Stress, anxiety and depression in parents of children with autism spectrum disorders in Kazakhstan: prevalence and associated factors.
Open accessAbstract
Introduction: Studies worldwide reported increased levels of stress among parents of children with autism due to the unique caregiving challenges. While research has shown that parents' and autistic child's demographics and behavioral characteristics are associated with psychological distress among caregivers of children with autism, very few studies have investigated the impact of the caregiver's unmet needs on various aspects of the perceived family burden. Methods: This cross-sectional study examined the prevalence of stress, anxiety and depressive symptoms among a wide range of 146 parents with different sociodemographic characteristics, social support and unmet needs who care for children with autism spectrum disorder. These parents were recruited from autism non-governmental organizations and the National Children's Rehabilitation Center in Astana, Kazakhstan, a post-Soviet country in Central Asia. Multiple linear regression analyses were utilized to examine the relationship of parental psychological distress variables with social support, unmet needs and parental and child sociodemographic characteristics. Results: Significantly higher levels of stress and depression were reported among parents who perceived their needs as being unmet or extremely unmet as addressed by societal acceptance as compared to parents who reported adequate levels of needs met by social acceptance. Employed parents and parents with a higher level of perceived friends' support had less symptoms of stress, anxiety, and depression. Conclusions: Increasing public awareness about autism and providing early detection and interventions for distressed caregivers of children with autism may be helpful in improving healthy functioning of parents and the entire family.
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Parents of children with ASD often experience heavy psychological and caregiving burdens, with cross-sectional studies reporting parental stress prevalence rates ranging from 37% to 80% across various countries.
“Parents of children with ASD often experience heavy psychological and caregiving burdens, with cross-sectional studies reporting parental stress prevalence rates ranging from 37% to 80% across various countries.”
From Acceptance and Commitment Training for Parents of Children With Autism Spectrum Disorder (2026) · cites this paper as [6]
The Introduction describes substantial caregiving challenges and elevated stress among parents of children with ASD. The Results report 61% with mild-to-extremely-severe stress in this Kazakhstan sample, and the Discussion reports 38.2% with moderate-to-extremely-severe stress and cites 46% in an Oman study. Neither section supports a cross-country parental stress prevalence range of 37%–80%; the paper’s 37.5% figure concerns depressive symptoms, not stress. Page numbers were not available in our copy. (LLM, conf=0.89)
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- Authors
- Alibekova, R., Kai Chan, C., Crape, B., Kadyrzhanuly, K., Gusmanov, A., An, S., Bulekbayeva, S., Akhmetzhanova, Z., Ainabekova, A., Yerubayev, Z., Yessimkulova, F., Bekisheva, A., Ospanova, Z., & Rakhimova, M.
- Affiliations
- Nazarbayev University (KZ)
- "University Medical Center" Corporate Fund (KZ)
- Corresponding author
- Alibekova, Raushan
- Venue
- Global Mental Health
- Publisher
- Cambridge University Press (CUP)
- Published
- 2022
- Volume
- 9
- Pages
- 472-482
- ISSN
- 2054-4251 (ISSN-L)
- PMC
- PMC9806964
- OpenAlex
- W4304184314
- Cited by
- 62
- References
- 61
- Citations by year
- 2026: 22 · 2025: 21 · 2024: 15 · 2023: 4
- FWCI
- 9.12
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Cambridge Prisms Global Mental Health (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Nazarbayev University Repository (Nazarbayev University) (submittedVersion, cc-by-nc-sa)
- Funders
- Nazarbayev University
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- autism spectrum disorder, parental stress, parental anxiety, parental depression, caregiver burden, unmet needs, social support, family burden, sociodemographic factors, Kazakhstan, post-Soviet states
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