Cited by 165Anxiety, Depression, Psychometrics, Treatment, Cognitive ProcessesDelphi Technique in ResearchChild and Adolescent Psychosocial and Emotional Development

International consensus on a standard set of outcome measures for child and youth anxiety, depression, obsessive-compulsive disorder, and post-traumatic stress disorder

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Krause, Karolin R, Chung, Sophie, Adewuya, Abiodun O, Albano, Anne Marie, Babins-Wagner, Rochelle, Birkinshaw, Laura, Brann, Peter, Creswell, Cathy +21 more·2021·The Lancet Psychiatry

Abstract

A major barrier to improving care effectiveness for mental health is a lack of consensus on outcomes measurement. The International Consortium for Health Outcomes Measurement (ICHOM) has already developed a consensus-based standard set of outcomes for anxiety and depression in adults (including the Patient Health Questionnaire-9, the Generalised Anxiety Disorder 7-item Scale, and the WHO Disability Schedule). This Position Paper reports on recommendations specifically for anxiety, depression, obsessive-compulsive disorder, and post-traumatic stress disorder in children and young people aged between 6 and 24 years. An international ICHOM working group of 27 clinical, research, and lived experience experts formed a consensus through teleconferences, an exercise using an adapted Delphi technique (a method for reaching group consensus), and iterative anonymous voting, supported by sequential research inputs. A systematic scoping review identified 70 possible outcomes and 107 relevant measurement instruments. Measures were appraised for their feasibility in routine practice (ie, brevity, free availability, validation in children and young people, and language translation) and psychometric performance (ie, validity, reliability, and sensitivity to change). The final standard set recommends tracking symptoms, suicidal thoughts and behaviour, and functioning as a minimum through seven primarily patient-reported outcome measures: the Revised Children's Anxiety and Depression Scale, the Obsessive Compulsive Inventory for Children, the Children's Revised Impact of Events Scale, the Columbia Suicide Severity Rating Scale, the KIDSCREEN-10, the Children's Global Assessment Scale, and the Child Anxiety Life Interference Scale. The set's recommendations were validated through a feedback survey involving 487 participants across 45 countries. The set should be used alongside the anxiety and depression standard set for adults with clinicians selecting age-appropriate measures.

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Crossref · 10.1016/s2215-0366(20)30356-4

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Authors
Krause, K. R., Chung, S., Adewuya, A. O., Albano, A. M., Babins-Wagner, R., Birkinshaw, L., Brann, P., Creswell, C., Delaney, K., Falissard, B., Forrest, C. B., Hudson, J. L., Ishikawa, S.-I., Khatwani, M., Kieling, C., Krause, J., Malik, K., Martínez, V., Mughal, F., Ollendick, T. H., Ong, S. H., Patton, G. C., Ravens-Sieberer, U., Szatmari, P., Thomas, E., Walters, L., Young, B., Zhao, Y., & Wolpert, M.
Affiliations
  • Anna Freud Centre (GB)
  • Lagos State University (NG)
  • New York State Psychiatric Institute (US)
  • University of Calgary (CA)
  • YoungMinds (GB)
  • Eastern Health (AU)
  • University of Oxford (GB)
  • Rush University (US)
  • Inserm (FR)
  • Children's Hospital of Philadelphia (US)
  • Macquarie University (AU)
  • Doshisha University (JP)
  • University of Delhi (IN)
  • Universidade Federal do Rio Grande do Sul (BR)
  • Children's Health Queensland Hospital and Health Service (AU)
  • Sangath (IN)
  • Millennium Science Initiative (CL)
  • Keele University (GB)
  • Virginia Tech (US)
  • Institute of Mental Health (SG)
  • The University of Melbourne (AU)
  • Jack.org (CA)
  • University of Hong Kong (HK)
  • Wellcome Trust (GB)
Corresponding author
Krause, Karolin R
Venue
The Lancet Psychiatry
Publisher
Elsevier BV
Published
2021-01
Volume
8
Issue
1
Pages
76-86
ISSN
2215-0366 (ISSN-L)
OpenAlex
W3112169703
Cited by
162
References
89
Citations by year
2026: 22 · 2025: 29 · 2024: 31 · 2023: 33 · 2022: 32 · 2021: 14
FWCI
19.09
Type
journal article
Language
en
Open access
Locations
  • The Lancet Psychiatry (publishedVersion)
  • PubMed (publishedVersion)
  • HAL (submittedVersion, other-oa)
  • Keele Research Repository (Keele University) (submittedVersion, cc-by)
  • UCL Discovery (University College London) (submittedVersion)
  • Minerva Access (University of Melbourne) (submittedVersion)
  • Lume (Universidade Federal do Rio Grande do Sul) (submittedVersion)
Funders
  • Conselho Nacional de Desenvolvimento Científico e Tecnológico
  • National Institute for Health Research
Topics
  • Social Sciences › Psychology › Experimental and Cognitive Psychology › Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
  • Social Sciences › Sociology and Political Science › Delphi Technique in Research
  • Social Sciences › Psychology › Clinical Psychology › Child and Adolescent Psychosocial and Emotional Development
Keywords
child and youth mental health, outcome measures, anxiety, depression, obsessive-compulsive disorder, post-traumatic stress disorder, patient-reported outcome measures, ICHOM, psychometric properties, symptom monitoring, functioning, KIDSCREEN-10, Children's Global Assessment Scale, Columbia Suicide Severity Rating Scale
MeSH terms
Adolescent, Anxiety, Child, Depression, Humans, Obsessive-Compulsive Disorder, Psychometrics, Stress Disorders, Post-Traumatic, Treatment Outcome, Sickness Impact Profile, Consensus, Internationality, Young Adult

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