A psychosocial self-management program for epilepsy: A randomized pilot study in adults

Pramuka, Michael; Hendrickson, Rick; Zinski, Anne; Van Cott, Anne C.

doi:10.1016/j.yebeh.2007.06.013

Cited by 67Epilepsy research and treatmentCancer survivorship and careNursing care and research

A psychosocial self-management program for epilepsy: A randomized pilot study in adults

Pramuka, Michael, Hendrickson, Rick, Zinski, Anne, Van Cott, Anne C.·2007·Epilepsy & Behavior

DOI 10.1016/j.yebeh.2007.06.013

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Abstract

Objective The goal of the work described here was to develop and pilot a theoretically based self-management intervention in adults with epilepsy.Methods A randomized, controlled trial examined intervention effectiveness of a 6-week psychosocial intervention designed to improve self-efficacy and quality of life for 61 adults with diagnosed epilepsy. Measures included the Quality of Life in Epilepsy-89 inventory (QOLIE-89), the Washington Psychosocial Seizure Inventory (WPSI), a locus of control scale (LOC), and the Epilepsy Self-Efficacy Scale-2000 (ESES). Group differences were examined between groups using analysis of covariance.Results There was a significant improvement in the QOLIE-89 Role Limitations-Emotional score in the treatment group at follow-up, but no significant differences in overall quality of life. Strong and significant correlations were observed between outcome measures.Conclusion Although the intervention had little effect on improving overall quality of life, we observed promising trends in postintervention group comparisons linking self-efficacy and other psychosocial factors with quality of life. Intervention material can be modified for stage-based behavior change and retested in another study.

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Crossref · 10.1016/j.yebeh.2007.06.013

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Of the 24 studies, 11 examined group therapy (46%).
“Of the 24 studies, 11 examined group therapy (46%), 20,29,30,33,37,38,40 -42,46,47”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]
The remaining 7 studies (29%) employed a usual care (UC)/treatment as usual (TAU) control group.
“The remaining 7 studies (29%) employed a usual care (UC)/treatment as usual (TAU) control group. 26,27,31,41,44,48 -50”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]
Of the 12 studies being considered for meta-analysis, 3 studies (25%) were eventually excluded due to the lack of raw QOLIE-89 data (n = 2) or QOLIE-31-P data (n = 1), which prevented the conversion of the results into the cross-study summary QOLIE-31 scores used for the meta-analysis.
“Of the 12 studies being considered for meta-analysis, 3 studies (25%) were eventually excluded due to the lack of raw QOLIE-89 data (n = 2) 37,41 or QOLIE-31-P data (n = 1), 47 which prevented the conversion of the results into the cross-study summary QOLIE-31 scores used for the meta-analysis.*”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]
QOLIE-31/31-P/-89 was used in 17 studies (71%), of which 12 (70%) were considered for meta-analyses due to satisfactory methodological homogeneity.
“It was used in 17 studies (71%), of which 12 (70%) were considered for meta-analyses due to satisfactory methodological homogeneity. 26,27,29,30,33,36,37,41,46,47,49,50”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]
Four studies (17%) were rated as high ROB due to evidence of selective outcome reporting within the publications.
“Four studies (17%) 26,27,29,31,41 were rated as high ROB due to evidence of selective outcome reporting within the publications.”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]

Two studies (8%) reimbursed their participants for participation in the study, but these studies had a high attrition rate nonetheless.
“There were 2 studies (8%) that reimbursed their participants for participation in the study, but these studies had a high attrition rate nonetheless. 41,45”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]
In the QOLIE-89 study Pramuka 41, the intervention group had a mean postintervention score of 67.3 (SD 2.6) versus control 65 (SD 2.8), reported as not significant.
“Pramuka 41 | 67.3 | 2.6 | 65 | 2.8 | Not significant”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]
The potential impact of the 3 studies (25%) that did not provide data that would have allowed the study to be included in data synthesis is probably small, especially because 2 (67%) studies also reported significantly higher QoL in the treatment group when comparing postintervention outcomes of treatment and control groups.
“The potential impact of the 3 studies (25%) 37,41,47 that did not provide data that would have allowed the study to be included in data synthesis is probably small, especially because 2 (67%) studies 37,47 also reported significantly higher QoL in the treatment group when comparing postintervention outcomes of treatment and control groups.”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [41]

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Authors: Pramuka, M., Hendrickson, R., Zinski, A., & Van Cott, A. C.
Affiliations: University of Pittsburgh (US)
University of Alabama at Birmingham (US)
Corresponding author: Pramuka, Michael
ORCID: Zinski, Anne
Venue: Epilepsy & Behavior
Publisher: Elsevier BV
Published: 2007-12
Volume: 11
Issue: 4
Pages: 533-545
ISSN: 1525-5050 (ISSN-L)
DOI: 10.1016/j.yebeh.2007.06.013
OpenAlex: W2075814175
Cited by: 67
References: 50
Citations by year: 2025: 1 · 2024: 2 · 2023: 2 · 2022: 2 · 2021: 5 · 2020: 2 · 2019: 2 · 2018: 6 · 2017: 5 · 2016: 4 · 2015: 9 · 2014: 2 · 2013: 5 · 2012: 3
FWCI: 3.01
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Epilepsy & Behavior (publishedVersion)
PubMed (publishedVersion)
Funders: Epilepsy Foundation
University of Pittsburgh
Centers for Disease Control and Prevention
U.S. Public Health Service (U48/CCU320171)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Epilepsy research and treatment
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Health Sciences › Health Professions › Pharmacy › Nursing care and research
Keywords: epilepsy, psychosocial interventions, self-management, self-efficacy, quality of life, locus of control, adults with epilepsy, behavior change
MeSH terms: Adult, Emotions, Epilepsy, Female, Follow-Up Studies, Humans, Male, Middle Aged, Pilot Projects, Psychotherapy, Group, Quality of Life, Surveys and Questionnaires, Social Adjustment, Statistics as Topic, Outcome Assessment, Health Care, Sickness Impact Profile, Self Efficacy

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A psychosocial self-management program for epilepsy: A randomized pilot study in adults

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