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Cancer Hospice Caregivers' Self-care Behaviors: The Role of Caregiving Tasks, Burden, and Mental Health
Open accessAbstract
Cancer hospice family caregivers provide intensive support for patients at the end of life, sometimes at the expense of self-care. This secondary analysis examined the role of caregiving burden, activities of daily living, and mental health on self-care behaviors among cancer hospice family caregivers. Logistic regression models were adjusted for sociodemographic and caregiver characteristics, and model fit was evaluated with Hosmer-Lemeshow tests. Participants (N = 86) were mostly women (n = 62, 72.09%), White (n = 76, 88.37%), and spousal caregivers (n = 44, 51.16%). Almost half reported not getting enough rest (47.67%), time to exercise (47.67%), or time to slow down and rest when feeling ill (46.51%). Caregivers with better mental health reported being more likely to have enough time to exercise (adjusted odds ratio [OR adj ], 1.15, [1.05, 1.26]; P = .004), rest (OR adj , 1.11, [1.01, 1.22]; P = .031), and slow down when ill (OR adj , 1.16, [1.04, 1.30]; P = .010). Controlling for sociodemographic and caregiver characteristics, men caregivers had 88% lower odds of being able to rest when ill (OR adj , 0.12, [0.03, 0.52]; P = .005) compared with women. Number of care tasks, not caregiving burden, was associated with self-care behaviors. Findings provide a preliminary understanding of factors related to caregiver self-care and have implications for increased assessment of caregiver mental health and self-care needs to better support family-oriented hospice care.
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Several studies indicate the prevalence of mental disorders in cancer patients' caregivers that interfere with their self-care.
“Several studies indicate the prevalence of mental disorders in cancer patients’ caregivers that interfere with their self-care7,8.”
From Anxiety, depression, and quality of life of caregivers of palliative care patients with cancer (2025) · cites this paper as [8]
The Abstract reports that better mental health was associated with more time for exercise and rest among cancer hospice family caregivers, supporting a link between mental health and self-care. The Mental Health methods section says the study measured mental-health scores, not diagnoses; it does not report the prevalence of mental disorders or establish that they caused self-care difficulties. Page numbers were not provided for these passages. (LLM, conf=0.87)
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Metadata
- Authors
- Tay, D. L., Reblin, M., Iacob, E., Cloyes, K. G., Thomas Hebdon, M. C., Reynaga, M., Mooney, K., & Ellington, L.
- Affiliations
- University of Vermont (US)
- Corresponding author
- Tay, Djin L.
- ORCID
- Venue
- Journal of Hospice & Palliative Nursing
- Published
- 2023-06-22
- Volume
- 25
- Issue
- 5
- Pages
- 286-295
- ISSN
- 1522-2179 (ISSN-L)
- 1539-0705
- PMC
- PMC10524198
- OpenAlex
- W4381715669
- Cited by
- 5
- References
- 34
- Citations by year
- 2026: 3 · 2025: 1 · 2024: 1
- FWCI
- 2.06
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Hospice and Palliative Nursing (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institutes of Health (5ul1tr001067-05, 4/1/18-2/28/23, UL1TR002538, UL1TR001067)
- College of Nursing, University of Utah Health
- National Institute of Nursing Research (T32NR013456, U2CNR014637, U24NR014637, R01NR016249)
- National Center for Advancing Translational Sciences (UL1-TR001067)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- family caregivers, caregiver self-care, caregiver burden, activities of daily living, caregiver mental health, rest, physical activity, gender differences, spousal caregivers, end-of-life care
- MeSH terms
- Activities of Daily Living, Female, Hospices, Humans, Male, Mental Health, Neoplasms, Self Care, Social Support, Caregivers, Hospice Care
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