Effects of nursing home placement on the mental health trajectories of family caregivers of people with dementia: Findings from the Tele.TAnDem intervention study
Abstract
Objectives The objective was to compare mental health trajectories between family caregivers of people with dementia (PwD) who institutionalize the care recipient (nursing home caregivers [NHC]) and caregivers who continue to provide care at home (at-home caregivers [AHC]) as well as investigate effects of a telephone-based cognitive-behavioral therapy (TEL-CBT) intervention on these trajectories.Methods Using linear growth models, we compared the trajectories of depressive symptoms, caregiver grief, anxiety, and quality of life (QoL) over one year (baseline – T0, 6 months – T1, and 12 months – T2) between 28 NHC and 163 AHC who had been randomized to receive 12 sessions of TEL-CBT (n = 99) or to usual care (n = 92).Results NHC reported significantly higher depression, anxiety, and caregiver grief at T0 and showed significant reductions in depression and anxiety over time compared to AHC. TEL-CBT significantly enhanced overall QoL of NHC.Conclusions The study extends previous findings of improved mental health of family caregivers of PwD after institutionalization and emphasizes the need for interventions before nursing home placement. TEL-CBT which has previously been shown to be effective for family caregivers of PwD also seems promising for supporting NHC.Supplemental data for this article is available online at https://doi.org/10.1080/13607863.2021.2022598 .
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Long-term grief, loneliness, and even clinical depression were described, with some caregivers seeking professional support well after the transition.
“Long-term grief, loneliness, and even clinical depression were described, with some caregivers seeking professional support well after the transition (Brooks et al., 2022a; Hähnel et al., 2023).”
From Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers. (2026) · cites this paper as Hähnel et al., 2023
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- Authors
- Hähnel, F. S., Töpfer, N. F., & Wilz, G.
- Affiliations
- Friedrich Schiller University Jena (DE)
- Corresponding author
- Töpfer, Nils F.
- ORCID
- Töpfer, Nils F.
- Venue
- Aging & Mental Health
- Publisher
- Informa UK Limited
- Published
- 2022-01-05
- Volume
- 27
- Issue
- 1
- Pages
- 101-109
- ISSN
- 1360-7863 (ISSN-L)
- 1364-6915
- OpenAlex
- W4205138164
- Cited by
- 5
- References
- 50
- Citations by year
- 2026: 1 · 2025: 2 · 2024: 2
- FWCI
- 0.65
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Aging & Mental Health (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Keywords
- nursing home admission, institutionalization, depressive symptoms, anxiety, caregiver grief, quality of life, dementia caregiving
- MeSH terms
- Dementia, Humans, Mental Health, Nursing Homes, Quality of Life, Caregivers
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