They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum
Open accessIntegrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The therapist's understanding of autism is essential for therapeutic alliance with autistic clients.
“Our results also revealed that the therapist's understanding of autism is essential for therapeutic alliance with autistic clients, in line with prior research on broader health-care experiences (Brede et al., 2022;Mazurek et al., 2021).”
From A mixed methods study of autistic adults' mental health therapy experiences (2023) · cites this paper as Mazurek et al., 2021
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · see citing works
S., N. L. (2017) · doi:10.1177/1609406917733847 · Cited by 14,051 · see citing works
Saturation in qualitative research: exploring its conceptualization and operationalization
Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., Burroughs, H., & Jinks, C. (2018) · Quality & Quantity · doi:10.1007/s11135-017-0574-8 · Cited by 12,033 · see citing works
Lai, M.-C., Kassee, C., Besney, R., Bonato, S., Hull, L., Mandy, W., Szatmari, P., & Ameis, S. H. (2019) · The Lancet Psychiatry · doi:10.1016/s2215-0366(19)30289-5 · Cited by 1,892 · see citing works
The health status of adults on the autism spectrum
Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., & Kripke, C. (2015) · Autism · doi:10.1177/1362361315577517 · Cited by 1,110 · see citing works
Defining and Measuring the Patient-Centered Medical Home
Stange, K. C., Nutting, P. A., Miller, W. L., Jaén, C. R., Crabtree, B. F., Flocke, S. A., & Gill, J. M. (2010) · Journal of General Internal Medicine · doi:10.1007/s11606-010-1291-3 · Cited by 516 · see citing works
Nicolaidis, C., Raymaker, D. M., Ashkenazy, E., McDonald, K. E., Dern, S., Baggs, A. E., Kapp, S. K., Weiner, M., & Boisclair, W. C. (2015) · Autism · doi:10.1177/1362361315576221 · Cited by 513 · see citing works
Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W. C., Ashkenazy, E., & Baggs, A. (2013) · Journal of General Internal Medicine · doi:10.1007/s11606-012-2262-7 · Cited by 419 · see citing works
Camm-Crosbie, L., Bradley, L., Shaw, R., Baron-Cohen, S., & Cassidy, S. (2019) · Autism · doi:10.1177/1362361318816053 · Cited by 415 · see citing works
National and State Estimates of Adults with Autism Spectrum Disorder
Dietz, P. M., Rose, C. E., McArthur, D., & Maenner, M. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04494-4 · Cited by 351 · see citing works
Mason, D., Ingham, B., Urbanowicz, A., Michael, C., Birtles, H., Woodbury-Smith, M., Brown, T., James, I., Scarlett, C., Nicolaidis, C., et al. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-019-04049-2 · Cited by 291 · see citing works
Wallace, G. L., Kenworthy, L., Pugliese, C. E., Popal, H. S., White, E. I., Brodsky, E., & Martin, A. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2655-7 · Cited by 261 · see citing works
GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study
Unigwe, S., Buckley, C., Crane, L., Kenny, L., Remington, A., & Pellicano, E. (2017) · British Journal of General Practice · doi:10.3399/bjgp17x690449 · Cited by 226 · see citing works
Maddox, B. B., Crabbe, S., Beidas, R. S., Brookman-Frazee, L., Cannuscio, C. C., Miller, J. S., Nicolaidis, C., & Mandell, D. S. (2020) · Autism · doi:10.1177/1362361319882227 · Cited by 203 · see citing works
Adapting psychological therapies for autism
Cooper, K., Loades, M. E., & Russell, A. (2018) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2017.11.002 · Cited by 190 · see citing works
Nicolaidis, C., Raymaker, D., McDonald, K., Kapp, S., Weiner, M., Ashkenazy, E., Gerrity, M., Kripke, C., Platt, L., & Baggs, A. (2016) · Journal of General Internal Medicine · doi:10.1007/s11606-016-3763-6 · Cited by 150 · see citing works
Suicide in Autism Spectrum Disorders
Richa, S., Fahed, M., Khoury, E., & Mishara, B. (2014) · Archives of Suicide Research · doi:10.1080/13811118.2013.824834 · Cited by 135 · see citing works
Maeng, D. D., Graf, T. R., Davis, D. E., Tomcavage, J., & Bloom, F. J. (2012) · American Journal of Medical Quality · doi:10.1177/1062860611417421 · Cited by 64 · see citing works
Mazurek, M. O., Stobbe, G., Loftin, R., Malow, B. A., Agrawal, M. M., Tapia, M., Hess, A., Farmer, J., Cheak-Zamora, N., Kuhlthau, K., et al. (2020) · Autism · doi:10.1177/1362361319879616 · Cited by 63 · see citing works
Self-citation
Flagged first, then by citations
Cited by
Sorted by citations
A mixed methods study of autistic adults' mental health therapy experiences
Mazurek, M. O., Pappagianopoulos, J., Brunt, S., Sadikova, E., Nevill, R., Menezes, M., & Harkins, C. (2023) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.2835 · Cited by 33 · see citing works
Self-citation
- Authors
- Mazurek, M. O., Sadikova, E., Cheak-Zamora, N., Hardin, A., Huerta, I., Sohl, K., & Malow, B. A.
- Affiliations
- University of Virginia (US)
- University of Missouri (US)
- Vanderbilt University Medical Center (US)
- Corresponding author
- Mazurek, Micah O.
- ORCID
- Venue
- Research in Autism Spectrum Disorders
- Publisher
- Elsevier BV
- Published
- 2021-11
- Volume
- 89
- Pages
- 101862
- ISSN
- 1878-0237 (ISSN-L)
- 1750-9467
- OpenAlex
- W3201552744
- Cited by
- 22
- References
- 19
- Citations by year
- 2026: 5 · 2025: 7 · 2024: 4 · 2023: 4 · 2022: 2
- FWCI
- 1.31
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- www.elsevier.com/tdm/userlicense/1.0/ (tdm)
- www.elsevier.com/legal/tdmrep-license (tdm)
- www.elsevier.com/open-access/userlicense/1.0/ (am, 317 d)
- doi.org/10.15223/policy-017 (stm-asf)
- doi.org/10.15223/policy-037 (stm-asf)
- doi.org/10.15223/policy-012 (stm-asf)
- doi.org/10.15223/policy-029 (stm-asf)
- doi.org/10.15223/policy-004 (stm-asf)
- Locations
- Research in Autism (acceptedVersion)
- Funders
- U.S. Department of Defense
- Congressionally Directed Medical Research Programs (AR180072P1)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Keywords
- autism spectrum disorder, autistic adults, caregiver perspectives, barriers to care, unmet health needs, quality of care, health professionals' knowledge, care coordination, person-centred care, insurance coverage, waiting lists, provider shortages, caregiver advocacy, accommodation
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
