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Cited by 391Dementia and Cognitive Impairment ResearchIntergenerational Family Dynamics and CaregivingNursing care and research

Racial, Ethnic, and Cultural Differences in the Dementia Caregiving Experience

Janevic, Mary R., M Connell, Cathleen·2001·The Gerontologist
DOI 10.1093/geront/41.3.334
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Abstract

PURPOSE: This research reviewed studies that compare two or more racial, ethnic, national, or cultural groups on aspects of the dementia caregiving experience. DESIGN AND METHODS: Electronic databases were searched to find studies published between 1996 and 2000 in peer-reviewed journals that met the above criteria. RESULTS: Twenty-one studies based on 18 samples were identified. These articles included comparisons involving the following groups of caregivers: African Americans, Chinese, Chinese Americans, Koreans, Korean Americans, Latinos, Whites, and residents of 14 European Union countries. Consistent with previous research, White caregivers were more likely to be spouses when compared to other groups. White caregivers tended to report greater depression and appraised caregiving as more stressful than African American caregivers. Findings were mixed regarding differences in coping and social support, but suggested that minority groups may not have more available support than Whites. Common methodological limitations were a lack of noncaregiving control groups and failure to test specific pathways by which the grouping variable (e.g., race) exerts its impact on outcome variables. IMPLICATIONS: Future studies in this area should use both quantitative and qualitative research methods to specify the pathways by which race, ethnicity, and culture affect the caregiving experience, and should expand their focus beyond the primary caregiver to include the effects of caregiving on families and networks.

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Crossref · 10.1093/geront/41.3.334

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  • There is limited research on whether cultural differences translate to more or fewer hours of care provided.

    “however, there is limited research on whether these differences translate to more or fewer hours of care provided.25–29”

    From Societal Costs of Dementia: 204 Countries, 2000–2019 (2024) · cites this paper as [26]

  • Cultural differences are known to affect caregiver motivation, wellbeing, and burden.

    “Cultural differences are known to affect caregiver motivation, wellbeing, and burden; however, there is limited research on whether these differences translate to more or fewer hours of care provided.25–29”

    From Societal Costs of Dementia: 204 Countries, 2000–2019 (2024) · cites this paper as [26]

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Authors
Janevic, M. R., & M Connell, C.
Affiliations
University of Michigan (US)
Corresponding author
Janevic, Mary R.
ORCID
Janevic, Mary R.
Venue
The Gerontologist
Publisher
Oxford University Press (OUP)
Published
2001-06-01
Volume
41
Issue
3
Pages
334-347
ISSN
  • 0016-9013 (ISSN-L)
  • 1758-5341
DOI
10.1093/geront/41.3.334
OpenAlex
W2123819437
Cited by
391
References
60
Citations by year
2026: 4 · 2025: 6 · 2024: 17 · 2023: 10 · 2022: 5 · 2021: 11 · 2020: 14 · 2019: 16 · 2018: 13 · 2017: 11 · 2016: 13 · 2015: 14 · 2014: 21 · 2013: 20 · 2012: 26
FWCI
9.70
Type
journal article
Language
en
Open access
closed
Locations
  • The Gerontologist (publishedVersion)
  • PubMed (publishedVersion)
Funders
  • National Institutes of Health
  • U.S. Public Health Service
  • National Institute on Aging (P50AG008671, P50 AG08671)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
Keywords
dementia caregiving, racial and ethnic differences, cultural differences, African American caregivers, Chinese Americans, Korean Americans, Latino caregivers, caregiver stress, caregiver depression, coping, social support, spousal caregivers
MeSH terms
Aged, Alzheimer Disease, Attitude, Cross-Cultural Comparison, Depression, Europe, Female, Humans, Male, Social Support, Caregivers

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