How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study
Open accessAbstract
BACKGROUND: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. METHODS: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. RESULTS: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. CONCLUSIONS: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.
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Digital health services present numerous opportunities for implementation in chronic urticaria management.
“This situation presents numerous opportunities for the implementation of digital health services in CU management [21, 22].”
From Acceptance and perceived usefulness of digital health services in the management of chronic urticaria: a survey of patients and physicians (2025) · cites this paper as [21]
Patients with CU are increasingly open to digital tools for disease management.
“Patients’ positive attitudes, though less pronounced than physicians’, are consistent with Cherrez-Ojeda et al., who found that patients with CU are increasingly open to digital tools for disease management [21].”
From Acceptance and perceived usefulness of digital health services in the management of chronic urticaria: a survey of patients and physicians (2025) · cites this paper as [21]
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- Authors
- Cherrez-Ojeda, I., Vanegas, E., Cherrez, A., Felix, M., Weller, K., Magerl, M., Maurer, R. R., Mata, V. L., Kasperska-Zajac, A., Sikora, A., Fomina, D., Kovalkova, E., Godse, K., Rao, N. D., Khoshkhui, M., Rastgoo, S., Criado, R. F., Abuzakouk, M., Grandon, D., Van Doorn, M. B. A., Oliveira Rodrigues Valle, S., De Souza Lima, E. M., Thomsen, S. F., Ramón, G. D., Matos Benavides, E. E., Bauer, A., Giménez-Arnau, A. M., Kocatürk, E., Guillet, C., Larco, J. I., Zhao, Z.-T., Makris, M., Ritchie, C., Xepapadaki, P., Ensina, L. F., Cherrez, S., & Maurer, M.
- Affiliations
- Universidad Espíritu Santo (EC)
- Charité – Universitätsmedizin Berlin (DE)
- Medical University of Silesia (PL)
- Sechenov University (RU)
- DY Patil Deemed to be University (IN)
- Mashhad University of Medical Sciences (IR)
- Cleveland Clinic Abu Dhabi (AE)
- University of Copenhagen (DK)
- University Hospital Carl Gustav Carus (DE)
- Koç University (TR)
- University Hospital Zurich (CH)
- National and Kapodistrian University of Athens (GR)
- Hospital Italiano de Buenos Aires (AR)
- ORCID
- Vanegas, Emanuel
- Weller, Karsten
- Magerl, Markus
- Maurer, Rasmus Robin
- Mata, Valeria L.
- Sikora, Agnieszka
- Fomina, Daria
- Kovalkova, Elena
- Godse, Kiran
- Rao, Nimmagadda Dheeraj
- Khoshkhui, Maryam
- Rastgoo, Sahar
- Abuzakouk, Mohamed
- Grandon, Deepa
- Thomsen, Simon Francis
- Bauer, Andrea
- Kocatürk, Emek
- Guillet, Carole
- Makris, Michael
- Ritchie, Carla
- Xepapadaki, Paraskevi
- Maurer, Marcus
- Venue
- World Allergy Organization Journal
- Publisher
- Elsevier BV
- Published
- 2021-06
- Volume
- 14
- Issue
- 6
- Pages
- 100542
- ISSN
- 1939-4551 (ISSN-L)
- PMC
- PMC8190491
- OpenAlex
- W3169494026
- Cited by
- 22
- References
- 35
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 3 · 2023: 4 · 2022: 4 · 2021: 2
- FWCI
- 3.65
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- World Allergy Organization Journal (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Research at the University of Copenhagen (University of Copenhagen) (publishedVersion, cc-by-nc-nd)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion, cc-by-nc-nd)
- Dipòsit Digital de Documents de la UAB (Universitat Autònoma de Barcelona) (submittedVersion, cc-by-nc-nd)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion, other-oa)
- RePub (Erasmus University Rotterdam) (submittedVersion, other-oa)
- Digital Collections portal (Koç University) (submittedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Repositori digital de la UPF (Universitat Pompeu Fabra) (submittedVersion, cc-by-nc-nd)
- Funders
- Amgen
- Eli Lilly and Company
- Pfizer
- AstraZeneca
- Sanofi
- Alnylam Pharmaceuticals
- Celgene
- CSL Behring
- Les Laboratories Pierre Fabre
- BioCryst
- LEO Pharma
- Genentech
- Cilag
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Rheumatology › Urticaria and Related Conditions
- Keywords
- chronic urticaria, information and communication technologies, patient preferences, patient engagement, online health information seeking, patient-physician communication, social media use, rural residence, educational attainment, WhatsApp, email
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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