Cited by 405Family and Disability Support ResearchAutism Spectrum Disorder ResearchFamily Caregiving in Mental Illness

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The quality of life of parents of children with autism spectrum disorder: A systematic review

Vasilopoulou, Eleni, Nisbet, Joy·2016·Research in Autism Spectrum Disorders

DOI 10.1016/j.rasd.2015.11.008

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Parent-mediated early intervention for young children with autism spectrum disorder
Diggle, T. T. J., & McConachie, H. (2002) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd003496 · Cited by 112
Retracted
Diagnostic and Statistical Manual of Mental Disorders
Williams, J. B. W., & First, M. B. (2013) · Oxford University Press eBooks · doi:10.1093/acrefore/9780199975839.013.104 · Cited by 109,845
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement.
(2009) · PubMed Central · Cited by 44,859
Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & the PRISMA Group* (2009) · Annals of Internal Medicine · doi:10.7326/0003-4819-151-4-200908180-00135 · Cited by 37,554
Diagnostic and Statistical Manual of Mental Disorders
(2012) · Springer eBooks · doi:10.1007/springerreference_121117 · Cited by 20,772
EuroQol: a new facility for the measurement of health-related quality of life
(1990) · Health Policy · doi:10.1016/0168-8510(90)90421-9 · Cited by 15,736
The Strengths and Difficulties Questionnaire: A research note
Goodman, R. (1997) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.1997.tb01545.x · Cited by 14,908
You want to measure coping but your protocol’ too long: Consider the brief cope
Carver, C. S. (1997) · International Journal of Behavioral Medicine · doi:10.1207/s15327558ijbm0401_6 · Cited by 7,361
The World Health Organization quality of life assessment (WHOQOL): Development and general psychometric properties
The Whoqol Group (1998) · Social Science & Medicine · doi:10.1016/s0277-9536(98)00009-4 · Cited by 3,802

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Blumberg, 2013, Changes in prevalence of parent-reported autism spectrum disorder in school-aged US children: 2007–2012, National Health Statistics Reports, 65, 1
Friedman, 2002, Chronic adversities, Child and Adolescent Psychiatry, 4, 261
Minkler, 1997, Improving health through community organization and community building. Health behavior and health education, Theory, Research and Practice, 3, 279
Sedgwick, 2014, Cross sectional studies: advantages and disadvantages. BMJ, British Medical Journal, 348, 1

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Authors: Vasilopoulou, E., & Nisbet, J.
Affiliations: University of Edinburgh (GB)
Corresponding author: Vasilopoulou, Eleni
ORCID: Nisbet, Joy
Venue: Research in Autism Spectrum Disorders
Publisher: Elsevier BV
Published: 2016-03
Volume: 23
Pages: 36-49
ISSN: 1878-0237 (ISSN-L)
1750-9467
DOI: 10.1016/j.rasd.2015.11.008
OpenAlex: W2219154285
Cited by: 405
References: 95
Citations by year: 2026: 41 · 2025: 51 · 2024: 73 · 2023: 45 · 2022: 47 · 2021: 46 · 2020: 43 · 2019: 32 · 2018: 15 · 2017: 9 · 2016: 1
FWCI: 1.20
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Research in Autism (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: quality of life, parents of autistic children, autism spectrum disorder, parental unemployment, mothers, social support, associated factors

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