Cited by 582Intergenerational Family Dynamics and CaregivingNursing care and researchAging, Elder Care, and Social Issues

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

Poulshock, S. W., Deimling, G. T.·1984·Journal of Gerontology

DOI 10.1093/geronj/39.2.230

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Abstract

This paper examines the concept of caregiving burden and urges a multidimensional perspective in which burden is viewed as a mediating force between the elders' impairments and the impact that caregiving has on the lives of caregivers and their families. The analysis underscores the need to apply the concept of burden to subjective interpretations by caregivers of the elders' different kinds of impairments including impairment of activities of daily living, cognitive incapacity, disruptive behavior, and lack of sociability. The analysis also demonstrates that a variety of less subjective effects of caregiving are important and measureable. These issues are elaborated and illustrated using data and findings from the Benjamin Rose Institute's survey of 614 families in which impaired elders resided with and were provided care by family members.

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Crossref · 10.1093/geronj/39.2.230

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“Poulshock and Deimling (1984) and Deimling and Bass (1986) point out that impairment should be discerned in terms of the different ways it affects caregivers, distinguishing, say, disruptive behaviors from cognitive deficits.”
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Patterns of distress in parents of children undergoing stem cell transplantation
Phipps, S., Dunavant, M., Lensing, S., & Rai, S. N. (2004) · Pediatric Blood & Cancer · doi:10.1002/pbc.20101 · Cited by 48
“This 14-item [28], unidimensional instrument measures the burden a parent experiences in caring for the patient.”
Background
The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review
Whalen, K. J., & Buchholz, S. W. (2009) · JBI Library of Systematic Reviews · doi:10.11124/jbisrir-2009-213 · Cited by 49
Caring for relatives with dementia — Caregiver experiences of relatives of patients on the waiting list for admission to a psychogeriatric nursing home in The Netherlands
Meiland, F. J. M., Danse, J. A. C., Wendte, J. F., Klazinga, N., & Gunning-Schepers, L. J. (2001) · Scandinavian Journal of Public Health · doi:10.1177/14034948010290020801 · Cited by 49
Perceptions of Relationship Change and Caregiver Satisfaction
Walker, A. J., Shin, H., & Bird, D. (1990) · Family Relations · doi:10.2307/585716 · Cited by 49
Self-Control Skillfulness and Caregiver Burden Among Help-Seeking Elders
Intrieri, R. C., & Rapp, S. R. (1994) · Journal of Gerontology · doi:10.1093/geronj/49.1.p19 · Cited by 48
An Exploration of Attachment Styles and Personality Traits in Caregiving for Dementia Patients
Markiewicz, D., Reis, M. F., & Gold, D. P. (1997) · The International Journal of Aging and Human Development · doi:10.2190/t4q4-e8f0-jwt5-dbag · Cited by 48
“” This scale has been supplemented with items which tap the ramifications of the burden on other aspects of the caregiver’s life as suggested by Poulshock and Deimling [27].”
Method

Authors: Poulshock, S. W., & Deimling, G. T.
Affiliations: Benjamin Rose Institute on Aging (US)
Case Comprehensive Cancer Center (US)
ORCID: Deimling, G. T.
Venue: Journal of Gerontology
Publisher: Oxford University Press (OUP)
Published: 1984-03-01
Volume: 39
Issue: 2
Pages: 230-239
ISSN: 0022-1422 (ISSN-L)
DOI: 10.1093/geronj/39.2.230
OpenAlex: W2016101351
Cited by: 582
References: 0
Citations by year: 2026: 3 · 2025: 5 · 2024: 4 · 2023: 5 · 2022: 7 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 8 · 2017: 9 · 2016: 12 · 2015: 6 · 2014: 12 · 2013: 13 · 2012: 9
FWCI: 50.47
Type: journal article
Language: en
Open access: closed
Locations: Journal of Gerontology (publishedVersion)
PubMed (publishedVersion)
Topics: Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
Keywords: caregiver burden, family caregivers, older adults, activities of daily living, cognitive impairment, disruptive behavior, sociability, family caregiving
MeSH terms: Activities of Daily Living, Aged, Attitude, Behavior, Cognition, Family, Home Nursing, Humans

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

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