He tamariki kokoti tau: Families of indigenous infants talk about their experiences of preterm birth and neonatal intensive care
Open accessAbstract
Māori (Indigenous peoples of Aotearoa New Zealand) bear an unequal burden of poor perinatal health outcomes, including preterm birth. An infant arriving preterm disrupts the birth imaginary of whānau (family collectives) and situates them in a foreign health environment that may not be culturally safe and nurturing. A cross-sectional interpretative phenomenological analysis of first interviews with 19 whānau participating in a Kaupapa Māori (by, with, for Māori) qualitative longitudinal study of preterm birth identified themes from their experiences and the meanings they attributed to them. Preterm birth was an emotional roller coaster, with the birth imaginary and anticipated roles disrupted as health practitioners took over the care of their infants. Whānau expressed the desire to be close to their infants, holding them, loving them, nurturing them, and emplacing them within whakapapa (genealogy, continual layering of foundations) networks. When health practitioners or hospital policies inhibited this intimacy by isolating, excluding, or discriminating, whānau were frustrated. Being familiar with hospital routines, staff, peers, infant cares, and being wrapped in wider whānau support were key for whānau coping. Whakawhanaungatanga (processes of establishing relationships) create safe spaces for whānau to be themselves. This quietens the 'storm' and returns whānau to a sense of calm, through the reclamation of their environment.
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Multiple qualitative studies have described cultural challenges Māori families experience in Aotearoa New Zealand NICUs, often related to differences in cultural values.
“Multiple qualitative studies [24 -26], including our own [13], have described some of the cultural challenges M ¯ aori families have experienced in Aotearoa New Zealand NICUs, often related to differences in cultural values.”
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Cites
Decolonizing Methodologies: Research and Indigenous Peoples
Hall, T. D., & Smith, L. T. (2000) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2653993 · Cited by 7,341 · see citing works
Marmot, M. G., & Bell, R. (2012) · Public Health · doi:10.1016/j.puhe.2012.05.014 · Cited by 1,090 · see citing works
Marmot, M. G., & Bell, R. (2010) · Nursing Standard · doi:10.7748/ns2010.10.25.6.30.p4603 · Cited by 1,044 · see citing works
O'Brien, K., Robson, K., Bracht, M., Cruz, M., Lui, K., Alvaro, R., da Silva, O., Monterrosa, L., Narvey, M., Ng, E., et al. (2018) · The Lancet Child & Adolescent Health · doi:10.1016/s2352-4642(18)30039-7 · Cited by 593 · see citing works
Chang, H. H., Larson, J., Blencowe, H. K., Spong, C. Y., Howson, C. P., Cairns‐Smith, S., Lackritz, E., Lee, S. K., Mason, E. M., Serazin, A. C., et al. (2012) · The Lancet · doi:10.1016/s0140-6736(12)61856-x · Cited by 558 · see citing works
Kaupapa Maori: Locating Indigenous Ontology, Epistemology and Methodology in the Academy
Henry, E. Y., & Pene, H. (2001) · Organization · doi:10.1177/1350508401082009 · Cited by 265 · see citing works
Recommendations for mental health professionals in the NICU
Hynan, M. T., Steinberg, Z., Baker, L. A., Cicco, R., Geller, P. A., Lassen, S. R., Milford, C. A., Mounts, K. O., Patterson, C. A., Saxton, S. N., et al. (2015) · Journal of Perinatology · doi:10.1038/jp.2015.144 · Cited by 166 · see citing works
Kildea, S. V., Gao, Y., Hickey, S. D., Nelson, C., Kruske, S., Carson, A., Currie, J., Reynolds, M., Wilson, K., Watego, K., et al. (2021) · The Lancet Global Health · doi:10.1016/s2214-109x(21)00061-9 · Cited by 139 · see citing works
Wilson, D., Moloney, E., Parr, J. M., Aspinall, C., & Slark, J. (2021) · Journal of Clinical Nursing · doi:10.1111/jocn.15859 · Cited by 133 · see citing works
Developing Nurse/Parent Relationships in the NICU Through Negotiated Partnership
Reis, M. D., Rempel, G. R., Scott, S. D., Brady-Fryer, B., & Aerde, J. V. (2010) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1111/j.1552-6909.2010.01189.x · Cited by 129 · see citing works
Research with Aboriginal Peoples: Authentic Relationships as a Precursor to Ethical Research
Bull, J. R. (2010) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2010.5.4.13 · Cited by 118 · see citing works
Palmer, S. C., Gray, H., Huria, T., Lacey, C., Beckert, L., & Pitama, S. G. (2019) · International Journal for Equity in Health · doi:10.1186/s12939-019-1057-4 · Cited by 109 · see citing works
Systematic Review of Skin-to-Skin Care for Full-Term, Healthy Newborns
Cleveland, L. M., Hill, C. M., Pulse, W. S., DiCioccio, H. C., Field, T. M., & White‐Traut, R. C. (2017) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1016/j.jogn.2017.08.005 · Cited by 108 · see citing works
Smylie, J., Crengle, S., Freemantle, J., & Taualii, M. (2010) · The Open Women' s Health Journal · doi:10.2174/1874291201004020007 · Cited by 97 · see citing works
Parental Stress and Mental Health Symptoms in the NICU: Recognition and Interventions
Bernardo, J. P., Rent, S. M., Arias-Shah, A., Hoge, M. K., & Shaw, R. J. (2021) · NeoReviews · doi:10.1542/neo.22-8-e496 · Cited by 89 · see citing works
Palmquist, A. E. L., Holdren, S., & Fair, C. D. (2019) · Social Science & Medicine · doi:10.1016/j.socscimed.2019.112648 · Cited by 80 · see citing works
Kildea, S. V., Hickey, S. D., Barclay, L. M., Kruske, S., Nelson, C., Sherwood, J., Allen, J., Gao, Y., Blackman, R., & Roe, Y. L. (2019) · Women and Birth · doi:10.1016/j.wombi.2019.06.013 · Cited by 69 · see citing works
Jones, B. H., Ingham, T. R., Cram, F., Dean, S. G., & Davies, C. (2013) · BMC Public Health · doi:10.1186/1471-2458-13-228 · Cited by 68 · see citing works
Self-citationMana wahine: Decolonising politics
Simmonds, N. (2011) · Cited by 67 · see citing works
Serlachius, A. S., Hames, J., Juth, V., Garton, D., Rowley, S., & Petrie, K. J. (2018) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.14063 · Cited by 65 · see citing works
Indigenous Birth Outcomes in Australia, Canada, New Zealand and the United States – an Overview
Smylie, J. K., Crengle, S. M., Freemantle, J., & Taualii, M. M. (2010) · The Open Women s Health Journal · doi:10.2174/1874291201004010007 · Cited by 55 · see citing works
Pados, B. F., & Hess, F. (2019) · Advances in Neonatal Care · doi:10.1097/anc.0000000000000596 · Cited by 54 · see citing works
Ichijima, E., Kirk, R., & Hornblow, A. R. (2009) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2009.10.003 · Cited by 52 · see citing works
Researching our Relations: Reflections on Ethics and Marginalisation
Ormond, A., Cram, F., & Carter, L. (2006) · AlterNative An International Journal of Indigenous Peoples · doi:10.1177/117718010600200108 · Cited by 40 · see citing works
Self-citationJones, L., Taylor, T. J., Watson, B. M., Fenwick, J., & Dordic, T. (2015) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2015.03.006 · Cited by 36 · see citing works
Kim, A. R., Kim, S., & Yun, J. E. (2020) · Systematic Reviews · doi:10.1186/s13643-020-01331-8 · Cited by 26 · see citing works
Edmonds, L. K., Sibanda, N., GELLER, S. E., et al. (2021) · International Journal of Gynecology & Obstetrics · doi:10.1002/ijgo.13855 · Cited by 23 · see citing works
Self-citationCaring for Indigenous families in the neonatal intensive care unit
Wright, A. L., Ballantyne, M., & Wahoush, O. (2020) · Nursing Inquiry · doi:10.1111/nin.12338 · Cited by 21 · see citing works
Ireland, S., Ray, R. A., Larkins, S., & Woodward, L. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-026344 · Cited by 20 · see citing works
Te Hā o Whānau: A culturally responsive framework of maternity care.
Stevenson, K., Filoche, S. K., Cram, F., et al. (2020) · PubMed · Cited by 16 · see citing works
Self-citationLewis, M., Passant, L., Cooke, H., & Challis, D. E. (2019) · Women and Birth · doi:10.1016/j.wombi.2019.12.003 · Cited by 12 · see citing works
Socio-Cultural Influences on Teenage Pregnancy and Contemporary Prevention Measures
(2018) · Advances in human services and public health (AHSPH) book series · doi:10.4018/978-1-5225-6108-8 · Cited by 10 · see citing works
McBride‐Henry, K., Miller, C., Trenholm, A., & Officer, T. N. (2020) · PLoS ONE · doi:10.1371/journal.pone.0228354 · Cited by 9 · see citing works
National Travel Assistance Entitlements Are Inaccessible to Whānau Māori
Masters‐Awatere, B., Murphy, S., Helmhout, T. B., et al. (2020) · International Perspectives in Psychology · doi:10.1037/ipp0000140 · Cited by 9 · see citing works
Masters‐Awatere, B., Cormack, D. M., Graham, R., et al. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17238833 · Cited by 8 · see citing works
Adcock, A., Cram, F., & LAWTON, B. A. (2018) · Advances in human services and public health (AHSPH) book series · doi:10.4018/978-1-5225-6108-8.ch014 · Cited by 6 · see citing works
Self-citationStevenson, K., Cram, F., Filoche, S. K., et al. (2020) · MAI Journal A New Zealand Journal of Indigenous Scholarship · doi:10.20507/maijournal.2020.9.2.3 · Cited by 6 · see citing works
Self-citation'Whose Ethics?': Codifying and Enacting Ethics in Research Settings
Davis, M., & Holcombe, S. E. (2010) · ANU Open Research (Australian National University) · Cited by 5 · see citing works
Meal Provision Needed for Caregivers Who Stay With a Child in Hospital
Masters‐Awatere, B., Graham, R., Scott, N., et al. (2020) · International Perspectives in Psychology · doi:10.1037/ipp0000131 · Cited by 4 · see citing works
McBride‐Henry, K., Miller, C., Trenholm, A., & Officer, T. (2020) · doi:10.26686/wgtn.12250484.v1 · Cited by 1 · see citing works
Flagged first, then by citations
Research works printed but not linked: 3
- [4]PMMRC Fourteenth Annual Report of the Perinatal and Maternal Mortality Review Committee|Te Pūrongo ā-Tau Tekau Mā Whā o te Komiti Arotake Mate Pēpi, Mate Whaea Hoki: Reporting Mortality and Morbidity 2018|Te Tuku Pūrongo Mō te Mate me te Whakamate 2018 Health Quality & Safety Commission Wellington, New Zealand 2021
- [11]PMMRC Twelfth Annual Report of the Perinatal and Maternal Mortality Review Committee: Reporting Mortality and Morbidity 2016 Health Quality & Safety Commission New Zealand Wellington, New Zealand 2018
- [34]Whitty-Rogers J. Etowa J. Evans J. Becoming an Aboriginal mother: Childbirth experiences of women from one Mi’Kmaq community in Nova Scotia “Until Our Hearts Are on The Ground” Aboriginal Mothering, Oppression, Resistance and Rebirth Lavell-Harvard D.M. Lavell J.C. Demeter Press Toronto, ON, Canada 2006 25 33
Cited by
Sorted by citations
Adcock, A., Cram, F., Edmonds, L., & Lawton, B. (2022) · Journal of the Royal Society of New Zealand · doi:10.1080/03036758.2022.2090390 · Cited by 9 · see citing works
Self-citationGinsberg, K. H., Serlachius, A., Rogers, J., & Alsweiler, J. (2023) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2023.113456 · Cited by 9 · see citing works
Adcock, A., Cram, F., Edmonds, L., & Lawton, B. (2023) · Qualitative Health Research · doi:10.1177/10497323231164550 · Cited by 8 · see citing works
Self-citationGinsberg, K. H., Alsweiler, J., Rogers, J., Cavadino, A., Douglas, M., & Serlachius, A. (2024) · Contemporary Clinical Trials · doi:10.1016/j.cct.2024.107519 · Cited by 7 · see citing works
- Authors
- Adcock, A., Cram, F., Edmonds, L., & Lawton, B.
- Affiliations
- Victoria University of Wellington (NZ)
- (Ngāti Pāhauwera) Katoa Ltd., Auckland 1143, New Zealand
- Dunedin Public Hospital (NZ)
- Corresponding author
- Adcock, Anna
- Venue
- International Journal of Environmental Research and Public Health
- Publisher
- MDPI AG
- Published
- 2021-09-18
- Volume
- 18
- Issue
- 18
- Pages
- 9835
- ISSN
- 1660-4601 (ISSN-L)
- PMC
- PMC8472228
- OpenAlex
- W3201635156
- Cited by
- 27
- References
- 40
- Citations by year
- 2026: 4 · 2025: 8 · 2024: 5 · 2023: 5 · 2022: 4 · 2021: 1
- FWCI
- 3.71
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- International Journal of Environmental Research and Public Health (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, other-oa)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Figshare (submittedVersion, cc-by-nc-nd)
- Victoria University of Wellington
- Funders
- Health Research Council of New Zealand (16/444)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Social Sciences › Health › Indigenous Health, Education, and Rights
- Health Sciences › Health Professions › General Health Professions › Maternal and Neonatal Healthcare
- Keywords
- preterm birth, neonatal intensive care, Māori families, whānau, cultural safety, infant holding, whakapapa, whakawhanaungatanga, family coping, Kaupapa Māori research, hospital discrimination
- MeSH terms
- Cross-Sectional Studies, Female, Humans, Infant, Infant, Newborn, Longitudinal Studies, Male, New Zealand, Pregnancy, Intensive Care, Neonatal, Native Hawaiian or Other Pacific Islander, Premature Birth
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