Cited by 247Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

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Prevalence of depression and burden among informal care-givers of people with dementia: a meta-analysis

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Collins, Rebecca N., Kishita, Naoko·2020·Ageing and Society

DOI 10.1017/s0144686x19000527

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Abstract

This meta-analysis examined the prevalence of depression and burden among informal care-givers of people with dementia (PwD) and compared the prevalence of depression between male and female, and spousal and non-spousal, care-givers. The quality of studies was evaluated and moderator variables explored. A search of six electronic databases (PsycARTICLES, PsycINFO, MEDLINE Complete, SCOPUS, Web of Science and ProQuest) was conducted from the first available date to the 31 October 2017. Inclusion criteria involved observational studies on the prevalence of burden or depression among informal care-givers of PwD. Forty-three studies were examined with a total of 16,911 participants. The adjusted pooled prevalence of depression was 31.24 per cent (95% confidence interval (CI) = 27.70, 35.01) and burden was 49.26 per cent (95% CI = 37.15, 61.46), although heterogeneity among prevalence estimates was high. Depression prevalence estimates differed according to the instrument used and the continent where the study was conducted. The odds of having depression were almost one and a half times higher in female compared to male care-givers. No significant difference was observed between spouses and non-spouses. Most studies had a medium risk of bias. Results suggest a great need within this population for interventions that are effective at reducing burden and depressive symptoms. It therefore appears imperative for dementia services that are not providing such interventions to do so.

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Authors: Collins, R. N., & Kishita, N.
Affiliations: University of East Anglia (GB)
Corresponding author: Collins, Rebecca N.
ORCID: Collins, Rebecca N.
Kishita, Naoko
Venue: Ageing and Society
Publisher: Cambridge University Press (CUP)
Published: 2019-06-06
Volume: 40
Issue: 11
Pages: 2355-2392
ISSN: 0144-686X (ISSN-L)
1469-1779
DOI: 10.1017/s0144686x19000527
OpenAlex: W2938077275
Cited by: 244
References: 118
Citations by year: 2026: 39 · 2025: 55 · 2024: 43 · 2023: 37 · 2022: 41 · 2021: 20 · 2020: 9
FWCI: 2.95
Type: journal article
Language: en
Open access: green
ueaeprints.uea.ac.uk
Licence: www.cambridge.org/core/terms (unspecified)
Locations: Ageing and Society (publishedVersion)
UEA Digital Repository (University of East Anglia) (acceptedVersion)
Funders: U.S. Department of Health and Human Services
American Psychiatric Publishing
American Association of Nurse Practitioners
American Psychiatric Nurses Association
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: depression, caregiver burden, informal caregivers, dementia, prevalence, spousal caregivers, gender differences, caregiver interventions

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Prevalence of depression and burden among informal care-givers of people with dementia: a meta-analysis

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