress in the neonatal intensive care unit: a meta-review
van Wyk, L., Majiza, A. P., Ely, C. S. E., & Singer, L. T. (2024) · Pediatric Research · doi:10.1038/s41390-024-03599-1 · Cited by 60 · see citing works
Ginsberg, K. H., Alsweiler, J., Rogers, J., Cavadino, A., Douglas, M., & Serlachius, A. (2024) · Contemporary Clinical Trials · doi:10.1016/j.cct.2024.107519 · Cited by 7 · see citing works
(2024) · doi:10.2196/66401 · Cited by 5 · see citing works
“As a recent study of services showed, psychosocial support for caregivers in the NICUs in Aotearoa New Zealand is highly limited, with no formalized support programs, limited cultural support services, and fewer staff members available to provide support to parents with babies in the NICU [12].”
Du, Z., Peng, H., Wang, J., Liu, M., Nie, G., & Li, Y. (2025) · PLoS ONE · doi:10.1371/journal.pone.0333030 · Cited by 1 · see citing works
“It was reported that among children of different genders, the main difference lies in the UGT enzyme system, while the difference in the CYP enzyme sys-tem was relatively small [22,23].”
Pediatrik Akciğer Hastalıklarında Pulmoner Rehabilitasyon
Utuş, A. (2025) · Özgür Yayınları eBooks · doi:10.58830/ozgur.pub1126.c4599
Ginsberg, K. H., Alsweiler, J. M., Rogers, J., Cavadino, A., Douglas, M., & Serlachius, A. S. (2026) · doi:10.2196/preprints.92021
Seppänen, H., Talus, E., Sankilampi, U., Koivula, K., Luoma, I., & Pölkki, T. (2026) · Journal of Clinical Nursing · doi:10.1111/jocn.70417
“Significant gaps have been identified in parent support services, despite the recognition of parental distress (Ginsberg et al. 2023).”
Perceived Needs of Parents of Premature Infants Hospitalized in the Neonatal Intensive Care Unit
Simyari, M., Rasuli, M., & Shoghi, M. (2026) · Journal of Clinical Neonatology · doi:10.4103/jcn.jcn_33_26
Ginsberg, K. H., Alsweiler, J. M., Rogers, J., Cavadino, A., Douglas, M., & Serlachius, A. S. (2026) · JMIR Mental Health · doi:10.2196/92021
“…surveys conducted in New Zealand, Australia, and the United States have demonstrated that psychosocial support services for caregivers in the NICU are often under-resourced, with limited availability of trained mental health professionals and inconsistent screening and follow-up practices [8,9].”
- Authors
- Ginsberg, K. H., Serlachius, A., Rogers, J., & Alsweiler, J.
- Affiliations
- University of Auckland (NZ)
- Corresponding author
- Ginsberg, Kristin Harrison
- Venue
- The Journal of Pediatrics
- Publisher
- Elsevier BV
- Published
- 2023-08
- Volume
- 259
- Pages
- 113456
- ISSN
- 0022-3476 (ISSN-L)
- OpenAlex
- W4376109914
- Cited by
- 9
- References
- 48
- Citations by year
- 2026: 4 · 2025: 3 · 2024: 2
- FWCI
- 3.30
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- The Journal of Pediatrics (publishedVersion)
- PubMed (publishedVersion)
- ResearchSpace (University of Auckland) (submittedVersion, cc-by-nc-nd)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Health Sciences › Health Professions › Radiological and Ultrasound Technology › Family and Patient Care in Intensive Care Units
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- psychosocial support, parents of preterm infants, neonatal intensive care unit, parental mental health, parent support programs, Australia, New Zealand
- MeSH terms
- Psychosocial Support Systems, Australia, Humans, Infant, Infant, Newborn, Intensive Care Units, Neonatal, Parents, Surveys and Questionnaires
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