The impact of endometriosis upon quality of life: a qualitative analysis
Abstract
OBJECTIVE: to explore and describe the impact of endometriosis upon quality of life. SETTING: Nuffield Department of Obstetrics and Gynaecology, University of Oxford. DESIGN: qualitative study. SAMPLE: twenty-four women with a laparoscopic diagnosis of endometriosis. METHODS: face to face, individual, in-depth interviews. RESULTS: analysis of the data revealed 15 descriptive categories. Pain, physical functioning, role performance, social functioning, emotional well-being, relationship with the medical profession, treatment, sexual intercourse, energy and vitality, employment and infertility were found to be a particular concern for women with endometriosis. Physical appearance, lack of control and powerlessness, feelings of social isolation and concerns that their daughters might develop endometriosis were new areas found to be negatively affected by the condition. CONCLUSIONS: the impact of endometriosis-associated symptoms upon quality of life is multidimensional and more complex than just negatively affecting psychosocial parameters. Conducting in-depth interviews to explore the subjective experiences of patients with endometriosis enabled the diverse areas of quality of life to be identified. Adopting a qualitative methodology is essential for item generation on disease specific health status questionnaires.
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Endometriosis symptoms harm patients' social wellbeing, damaging relationships, reducing self-esteem, and creating a sense of lost control.
“Such studies have also shown that endometriosis symptoms negatively impact patients’ social wellbeing, affecting relationships, lowering self-esteem, and leading to a feeling of loss of control (3, 22, 23).”
From Quantification of the impact of endometriosis symptoms on health-related quality of life and work productivity (2011) · cites this paper as [3]
Qualitative studies indicate that endometriosis symptoms substantially affect patients' physical, emotional, and social wellbeing during their most productive years.
“Qualitative studies have shown that endometriosis symptoms have a substantial impact on the physical, emotional, and social wellbeing of patients, who are affected during the most productive years of their lives (5-12).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [5]
For endometriosis, there is a paucity of data on work performance, although qualitative studies document patient-reported negative experiences at work.
“For endometriosis, there is paucity of data in that regard, although qualitative studies document patient-reported negative experiences at work (5).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [5]
Cites
Wagner, H. R., Glaser, B. G., & Strauss, A. L. (1968) · Social Forces · doi:10.2307/2575405 · Cited by 46,470 · see citing works
The Discovery of Grounded Theory; Strategies for Qualitative Research
Glaser, B. G., Strauss, A. L., & Strutzel, E. (1968) · Nursing Research · doi:10.1097/00006199-196807000-00014 · Cited by 39,449 · see citing works
(1998) · Sage eBooks · Cited by 38,631 · see citing works
Basics of Qualitative Research: Grounded Theory Procedures and Techniques.
Ellis, C., Strauss, A., & Corbin, J. M. (1992) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2074814 · Cited by 29,279 · see citing works
Basics of Qualitative Research: Grounded Theory Procedures and Techniques
Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,612 · see citing works
Taylor, K. M. G., Nettleton, S., & Harding, G. (2010) · Taylor & Francis eBooks · doi:10.4324/9780203381175_chapter_9 · Cited by 14,635 · see citing works
Qualitative research in health care: Assessing quality in qualitative research
Mays, N. (2000) · BMJ · doi:10.1136/bmj.320.7226.50 · Cited by 3,742 · see citing works
Qualitative Research: Qualitative interviews in medical research
Britten, N. (1995) · BMJ · doi:10.1136/bmj.311.6999.251 · Cited by 1,670 · see citing works
Morbidity statistics from general practice
Frølund, F. (1986) · PubMed Central · Cited by 568 · see citing works
Delay in the diagnosis of endometriosis: a survey of women from the USA and the UK
Hadfield, R., Mardon, H., Barlow, D., & Kennedy, S. (1996) · Human Reproduction · doi:10.1093/oxfordjournals.humrep.a019270 · Cited by 517 · see citing works
Self-citationCronin, L., Guyatt, G. H., Griffith, L. E., Wong, E. Y. L., Azziz, R., Futterweit, W., Cook, D., & Dunaif, A. E. (1998) · The Journal of Clinical Endocrinology & Metabolism · doi:10.1210/jcem.83.6.4990 · Cited by 348 · see citing works
Development of an endometriosis quality-of-life instrument: The Endometriosis Health Profile-30
Jones, G. (2001) · Obstetrics & Gynecology · doi:10.1016/s0029-7844(01)01433-8 · Cited by 334 · see citing works
Self-citationBalasch, J., Creus, M. T., Fábregues, F., Carmona, F., Ordï, J., Martínez‐Román, S., & Vanrell, J. A. (1996) · Human Reproduction · doi:10.1093/humrep/11.2.387 · Cited by 278 · see citing works
Jenkinson, C., Brennan, C. A., Fitzpatrick, R. M., Bromberg, M. B., & Swash, M. (1999) · Journal of Neurology · doi:10.1007/bf03161085 · Cited by 134 · see citing works
Self-citationIrritable bowel syndrome in the gynecological clinic: Survey of 798 new referrals
Prior, A., Wilson, K., Whorwell, P. J., & Faragher, E. B. (1989) · Digestive Diseases and Sciences · doi:10.1007/bf01536698 · Cited by 114 · see citing works
Low, W. Y., Edelmann, R. J., & Sutton, C. (1993) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(93)90077-s · Cited by 109 · see citing works
Peveler, R., Edwards, J., Daddow, J., & Thomas, E. (1996) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(95)00521-8 · Cited by 107 · see citing works
Health Services Research Methods
Shi, L. (1996) · Cited by 101 · see citing works
Endometriosis, pelvic pain, and psychological functioning
Waller, K. G., & Shaw, R. W. (1995) · Fertility and Sterility · doi:10.1016/s0015-0282(16)57484-6 · Cited by 88 · see citing works
Do gastrointestinal symptoms vary with the menstrual cycle?
Moore, J. A., Barlow, D., Jewell, D. P., & Kennedy, S. (1998) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.1998.tb10014.x · Cited by 74 · see citing works
Self-citationFukaya, T., Hoshiai, H., & Yajima, A. (1993) · American Journal of Obstetrics and Gynecology · doi:10.1016/0002-9378(93)90650-8 · Cited by 57 · see citing works
Endometriosis : current understanding and management
Shaw, R. W. (1995) · Medical Entomology and Zoology · Cited by 41 · see citing works
Bipolar mood disorder and endometriosis: preliminary findings
(1987) · American Journal of Psychiatry · doi:10.1176/ajp.144.12.1588 · Cited by 39 · see citing works
Emotional Aspects of Endometriosis: A Physician??s Perspective
Jones, K. P. (1988) · Clinical Obstetrics & Gynecology · doi:10.1097/00003081-198812000-00013 · Cited by 39 · see citing works
Components of type a behavior and the first-year prognosis of a myocardial infarction
Julkunen, J., Idänpään-Heikkilä, U., & Saarinen, T. (1993) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(93)90119-z · Cited by 36 · see citing works
Relationship between endometriosis and affective disorder
Walker, E., Katon, W. J., Jones, L. M., & Russo, J. E. (1989) · American Journal of Psychiatry · doi:10.1176/ajp.146.3.380 · Cited by 30 · see citing works
Psychosocial aspects of endometriosis: A review
Low, W. Y., & Edelmann, R. J. (1991) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/01674829109077986 · Cited by 29 · see citing works
Qualitative methods in health services research
Murphy, E. L., & Dingwall, R. W. J. (1998) · Nottingham Trent University's Institutional Repository (Nottingham Trent Repository) · Cited by 26 · see citing works
What is important to the patient with endometriosis?
Kennedy, S. J. (1991) · PubMed · Cited by 25 · see citing works
Self-citationThe Emotional Aspects of Endometriosis: What the Patient Expects from Her Doctor
Weinstein, K. (1988) · Clinical Obstetrics & Gynecology · doi:10.1097/00003081-198812000-00012 · Cited by 14 · see citing works
Lopès, P., Mensier, A., Fx, L., & Besse, O. (2025) · Ultrasound in Obstetrics and Gynecology · doi:10.1002/uog.70062 · Cited by 8 · see citing works
Flagged first, then by citations
1 of the 32 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
The social and psychological impact of endometriosis on women's lives: a critical narrative review
Culley, L. A., Law, C., Hudson, N., Denny, E., Mitchell, H., Baumgarten, M. N., & Raine‐Fenning, N. (2013) · Human Reproduction Update · doi:10.1093/humupd/dmt027 · Cited by 689 · see citing works
Impact of endometriosis on women’s lives: a qualitative study
Moradi, M., Parker, M. A., Sneddon, A., López, V., & Ellwood, D. A. (2014) · BMC Women s Health · doi:10.1186/1472-6874-14-123 · Cited by 525 · see citing works
Impact of endometriosis on quality of life and mental health:Pelvic pain makes the difference
Facchin, F., Barbara, G., Saita, E., Mosconi, P., Roberto, A., Fedele, L., & Vercellini, P. (2015) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/0167482x.2015.1074173 · Cited by 468 · see citing works
Assessing research gaps and unmet needs in endometriosis
As‐Sanie, S., Black, R., Giudice, L. C., Valbrun, T. G., Gupta, J., Jones, B., Laufer, M. R., Milspaw, A. T., Missmer, S. A., Norman, A., et al. (2019) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2019.02.033 · Cited by 347 · see citing works
Fourquet, J., Báez, L., Figueroa, M., Iriarte, R. I., & Flores, I. (2011) · Fertility and Sterility · doi:10.1016/j.fertnstert.2011.04.095 · Cited by 262 · see citing works
“Such studies have also shown that endometriosis symptoms negatively impact patients’ social wellbeing, affecting relationships, lowering self-esteem, and leading to a feeling of loss of control (3, 22, 23).”
BackgroundPatients’ report on how endometriosis affects health, work, and daily life
Fourquet, J., Gao, X., Zavala, D., Orengo, J. C., Abac, S., Ruiz, A., Laboy, J., & Flores, I. (2010) · Fertility and Sterility · doi:10.1016/j.fertnstert.2009.09.017 · Cited by 252 · see citing works
“For endometriosis, there is paucity of data in that regard, although qualitative studies document patient-reported negative experiences at work (5).”
Women's experiences of endometriosis: a systematic review and synthesis of qualitative research
Young, K., Fisher, J., & Kirkman, M. (2014) · Journal of Family Planning and Reproductive Health Care · doi:10.1136/jfprhc-2013-100853 · Cited by 241 · see citing works
Association of Chronic Pelvic Pain and Endometriosis With Signs of Sensitization and Myofascial Pain
Stratton, P., Khachikyan, I., Sinaii, N., Ortiz, R., & Shah, J. P. (2015) · Obstetrics and Gynecology · doi:10.1097/aog.0000000000000663 · Cited by 203 · see citing works
Bazot, M., Malzy, P., Cortez, A., Roseau, G., Amouyal, P., & Daraï, É. (2007) · Ultrasound in Obstetrics and Gynecology · doi:10.1002/uog.4070 · Cited by 203 · see citing works
Oral contraceptives for pain associated with endometriosis
Brown, J., Crawford, T. J., Datta, S., & Prentice, A. (2018) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd001019.pub3 · Cited by 199 · see citing works
Pluchino, N., Wenger, J., Petignat, P., Tal, R., Bolmont, M., Taylor, H. S., & Bianchi‐Demicheli, F. (2016) · Human Reproduction Update · doi:10.1093/humupd/dmw031 · Cited by 191 · see citing works
Mental health in women with endometriosis: searching for predictors of psychological distress
Facchin, F., Barbàra, G., Dridi, D., Alberico, D., Buggio, L., Somigliana, E., Saita, E., & Vercellini, P. (2017) · Human Reproduction · doi:10.1093/humrep/dex249 · Cited by 173 · see citing works
Dienogest in long-term treatment of endometriosis
Schindler, A. E. (2011) · International Journal of Women s Health · doi:10.2147/ijwh.s5633 · Cited by 162 · see citing works
Seracchioli, R., Mabrouk, M., Manuzzi, L., Vicenzi, C., Frasca, C., Elmakky, A., & Venturoli, S. (2009) · Human Reproduction · doi:10.1093/humrep/dep259 · Cited by 158 · see citing works
Seracchioli, R., Mabrouk, M., Frascà, C., Manuzzi, L., Savelli, L., & Venturoli, S. (2010) · Fertility and Sterility · doi:10.1016/j.fertnstert.2009.03.083 · Cited by 158 · see citing works
Interventions for women with endometrioma prior to assisted reproductive technology
Benschop, L. H., Farquhar, C. M., van der Poel, N. A., & Heineman, M. J. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd008571.pub2 · Cited by 153 · see citing works
de Graaff, A. A., van Lankveld, J. J. D. M., Smits, L. J. M., van Lankveld, J. J. D. M., & Dunselman, G. A. J. (2016) · Human Reproduction · doi:10.1093/humrep/dew215 · Cited by 150 · see citing works
Denny, E. (2009) · Qualitative Health Research · doi:10.1177/1049732309338725 · Cited by 141 · see citing works
Márki, G., Bokor, A., Rigó, J. J., & Rigó, A. (2017) · Human Reproduction · doi:10.1093/humrep/dex091 · Cited by 138 · see citing works
Psychology of Chronic Pelvic Pain: Prevalence, Neurobiological Vulnerabilities, and Treatment
TILL, S. R., AS-SANIE, S., & SCHREPF, A. (2019) · Clinical Obstetrics & Gynecology · doi:10.1097/grf.0000000000000412 · Cited by 134 · see citing works
Health-related quality of life in women with endometriosis: a systematic review
Jia, S.-Z., Leng, J.-H., Shi, J.-H., Sun, P.-R., & Lang, J.-H. (2012) · Journal of Ovarian Research · doi:10.1186/1757-2215-5-29 · Cited by 132 · see citing works
“It is also a major cause of infertility, which in turn causes psychological stress, low self-esteem and depression [2].”
BackgroundVincent, K., Kennedy, S., & Stratton, P. (2010) · Fertility and Sterility · doi:10.1016/j.fertnstert.2008.09.056 · Cited by 132 · see citing works
Self-citationMelis, I., Litta, P., Nappi, L., Agus, M., Melis, G. B., & Angioni, S. L. (2014) · International Journal of Sexual Health · doi:10.1080/19317611.2014.952394 · Cited by 122 · see citing works
The impact of endometriosis on work and social participation
Gilmour, J. A., Huntington, A., & Wilson, H. V. (2008) · International Journal of Nursing Practice · doi:10.1111/j.1440-172x.2008.00718.x · Cited by 118 · see citing works
Laparoscopic surgery for endometriosis: How often do we need to re-operate?
Cheong, Y., Tay, P., Luk, F., Gan, H. C., Li, T.-C., & Cooke, I. (2008) · Journal of Obstetrics and Gynaecology · doi:10.1080/01443610701811761 · Cited by 110 · see citing works
Life after a diagnosis with endometriosis ‐ a 15 years follow‐up study
FAGERVOLD, B., Jenssen, M., Hummelshøj, L., & Moen, M. H. (2009) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1080/00016340903108308 · Cited by 104 · see citing works
Therapeutic Affordances of Online Support Group Use in Women With Endometriosis
Shoebotham, A., & Coulson, N. S. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.5548 · Cited by 99 · see citing works
Deep dyspareunia and sex life after laparoscopic excision of endometriosis
Ferrero, S., Abbamonte, L. H., Giordano, M., Ragni, N., & Remorgida, V. (2006) · Human Reproduction · doi:10.1093/humrep/del465 · Cited by 98 · see citing works
Montanari, G., Donato, N. D., Benfenati, A., Giovanardi, G., Zannoni, L., Vicenzi, C., Solfrini, S., Mignemi, G., Villa, G., Mabrouk, M., et al. (2013) · The Journal of Sexual Medicine · doi:10.1111/jsm.12133 · Cited by 96 · see citing works
Fauconnier, A., Staraci, S., Huchon, C., Roman, H., Panel, P., & Descamps, P. (2013) · Human Reproduction · doi:10.1093/humrep/det310 · Cited by 94 · see citing works
As‐Sanie, S., Till, S. R., Schrepf, A., Griffith, K. C., Tsodikov, A., Missmer, S. A., Clauw, D. J., & Brummett, C. M. (2021) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2021.08.038 · Cited by 93 · see citing works
Psychosocial impact of endometriosis: From co-morbidity to intervention
Aerts, L., Grangier, L., Streuli, I., Dällenbach, P., Marci, R., Wenger, J., & Pluchino, N. (2018) · Best Practice & Research Clinical Obstetrics & Gynaecology · doi:10.1016/j.bpobgyn.2018.01.008 · Cited by 92 · see citing works
A qualitative study of the impact of endometriosis on male partners
Culley, L. A., Law, C., Hudson, N., Mitchell, H., Denny, E., & Raine‐Fenning, N. (2017) · Human Reproduction · doi:10.1093/humrep/dex221 · Cited by 90 · see citing works
Toyé, F., Seers, K., & Barker, K. L. (2014) · Journal of Advanced Nursing · doi:10.1111/jan.12485 · Cited by 90 · see citing works
Economic Burden of Surgically Confirmed Endometriosis in Canada
Levy, A. R., Osenenko, K. M., Lozano‐Ortega, G., Sambrook, R., Jeddi, M., Bélisle, S., & Reid, R. L. (2011) · Journal of Obstetrics and Gynaecology Canada · doi:10.1016/s1701-2163(16)34986-6 · Cited by 90 · see citing works
García–Peñarrubia, P., Ruiz‐Alcaraz, A. J., Martinez‐Esparza, M., Marín‐Sánchez, P., & Machado‐Linde, F. (2019) · Human Reproduction Update · doi:10.1093/humupd/dmz044 · Cited by 89 · see citing works
Barriers to a Timely Diagnosis of Endometriosis
Davenport, S., Smith, D. L., & Green, D. J. (2023) · Obstetrics and Gynecology · doi:10.1097/aog.0000000000005255 · Cited by 89 · see citing works
The Pain of Endo Existence: Toward a Feminist Disability Studies Reading of Endometriosis
Jones, C. E. (2016) · Hypatia · doi:10.1111/hypa.12248 · Cited by 59 · see citing works
Harada, T., Kosaka, S., Elliesen, J., Yasuda, M., Ito, M., & Momoeda, M. (2017) · Fertility and Sterility · doi:10.1016/j.fertnstert.2017.07.1165 · Cited by 84 · see citing works
Early-life factors and endometriosis risk
Upson, K., Sathyanarayana, S., Scholes, D., & Holt, V. L. (2015) · Fertility and Sterility · doi:10.1016/j.fertnstert.2015.06.040 · Cited by 84 · see citing works
Endometriosis and the primary care consultation
Denny, E., & Mann, C. H. (2008) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2007.10.006 · Cited by 83 · see citing works
Hudson, N., Culley, L. A., Law, C., Mitchell, H., Denny, E., & Raine‐Fenning, N. (2015) · Sociology of Health & Illness · doi:10.1111/1467-9566.12392 · Cited by 83 · see citing works
Vannuccini, S., Lazzeri, L., Orlandini, C., Morgante, G., Bifulco, G., Fagiolini, A., & Petraglia, F. (2018) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.1080/0167482x.2017.1386171 · Cited by 82 · see citing works
Quality of life in women with endometriosis: a narrative overview
Rosa, V. L. L., FRANCISCIS, P. D., Barra, F., Schiattarella, A., Török, P., Shah, M., Karaman, E., Cerentini, T. M., Guardo, F. D., Gullo, G., et al. (2020) · Minerva Medica · doi:10.23736/s0026-4806.19.06298-0 · Cited by 82 · see citing works
Endurance and contest: women's narratives of endometriosis
Marković, M., Manderson, L. H., & Warren, N. (2008) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459308090053 · Cited by 81 · see citing works
Mendiola, J., Sánchez-Ferrer, M. L., Jiménez-Velázquez, R., Cánovas-López, L., Hernández-Peñalver, A. I., Corbalán-Biyang, S., Carmona-Barnosi, A., Prieto-Sánchez, M. T., Nieto, A., & Torres-Cantero, A. M. (2016) · Human Reproduction · doi:10.1093/humrep/dew163 · Cited by 80 · see citing works
“, 1991; Denny and Mann, 2007), that can be incapacitating and can negatively affect their quality of life (Jones et al., 2004).”
BackgroundImpact of coping strategies on quality of life of adolescents and young women with endometriosis
González-Echevarría, A. M., Rosario, E., Acevedo, S. F., & Flores, I. (2018) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.1080/0167482x.2018.1450384 · Cited by 80 · see citing works
Co-morbid pain conditions and feelings of invalidation and isolation among women with vulvodynia
Nguyen, R. H. N., Ecklund, A. M., MacLehose, R. F., Veasley, C., & Harlow, B. L. (2012) · Psychology, Health & Medicine · doi:10.1080/13548506.2011.647703 · Cited by 78 · see citing works
Hawkey, A., Chalmers, J., Micheal, S., Diezel, H., & Armour, M. (2022) · Feminism & Psychology · doi:10.1177/09593535221083846 · Cited by 77 · see citing works
Salient aspects of quality of life among women diagnosed with endometriosis: A qualitative study
Roomaney, R., & Kagee, A. (2016) · Journal of Health Psychology · doi:10.1177/1359105316643069 · Cited by 76 · see citing works
Validation of the SF-36 in patients with endometriosis
Stull, D. E., Wasiak, R., Kreif, N., Raluy, M., Colligs, A., Seitz, C., & Gerlinger, C. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0442-5 · Cited by 74 · see citing works
Age-Related Differences in Quality of Life in Swedish Women with Endometriosis
Lövkvist, L., Boström, P., Edlund, M., & Olovsson, M. (2016) · Journal of Women s Health · doi:10.1089/jwh.2015.5403 · Cited by 73 · see citing works
Bryant, C., Cockburn, R., Planté, A.-F., & Chia, A. (2016) · Journal of Pain Research · doi:10.2147/jpr.s115065 · Cited by 71 · see citing works
Endometriosis and fertility: women's accounts of healthcare
Young, K., Fisher, J., & Kirkman, M. (2016) · Human Reproduction · doi:10.1093/humrep/dev337 · Cited by 69 · see citing works
How Women with Endometriosis Experience Health Care Encounters
Pettersson, A., & Berterö, C. (2020) · Women s Health Reports · doi:10.1089/whr.2020.0099 · Cited by 66 · see citing works
Oral contraceptives for pain associated with endometriosis
Davis, L.-J., Kennedy, S. S., Moore, J., & Prentice, A. (2007) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd001019.pub2 · Cited by 65 · see citing works
Self-citationO’Hara, R. L., Rowe, H. J., & Fisher, J. (2019) · BMC Women s Health · doi:10.1186/s12905-019-0774-6 · Cited by 63 · see citing works
Satisfaction with medical support in women with endometriosis
Lukas, I., Schwartz, A. K., Geraedts, K., Rauchfuß, M., Wölfler, M. M., Häberlin, F., von Orelli, S., Eberhard, M., Imthurn, B., Imesch, P., et al. (2018) · PLoS ONE · doi:10.1371/journal.pone.0208023 · Cited by 63 · see citing works
Experiences of health after dietary changes in endometriosis: a qualitative interview study
Karlsson, J. V., Patel, H., & Premberg, Å. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-032321 · Cited by 62 · see citing works
Huber, J. D., Pukall, C. F., Boyer, S. C., Reissing, E. D., & Chamberlain, S. M. (2008) · The Journal of Sexual Medicine · doi:10.1111/j.1743-6109.2008.01139.x · Cited by 61 · see citing works
The Experience and Influence of Infertility: Considerations for Couple Counselors
Peterson, B. D., Gold, L. H., & Feingold, T. (2007) · The Family Journal · doi:10.1177/1066480707301365 · Cited by 61 · see citing works
Clinical assessment of the impact of pelvic pain on women
Chalmers, J., Catley, M. J., Evans, S., & Moseley, G. L. (2016) · Pain · doi:10.1097/j.pain.0000000000000789 · Cited by 60 · see citing works
A clinical overview of endometriosis: a misunderstood disease
Denny, E., & Mann, M. C. H. (2007) · British Journal of Nursing · doi:10.12968/bjon.2007.16.18.27503 · Cited by 57 · see citing works
Crossroad decisions in deep endometriosis treatment options: a qualitative study among patients
Metzemaekers, J., Slotboom, S., Sampat, J., Vermolen, P., Smeets, M. J. G. H., Marle, M. E. V. D. A., Maas, J. W. M., Bakker, E. C., Nijkamp, M. D., Both, S., et al. (2020) · Fertility and Sterility · doi:10.1016/j.fertnstert.2020.06.041 · Cited by 56 · see citing works
Bullo, S., & Hearn, J. H. (2020) · British Journal of Health Psychology · doi:10.1111/bjhp.12472 · Cited by 55 · see citing works
Mindfulness-based psychological intervention for coping with pain in endometriosis
Kold, M., Hansen, T., Vedsted-Hansen, H., & Forman, A. (2012) · Nordic Psychology · doi:10.1080/19012276.2012.693727 · Cited by 53 · see citing works
The Patient-Centeredness of Endometriosis Care and Targets for Improvement: A Systematic Review
Dancet, E. A. F., Apers, S., Kremer, J. A. M., Nelen, W. L. D. M., Sermeus, W., & D’Hooghe, T. M. (2014) · Gynecologic and Obstetric Investigation · doi:10.1159/000358392 · Cited by 53 · see citing works
Moradi, M., Parker, M. A., Sneddon, A., López, V., & Ellwood, D. A. (2019) · BMC Women s Health · doi:10.1186/s12905-019-0762-x · Cited by 53 · see citing works
Van Niekerk, L., Weaver-Pirie, B., & Matthewson, M. (2019) · Archives of Women's Mental Health · doi:10.1007/s00737-019-00972-6 · Cited by 52 · see citing works
Apers, S., Dancet, E. A. F., Aarts, J. W. M., Kluivers, K. B., D’Hooghe, T. M., & Nelen, W. L. D. M. (2017) · Reproductive BioMedicine Online · doi:10.1016/j.rbmo.2017.10.106 · Cited by 52 · see citing works
Laganà, A. S., Sturlese, E., Retto, G., Sofo, V., & Triolo, O. (2013) · Obstetrics and Gynecology International · doi:10.1155/2013/527041 · Cited by 51 · see citing works
Impact of endometriosis on quality of life: a pilot study
Oehmke, F., Weyand, J., Hackethal, A., Konrad, L., Omwandho, C., & Tinneberg, H.-R. (2009) · Gynecological Endocrinology · doi:10.3109/09513590903159607 · Cited by 50 · see citing works
Jones, G. L., Budds, K., Taylor-Phillips, F., Musson, D., Raymer, J., Churchman, D., Kennedy, S., & Jenkinson, C. (2023) · Human Reproduction Update · doi:10.1093/humupd/dmad029 · Cited by 47 · see citing works
Self-citationLeuenberger, J., Schwartz, A. K., Geraedts, K., Haeberlin, F., Eberhard, M., von Orellie, S., Imesch, P., & Leeners, B. (2022) · European Journal of Pain · doi:10.1002/ejp.1926 · Cited by 47 · see citing works
Combined Oral Contraceptive Therapy in Women with Posterior Deep Infiltrating Endometriosis
Mabrouk, M., Frascà, C., Geraci, E., Montanari, G., Ferrini, G., Raimondo, D., Alvisi, S., Paradisi, R., Villa, G., & Seracchioli, R. (2011) · Journal of Minimally Invasive Gynecology · doi:10.1016/j.jmig.2011.04.008 · Cited by 46 · see citing works
Facchin, F., Buggio, L., Dridi, D., Barbàra, G., & Vercellini, P. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182212112 · Cited by 45 · see citing works
Living with endometriosis: a phenomenological study
Rea, T., Giampaolino, P., Simeone, S., Pucciarelli, G., Alvaro, R., & Guillari, A. (2020) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.1080/17482631.2020.1822621 · Cited by 44 · see citing works
Wahl, K., Orr, N. L., Lisonek, M., Noga, H. L., Bedaiwy, M. A., Williams, C., Allaire, C., Albert, A., Smith, K. B., Cox, S., et al. (2020) · Sexual Medicine · doi:10.1016/j.esxm.2020.01.002 · Cited by 43 · see citing works
General practitioners and endometriosis: Level of knowledge and the impact of training
Roullier, C., Sanguin, S., Parent, C., Lombart, M., Sergent, F., & Foulon, A. (2021) · Journal of Gynecology Obstetrics and Human Reproduction · doi:10.1016/j.jogoh.2021.102227 · Cited by 43 · see citing works
Niekerk, L. M. V., Johnstone, L., & Matthewson, M. L. (2021) · Human Reproduction · doi:10.1093/humrep/deab257 · Cited by 43 · see citing works
Dodds, K. N., Staikopoulos, V., & Beckett, E. A. H. (2015) · Biology of Reproduction · doi:10.1095/biolreprod.115.129809 · Cited by 41 · see citing works
Grundström, H., Kjølhede, P., Berterö, C., & Alehagen, S. (2016) · Sexual & Reproductive Healthcare · doi:10.1016/j.srhc.2015.11.003 · Cited by 40 · see citing works
Understanding Psychological Symptoms of Endometriosis from a Research Domain Criteria Perspective
van Stein, K., Schubert, K., Ditzen, B., & Weise, C. (2023) · Journal of Clinical Medicine · doi:10.3390/jcm12124056 · Cited by 40 · see citing works
Patient-centeredness and endometriosis: Definition, measurement, and current status
Geukens, E., Apers, S., Meuleman, C., D’Hooghe, T., & Dancet, E. A. F. (2018) · Best Practice & Research Clinical Obstetrics & Gynaecology · doi:10.1016/j.bpobgyn.2018.01.009 · Cited by 40 · see citing works
Mundo-López, A., Hernández, O. O., San-Sebastián, A. P., Galiano‐Castillo, N., Rodríguez-Pérez, O., Arroyo-Luque, M. S., Arroyo‐Morales, M., Cantarero‐Villanueva, I., Fernández‐Lao, C., & Artacho‐Cordón, F. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17113831 · Cited by 40 · see citing works
Gupta, J., Cardoso, L., Harris, C., Dance, A. D., Seckin, T. A., Baker, N., & Ferguson, Y. O. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-020657 · Cited by 40 · see citing works
Gater, A., Taylor, F. C., Seitz, C., Gerlinger, C., Wichmann, K., & Haberland, C. (2020) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-020-0177-3 · Cited by 39 · see citing works
Method for Electrochemical Detection of Brain Derived Neurotrophic Factor (BDNF) in Plasma
Bockaj, M., Fung, B. C., Tsoulis, M. W., Foster, L., & Soleymani, L. (2018) · Analytical Chemistry · doi:10.1021/acs.analchem.8b01642 · Cited by 38 · see citing works
Emerging drugs in endometriosis
Mihalyi, A., Simsa, P., Kyama, C. M., Meuleman, C., Mwenda, J. M., & D’Hooghe, T. (2006) · Expert Opinion on Emerging Drugs · doi:10.1517/14728214.11.3.503 · Cited by 38 · see citing works
Investigation of anogenital distance as a diagnostic tool in endometriosis
Sánchez-Ferrer, M. L., Mendiola, J., Jiménez-Velázquez, R., Cánovas-López, L., Corbalán-Biyang, S., Hernández-Peñalver, A. I., Carmona-Barnosi, A., Maldonado-Cárceles, A. B., Prieto-Sánchez, M. T., Machado-Linde, F., et al. (2017) · Reproductive BioMedicine Online · doi:10.1016/j.rbmo.2017.01.002 · Cited by 37 · see citing works
Calvi, C., Sherman, K. A., & Pham, D. (2023) · International Journal of Behavioral Medicine · doi:10.1007/s12529-023-10230-w · Cited by 36 · see citing works
Systematic reviews of qualitative evidence: what are the experiences of women with endometriosis?
Denny, E., & Khan, K. S. (2006) · Journal of Obstetrics and Gynaecology · doi:10.1080/01443610600797301 · Cited by 35 · see citing works
Female Sexual Function in Women with Suspected Deep Infiltrating Endometriosis
Lima, R. V., Pereira, A. M. G., Beraldo, F. B., Gazzo, C., Martins, J. A., & Lopes, R. G. C. (2018) · Revista Brasileira Ginecologia e Obstetrícia · doi:10.1055/s-0038-1639593 · Cited by 35 · see citing works
Constellations of pain: a qualitative study of the complexity of women’s endometriosis-related pain
Drabble, S. J., Long, J., Alele, B., & O’Cathain, A. (2020) · British Journal of Pain · doi:10.1177/2049463720961413 · Cited by 35 · see citing works
Giuliani, N., Cosmi, V., Pierleoni, L., Recine, A., Pieroni, M., Ticino, A., Porpora, M. G., & Simonelli, C. (2015) · Sexologies · doi:10.1016/j.sexol.2015.03.004 · Cited by 35 · see citing works
Endometriosis and Perceived Stress: Impact of Surgical and Medical Treatment
Lazzeri, L., Orlandini, C., Vannuccini, S., Pinzauti, S., Tosti, C., Zupi, E., Nappi, R. E., & Petraglia, F. (2015) · Gynecologic and Obstetric Investigation · doi:10.1159/000368776 · Cited by 34 · see citing works
The experiences of endometriosis patients with diagnosis and treatment in New Zealand
Ellis, K. B., Munro, D., & Wood, R. (2022) · Frontiers in Global Women s Health · doi:10.3389/fgwh.2022.991045 · Cited by 33 · see citing works
Traitement cœlioscopique de l'endométriose profonde. À propos de 118 cas
Panel, P., Chis, C., Pozzi-Gaudin, S., Tohic, A. L., Raynal, P., Mikhayelyan, M., Fraleu-Louer, B., Sangana, G., Almeras, C., Dufour, C., et al. (2006) · Gynécologie Obstétrique & Fertilité · doi:10.1016/j.gyobfe.2006.06.004 · Cited by 33 · see citing works
Meißner, K., hling, B. B. O., & Schweizer-Arau, A. (2010) · Forschende Komplementärmedizin / Research in Complementary Medicine · doi:10.1159/000322890 · Cited by 33 · see citing works
Sima, R., Pleș, L., Socea, B., Sklavounos, P., Negoi, I., Stănescu, A.-D., Iordache, I.-I., Hamoud, B. H., Radosa, M. P., Juhasz-Böess, I., et al. (2021) · Experimental and Therapeutic Medicine · doi:10.3892/etm.2021.10718 · Cited by 32 · see citing works
- Authors
- Jones, G., Jenkinson, C., & Kennedy, S.
- Affiliations
- University of Oxford (GB)
- Venue
- Journal of Psychosomatic Obstetrics & Gynecology
- Publisher
- Informa UK Limited
- Published
- 2004-01
- Volume
- 25
- Issue
- 2
- Pages
- 123-133
- ISSN
- 0167-482X (ISSN-L)
- 1743-8942
- OpenAlex
- W2042159399
- Cited by
- 291
- References
- 32
- Citations by year
- 2026: 10 · 2025: 19 · 2024: 18 · 2023: 25 · 2022: 21 · 2021: 19 · 2020: 23 · 2019: 11 · 2018: 20 · 2017: 12 · 2016: 13 · 2015: 15 · 2014: 13 · 2013: 11 · 2012: 9
- FWCI
- 3.90
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Psychosomatic Obstetrics & Gynecology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
- Life Sciences › Agricultural and Biological Sciences › Ecology, Evolution, Behavior and Systematics › Plant and fungal interactions
- Keywords
- endometriosis, quality of life, patient experience, chronic pelvic pain, physical function, social functioning, emotional well-being, infertility, employment, sexual intercourse, social isolation, powerlessness, item generation
- MeSH terms
- Adult, Dyspareunia, Employment, Endometriosis, Female, Humans, Pain, Laparoscopy, Quality of Life, Surveys and Questionnaires, Severity of Illness Index
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