A Systematic Review on Navigation Programs for Persons Living with Dementia and Their Caregivers
Abstract
BACKGROUND AND OBJECTIVES: System navigation programs are becoming more available to meet the needs of patients with complex care needs. The aim of this review was to systematically assess the outcomes of navigation programs for persons with dementia and their family caregivers. RESEARCH DESIGN AND METHODS: A systematic review methodology was employed. Ten databases were searched for all relevant articles published until October 30, 2021. English-language full-text articles were included if they focused on implemented navigation program(s) that primarily supported persons with dementia who were aged 50 or older. Methodological quality was assessed by 2 independent raters using the Physiotherapy Evidence Database Scale, the STrengthening the Reporting of OBservational studies in Epidemiology checklist, and the Mixed Methods Appraisal Tool. RESULTS: Fourteen articles were included in the review. There was Level 1 evidence for the benefits of system navigation programs on delaying institutionalization, wherein benefits appeared to be specific to interventions that had an in-person component. There was Level 1 (n = 4) and Level 3 (n = 1) evidence on service use from time of diagnosis to continued management of dementia. Finally, Level 1 to Level 5 evidence indicated a number of benefits on caregiver outcomes. DISCUSSION AND IMPLICATIONS: There is strong evidence on the benefits of system navigation for people with dementia on delaying institutionalization and caregiver outcomes, but outcomes across other domains (i.e., functional independence) are less clear, which may be due to the varied approaches within system navigation models of care.
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Previous efforts often faltered because they relied on fragmented initiatives, short-term funding, or the efforts of individual champions.
“Previous efforts often faltered because they relied on fragmented initiatives, short-term funding, or the efforts of individual champions [48,49].”
From Home care comparison (2026) · cites this paper as [49]
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- Authors
- Kokorelias, K. M., Shiers-Hanley, J. E., Li, Z., & Hitzig, S. L.
- Affiliations
- Sunnybrook Health Science Centre (CA)
- University of Toronto (CA)
- Corresponding author
- Hitzig, Sander L
- Venue
- The Gerontologist
- Publisher
- Oxford University Press (OUP)
- Published
- 2022-04-19
- Volume
- 63
- Issue
- 8
- Pages
- 1341-1350
- ISSN
- 0016-9013 (ISSN-L)
- 1758-5341
- OpenAlex
- W4224304571
- Cited by
- 21
- References
- 47
- Citations by year
- 2026: 7 · 2025: 6 · 2024: 5 · 2023: 3
- FWCI
- 0.60
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Gerontologist (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Alzheimer’s Society of Canada Quality of Life Stream Post-Doctoral
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia, family caregivers, service utilization, caregiver outcomes, functional independence, complex care needs, models of care
- MeSH terms
- Dementia, Humans, Language, Caregivers, Observational Studies as Topic
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