A New Normal: Integrating Lived Experience Into Scientific Data Syntheses

The integrative review: updated methodology

Whittemore, R., & Knafl, K. (2005) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2005.03621.x · Cited by 10,241 · see citing works

Mapping the impact of patient and public involvement on health and social care research: a systematic review

Brett, J., Staniszewska, S., Mockford, C., Herron‐Marx, S., Hughes, J., Tysall, C., & Suleman, R. (2014) · Health Expectations · doi:10.1111/j.1369-7625.2012.00795.x · Cited by 1,598 · see citing works

Recovery: the lived experience of rehabilitation

Deegan, P. E. (1988) · Psychosocial Rehabilitation Journal · doi:10.1037/h0099565 · Cited by 1,541 · see citing works

Research co-design in health: a rapid overview of reviews

Slattery, P., Saeri, A. K., & Bragge, P. (2020) · Health Research Policy and Systems · doi:10.1186/s12961-020-0528-9 · Cited by 1,313 · see citing works

Relative Citation Impact of Various Study Designs in the Health Sciences

Patsopoulos, N. A. (2005) · JAMA · doi:10.1001/jama.293.19.2362 · Cited by 498 · see citing works

Research waste is still a scandal—an essay by Paul Glasziou and Iain Chalmers

Glasziou, P., & Chalmers, I. (2018) · BMJ · doi:10.1136/bmj.k4645 · Cited by 294 · see citing works

Impact of patient involvement in mental health research: longitudinal study

Ennis, L., & Wykes, T. (2013) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.112.119818 · Cited by 284 · see citing works

Six ‘biases’ against patients and carers in evidence-based medicine

Greenhalgh, T., Snow, R., Ryan, S., Rees, S., & Salisbury, H. (2015) · BMC Medicine · doi:10.1186/s12916-015-0437-x · Cited by 259 · see citing works

Patient and Public Engagement in Integrated Knowledge Translation Research: Are we there yet?

Banner, D., Bains, M., Carroll, S. L., Kandola, D. K., Rolfe, D. E., Wong, C., & Graham, I. D. (2019) · Research Involvement and Engagement · doi:10.1186/s40900-019-0139-1 · Cited by 214 · see citing works

The lived experience of using psychiatric medication in the recovery process and a shared decision-making program to support it.

Deegan, P. E. (2007) · Psychiatric Rehabilitation Journal · doi:10.2975/31.1.2007.62.69 · Cited by 195 · see citing works

A review of recent publication trends from top publishing countries

Fontelo, P., & Liu, F. (2018) · Systematic Reviews · doi:10.1186/s13643-018-0819-1 · Cited by 186 · see citing works

Evaluating the “return on patient engagement initiatives” in medicines research and development: A literature review

Vat, L. E., Finlay, T., Jan Schuitmaker‐Warnaar, T., Fahy, N., Robinson, P., Boudes, M., Diaz, A., Ferrer, E., Hivert, V., Purman, G., et al. (2020) · Health Expectations · doi:10.1111/hex.12951 · Cited by 173 · see citing works

Involving patients in clinical research

Goodare, H., & Lockwood, S. (1999) · BMJ · doi:10.1136/bmj.319.7212.724 · Cited by 153 · see citing works

Implementation of a youth‐adult partnership model in youth mental health systems research: Challenges and successes

Heffernan, O. S., Herzog, T. M., Schiralli, J. E., Hawke, L. D., Chaim, G., & Henderson, J. L. (2017) · Health Expectations · doi:10.1111/hex.12554 · Cited by 148 · see citing works

Improving Acute Psychiatric Hospital Services According to Inpatient Experiences. A User-Led Piece of Research as a Means to Empowerment

Walsh, J., & Boyle, J. (2009) · Issues in Mental Health Nursing · doi:10.1080/01612840802500733 · Cited by 131 · see citing works

Effects of Client Interviewers on Client-Reported Satisfaction With Mental Health Services

Clark, C. C., Scott, E. A., Boydell, K., & Goering, P. N. (1999) · Psychiatric Services · doi:10.1176/ps.50.7.961 · Cited by 98 · see citing works

Patient and public involvement in reducing health and care research waste

Minogue, V., Cooke, M., Donskoy, A., Vicary, P., & Wells, B. (2018) · Research Involvement and Engagement · doi:10.1186/s40900-018-0087-1 · Cited by 93 · see citing works

Consumer Participation in Mental Health Research: Articulating a Model to Guide Practice

Happell, B., & Roper, C. (2007) · Australasian Psychiatry · doi:10.1080/10398560701320113 · Cited by 91 · see citing works

Beyond the service paradigm: The impact and implications of consumer/survivor initiatives.

Trainor, J. N., Shepherd, M., Boydell, K., Leff, A., & Crawford, E. S. (1997) · Psychiatric Rehabilitation Journal · doi:10.1037/h0095328 · Cited by 88 · see citing works

Decentering as a core component in the psychological treatment and prevention of youth anxiety and depression: a narrative review and insight report

Bennett, M. P., Knight, R., Patel, S., So, T., Dunning, D., Barnhofer, T., Smith, P., Kuyken, W., Ford, T., & Dalgleish, T. (2021) · Translational Psychiatry · doi:10.1038/s41398-021-01397-5 · Cited by 81 · see citing works

Engaging consumers in health research: a narrative review

Anderst, J., Conroy, K. M., Fairbrother, G., Hallam, L., McPhail, A., & Taylor, V. (2020) · Australian Health Review · doi:10.1071/ah19202 · Cited by 69 · see citing works

Functional, motor, and sensory assessment instruments upon nerve repair in adult hands: systematic review of psychometric properties

Fonseca, M. D. C. R., Elui, V. M. C., Lalone, E., da Silva, N. C., Barbosa, R. I., Marcolino, A. M., Ricci, F. P. F. M., & MacDermid, J. C. (2018) · Systematic Reviews · doi:10.1186/s13643-018-0836-0 · Cited by 54 · see citing works

Prevention and early intervention of depression in young people: an integrated narrative review of affective awareness and Ecological Momentary Assessment

Beames, J. R., Kikas, K., & Werner‐Seidler, A. (2021) · BMC Psychology · doi:10.1186/s40359-021-00614-6 · Cited by 50 · see citing works

The Experience of Mental Health Consumers as Researchers

Morrell-Bellai, T. L., & Boydell, K. (1994) · Canadian Journal of Community Mental Health · doi:10.7870/cjcmh-1994-0006 · Cited by 36 · see citing works

Enriching the Process of "Good Science" through Participation of People with Psychiatric Disabilities in All Aspects of Research.

Kim, K. M. (2005) · Psychiatric Rehabilitation Journal · doi:10.2975/28.2005.403.406 · Cited by 18 · see citing works

Queensland Framework for the Development of Mental Health Lived Experience Workforce

Byrne, L., Wang, Y., Roennfeldt, H., Chapman, M. A., & Darwin, L. (2024) · RMIT Research Repository (RMIT University Library) · doi:10.25439/rmt.27398121 · Cited by 11 · see citing works

The effects of neighbourhood social cohesion on preventing depression and anxiety among adolescents and young adults: rapid review

Breedvelt, J., Tiemeier, H. W., Sharples, E., Galea, S., Niedzwiedz, C. L., Elliott, I., & Bockting, C. (2022) · BJPsych Open · doi:10.1192/bjo.2022.57 · Cited by 104 · see citing works

Understanding the identity of lived experience researchers and providers: a conceptual framework and systematic narrative review

Gupta, V., Eames, C., Golding, L., Greenhill, B., Qi, R., Allan, S., Bryant, A., & Fisher, P. (2023) · Research Involvement and Engagement · doi:10.1186/s40900-023-00439-0 · Cited by 98 · see citing works

A Call to Action: Using and Extending Human-Centered Design Methodologies to Improve Mental and Behavioral Health Equity

Stiles‐Shields, C., Cummings, C., Montague, E. N. H., Plevinsky, J. M., Psihogios, A. M., & Williams, K. D. A. (2022) · Frontiers in Digital Health · doi:10.3389/fdgth.2022.848052 · Cited by 79 · see citing works

Ethical challenges in contemporary psychiatry: an overview and an appraisal of possible strategies and research needs

Galderisi, S., Appelbaum, P. S., Gill, N., Gooding, P., Herrman, H., Melillo, A., Myrick, K., Pathare, S., Savage, M., Szmukler, G., et al. (2024) · World Psychiatry · doi:10.1002/wps.21230 · Cited by 76 · see citing works

Interventions for Young Children’s Mental Health: A Review of Reviews

Hudson, J. L., Minihan, S., Chen, W., Carl, T., Fu, M., Tully, L. A., Kangas, M., Rosewell, L., McDermott, E. A., Wang, Y., et al. (2023) · Clinical Child and Family Psychology Review · doi:10.1007/s10567-023-00443-6 · Cited by 40 · see citing works

The “vicious circle” of chronic cough: the patient experience – qualitative synthesis

Brindle, K., Morice, A. H., Carter, N., Sykes, D. L., Zhang, M., & Hilton, A. (2023) · ERJ Open Research · doi:10.1183/23120541.00094-2023 · Cited by 22 · see citing works

Effectiveness of Social Inclusion Interventions for Anxiety and Depression among Adolescents: A Systematic Review

Hunt, X., Shakespeare, T., Vilyte, G., Meléndez‐Torres, G. J., Henry, J., Bradshaw, M., Naidoo, S., Mbuyamba, R., Aljassem, S., Suubi, E., et al. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20031895 · Cited by 19 · see citing works

Self-reported COVID-19 vaccination acceptance and hesitancy among autistic adults

Shea, L., Becker, A., Lee, B. K., Miller, K. H. K., Cooper, D., Anderson, K. A., Salzer, M. S., & Vanness, D. J. (2022) · Vaccine · doi:10.1016/j.vaccine.2022.04.060 · Cited by 17 · see citing works

Enabling data sharing and utilization for African population health data using OHDSI tools with an OMOP-common data model

Kiwuwa-Muyingo, S., Todd, J., Bhattacharjee, T., Taylor, A., & Greenfield, J. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1116682 · Cited by 17 · see citing works

Making sense of cranial osteopathy: An interpretative phenomenological analysis

Banton, A., Vogel, S. K., & Lee‐Treweek, G. (2023) · International journal of osteopathic medicine · doi:10.1016/j.ijosm.2023.100673 · Cited by 16 · see citing works

Lived experiences of children who stutter in their own voices

Kerrigan, J. S., & Brundage, S. B. (2024) · Journal of Communication Disorders · doi:10.1016/j.jcomdis.2024.106468 · Cited by 16 · see citing works

A scoping review investigating the use of exposure for the treatment and targeted prevention of anxiety and related disorders in young people

Teunisse, A. K., Pembroke, L., O’Gradey‐Lee, M., Sy, M., Rapee, R. M., Wuthrich, V. M., Creswell, C., & Hudson, J. L. (2022) · JCPP Advances · doi:10.1002/jcv2.12080 · Cited by 15 · see citing works

The importance of including occupational therapists as part of the multidisciplinary team in the management of eating disorders: a narrative review incorporating lived experience

Mack, R. A., Stanton, C. E., & Carney, M. R. (2023) · Journal of Eating Disorders · doi:10.1186/s40337-023-00763-6 · Cited by 13 · see citing works

Raising awareness of anti-fat stigma in healthcare through lived experience education: a continuing professional development pilot study

Heidebrecht, C., Fierheller, D., Martel, S. L., Andrews, A., Hollahan, A., Griffin, L., Meerai, S., Lock, R., Nabavian, H., D’Silva, C., et al. (2024) · BMC Medical Education · doi:10.1186/s12909-023-04889-8 · Cited by 12 · see citing works

Kailo: a systemic approach to addressing the social determinants of young people’s mental health and wellbeing at the local level

Hobbs, T., de Lima, E. S., Bevington, D., Preece, C., Allen, K., Barna, P., Berry, V., Booker, T. L., Davies, K., Davis, G. D., et al. (2023) · Wellcome Open Research · doi:10.12688/wellcomeopenres.20095.1 · Cited by 12 · see citing works

Experiences of geophagy during pregnancy among African migrant women in London: Implications for public health interventions

Madziva, C., Chinouya, M. J., & Njoroge, K. M. (2024) · SSM - Qualitative Research in Health · doi:10.1016/j.ssmqr.2024.100431 · Cited by 11 · see citing works

The transformative potential of citizen science for mental health

Slade, M., Rennick‐Egglestone, S., & Todowede, O. O. (2024) · The Lancet Psychiatry · doi:10.1016/s2215-0366(24)00008-7 · Cited by 10 · see citing works

Development of a Scale to Measure Planned Behavior in Inclusive Science Communication: Validity Evidence in Undergraduate STEM Students

Worthington, D., Graham, B., Gilliard, H., & Kelp, N. (2024) · CBE—Life Sciences Education · doi:10.1187/cbe.24-01-0012 · Cited by 9 · see citing works

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

Brogden, J., de Haan, Z., Gorban, C., Hockey, S. J., Hutcheon, A., Iorfino, F., Song, Y. J. C., Scott, E. M., Hickie, I. B., & McKenna, S. (2024) · Journal of Medical Internet Research · doi:10.2196/55441 · Cited by 7 · see citing works

Participatory approaches for developing a practical handbook integrating health information for supporting individuals with mild cognitive impairment and their families

Kuroda, Y., Goto, A., Sugimoto, T., Fujita, K., Uchida, K., Matsumoto, N., Shimada, H., Ohtsuka, R. Y., Yamada, M., Fujiwara, Y., et al. (2023) · Health Expectations · doi:10.1111/hex.13870 · Cited by 8 · see citing works

Identifying the priorities for supervision by lived experience researchers: a Q sort study

Gupta, V., Eames, C., Bryant, A., Greenhill, B., Golding, L., Day, J. M., & Fisher, P. (2024) · Research Involvement and Engagement · doi:10.1186/s40900-024-00596-w · Cited by 7 · see citing works

Towards Experience-Centered AI: A Framework for Integrating Lived Experience in Design and Development

Gautam, S., Chandra, M., De, A., Chakravorti, T., Malik, G., & De Choudhury, M. (2025) · arXiv · doi:10.48550/arxiv.2508.06849 · Cited by 7 · see citing works

The health effects of vaping and e-cigarettes: consensus recommendations

Kouzoukas, E., Navas, C., Zawertailo, L. A., Fougere, C., Bacon, S., Chadi, N., Evans, W. K., McNeill, A. D., Melamed, O. C., Moraes, T. J., et al. (2025) · International Journal of Drug Policy · doi:10.1016/j.drugpo.2025.105117 · Cited by 6 · see citing works

Where Is the Parent’s Voice? A Meta-Synthesis of Parental Experiences of Video Feedback Parenting Interventions

Wan, M. W., Johal, T. K., & Wittkowski, A. (2025) · Clinical Child and Family Psychology Review · doi:10.1007/s10567-025-00514-w · Cited by 6 · see citing works

Layered Methodologies: Innovating Multimodal Qualitative Research in Liver Transplantation

Wong-Mersereau, C., Best, F. A., Tarachansky, L., Sukhdev, S., Bunch, M. J., Frankel, A. V., Necyk, B., Fritsch, K., & Berkhout, S. (2023) · Journal of Liver Transplantation · doi:10.1016/j.liver.2023.100183 · Cited by 5 · see citing works

Suicide and suicidality surveillance in military populations: a scoping review

Hodges, S. A., Ramage, A., Meurk, C., & Heffernan, E. (2025) · Journal of Public Health · doi:10.1093/pubmed/fdaf026 · Cited by 5 · see citing works

Exploring the world for longitudinal datasets: data resources for transformative mental health research

Arseneault, L., Bryan, B. T., Canning, T., Okundi, M., Stephens, A., Triantafillopoulou, E., Yu, D., Bolivar, M., Mansoori, P., Milligan, L., et al. (2025) · International Journal of Epidemiology · doi:10.1093/ije/dyaf128 · Cited by 6 · see citing works

The engagement of people with lived experiences in substance use research

Kim, C. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1611836 · Cited by 5 · see citing works

Listening Sessions to Shape the Innovative NIH ComPASS Common Fund Program to Advance Health Equity

Brown, A. G. M., Winchester, D. A., Bynum, S. A., Amolegbe, S. M., Ferguson, Y. O., Floyd, M. F., Lawhorn, C., Lê, J. T., Lloyd, J. J., Oh, A., et al. (2024) · American Journal of Public Health · doi:10.2105/ajph.2024.307656 · Cited by 5 · see citing works

Bridging Science and Hope: integrating and Communicating Lived experience in Accelerating Medicines Partnership® Schizophrenia Program

Asgari-Targhi, A., Yao, B., Brown, L., Garcia, S., Nagendra, A., Chin, K., Billah, T., Penzel, N., John, O., Prunier, N., et al. (2025) · Schizophrenia · doi:10.1038/s41537-025-00572-7 · Cited by 5 · see citing works

Beyond black and white: A framework for identifying grey literature in palliative care research

Damarell, R., Nicholls, S., Tyndall, J., & Phelan, C. (2025) · Palliative Medicine · doi:10.1177/02692163251381487 · Cited by 4 · see citing works

The impacts of antipsychotic medications on eating-related outcomes: A mixed methods systematic review

Alkholy, R., Lovell, K., Bee, P., Pedley, R., Brooks, H. L., Drake, R., Chitsabesan, P., Bhutta, A., Brown, A., Jenkins, R., et al. (2025) · PLoS ONE · doi:10.1371/journal.pone.0308037 · Cited by 4 · see citing works

Nurturing transformative participation: A participatory realist review of mental health interventions in low resource settings

Burgess, R. A., Jennings, H. M., Mathias, K. R., Gumbonzvanda, F., Gumbonzvanda, N., Gupta, G., Heap, C., Jain, S., Mahat, P., Maharjan, R., et al. (2025) · SSM - Mental Health · doi:10.1016/j.ssmmh.2025.100416 · Cited by 4 · see citing works

Engaging community to co-design learning health systems: lessons from storytelling and Design Jam, a community case study from British Columbia, Canada

Lin, M. C.-M., Vàsàrhelyi, K., Wong, K. L. Y., Furuichi, H., Mann, J., Berndt, A., Lee, K., Benning, L., & Hung, L. (2025) · Frontiers in Health Services · doi:10.3389/frhs.2025.1620659 · Cited by 4 · see citing works

‘For the love of God, just refer me’: a co-produced qualitative study of the experiences of people with Tourette Syndrome and tic disorders accessing healthcare services in the UK

Babbage, C. M., Davies, E. B., Jones, D. P., Stevenson, P., Salvage, J., Anderson, S. M., McNally, E., & Groom, M. J. (2025) · BMJ Open · doi:10.1136/bmjopen-2024-098306 · Cited by 4 · see citing works

The impact of psychiatric facility design on reducing aggressive behaviours in an adult population: a narrative literature review

Grynevych, A., Hew, A., & Olver, J. S. (2024) · Australasian Psychiatry · doi:10.1177/10398562241278570 · Cited by 4 · see citing works

Radical Healing Approaches For Black Maternal Health: A Critical Review

Cooper, H. M., Brown, J. R., & Gil-Rivas, V. (2025) · Journal of Racial and Ethnic Health Disparities · doi:10.1007/s40615-025-02639-8 · Cited by 3 · see citing works

Enhancing Parent Support During Emergency Department Visits for Suicidal Adolescents

Rheinberger, D., Shand, F., Briggs, N., Boydell, K., & McGillivray, L. (2025) · International Journal of Mental Health Nursing · doi:10.1111/inm.70131 · Cited by 4 · see citing works

An adaptive, youth-centred co-design methodology: place-based co-design centring youth and community participation

de Lima, E. S., Potter, K., Preece, C., Rehill, N., Davis, G. D., Bulmer, S., Allen, K., March, A., Hobbs, T., & Fonagy, P. (2026) · Research Involvement and Engagement · doi:10.1186/s40900-025-00833-w · Cited by 4 · see citing works

Cross‐sector collaboration practitioners weigh‐in on this special issue

Ellis, W. R., Rawlinson, K. C., Milstein, B., Erickson, J., Creegan, A., Lanford, D., & Minyard, K. J. (2023) · Health Services Research · doi:10.1111/1475-6773.14267 · Cited by 3 · see citing works

A web-based intervention to support the mental well-being of sexual and gender minoritised adolescents: Formative evaluation of Oneself

Lucassen, M. F. G., Samra, R., Brown, K., Rimes, K. A., García, A. N., & Wallace, L. M. (2025) · Digital Health · doi:10.1177/20552076251321057 · Cited by 3 · see citing works

A Qualitative Approach to Students’ Experiences of Character Strengths

Boyle, S. L., Martow, J. H., Thornton, E. M., & Lumley, M. N. (2024) · International Journal of Applied Positive Psychology · doi:10.1007/s41042-024-00179-w · Cited by 3 · see citing works

“Your heart’s just dismantling’: The separation of siblings through the care system and custody

Deacon, K., & Nugent, B. (2025) · Children and Youth Services Review · doi:10.1016/j.childyouth.2025.108454 · Cited by 2 · see citing works

Radiographers’ knowledge and attitudes toward people who are gender and sexually diverse (GSD)

Ta, J., Jia, S. S., Seyer, B., & McInerney, J. (2025) · Radiography · doi:10.1016/j.radi.2025.103096 · Cited by 2 · see citing works

What Role Does Emotional Granularity Play in Adolescent Depression and Anxiety? A Scoping Review

Dunning, D. L., Wright, G., Bennett, M., Knight, R., Nook, E. C., & Dalgleish, T. (2025) · Journal of Adolescence · doi:10.1002/jad.70028 · Cited by 6 · see citing works

Centring the Self in Participatory Research: An Autoethnography-Led, Mixed-Method Approach to Research for Those Conducting Collaborative Research With Hard-To-Reach Groups

Markey, P. (2025) · International Journal of Qualitative Methods · doi:10.1177/16094069251354901 · Cited by 2 · see citing works

An assessment of the informativeness of clinical trials in digital mental health

O’Dea, B., Rooke, S. E., Gordon, E.-R., Lyons, F. L., Vilus, B., Paravastu, N., & Batterham, P. J. (2025) · npj Mental Health Research · doi:10.1038/s44184-025-00177-z · Cited by 3 · see citing works

Methods of Engaging Interest‐Holders in Healthcare Evidence Syntheses: A Scoping Review

Todhunter‐Brown, A., Petkovic, J., Chang, C., Griebler, U., Hannigan, A., Hilgart, J., Hussain, B., Jull, J., Kien, C., Ledinger, D., et al. (2026) · Cochrane Evidence Synthesis and Methods · doi:10.1002/cesm.70066 · Cited by 3 · see citing works

“There’s room to do more”: a mixed-methods study of the Temporary Assistance for Needy Families (TANF) diversion program and intimate partner violence in Georgia

Jahangir, T., Dahn, C., Devakottai, R., Livingston, M. D., & Woods-Jaeger, B. A. (2024) · Frontiers in Public Health · doi:10.3389/fpubh.2024.1326467 · Cited by 3 · see citing works

The Coproduced Youth Priorities Project: Australian Youth Priorities for Mental Health and Substance Use Prevention Research

Ross, K., Houston, J., Barrett, E. L., Duong, F., Dearle, T., Ravindra, S., Ou, C., Rowlinson, K., Bower, M., Birrell, L., et al. (2025) · Health Expectations · doi:10.1111/hex.70274 · Cited by 2 · see citing works

Community Asset Mapping: Promoting Inclusion and Equity and Countering Stigma in Applied Substance Use Research

McGovern, W., Shrimpton, L., Alderson, H., Hall, K., Lhussier, M., Sattar, Z., Watson, P., & McGovern, R. (2025) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph22101498 · Cited by 2 · see citing works

Recruitment Strategies to Prevent Fraudulent Virtual Enrollment While Respecting Privacy in Vulnerable Populations

Burwell, N., Mbakop, L. C., Branch, K., Lowenthal, E. D., Clark, R. R. S., & Nightingale, K. J. (2025) · Qualitative Health Research · doi:10.1177/10497323251378095 · Cited by 2 · see citing works

Arts, cultural engagement and health inequalities: critical reflections on the UK Creative Health Review (2023)

Clift, S. M., McCrary, M., Kaasgaard, M., Kreutz, G., Musgrave, G., Danso, A., Bamford, J. S., Pelowski, M. J., Davies, C., Schurig, E., et al. (2026) · Cultural Trends · doi:10.1080/09548963.2026.2676056 · Cited by 3 · see citing works

Recovered or Not Recovered? A First Person Narrative Case for Non‐Abstinent Recovery

Tomlinson, P. (2024) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.13122 · Cited by 1 · see citing works

A commentary on forging a path for CHANGE: culturally focused HIV training for the next generation in pursuit of equity

Jaramillo, J., Forney, D. J., Casanova, F. O., Shahid, N. N., Boga, D. J., Reyes, N., Schmidt, R. D., Dale, S. K., Feaster, D. J., & Horigian, V. E. (2024) · Critical Public Health · doi:10.1080/09581596.2024.2434472 · Cited by 1 · see citing works

Clay ingestion adverse health experiences during pregnancy among African women in London

Madziva, C., Njoroge, K. M., & Chinouya, M. J. (2025) · British Journal of Midwifery · doi:10.12968/bjom.2024.0094 · Cited by 1 · see citing works

Hot-Spots, Diffractions, and Interstellar Poetry: Self-Directed Violence Research Meets Postqualitative Inquiry

McMain, E. M., & Lundeen, L. A. (2025) · Qualitative Inquiry · doi:10.1177/10778004251324477 · Cited by 1 · see citing works

Lived experience inclusion in psychology education: a survey of Australian tertiary institutions

Johnston, K. L., & Gullifer, J. (2025) · Australian Journal of Psychology · doi:10.1080/00049530.2025.2511882 · Cited by 1 · see citing works

Language and communication in children with complex tourette syndrome: Insights from five mixed methods case studies

Feehan, A., Pritchard, L., Colozzo, P., Smith, V., & Charest, M. (2025) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2025.2529930 · Cited by 1 · see citing works

An Empirically Based, Recovery‐Orientated Framework for Safety Planning Interventions for Suicide Prevention: An Integrative Literature Review and Critical Meta‐Autoethnographic Synthesis

Green, A. K., Simpson, A., Tzouvara, V., Hackmann, C., Klotz, E., & Leamy, M. C. (2026) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.70202 · Cited by 1 · see citing works

Perspectives on the lingering effects of COVID-19 on the employment and quality of life of people with spinal cord injuries: Results of an inclusive community conversation

Lobianco, A., Adams, C., & Fitzpatrick, C. (2025) · Journal of Vocational Rehabilitation · doi:10.1177/10522263241310391 · Cited by 1 · see citing works

Beyond Barriers: Illuminating Pathways to Effective Self‐Harm Treatment for Diverse Young People

Lindquist, E. G., Woodward, D. W., Oh, L., & West, A. E. (2025) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.13178 · Cited by 1 · see citing works

Understanding the identity of lived experience researchers and providers: A conceptual framework and systematic narrative reviewPreprint

Gupta, V., Golding, L., Eames, C., Greenhill, B., Qi, R., Allan, S., Bryant, A., & Fisher, P. (2022) · doi:10.31234/osf.io/gjh2c · Cited by 1 · see citing works

Co-designing strategies to support children and young people’s mental health in Newham and Northern DevonPreprint

de Lima, E. S., Potter, K., Preece, C., Rehill, N., Bulmer, S., Allen, K., March, A., Hobbs, T., & Fonagy, P. (2024) · Research Square · doi:10.21203/rs.3.rs-4901621/v1 · Cited by 1 · see citing works

The societal-semantic dimension of mental disease: A computational-qualitative approachPreprint

Gladwin, T. E. (2023) · doi:10.31234/osf.io/zbyrk

Identifying the priorities for supervision by lived experience researchers: A Q sort studyPreprint

Gupta, V., Eames, C., Bryant, A., Greenhill, B., Golding, L., Day, J. M., & Fisher, P. (2023) · Research Square · doi:10.21203/rs.3.rs-3719856/v1

A perinatális gyász hatása a családban élő testvérekre

Yvette, B. Á. (2024) · doi:10.15170/pte.2024.003

Living with Family Violence and The Great Escape

Zentveld, E. (2024) · Springer eBooks · doi:10.1007/978-981-97-0033-2_5

Identifying the Gaps in the Service Quality of the University of Baguio Through the Lens of the Cardinals

-, R. B. C. (2024) · International Journal For Multidisciplinary Research · doi:10.36948/ijfmr.2024.v06i02.16915

Three things we learned along the way: lessons for training in psychiatric epidemiology

Lincoln, A. K., Jones, N., & Koenen, K. C. (2024) · American Journal of Epidemiology · doi:10.1093/aje/kwae123

Preventing White supremacy: an applied conceptualization for the helping professions

Grishow-Schade, L. (2024) · Discover Global Society · doi:10.1007/s44282-024-00084-2

Experiential Equity: Reconstructing Cities Through Intersecting Theories

Mazumder, R. (2024) · Springer eBooks · doi:10.1007/978-3-031-64699-7_16

‘ We are all disabled ’: one British Pakistani man’s struggle navigating his hybrid identities

Duda‐Mikulin, E. A., & Głowacka, M. (2025) · Social Identities · doi:10.1080/13504630.2025.2503350

Women in the midst: an intersectionality study of Canadian climate change, poverty and health media reporting

Amoah, Y. S.-A., Lacap, L. M., Tetzlaff, E. J., Bezgrebelna, M., Fletcher, A. J., Richards, L., Ahmadi, Z., Kenny, G. P., Farooq, M., Noor, J., et al. (2025) · Regional Environmental Change · doi:10.1007/s10113-025-02415-8

Current Levels of Knowledge and the Impact of Psychoeducational Interventions on Understandings of Paediatric OCD Among School Staff: A Systematic Narrative Review

Colbert, E. J., Powell, L., Weighall, A., & Miller, J. G. (2025) · Neurodiversity · doi:10.1177/27546330251348341

Exploring the approaches and impacts of education interventions for transgender and gender diverse health on pre-registration healthcare students: A scoping review

Jones, M., Bennett, C., Bauer, J. D., McCartan, J., & Dart, J. (2025) · Nurse Education Today · doi:10.1016/j.nedt.2025.106803

Courage, hope, and transformation: Patient experiences of web-based, therapist delivered eye movement desensitization and reprocessing for suicidal ideation

Yap, S., Bal, M., Youakim, M., Aborawi, A., Pinto, G. D., Samways, K., Beck, A. J., Bright, K. S., Brémault‐Phillips, S., Greenshaw, A. J., et al. (2025) · PLOS mental health. · doi:10.1371/journal.pmen.0000373

Evaluating the role of Clinical Associate Psychologists within mental health teams across Avon and Wiltshire Mental Health Partnership

Baker, E., & Richardson, M. (2025) · Clinical Psychology Forum · doi:10.53841/bpscpf.2025.1.387.13

Sustainability in rehabilitation systems of care and practices

Taylor, A. L., & Fogarty, A. E. C. (2025) · Elsevier eBooks · doi:10.1016/b978-0-443-31568-8.00044-1

Co-designing suicide prevention research with mothers of suicidal adolescents – applying McKercher’s Model of Care

Rheinberger, D., Boydell, K., Armstrong, S. O., Lessing, J., Pollard, S. A., Jacob, I., McGillivray, L., Elder, E., & Shand, F. (2026) · Research Involvement and Engagement · doi:10.1186/s40900-026-00863-y

Exploring the Intersection of Rare Diseases and Mental Health Within the Diagnostic Odyssey: A Narrative Review and Thematic Synthesis

Wu, E., Isobel, S., & Beckett, P. (2026) · Nursing Open · doi:10.1002/nop2.70488

“Fragments that define my shape”: a qualitative study of self-identity on social media after an acquired brain injury

Lam, M. T. V., Brunner, M., & Talbot, C. V. (2026) · Disability and Rehabilitation · doi:10.1080/09638288.2026.2651302

Sitting in the Soup – Negotiating the Challenges of Being an Insider in Qualitative Health Research

Lal, T. J. (2026) · Qualitative Health Research · doi:10.1177/10497323261439621

The help-seeking experiences of adolescents and youth with endometriosis: a systematic review and thematic synthesis

Meagher, S., Frayne, J. S., Renshaw-Todd, J., & Ohan, J. L. (2026) · BMC Women s Health · doi:10.1186/s12905-026-04566-0

Feasibility, Usability, and Acceptability of an Adaptive Mobile Health Medication Adherence Intervention for Youth: Iterative Mixed Methods Human-Centered Design Study

Sayegh, C. S., Wu, S., Lopez, S., Dews, A. A., Fleming, J., Cortez, D., Portillo, J., Menéndez, T., Belzer, M. E., & West, A. E. (2026) · JMIR Formative Research · doi:10.2196/87124

The system wasn’t built for her: an integrative review of women’s experiences in psychiatric and forensic units

Lessard, A., Fettous, I., Cassivi, C., Hudson, É., de la Montérégie, C. F. E. P. D. C. D. D. D. D., Désilets, M., & Goulet, M. (2026) · Frontiers in Public Health · doi:10.3389/fpubh.2026.1810224

Getting fairer over time? Assessing changes in health technology funding processes using the accountability for reasonableness (A4R) framework

Li, J. J., Sellars, M., Coast, J., Carter, S. M., Howard, K., Mortimer, D., & Lancsar, E. (2026) · The European Journal of Health Economics · doi:10.1007/s10198-026-01946-z

BNIM in Participatory AI Design: Centering Minoritized Lived Experiences in Healthcare

Portegies, T. C., Harbers, M., Sileno, G., Willemsen, L. M., & Ghebreab, S. (2026) · ACM Conference on Fairness, Accountability, and Transparency (FAccT) · doi:10.1145/3805689.3812390

Prioritizing treatment targets for youths with disruptive behaviours and callous-unemotional traits: a modified Delphi study

Diep, J., Chen, E., & Lui, J. H. L. (2026) · BMC Psychology · doi:10.1186/s40359-026-05045-9

The Psychological Impact of Caring for a Parent With Cancer on Adult Children of South Asian Heritage: A Reflexive Thematic Analysis

Fagan, C., Chapman, E., & Latchford, G. J. (2026) · Psycho-Oncology · doi:10.1002/pon.70557

A qualitative study exploring early experiences of misophonia through firsthand perspectives

Gates, E. C., Gabbidon, A., Heppes, G. A., & Rosenthal, M. Z. (2026) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2026.1852664

Improving equity of aphasia care for stroke survivors who require an interpreter

Mellahn, K., Larkman, C. S., Siyambalapitiya, S., Lanyon, L., O’Halloran, R., Lakhani, A., & Rose, M. L. (2026) · Aphasiology · doi:10.1080/02687038.2026.2726935

“Who Would Understand?” The Experience of Paediatric Stroke From the Perspective of Ethnically Minoritised Young Adults in the United Kingdom: An Interpretative Phenomenological Analysis

Bhatia, R., & Wallace, V. (2026) · Qualitative Health Research · doi:10.1177/10497323261475874

How, why, for whom, and in what contexts organisational and team dynamics shape, and are shaped by, service user researchers in higher education mental health research centres: a realist review protocol

Bullon, A. A., Lobban, F. A., & Harding, A. J. E. (2026) · Research Involvement and Engagement · doi:10.1186/s40900-026-00980-8

Triple vulnerability: autoethnographic reflections on my trajectory as a lived experience researcher into mental health recovery

Tomlinson, P. D. (2026) · Drugs Education Prevention and Policy · doi:10.1080/09687637.2026.2737437

Pushing Forward: The Dialectical Experiences of APIDA Psychologists in Predominantly White Counseling Settings

Fossett, S. (2026) · doi:10.56902/etdcrp.2026.152

‘For the First Time, I Felt Seen’: Understanding What Helps Autistic Emerging Adults Feel Safe and Included on Social Media

Dawson, A., Alipan, A., & Flower, R. L. (2026) · Autism · doi:10.1177/13623613261489306

On the research on youth mental health: A scientometric analysis across mental disorders

Buglio, G. L., Iyer, S. N., Husain, M. O., Boldrini, T., Chen, C., Corbeil, O., Curtis, L., de Geus, G., Katyal, S., Lingiardi, V., et al. (2026) · European Neuropsychopharmacology · doi:10.1016/j.euroneuro.2026.113884

Reframing the lived experience of persistent dizziness: insights from active inference

Broberg, M. A., Thacker, M., Friston, K. J., & Esteves, J. E. (2026) · Frontiers in Psychology · doi:10.3389/fpsyg.2026.1867836

Experiences of Suicide Prevention Interventions and Supports for Autistic Adults: Perspectives of Autistic Adults, Family Members and Clinicians

Russell, A. C., Cremen, C., Kirby, A. V., & Melia, R. (2026) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-026-07573-0

Co-creating science: embedding lived experience throughout the research processPreprint

Dinius, C. J. (2023) · OSF Preprints (OSF Preprints)

Systematic review and Narrative synthesis. Developing a conceptual framework for the identity of lived experience researchers and providers in mental health, education and researchPreprint

Gupta, V. (2021) · doi:10.17605/osf.io/f4h8p

Metasyntheses of nurses’ and physicians’ experiences:The challenge of extracting data from studies with multiple participating health care providers

Fegran, L., Ludvigsen, M. S., Uhrenfeldt, L., Aagaard, H., Westergren, T., & Hall, E. O. C. (2016)

Beyond tokenism: the influence of lived experience and its future possibilities in mental health science

Gatera, G., & Singh, S. (2023) · Nature Mental Health · doi:10.1038/s44220-023-00027-x · Cited by 12 · see citing works

Additional file 1 of Engagement of people with lived experience in studies published in high-impact psychiatry journals: meta-research review

Adams, C., Nassar, E.-L., Nordlund, J., Hu, S., Rice, D. B., Cook, V., Boruff, J. T., & Thombs, B. D. (2024) · Figshare · doi:10.6084/m9.figshare.27627614