Quality of life of family caregivers 8 years after a relative's cancer diagnosis: follow‐up of the National Quality of Life Survey for Caregivers
Abstract
Background: The long‐term impact of cancer caregiving on the family caregivers' quality of life (QOL) is currently not known. This study aimed (a) to characterize family caregivers of cancer survivors at 8 years post‐diagnosis in terms of multidimensional aspects of QOL and (b) to identify demographic and early caregiving experience characteristics that may play significant roles in predicting the caregivers' longer‐term QOL. Methods: A total of 1087 caregivers participated in the 8‐year follow‐up National Quality of Life Survey for Caregivers. Demographics and early caregiving experiences were measured 2 years post‐diagnosis of their relative's cancer. Multidimensional aspects of QOL were assessed, including mental and physical health, psychological adjustment, and spirituality at both 2‐year and 8‐year post‐diagnosis. Results: Approximately 90% of family caregivers ceased the caregiver role by 8 years. One‐fourth of them were due to bereavement. Caregivers' demographic and early caregiving characteristics were significantly associated with QOL. In addition, being bereaved by the 8‐year mark predicted poorer mental health and greater psychological distress independent of contributions of demographic and early caregiving characteristics. Conclusions: Findings provided the first evidence that 8 years after the initial cancer diagnosis in the family, family members who became bereaved suffer from poorer mental health and greater psychological distress. Findings have theoretical implications for better understanding bereavement to cancer and practical implications for developing integrative programs to improve QOL among family members in the various phases of caregivership. Copyright © 2015 John Wiley & Sons, Ltd.
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From A systematic review and meta-analysis of the effectiveness and adverse events of gabapentin and pregabalin for sciatica pain (2022) · cites this paper as [28]
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Mitchell, H. (2020) · Springer eBooks · doi:10.1007/978-3-319-69909-7_104674-1 · Cited by 1 · see citing works
Caregiving Burden and Other Psychosocial Considerations
Csaba, D. L. (2023) · Springer eBooks · doi:10.1007/978-3-031-16745-4_2
Kualitas Hidup Family Caregiver Pasien Kanker dan Faktor-Faktor yang Mempengaruhinya
Savitri, W., & Suwarno, S. (2023) · Media Ilmu Kesehatan · doi:10.30989/mik.v11i1.667
Mitchell, H. (2023) · Springer eBooks · doi:10.1007/978-3-031-17299-1_104674
Shani, P., Raeesi, K., Walter, E., Lewis, K., Wang, W., Cohen, L., Yeh, G. Y., Lengacher, C. A., & Wayne, P. M. (2021) · Figshare · doi:10.6084/m9.figshare.14251948
- Authors
- Kim, Y., Shaffer, K. M., Carver, C. S., & Cannady, R. S.
- Affiliations
- University of Miami (US)
- American Cancer Society (US)
- Corresponding author
- Kim, Youngmee
- Venue
- Psycho-Oncology
- Publisher
- Wiley
- Published
- 2015-05-15
- Volume
- 25
- Issue
- 3
- Pages
- 266-274
- ISSN
- 1057-9249 (ISSN-L)
- 1099-1611
- OpenAlex
- W2318485928
- Cited by
- 68
- References
- 34
- Citations by year
- 2025: 2 · 2024: 7 · 2023: 5 · 2022: 2 · 2021: 8 · 2020: 10 · 2019: 11 · 2018: 8 · 2017: 8 · 2016: 5 · 2015: 2
- FWCI
- 3.35
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Psycho-Oncology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- American Cancer Society (121909-RSG-12-042-01-CPPB)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Keywords
- family caregivers, cancer caregiving, quality of life, bereavement, psychological distress, mental health, cancer survivors
- MeSH terms
- Adult, Bereavement, Family, Female, Follow-Up Studies, Grief, Humans, Male, Mental Health, Middle Aged, Neoplasms, Quality of Life, Surveys and Questionnaires, Socioeconomic Factors, Stress, Psychological, Time Factors, Caregivers, Survivors, Spirituality
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