Analysis of dementia in the US population using Medicare claims: Insights from linked survey and administrative claims data
Open accessAbstract
Introduction: Medicare claims data may be a rich data source for tracking population dementia rates. Insufficient understanding of completeness of diagnosis, and for whom, limits their use. Methods: We analyzed agreement in prevalent and incident dementia based on cognitive assessment from the Health and Retirement Study for persons with linked Medicare claims from 2000 to 2008 (N = 10,450 persons). Multinomial logistic regression identified sociodemographic factors associated with disagreement. Results: Survey‐based cognitive tests and claims‐based dementia diagnosis yielded equal prevalence estimates, yet only half were identified by both measures. Race and education were associated with disagreement. Eighty‐five percent of respondents with incident dementia measured by cognitive decline received a diagnosis or died within the study period, with lower odds among blacks and Hispanics than among whites. Discussions: Claims data are valuable for tracking dementia in the US population and improve over time. Delayed diagnosis may underestimate rates within black and Hispanic populations.
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Underdiagnosis is higher in Black and Hispanic older adults.
“Some studies indicate that underdiagnosis is higher in Black and Hispanic older adults.”
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Population-Based Norms for the Mini-Mental State Examination by Age and Educational Level
Crum, R. M. (1993) · JAMA · doi:10.1001/jama.1993.03500180078038 · Cited by 2,906 · see citing works
Crimmins, E. M., Kim, J. K., Langa, K. M., & Weir, D. R. (2011) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbr048 · Cited by 1,062 · see citing works
Self-citationClinical epidemiology of Alzheimer’s disease: assessing sex and gender differences
Mielke, M., Vemuri, P., & Rocca, W. (2014) · Clinical Epidemiology · doi:10.2147/clep.s37929 · Cited by 1,021 · see citing works
Missed and Delayed Diagnosis of Dementia in Primary Care: Prevalence and Contributing Factors
Bradford, A., Kunik, M. E., Schulz, P., Williams, S. P., & Singh, H. (2009) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e3181a6bebc · Cited by 969 · see citing works
A Comparison of the Prevalence of Dementia in the United States in 2000 and 2012
Langa, K. M., Larson, E. B., Crimmins, E. M., Faul, J. D., Levine, D. A., Kabeto, M. U., & Weir, D. R. (2017) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2016.6807 · Cited by 910 · see citing works
Self-citationCognitive Reserve and Alzheimer Disease
Stern, Y. (2006) · Alzheimer Disease & Associated Disorders · doi:10.1097/01.wad.0000213815.20177.19 · Cited by 838 · see citing works
Incidence of AD in African-Americans, Caribbean Hispanics, and Caucasians in northern Manhattan
Tang, M. ‐., Cross, P. S., Andrews, H., Jacobs, D. M., Small, S. A., Bell, K., Merchant, C., Lantigua, R., Costa, R., Stern, Y., et al. (2001) · Neurology · doi:10.1212/wnl.56.1.49 · Cited by 721 · see citing works
Gender differences in the incidence of AD and vascular dementia: The EURODEM Studies
Andersen, K., Launer, L. J., Dewey, M. E., Letenneur, L., Ott, A., Copeland, J. R. M., Dartigues, J.-F., Kragh–Sorensen, P., Baldereschi, M., Brayne, C., et al. (1999) · Neurology · doi:10.1212/wnl.53.9.1992 · Cited by 650 · see citing works
Rate of memory decline in AD is related to education and occupation: Cognitive reserve?
Stern, Y., Albert, S., Tang, M.-X., & Tsai, W.-Y. (1999) · Neurology · doi:10.1212/wnl.53.9.1942 · Cited by 557 · see citing works
Amjad, H., Roth, D. L., Sheehan, O. C., Lyketsos, C. G., Wolff, J. L., & Samus, Q. M. (2018) · Journal of General Internal Medicine · doi:10.1007/s11606-018-4377-y · Cited by 506 · see citing works
The Detection of Dementia in the Primary Care Setting
Valcour, V., Masaki, K., Curb, J. D., & Blanchette, P. L. (2000) · Archives of Internal Medicine · doi:10.1001/archinte.160.19.2964 · Cited by 498 · see citing works
Incidence of dementia: does gender make a difference?
Ruitenberg, A., Ott, A., van Swieten, J. C., Hofman, A., & Breteler, M. M. B. (2001) · Neurobiology of Aging · doi:10.1016/s0197-4580(01)00231-7 · Cited by 467 · see citing works
Incidence and Prevalence of Dementia in the Cardiovascular Health Study
Fitzpatrick, A. L., Kuller, L. H., Ives, D. G., Lopez, O. L., Jagust, W., Breitner, J. C. S., Jones, B., Lyketsos, C., & Dulberg, C. (2004) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2004.52058.x · Cited by 438 · see citing works
Documentation of Cognitive Functioning Measures in the Health and Retirement Study
Ofstedal, M. B., & Fisher, G. G. (2005) · doi:10.7826/isr-um.06.585031.001.05.0010.2005 · Cited by 424 · see citing works
The National Institute on Aging Health Disparities Research Framework
Hill, C. V., Pérez‐Stable, E. J., Norman A. Anderson, P., & Bernard, M. (2015) · Ethnicity & Disease · doi:10.18865/ed.25.3.245 · Cited by 389 · see citing works
Katz, M. J., Lipton, R. B., Hall, C. B., Zimmerman, M. E., Sanders, A. E., Verghese, J., Dickson, D. W., & Derby, C. A. (2011) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e31823dbcfc · Cited by 370 · see citing works
The Accuracy of Medicare Claims as an Epidemiological Tool: The Case of Dementia Revisited
Taylor, Jr., Østbye, T., Langa, K. M., Weir, D., & Plassman, B. L. (2009) · Journal of Alzheimer's Disease · doi:10.3233/jad-2009-1099 · Cited by 354 · see citing works
Physician Recognition of Cognitive Impairment: Evaluating the Need for Improvement
Chodosh, J., Petitti, D. B., Elliott, M. N., Hays, R. D., Crooks, V. C., Reuben, D. B., Buckwalter, J. G., & Wenger, N. S. (2004) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2004.52301.x · Cited by 350 · see citing works
Knopman, D. S., Roberts, R. O., Geda, Y. E., Pankratz, V. S., Christianson, T. J. H., Petersen, R. C., & Rocca, W. A. (2009) · Neuroepidemiology · doi:10.1159/000255464 · Cited by 323 · see citing works
Improving dementia care: The role of screening and detection of cognitive impairment
Soo Borson, B., Frank, L. B., Bayley, P. J., Boustani, M. A., Dean, M., Lin, P., McCarten, J. R., Morris, J. C., Salmon, D. P., Schmitt, F. A., et al. (2013) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2012.08.008 · Cited by 287 · see citing works
Identifying dementia cases with routinely collected health data: a systematic review
Wilkinson, T., Ly, A., Schnier, C., Rannikmäe, K., Bush, K., Brayne, C., Quinn, T. J., Sudlow, C. L. M., & On behalf of the UK Biobank Neurodegenerative Outcomes Group and Dementias Platform UK (2018) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2018.02.016 · Cited by 279 · see citing works
The Value of Delaying Alzheimer’s Disease Onset
Zissimopoulos, J., Crimmins, E., & St.Clair, P. (2015) · Forum for Health Economics and Policy · doi:10.1515/fhep-2014-0013 · Cited by 267 · see citing works
Self-citationThe accuracy of medicare claims data in identifying Alzheimer's disease
Taylor, D. H., Fillenbaum, G. G., & Ezell, M. E. (2002) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(02)00452-3 · Cited by 256 · see citing works
Early identification and treatment of Alzheimer's disease: Social and fiscal outcomes
Weimer, D. L., & Sager, M. A. (2009) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2009.01.028 · Cited by 254 · see citing works
Incidence of dementia and cognitive impairment, not dementia in the united states
Plassman, B. L., Langa, K. M., McCammon, R. J., Fisher, G. G., Potter, G. G., Burke, J. R., Steffens, D. C., Foster, N. L., Giordani, B., Unverzagt, F. W., et al. (2011) · Annals of Neurology · doi:10.1002/ana.22362 · Cited by 250 · see citing works
Barnett, J. H., Lewis, L. M., Blackwell, A. D., & Taylor, M. (2014) · BMC Neurology · doi:10.1186/1471-2377-14-101 · Cited by 249 · see citing works
Cognitive Reserve and Alzheimer’s Disease
Xu, W., Yu, J., Tan, M., & Tan, L. (2014) · Molecular Neurobiology · doi:10.1007/s12035-014-8720-y · Cited by 240 · see citing works
Gender differences in dementia risk factors
Azad, N. A., Bugami, M. A., & Loy-English, I. (2007) · Gender Medicine · doi:10.1016/s1550-8579(07)80026-x · Cited by 206 · see citing works
Carpenter, B. D., Xiong, C., Porensky, E. K., Lee, M. M., Brown, P. J., Coats, M. A., Johnson, D. K., & Morris, J. C. (2008) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2007.01600.x · Cited by 194 · see citing works
An Economic History of Medicare Part C
McGuire, T. G., Newhouse, J. P., & Sinaiko, A. D. (2011) · Milbank Quarterly · doi:10.1111/j.1468-0009.2011.00629.x · Cited by 167 · see citing works
Change in risk of Alzheimer disease over time
Hebert, L. E., Bienias, J. L., Aggarwal, N. T., Wilson, R. S., Bennett, D. A., Shah, R. C., & Evans, D. A. (2010) · Neurology · doi:10.1212/wnl.0b013e3181f0754f · Cited by 158 · see citing works
Zissimopoulos, J., Tysinger, B., Clair, P. A. S., & Crimmins, E. M. (2017) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbx147 · Cited by 144 · see citing works
Self-citationSavva, G. M., & Arthur, A. J. (2015) · Age and Ageing · doi:10.1093/ageing/afv020 · Cited by 138 · see citing works
Spering, C. C., Hobson, V. L., Lucas, J. A., Menon, C. V., Hall, J. R., & O’Bryant, S. E. (2012) · The Journals of Gerontology Series A · doi:10.1093/gerona/gls006 · Cited by 109 · see citing works
Evaluation of Medicare Claims Data as a Tool to Identify Dementia
Lee, E., Gatz, M., Tseng, C.-C., Schneider, L. S., Pawluczyk, S., Wu, A. H., & Deapen, D. (2019) · Journal of Alzheimer s Disease · doi:10.3233/jad-181005 · Cited by 104 · see citing works
Livney, M., Clark, C. M., Karlawish, J. H., Cartmell, S. P., Negrón, M., Nuñez, J., Xie, S. X., Entenza-Cabrera, F., Vega, I. E., & Arnold, S. E. (2010) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3181f7d881 · Cited by 97 · see citing works
Long, K. H., Moriarty, J. P., Mittelman, M. S., & Foldes, S. S. (2014) · Health Affairs · doi:10.1377/hlthaff.2013.1257 · Cited by 85 · see citing works
Improving access to dementia services for people from minority ethnic groups
Mukadam, N., Cooper, C., & Livingston, G. (2013) · Current Opinion in Psychiatry · doi:10.1097/yco.0b013e32835ee668 · Cited by 77 · see citing works
Dementia Undiagnosed in Poor Older Adults with Functional Impairment
Wilkins, C. H., Wilkins, K. L., Meisel, M., Depke, M., Williams, J. H., & Edwards, D. F. (2007) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2007.01417.x · Cited by 75 · see citing works
Kotwal, A., Schumm, L. P., Kern, D. W., McClintock, M. K., Waite, L. J., Shega, J. W., Huisingh-Scheetz, M. J., & Dale, W. (2014) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0000000000000068 · Cited by 71 · see citing works
Østbye, T., Taylor, D. H., Clipp, E. C., Scoyoc, L. V., & Plassman, B. L. (2007) · Health Services Research · doi:10.1111/j.1475-6773.2007.00748.x · Cited by 64 · see citing works
Freedman, V. A., Kasper, J. D., Spillman, B. C., & Plassman (2018) · The Journals of Gerontology: Series B · doi:10.1093/geronb/gbx144 · Cited by 60 · see citing works
Pressley, J. C., Trott, C. T., Tang, M. X., Durkin, M. S., & Stern, Y. (2003) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(03)00133-1 · Cited by 55 · see citing works
Passive case‐finding for Alzheimer's disease and dementia in two U.S. communities
Knopman, D. S., Petersen, R. C., Rocca, W. A., Larson, E. B., & Ganguli, M. (2011) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2010.11.001 · Cited by 51 · see citing works
Sala, E., Knies, G., & Burton, J. (2014) · International Journal of Social Research Methodology · doi:10.1080/13645579.2014.899101 · Cited by 47 · see citing works
Using Self-reports or Claims to Assess Disease Prevalence
Clair, P. S., Gaudette, É., Zhao, H., Tysinger, B., Seyedin, R., & Goldman, D. P. (2017) · Medical Care · doi:10.1097/mlr.0000000000000753 · Cited by 46 · see citing works
Self-citationIdentifying diabetics in Medicare claims and survey data: implications for health services research
Sakshaug, J. W., Weir, D. R., & Nicholas, L. H. (2014) · BMC Health Services Research · doi:10.1186/1472-6963-14-150 · Cited by 31 · see citing works
HRS Imputation of Cognitive Functioning Measures: 1992 - 2008
Fisher, G. G., Hassan, H., & Rogers, W. (2011) · doi:10.7826/isr-um.06.585031.001.05.0026.2011 · Cited by 14 · see citing works
Flagged first, then by citations
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2024 Alzheimer's disease facts and figures
(2024) · Alzheimer's & Dementia · doi:10.1002/alz.13809 · Cited by 2,536 · see citing works
2025 Alzheimer's disease facts and figures
(2025) · Alzheimer s & Dementia · doi:10.1002/alz.70235 · Cited by 569 · see citing works
Impact of dementia: Health disparities, population trends, care interventions, and economic costs
Aranda, M., Kremer, I. N., Hinton, L., Zissimopoulos, J., Whitmer, R. A., Hummel, C. H., Trejo, L., & Fabius, C. D. (2021) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17345 · Cited by 400 · see citing works
Self-citationDementia Diagnosis Disparities by Race and Ethnicity
Lin, P.-J., Daly, A. T., Olchanski, N., Cohen, J. T., Neumann, P. J., Faul, J. D., Fillit, H. M., & Freund, K. M. (2021) · Medical Care · doi:10.1097/mlr.0000000000001577 · Cited by 239 · see citing works
Validation of Claims Algorithms to Identify Alzheimer’s Disease and Related Dementias
McCarthy, E. P., Chang, C., Tilton, N., Kabeto, M. U., Langa, K. M., & Bynum, J. (2021) · The Journals of Gerontology Series A · doi:10.1093/gerona/glab373 · Cited by 150 · see citing works
Grodstein, F., Chang, C.-H., Capuano, A. W., Power, M. C., Marquez, D. X., Barnes, L. L., Bennett, D. A., James, B. D., & Bynum, J. P. W. (2022) · The Journals of Gerontology: Series A · doi:10.1093/gerona/glab377 · Cited by 132 · see citing works
Can Hearing Aids Delay Time to Diagnosis of Dementia, Depression, or Falls in Older Adults?
Mahmoudi, E., Basu, T., Langa, K. M., McKee, M. M., Zazove, P., Alexander, N. B., & Kamdar, N. S. (2019) · Journal of the American Geriatrics Society · doi:10.1111/jgs.16109 · Cited by 123 · see citing works
Identifying Medicare beneficiaries with dementia
Moura, L. M. V. R., Festa, N., Price, M., Volya, M., Benson, N. M., Zafar, S. F., Weiss, M., Blacker, D., Normand, S. T., Newhouse, J. P., et al. (2021) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17183 · Cited by 99 · see citing works
Mapping racial and ethnic healthcare disparities for persons living with dementia: A scoping review
Hinton, L., Tran, D., Peak, K., Meyer, O. L., & Quiñones, A. R. (2024) · Alzheimer s & Dementia · doi:10.1002/alz.13612 · Cited by 95 · see citing works
Dhana, K., Beck, T., Desai, P., Wilson, R. S., Evans, D. A., & Rajan, K. B. (2023) · Alzheimer's & Dementia · doi:10.1002/alz.13081 · Cited by 90 · see citing works
Pharmaceutical Treatment for Alzheimer’s Disease and Related Dementias: Utilization and Disparities
Barthold, D., Joyce, G., Ferido, P., Drabo, E. F., Marcum, Z. A., Gray, S. L., & Zissimopoulos, J. (2020) · Journal of Alzheimer s Disease · doi:10.3233/jad-200133 · Cited by 85 · see citing works
Self-citationSuicide risk in first year after dementia diagnosis in older adults
Schmutte, T. J., Olfson, M., Maust, D. T., Xie, M., & Marcus, S. C. (2021) · Alzheimer s & Dementia · doi:10.1002/alz.12390 · Cited by 81 · see citing works
Jacobson, M., Thunell, J. A., & Zissimopoulos, J. (2020) · Health Affairs · doi:10.1377/hlthaff.2019.01795 · Cited by 77 · see citing works
Self-citationSex, Race, and Age Differences in Prevalence of Dementia in Medicare Claims and Survey Data
Zhu, Y., Chen, Y., Crimmins, E. M., & Zissimopoulos, J. (2020) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbaa083 · Cited by 72 · see citing works
Self-citationLin, P.-J., Zhu, Y., Olchanski, N., Cohen, J. T., Neumann, P. J., Faul, J. D., Fillit, H. M., & Freund, K. M. (2022) · JAMA Network Open · doi:10.1001/jamanetworkopen.2022.16260 · Cited by 71 · see citing works
Chen, Z., Ho, M. M., & Chau, P. H. (2022) · Journal of Cachexia Sarcopenia and Muscle · doi:10.1002/jcsm.12933 · Cited by 68 · see citing works
Lim, U., Wang, S., Park, S., Bogumil, D. D., Wu, A. H., Cheng, I. C., Haiman, C. A., Marchand, L. L., Wilkens, L. R., White, L. R., et al. (2021) · Alzheimer s & Dementia · doi:10.1002/alz.12528 · Cited by 63 · see citing works
Gillis, C., Montenigro, P. H., Nejati, M., & Maserejian, N. N. (2022) · Alzheimer s & Dementia · doi:10.1002/alz.12822 · Cited by 50 · see citing works
Charpignon, M., Vakulenko‐Lagun, B., Zheng, B., Magdamo, C., Su, B., Evans, K. E., Rodriguez, S., Sokolov, A., Boswell, S. A., Sheu, Y.-H., et al. (2022) · Nature Communications · doi:10.1038/s41467-022-35157-w · Cited by 47 · see citing works
Racial and Ethnic Differences in Knowledge About One's Dementia Status
Lin, P., Emerson, J. G., Faul, J. D., Cohen, J. T., Neumann, P. J., Fillit, H. M., Daly, A. T., Margaretos, N. M., & Freund, K. M. (2020) · Journal of the American Geriatrics Society · doi:10.1111/jgs.16442 · Cited by 45 · see citing works
White, L. L. Y., Ingraham, B. C., Larson, E. B., Fishman, P. A., Park, S., & Coe, N. B. (2021) · Journal of General Internal Medicine · doi:10.1007/s11606-021-07169-7 · Cited by 50 · see citing works
Time to dementia diagnosis by race: A retrospective cohort study
Davis, M. A., Lee, K. A., Harris, M., Ha, J., Langa, K. M., Bynum, J., & Hoffman, G. J. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18078 · Cited by 40 · see citing works
2026 Alzheimer's disease facts and figures
(2026) · Alzheimer s & Dementia · doi:10.1002/alz.71345 · Cited by 61 · see citing works
Yang, J. J., Keohane, L. M., Pan, X.-F., Qu, R., Shu, X.-O., Lipworth, L., Braun, K., Steinwandel, M. D., Dai, Q., Shrubsole, M., et al. (2022) · Neurology · doi:10.1212/wnl.0000000000200774 · Cited by 39 · see citing works
Cognitive measures lacking in EHR prior to dementia or Alzheimer's disease diagnosis
Maserejian, N. N., Krzywy, H., Eaton, S., & Galvin, J. E. (2021) · Alzheimer s & Dementia · doi:10.1002/alz.12280 · Cited by 37 · see citing works
Correlates of missed or late versus timely diagnosis of dementia in healthcare settings
Chen, Y., Power, M. C., Grodstein, F., Capuano, A. W., Lange‐Maia, B. S., Moghtaderi, A., Stapp, E. K., Bhattacharyya, J., Shah, R. C., Barnes, L. L., et al. (2024) · Alzheimer s & Dementia · doi:10.1002/alz.14067 · Cited by 36 · see citing works
Self-citationMedicare spending associated with a dementia diagnosis among older adults
Hoffman, G. J., Maust, D. T., Harris, M., Ha, J., & Davis, M. A. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17835 · Cited by 35 · see citing works
Rawat, P., Sehar, U., Bisht, J., Reddy, A., & Reddy, P. H. (2023) · Ageing Research Reviews · doi:10.1016/j.arr.2023.102178 · Cited by 29 · see citing works
Park, S.-Y., Setiawan, V. W., Crimmins, E. M., White, L. R., Wu, A. H., Cheng, I., Darst, B. F., Haiman, C. A., Wilkens, L. R., Le Marchand, L., et al. (2024) · Neurology · doi:10.1212/wnl.0000000000208116 · Cited by 33 · see citing works
Self-citationChen, Y., Crimmins, E. M., Ferido, P., & Zissimopoulos, J. (2022) · The Lancet Regional Health - Americas · doi:10.1016/j.lana.2021.100179 · Cited by 32 · see citing works
Self-citationMedicare's Annual Wellness Visit and diagnoses of dementias and cognitive impairment
Thunell, J. A., Jacobson, M., Joe, E., & Zissimopoulos, J. (2022) · Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · doi:10.1002/dad2.12357 · Cited by 32 · see citing works
Self-citationMcGrath, R., Robinson‐Lane, S. G., Clark, B. C., Suhr, J. A., Giordani, B., & Vincent, B. M. (2021) · Journal of Alzheimer s Disease · doi:10.3233/jad-201212 · Cited by 31 · see citing works
Patients living with dementia have worse outcomes when undergoing high‐risk procedures
Shah, S. K., Adler, R., Xiang, L., Clark, C. J., Cooper, Z. R., Finlayson, E. V. A., Kim, D. H., Lin, K. J., Lipsitz, S. R., & Weissman, J. S. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17893 · Cited by 31 · see citing works
Zacher, M. L., Brady, S., & Short, S. E. (2023) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbad045 · Cited by 30 · see citing works
Out‐of‐pocket costs attributable to dementia: A longitudinal analysis
Oney, M., White, L., & Coe, N. B. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17746 · Cited by 29 · see citing works
Diagnosed prevalence of Alzheimer's disease and related dementias in Medicare Advantage plans
Jutkowitz, E., Bynum, J., Mitchell, S. L., Cocoros, N. M., Shapira, O., Haynes, K., Nair, V. P., McMahill‐Walraven, C. N., Platt, R. G., & McCarthy, E. P. (2020) · Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · doi:10.1002/dad2.12048 · Cited by 29 · see citing works
Trends in US Medicare Decedents’ Diagnosis of Dementia From 2004 to 2017
Davis, M. A., Chang, C.-H., Simonton, S., & Bynum, J. P. W. (2022) · JAMA Health Forum · doi:10.1001/jamahealthforum.2022.0346 · Cited by 28 · see citing works
Noori, A., Magdamo, C., Liu, X., Tyagi, T., Li, Z., Kondepudi, A., Alabsi, H. S., Rudmann, E. A., Wilcox, D. R., Brenner, L. N., et al. (2022) · Journal of Medical Internet Research · doi:10.2196/40384 · Cited by 26 · see citing works
Associations between dementia diagnosis and end‐of‐life care utilization
Luth, E. A., Manful, A., Prigerson, H. G., Xiang, L., Reich, A. J., Semco, R. S., & Weissman, J. S. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17952 · Cited by 27 · see citing works
Using Medicare claims in identifying Alzheimer's disease and related dementias
Jain, S., Rosenbaum, P. R., Reiter, J. G., Hoffman, G. J., Small, D. S., Ha, J., Hill, A. S., Wolk, D. A., Gaulton, T. G., Neuman, M. D., et al. (2020) · Alzheimer s & Dementia · doi:10.1002/alz.12199 · Cited by 26 · see citing works
Grossman, H. T., Sano, M. C., Aloysi, A. S., Elder, G. A., Neugroschl, J. A., Schimming, C., Soleimani, L., & Zhu, C. W. (2021) · Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · doi:10.1002/dad2.12169 · Cited by 26 · see citing works
Regional variation in U.S dementia trends from 2000-2012
Ailshire, J., Walsemann, K. M., & Fisk, C. E. (2022) · SSM - Population Health · doi:10.1016/j.ssmph.2022.101164 · Cited by 25 · see citing works
Qian, Y., Chen, X., Tang, D., Kelley, A. S., & Li, J. (2021) · The Journals of Gerontology: Series A · doi:10.1093/gerona/glab043 · Cited by 23 · see citing works
Bhattacharyya, J., Barnes, L. L., Chen, Y., Gianattasio, K. Z., Grodstein, F., James, B. D., Márquez, D. X., Moghtaderi, A., Prather, C. P., Rein, D. B., et al. (2025) · Alzheimer s & Dementia · doi:10.1002/alz.70200 · Cited by 23 · see citing works
Self-citationImplications of the Use of Algorithmic Diagnoses or Medicare Claims to Ascertain Dementia
Power, M. C., Gianattasio, K. Z., & Ciarleglio, A. (2020) · Neuroepidemiology · doi:10.1159/000510753 · Cited by 24 · see citing works
Benzodiazepine use and the risk of dementia
Joyce, G., Ferido, P., Thunell, J. A., Tysinger, B., & Zissimopoulos, J. (2022) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.12309 · Cited by 23 · see citing works
Self-citationBynum, J., Benloucif, S., Martindale, J., O’Malley, A. J., & Davis, M. A. (2024) · Alzheimer s & Dementia · doi:10.1002/alz.14092 · Cited by 23 · see citing works
Blass, B., Ford, C. B., Soneji, S. S., Zepel, L., Rosa, T. D., Kaufman, B. G., Mantri, S., Fan, L., Grory, B. M., Xian, Y., et al. (2025) · BMJ · doi:10.1136/bmj-2024-083034 · Cited by 24 · see citing works
Jacobson, M., Ferido, P., & Zissimopoulos, J. (2023) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18570 · Cited by 21 · see citing works
Self-citationBeydoun, M. A., Weiss, J., Beydoun, H. A., Kuczmarski, M. F., Hossain, S. A., El‐Hajj, Z. W., Evans, M. K., & Zonderman, A. B. (2022) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.12275 · Cited by 19 · see citing works
Doblhammer, G., Fritze, T., Reinke, C., & Fink, A. (2022) · Journal of Population Ageing · doi:10.1007/s12062-022-09365-7 · Cited by 18 · see citing works
Yan, D., Wang, S., Temkin‐Greener, H., & Cai, S. (2021) · Journal of Applied Gerontology · doi:10.1177/07334648211048187 · Cited by 17 · see citing works
How good are medical and death records for identifying dementia?
Schliep, K. C., Ju, S., Foster, N. L., Smith, K. R., Varner, M. W., Østbye, T., & Tschanz, J. T. (2021) · Alzheimer s & Dementia · doi:10.1002/alz.12526 · Cited by 17 · see citing works
Life-Sustaining Treatments Among Medicare Beneficiaries with and without Dementia at the End of Life
Zhu, Y., Olchanski, N., Cohen, J. T., Freund, K. M., Faul, J. D., Fillit, H. M., Neumann, P. J., & Lin, P.-J. (2023) · Journal of Alzheimer’s Disease · doi:10.3233/jad-230692 · Cited by 16 · see citing works
Dinesh, D., Shao, Q., Palnati, M., McDannold, S. E., Zhang, Q., Monfared, A. A. T., Jasuja, G. K., Davila, H. W., Xia, W., Moo, L. R., et al. (2023) · Alzheimer s & Dementia · doi:10.1002/alz.13071 · Cited by 16 · see citing works
Zhu, C. W., Schneider, L. S., Elder, G. A., Soleimani, L., Grossman, H., Aloysi, A., Schimming, C., & Sano, M. (2024) · The American journal of geriatric psychiatry · doi:10.1016/j.jagp.2024.06.005 · Cited by 15 · see citing works
Rakuša, E., Fink, A., Tamgüney, G., Heneka, M. T., & Doblhammer, G. (2023) · Journal of Alzheimer s Disease · doi:10.3233/jad-221153 · Cited by 15 · see citing works
Keohane, L. M., Nikpay, S., Braun, K., Cheng, A. K., Stevenson, D. G., Buntin, M. B., Yu, D., Blot, W. J., & Lipworth, L. P. (2022) · Journal of Applied Gerontology · doi:10.1177/07334648221142851 · Cited by 14 · see citing works
Potentially Inappropriate Medication Use in Community-Dwelling Older Adults Living with Dementia
Bae‐Shaaw, Y. H., Shier, V., Sood, N., Seabury, S. A., & Joyce, G. (2023) · Journal of Alzheimer s Disease · doi:10.3233/jad-221168 · Cited by 13 · see citing works
The importance of education for understanding variability of dementia onset in the United States
Cha, H., Farina, M. P., Chiu, C., & Hayward, M. D. (2024) · Demographic Research · doi:10.4054/demres.2024.50.26 · Cited by 13 · see citing works
Luth, E. A., Pan, C. X., Viola, M., & Prigerson, H. G. (2021) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909121989020 · Cited by 12 · see citing works
Kreft, D., & Doblhammer, G. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-215030 · Cited by 12 · see citing works
Grodstein, F., James, B. D., Chen, Y., Capuano, A. W., Power, M. C., Bennett, D. A., Bynum, J. P. W., & Barnes, L. L. (2024) · The Journals of Gerontology: Series A · doi:10.1093/gerona/glad235 · Cited by 11 · see citing works
Self-citationPark, S., Setiawan, V. W., Crimmins, E. M., White, L. R., Haiman, C. A., Wilkens, L. R., Marchand, L. L., & Lim, U. (2025) · American Journal of Clinical Nutrition · doi:10.1016/j.ajcnut.2025.07.020 · Cited by 11 · see citing works
Self-citationGotanda, H., Zhang, J. J., Reuben, D. B., Walling, A. M., Xu, H., Jena, A. B., Gross, N., & Tsugawa, Y. (2023) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18510 · Cited by 11 · see citing works
Dementia severity at incident diagnosis in a population representative sample of older Americans
Xu, S., Nashta, N. F., Chen, Y., & Zissimopoulos, J. (2024) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.12491 · Cited by 11 · see citing works
Self-citationHua, C. L., Thomas, K. S., Bunker, J., Gozalo, P. L., Bélanger, E., Mitchell, S. L., & Teno, J. M. (2021) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17564 · Cited by 11 · see citing works
Olchanski, N., Zhu, Y., Liang, L., Cohen, J. T., Faul, J. D., Fillit, H. M., Freund, K. M., & Lin, P. (2024) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18822 · Cited by 10 · see citing works
Estimating prevalence of early symptomatic Alzheimer's disease in the United States
Spargo, D., Zur, R., Lin, P., Synnott, P., Klein, E., & Hartry, A. (2023) · Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring · doi:10.1002/dad2.12497 · Cited by 9 · see citing works
Bélanger, E., Rosendaal, N. T. A., Gutman, R., Lake, D. T., Santostefano, C. M., Meyers, D. J., & Gozalo, P. L. (2023) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18487 · Cited by 9 · see citing works
Coe, N. B., Miller, K. E. M., Sun, C., Taggert, E., Gross, A. L., Jones, R. N., Felix, C., Albert, M., Rebok, G. W., Marsiske, M., et al. (2026) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.70197 · Cited by 9 · see citing works
Barriers to seeking care for memory problems: A vignette study
Jacobson, M., Joe, E., & Zissimopoulos, J. (2022) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.12238 · Cited by 9 · see citing works
Self-citationA multinational cohort study of trends in survival following dementia diagnosis
Luo, H., Koponen, M., Roethlein, C., Becker, C., Bell, J. S., Beyene, K. A., Chai, Y., Chan, A. H. Y., Chui, C. S. L., Haenisch, B., et al. (2025) · Communications Medicine · doi:10.1038/s43856-025-00923-6 · Cited by 9 · see citing works
Beam, C. R., Luczak, S. E., Panizzon, M. S., Reynolds, C. A., Christensen, K., Aslan, A. K. D., Elman, J. A., Franz, C. E., Kremen, W. S., Lee, T., et al. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-220472 · Cited by 8 · see citing works
Deardorff, W. J., Diaz‐Ramirez, L. G., Boscardin, W. J., Smith, A. K., & Lee, S. J. (2023) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18704 · Cited by 8 · see citing works
Cognitive activity at work and the risk of dementia
Martin‐Bassols, N., de New, S. C., Johnston, D. W., & Shields, M. A. (2023) · Health Economics · doi:10.1002/hec.4679 · Cited by 7 · see citing works
Chyr, L., Wolff, J. L., Zissimopoulos, J., & Drabo, E. F. (2024) · Alzheimer s & Dementia · doi:10.1002/alz.13758 · Cited by 7 · see citing works
Self-citationCharpignon, M., Vakulenko‐Lagun, B., Zheng, B., Magdamo, C., Su, B., Evans, K. E., Rodriguez, S., Sokolov, A., Boswell, S. A., Sheu, Y.-H., et al. (2021) · medRxiv · doi:10.1101/2021.08.10.21261747 · Cited by 7 · see citing works
Haye, S., Jacobson, M., Joyce, G., & Zissimopoulos, J. (2025) · Health Affairs · doi:10.1377/hlthaff.2024.00723 · Cited by 6 · see citing works
Self-citationUsing dynamic microsimulation to project cognitive function in the elderly population
Wei, Y., Heun‐Johnson, H., & Tysinger, B. (2022) · PLoS ONE · doi:10.1371/journal.pone.0274417 · Cited by 6 · see citing works
Self-citationZhu, C. W., Gu, Y., Cosentino, S., Kociolek, A. J., Hernandez, M., & Stern, Y. (2023) · Journal of Alzheimer s Disease · doi:10.3233/jad-230584 · Cited by 6 · see citing works
Rebok, G. W., Gellert, A. R., Coe, N. B., Clay, O. J., Wallace, G., Parisi, J. M., Aiken‐Morgan, A. T., Crowe, M. G., Ball, K., Thorpe, R. J., et al. (2023) · Journal of Aging and Health · doi:10.1177/08982643231203755 · Cited by 6 · see citing works
Arellanes, I., Mirsafian, L., Wang, Y., & Jacobson, M. (2024) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18958 · Cited by 6 · see citing works
Cognitive impairment among medicare home health patients: comparing available measures
Burgdorf, J. G., & Amjad, H. (2021) · Home Health Care Services Quarterly · doi:10.1080/01621424.2021.2009392 · Cited by 6 · see citing works
Gallini, A., Jegou, D., Lapeyre‐Mestre, M., Couret, A., Bourrel, R., Ousset, P., Fabre, D., Andrieu, S., & Gardette, V. (2021) · Current Alzheimer Research · doi:10.2174/1567205018666210416094639 · Cited by 6 · see citing works
Thunell, J. A., Ferido, P., & Zissimopoulos, J. (2023) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18230 · Cited by 6 · see citing works
Self-citationKarway, G. K., Krzyzanowski, B., Killion, J. A., Faust, I. M., Laurido-Soto, O., Sabbagh, M. N., & Racette, B. A. (2025) · Alzheimer s & Dementia · doi:10.1002/alz.70199 · Cited by 5 · see citing works
Sheets, K. M., Fink, H. A., Langsetmo, L., Kats, A. M., Schousboe, J. T., Yaffe, K. S., & Ensrud, K. E. (2025) · The Journals of Gerontology Series A · doi:10.1093/gerona/glaf030 · Cited by 4 · see citing works
Hua, C. L., Thomas, K. S., Bunker, J., Gozalo, P. L., & Teno, J. M. (2021) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17201 · Cited by 4 · see citing works
Trends in antipsychotic prescribing among community-dwelling older adults with dementia, 2010-2018
Yang, A. W., Leng, M., Arbanas, J. C., Tseng, C., Fendrick, A. M., Sarkisian, C. A., Damberg, C. L., Harawa, N. T., & Mafi, J. N. (2025) · Health Affairs Scholar · doi:10.1093/haschl/qxaf021 · Cited by 3 · see citing works
The financial consequences of undiagnosed memory disorders
Gresenz, C. R., Mitchell, J. M., Rodriguez, B., Wang, C., Turner, R. S., & van der Klaauw, W. (2025) · Journal of Financial Economics · doi:10.1016/j.jfineco.2025.104149 · Cited by 7 · see citing works
Characterizing financial risk from out‐of‐pocket expenditures across dementia stages
Synnott, P. G., Zhu, Y., Rodday, A. M., & Lin, P. (2025) · Alzheimer s & Dementia · doi:10.1002/alz.70666 · Cited by 3 · see citing works
Chen, Y., Chen, A., Power, M. C., Grodstein, F., Kapasi, A., Capuano, A. W., Lange‐Maia, B. S., Moghtaderi, A., Stapp, E. K., Bhattacharyya, J., et al. (2026) · Neurology · doi:10.1212/wnl.0000000000218352 · Cited by 3 · see citing works
Self-citationFaktor yang Berhubungan dengan Kejadian Demensia : Literature Review
Adwinda, R. N., & Syahrul, F. (2023) · Media Publikasi Promosi Kesehatan Indonesia (MPPKI) · doi:10.56338/mppki.v6i1.2856 · Cited by 3 · see citing works
Knox, S., Aghamoosa, S., Heider, P. M., Cutty, M. E., Wright, A., Scherbakov, D., Hood, G., Nolin, S. A., & Obeid, J. S. (2025) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.70089 · Cited by 4 · see citing works
Regional differences in the incidence of Alzheimer’s disease and related dementias in South Carolina
Amoatika, D. A., Miller, M. C., Adams, R. J., & Milano, N. J. (2025) · Frontiers in Neurology · doi:10.3389/fneur.2025.1584127 · Cited by 3 · see citing works
Effects of Medicare predictors in health disparities in the risk of Alzheimer's disease
Akushevich, I. V., Yashkin, A. P., & Kravchenko, J. S. (2025) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.70078 · Cited by 2 · see citing works
Zhang, J. J., Reuben, D. B., Walling, A. M., Zingmond, D. S., Damberg, C. L., Wenger, N. S., Xu, H., Ikesu, R., Kaneshiro, G. S., Klomhaus, A. M., et al. (2025) · JAMA Health Forum · doi:10.1001/jamahealthforum.2025.0731 · Cited by 2 · see citing works
Faul, J. D., Collins, S. D., Smith, T., Klopack, E. T., Mitchell, C. M., Crimmins, E. M., & Farina, M. P. (2026) · Clinical Epigenetics · doi:10.1186/s13148-026-02142-9 · Cited by 2 · see citing works
Self-citationThe cost of dementia in the United States in 2026
Thunell, J. A., Tysinger, B., Baumgart, M., Carrillo, M., Crimmins, E. M., Goldman, D. P., Heun‐Johnson, H., Jacobson, M., Joyce, G., Leaf, D. E., et al. (2026) · Alzheimer s & Dementia · doi:10.1002/alz.71480 · Cited by 2 · see citing works
Self-citation
- Authors
- Chen, Y., Tysinger, B., Crimmins, E., & Zissimopoulos, J. M.
- Affiliations
- University of Southern California (US)
- Corresponding author
- Zissimopoulos, Julie M.
- Venue
- Alzheimer's & Dementia: Translational Research & Clinical Interventions
- Publisher
- Wiley
- Published
- 2019-01
- Volume
- 5
- Issue
- 1
- Pages
- 197-207
- ISSN
- 2352-8737 (ISSN-L)
- PMC
- PMC6556828
- OpenAlex
- W2954918532
- Cited by
- 129
- References
- 49
- Citations by year
- 2026: 19 · 2025: 22 · 2024: 17 · 2023: 19 · 2022: 24 · 2021: 20 · 2020: 7 · 2019: 1
- FWCI
- 10.36
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Alzheimer s & Dementia Translational Research & Clinical Interventions (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- National Institutes of Health
- National Institute on Aging (1R01AG055401)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- dementia, Medicare claims data, prevalence estimates, incident dementia, cognitive assessment, Health and Retirement Study, racial disparities, Hispanic population, Black population, delayed diagnosis, sociodemographic factors
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