Cited by 582Intergenerational Family Dynamics and CaregivingNursing care and researchAging, Elder Care, and Social Issues

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

Poulshock, S. W., Deimling, G. T.·1984·Journal of Gerontology

DOI 10.1093/geronj/39.2.230

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Abstract

This paper examines the concept of caregiving burden and urges a multidimensional perspective in which burden is viewed as a mediating force between the elders' impairments and the impact that caregiving has on the lives of caregivers and their families. The analysis underscores the need to apply the concept of burden to subjective interpretations by caregivers of the elders' different kinds of impairments including impairment of activities of daily living, cognitive incapacity, disruptive behavior, and lack of sociability. The analysis also demonstrates that a variety of less subjective effects of caregiving are important and measureable. These issues are elaborated and illustrated using data and findings from the Benjamin Rose Institute's survey of 614 families in which impaired elders resided with and were provided care by family members.

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Gupta, R. (1999) · Research on Social Work Practice · doi:10.1177/104973159900900406 · Cited by 20
“The occurrence of burden among caregivers of the elderly in the United States is a well-documented American social phenomenon (Lawton, Rajagopal, Brody, & Kleban, 1992; Poulshock & Deimling, 1984).”
BackgroundMethod
Predictors of Discrepancy Between Care Recipients With Mild-to-Moderate Dementia and Their Caregivers on Perceptions of the Care Recipients’ Quality of Life
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MethodInfluential
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Background
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Jenkins, T. S., Parham, I. A., & Jenkins, L. R. (1985) · Journal of Applied Gerontology · doi:10.1177/073346488500400206 · Cited by 15
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Background
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BackgroundMethodResultInfluential
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Method
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“To measure social participation, the authors developed the Social Life Restriction Scale (modified from Poulshock & Deimling, 1984) which included recreation and leisure participation.”
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“…que d'autres avant (Matthews, 1988; Montgomery, 1989; Montgomery, Gonyea, & Hooyman, 1985; Montgomery, Stull, & Borgatta, 1985; Novak & Guest, 1989; Poulshock & Deimling, 1984; Vitaliano, Young, & Russo, 1991) demontrent l'interet des chercheurs a faire du fardeau un concept: "scientifically…”
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Long Term Care in Health Services
Brodsky, J., & Clarfield, A. M. (2008) · Elsevier eBooks · doi:10.1016/b978-012373960-5.00515-3 · Cited by 9
Factors associated with higher caregiver burden among informal caregivers of Parkinson’s disease: A systematic review
Wu, J., Liu, M., Chen, M., Xue, J., Zou, Y., Deng, Z., Zhao, S., & Yang, X. (2025) · Medicine · doi:10.1097/md.0000000000041275 · Cited by 9
“Poulshock and Deimling [11] argued that caregiver burden arises from the psychological, physical, and social dimensions of the difficulties that caregivers face as a result of their caregiving activities.”
Stress, life satisfaction and service satisfaction of elderly and elderly family using long-term care service
김용희, & 안정신 (2012) · Korean Journal of Gerontological Social Welfare · doi:10.21194/kjgsw..57.201209.161 · Cited by 8
“Tipping point” concept analysis in the family caregiving context
Crist, J. D., Liu, J., Shea, K. D., Peterson, R. L., Martin‐Plank, L., Lacasse, C. L., May, J. T., Wyles, C. L., Williams, D. K., Slebodnik, M., et al. (2019) · Nursing Forum · doi:10.1111/nuf.12373 · Cited by 10
Investigating Caregiver Distress with the Parental Bonding Instrument (PBI)
Daire, A. P. (2004) · Dementia · doi:10.1177/1471301204039326 · Cited by 9
“Other measures used in caregiver research and practice include Caregiver Stress Scale (Pearlin, Mullan, Semple, & Skaff, 1990), Poulshock and Deimling Scale (Poulshock & Deimling, 1984), and the Screen for Caregiver Burden (Vitaliano, Russo, Young, & Becker, 1991) to present a few.”
Method
Lower utilization of primary, specialty and preventive care services by individuals residing with persons in poor health
Chaix, B., Navaie‐Waliser, M., Viboud, C. G., Parizot, I., & Chauvin, P. (2006) · European Journal of Public Health · doi:10.1093/eurpub/cki094 · Cited by 8

Authors: Poulshock, S. W., & Deimling, G. T.
Affiliations: Benjamin Rose Institute on Aging (US)
Case Comprehensive Cancer Center (US)
ORCID: Deimling, G. T.
Venue: Journal of Gerontology
Publisher: Oxford University Press (OUP)
Published: 1984-03-01
Volume: 39
Issue: 2
Pages: 230-239
ISSN: 0022-1422 (ISSN-L)
DOI: 10.1093/geronj/39.2.230
OpenAlex: W2016101351
Cited by: 582
References: 0
Citations by year: 2026: 3 · 2025: 5 · 2024: 4 · 2023: 5 · 2022: 7 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 8 · 2017: 9 · 2016: 12 · 2015: 6 · 2014: 12 · 2013: 13 · 2012: 9
FWCI: 50.47
Type: journal article
Language: en
Open access: closed
Locations: Journal of Gerontology (publishedVersion)
PubMed (publishedVersion)
Topics: Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
Keywords: caregiver burden, family caregivers, older adults, activities of daily living, cognitive impairment, disruptive behavior, sociability, family caregiving
MeSH terms: Activities of Daily Living, Aged, Attitude, Behavior, Cognition, Family, Home Nursing, Humans

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

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