Cited by 582Intergenerational Family Dynamics and CaregivingNursing care and researchAging, Elder Care, and Social Issues

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

Poulshock, S. W., Deimling, G. T.·1984·Journal of Gerontology

DOI 10.1093/geronj/39.2.230

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Abstract

This paper examines the concept of caregiving burden and urges a multidimensional perspective in which burden is viewed as a mediating force between the elders' impairments and the impact that caregiving has on the lives of caregivers and their families. The analysis underscores the need to apply the concept of burden to subjective interpretations by caregivers of the elders' different kinds of impairments including impairment of activities of daily living, cognitive incapacity, disruptive behavior, and lack of sociability. The analysis also demonstrates that a variety of less subjective effects of caregiving are important and measureable. These issues are elaborated and illustrated using data and findings from the Benjamin Rose Institute's survey of 614 families in which impaired elders resided with and were provided care by family members.

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Authors: Poulshock, S. W., & Deimling, G. T.
Affiliations: Benjamin Rose Institute on Aging (US)
Case Comprehensive Cancer Center (US)
ORCID: Deimling, G. T.
Venue: Journal of Gerontology
Publisher: Oxford University Press (OUP)
Published: 1984-03-01
Volume: 39
Issue: 2
Pages: 230-239
ISSN: 0022-1422 (ISSN-L)
DOI: 10.1093/geronj/39.2.230
OpenAlex: W2016101351
Cited by: 582
References: 0
Citations by year: 2026: 3 · 2025: 5 · 2024: 4 · 2023: 5 · 2022: 7 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 8 · 2017: 9 · 2016: 12 · 2015: 6 · 2014: 12 · 2013: 13 · 2012: 9
FWCI: 50.47
Type: journal article
Language: en
Open access: closed
Locations: Journal of Gerontology (publishedVersion)
PubMed (publishedVersion)
Topics: Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
Keywords: caregiver burden, family caregivers, older adults, activities of daily living, cognitive impairment, disruptive behavior, sociability, family caregiving
MeSH terms: Activities of Daily Living, Aged, Attitude, Behavior, Cognition, Family, Home Nursing, Humans

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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

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