A qualitative investigation of sense of self and continuity in younger adults with stroke
Abstract
Younger adults are more likely to survive after stroke and their life trajectory is often disrupted. This qualitative study aimed to explore the experience of sense of self and continuity in younger adults after stroke. In-depth semi-structured interviews were conducted with 10 adults (3 male, 7 female) with stroke onset between 18 and 55 years of age. Their interview transcripts were analysed using a phenomenological approach that involved idiographic and nomothetic stages of analysis. Two major themes emerged: (1) centrality of stroke; and (2) impacts of stroke on self. The first theme relates to how central the stroke is in participants' lives. The second theme depicts ways in which stroke influences participants' sense of self. In general, participants who perceived their stroke as having lower centrality also experienced continuity of self, whereas participants who viewed their stroke as higher in centrality experienced interruption of self which often co-existed with growth of self. However, perceptions of stroke centrality and the impacts on self shifted over time and context. These findings extend conceptualisations of post-stroke adjustment by indicating that the impact of stroke on sense of self during early to middle adulthood is linked to how central people perceive their stroke to be within their life story. Younger adults may simultaneously experience their sense of self as continuous, interrupted, and grown after stroke.
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Most of the chosen general objectives were related to basic and instrumental ADL, but they were also related to social participation and significant activities.
“Most of the chosen general objectives were related to basic and instrumental ADL. However, they were also related to social participation and significant activities which is, in turn, their sense of self and occupational identity [42, 43].”
From Early Occupational Therapy Intervention post-stroke (EOTIPS): A randomized controlled trial (2024) · cites this paper as [42]
Social participation and significant activities are related to a person's sense of self and occupational identity.
“However, they were also related to social participation and significant activities which is, in turn, their sense of self and occupational identity [42, 43].”
From Early Occupational Therapy Intervention post-stroke (EOTIPS): A randomized controlled trial (2024) · cites this paper as [42]
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- Authors
- Hutton, L., & Ownsworth, T.
- Affiliations
- School of Applied Psychology and Menzies Health Institute Queensland, Brisbane, Australia
- Corresponding author
- Hutton, Lauren
- ORCID
- Ownsworth, Tamara
- Venue
- Neuropsychological Rehabilitation
- Publisher
- Informa UK Limited
- Published
- 2017-03-08
- Volume
- 29
- Issue
- 2
- Pages
- 273-288
- ISSN
- 0960-2011 (ISSN-L)
- 1464-0694
- OpenAlex
- W2593414109
- Cited by
- 27
- References
- 44
- Citations by year
- 2025: 3 · 2024: 9 · 2023: 4 · 2022: 5 · 2021: 2 · 2020: 1 · 2019: 2 · 2018: 1
- FWCI
- 1.04
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Neuropsychological Rehabilitation (publishedVersion)
- PubMed (publishedVersion)
- Griffith Research Online (submittedVersion)
- Topics
- Health Sciences › Medicine › Rehabilitation › Stroke Rehabilitation and Recovery
- Social Sciences › Psychology › Developmental and Educational Psychology › Identity, Memory, and Therapy
- Health Sciences › Medicine › Epidemiology › Traumatic Brain Injury Research
- Keywords
- stroke, young adults, selfhood, self-continuity, life stories, self-interruption, self-growth
- MeSH terms
- Stroke Rehabilitation, Adaptation, Psychological, Adolescent, Adult, Attitude to Health, Female, Humans, Male, Middle Aged, Self Concept, Stroke, Qualitative Research, Young Adult
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