The characteristics of informal cancer caregivers in the United States
Abstract
Objective To review characteristics and experiences of informal cancer caregivers. Data sources Recent empirical studies and review papers on informal cancer caregiving. Conclusion Increasing cancer prevalence and shifts toward outpatient care place substantial burden on caregivers. Cancer progression, treatment, and individual characteristics influence the caregiving experience. Longitudinal research and the development, testing, and implementation of effective interventions for cancer caregivers are needed. Implications for nursing practice Nurses play key roles in efforts to support cancer caregivers. Nursing interventions that incorporate caregiver preparation, support, and training in caregiving tasks are warranted.
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Cancer caregivers are estimated to spend an average of 32.9 h a week providing care, with 72% of that duration spent on performing complex medical or nursing tasks.
“Cancer caregivers are estimated to spend an average of 32.9 h a week providing care and with 72% of that duration spent on performing complex medical or nursing tasks [8].”
From Systematic review of caregiver burden, unmet needs and quality-of-life among informal caregivers of patients with pancreatic cancer (2023) · cites this paper as [8]
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- Authors
- Kent, E. E., Mollica, M. A., Buckenmaier, S., & Wilder Smith, A.
- Affiliations
- National Institutes of Health (US)
- Corresponding author
- Kent, Erin E.
- Venue
- Seminars in Oncology Nursing
- Publisher
- Elsevier BV
- Published
- 2019-08
- Volume
- 35
- Issue
- 4
- Pages
- 328-332
- ISSN
- 0749-2081 (ISSN-L)
- OpenAlex
- W2950406348
- Cited by
- 89
- References
- 9
- Citations by year
- 2026: 6 · 2025: 18 · 2024: 10 · 2023: 20 · 2022: 16 · 2021: 12 · 2020: 7
- FWCI
- 1.69
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Seminars in Oncology Nursing (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Cancer Institute
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Keywords
- caregiver burden, caregiver characteristics, caregiver experiences, outpatient care, tumor progression, caregiver support interventions, caregiver education, nursing interventions
- MeSH terms
- Adolescent, Adult, Aged, Female, Humans, Male, Middle Aged, Neoplasms, Quality of Life, United States, Caregivers, Nurse's Role, Young Adult
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