Consumer Participation in Mental Health Research: Articulating a Model to Guide Practice
Open accessAbstract
Objective: Consumer involvement in mental health research is considered both a right and a benefit, despite the identified barriers to forming effective collaborative relationships. The purpose of this paper is to examine the literature relating to consumer involvement in mental health research with a view to articulating a model to guide this process. Method: A qualitative review of the relevant literature was undertaken. Literature referring to consumer roles in research was accessed and reviewed with the aim of articulating the benefits of, and barriers to, consumer participation in research. Results: The literature has identified a number of important benefits and some significant barriers to consumer involvement in mental health research. However, a clear model to articulate definitions of involvement is lacking. Four distinct levels of involvement were articulated. Conclusions: The identification of clearly defined models for consumer involvement in mental health research is important in order to facilitate collaboration and avoid tokenism. Research is required in order to determine the applicability of these models within actual research projects.
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There have been attempts to assess the practice of including people with lived experience in research.
“There have been attempts to assess the practice of including PWLE in research 336 .”
From Ethical challenges in contemporary psychiatry: an overview and an appraisal of possible strategies and research needs (2024) · cites this paper as [336]
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Additional file 3 of Lived experience research as a resource for recovery: a mixed methods study
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Additional file 1 of Lived experience research as a resource for recovery: a mixed methods study
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Additional file 2 of Lived experience research as a resource for recovery: a mixed methods study
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- Authors
- Happell, B., & Roper, C.
- Affiliations
- Central Queensland University (AU)
- The University of Melbourne (AU)
- Corresponding author
- Happell, Brenda
- Venue
- Australasian Psychiatry
- Publisher
- SAGE Publications
- Published
- 2007-06
- Volume
- 15
- Issue
- 3
- Pages
- 237-241
- ISSN
- 1039-8562 (ISSN-L)
- 1440-1665
- OpenAlex
- W2014164845
- Cited by
- 91
- References
- 13
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 6 · 2023: 8 · 2022: 14 · 2021: 6 · 2020: 11 · 2019: 3 · 2018: 6 · 2017: 1 · 2016: 5 · 2015: 4 · 2014: 6 · 2013: 4 · 2012: 2
- FWCI
- 1.97
- Type
- journal article
- Language
- en
- Open access
- green
- figshare.com
- Locations
- Australasian Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Acquire (CQUniversity) (submittedVersion)
- Figshare (submittedVersion, cc-by)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Health Professions › General Health Professions › Community Health and Development
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Keywords
- consumer involvement in research, mental health research, research collaboration, barriers to participation, tokenism, patient and public involvement
- MeSH terms
- Community Participation, Humans, Mental Health, Professional-Patient Relations, Referral and Consultation, Research, Practice Guidelines as Topic
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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